Re: Is there really an 80% chance?

[Guest guest]

I have no idea what the percentages are. I can only speak for myself, and say

that I am sooooooo much better then before SCD. I'm almost at the 2 year mark,

but am going to stick to SCD. I don't ever want to go back to the way I was!

Holly

Crohn's

SCD 12/01/08

>

> Hi,

>

> This is mainly for the crohn's veterans on SCD.

> But from what I've read online I've seen articles that mentioned that there's

an 80% chance of getting better on SCD. I'd like to know if this is what you

have experienced on this discussion board or is that statistic just inflated. If

it is, what percentage of people do you think actually get better on this?

>

> thanks,

>

>

[Guest guest]

Hi ,

I think it's impossible to say b/c we never know why people drop out of sight on

these discussion groups--it could be b/c they stopped the diet or it could be

b/c they're doing so well on the diet they don't need the support and help the

group provides....

I will say that a LOT of people get better eating SCD, but that's pretty

unscientific.

Feel well,

Ellen

13 y/o dd scd for 4 years for Crohn's

8 y/o dd one month since Crohn's dx

[Guest guest]

100 if they do it right - at least that's what i've seen on here in 3 years -

ok maybe 99 - lol- seriously how can it not help

eileen

>

> Hi,

>

> This is mainly for the crohn's veterans on SCD.

> But from what I've read online I've seen articles that mentioned that there's

an 80% chance of getting better on SCD. I'd like to know if this is what you

have experienced on this discussion board or is that statistic just inflated. If

it is, what percentage of people do you think actually get better on this?

>

> thanks,

>

>

[Guest guest]

I was also a little skeptical at first, but the diet has definitely helped me.

I feel better and more in control of the disease. I did not 'get better'

though. I still have some periods of blood or stomach aches, and I adjust the

diet and medications in response. The diet definitely helps me but it's not a

magic cure.

Joe

Crohn's & Remicade ~10 years

SCD 8 months

>

> Hi,

>

> This is mainly for the crohn's veterans on SCD.

> But from what I've read online I've seen articles that mentioned that there's

an 80% chance of getting better on SCD. I'd like to know if this is what you

have experienced on this discussion board or is that statistic just inflated. If

it is, what percentage of people do you think actually get better on this?

>

> thanks,

>

>

[Guest guest]

" I was also a little skeptical at first, but the diet has definitely helped me.

I feel better and more in control of the disease. I did not 'get better'

though. I still have some periods of blood or stomach aches, and I adjust the

diet and medications in response. The diet definitely helps me but it's not a

magic cure.

Joe "

My 15 yo son with UC has had pretty much the same experience. He's been on the

diet for over a year (and LDN for 4 months) and is a bit better, but nowhere

near " cured " . We were hoping it would be " magic " , but it just isn't. He went off

it for only 3 days and got worse immediately, so we know it is helping, but the

bleeding has never stopped completely, except for periods when he's on Rowasa

enemas and only eating chicken soup and applesauce.

[Guest guest]

Yeah... How do you know when folks do it right? My experience w/ parents who

inquired after a rare foods rotation diet when my kidz were young... or

supposed research which was done and didn't prove the theory out is that they

weren't motivated to do it RIGHT!!! It's a lot of trouble but how much trouble

is a life worth?!!?

Artful Carol

Former me: From babyhood - CFS, Depression, Candida, Severe Chemical, Inhalant,

and Food Allergies. Current me: Global Carb and Fungal Problems well-controlled

past 30 yr. by extremely low-carb, no dairy, no grains allergy/anti-yeast diet,

SCD 01/05. After 35 yrs. no need for allergy shots since SCD! Magnesium/Vits

A, B, D, E/Evening Primrose, Fish, Olive, and Other Oils, Lecithin. 2 grown kids

recovered from serious developmental problems which I believe were

fungally-caused.

>

> 100 if they do it right - at least that's what i've seen on here in 3 years -

ok maybe 99 - lol- seriously how can it not help

> eileen

[Guest guest]

I rarely even check this group any more because life for my 11yr old and the rest of our family has changed so much due to her miraculous success with SCD!!She had every horrible Crohn's symptom (fissure, fistula, rash on shins, sores in mouth, horrible joint pain and cracking, horrible stomach pain, diarrhea, mood swings, eye problems and back aches) and missed 7 wks of school because of it. She was 8 and probably was healing faster than adults but the day she started SCD everything changed!!Within 3 days she was back in school. After 2 weeks she was cautiously back in soccer. We had many many ups and downs but we followed SCD for 15 months FANATICALLY.Since beginning SCD my daughter Bridget, now 11, has NEVER been back to a doctor (for Crohn's) , been on meds or

missed a day of school. It was a long difficult road but we owe all her healing to SCD.I am NOT saying these are results to be expected but I am saying SCD saved the quality of my daughter's life. It allowed her to heal to the point where she can live a normal life just gluten and dairy free. She's a bit thin but not out of the norm and slowly gaining. If she shows even minor symptoms we cut back on carbs and she will always take probiotics and we still make the SCD yogurt. However, she's the fastest runner and can run the longest on her travel soccer team!!The rest of our family has also benefited tremendously because of what we've learned through SCD. We all went through the 'intro stage' and followed SCD for a while (3-6 mos).We have faced the fact that our whole family of 6 should not be eating dairy or gluten for life (some rare

occasions like parties). I believe now eating gluten/dairy free has changed our lives forever.-I had four athletic children with asthma and none of them have it any more!-Acne was a problem ...GONE!-Allergies.......almost nonexistent.-All six of us were catching colds and flu's all the time.....now rarely to never are any of us sick. (and we're frequently around sick toddlers because I babysit) I haven't had even a cold in 3 years!-My digestion problems ....gone.I strongly suggest that anyone out there who is on SCD take a look at the rest of your family/friends and for signs of milk/gluten intolerance or allergy symptoms that I've described above. Do they have any autoimmune issues, ADD? I'm even question diabetes, autism, epilepsy,

Tourette's and several other diseases that I've studied. Getting them off dairy and gluten NOW could change their lives and possibly save them from a needing to follow the complete SCD diet later.I am also certain that the chronic colic, constipation and infections my daughter experienced as an infant and young child were due to dairy and or gluten intolerance (she tests negative for dairy milk allergies...she's obviously intolerant). If only the doctors had suggested getting off dairy when she was young her whole life would have been so much healthier and had so much less suffering. Much of my extended family won't or took a very long time to believe me but those that have are so grateful. My brother FINALLY listened cut out dairy and not longer has chronic sinus infections. Doctors claim to have NO idea where all

these autoimmune diseases come from. From years of my own research I think much of it starts with dairy and or gluten intolerances and progresses to leaky gut and finally some type of autoimmune or other disease.SCD is fantastic for healing and possibly/occasionally curing but I say we try to pass on the word to the rest of the world....'Get off the dairy and gluten before you reach the SCD stage!!' The doctors don't know, don't care or don't want us to know because they make no money simply telling patients to get off milk and or gluten. I'm not sure I just know MOST drs I talk to refuse to even listen.My children/family is passing on the word ourselves!...we have helped soooo many people! We talk about it to others around us daily. I'm glad we have turned this horrible experience into something very very positive. Donna

O'ConnorSubject: Re: Is there really an 80% chance?To: BTVC-SCD Date: Saturday, October 9, 2010, 11:19 PM

I have no idea what the percentages are. I can only speak for myself, and say that I am sooooooo much better then before SCD. I'm almost at the 2 year mark, but am going to stick to SCD. I don't ever want to go back to the way I was!

Holly

Crohn's

SCD 12/01/08

>

> Hi,

>

> This is mainly for the crohn's veterans on SCD.

> But from what I've read online I've seen articles that mentioned that there's an 80% chance of getting better on SCD. I'd like to know if this is what you have experienced on this discussion board or is that statistic just inflated. If it is, what percentage of people do you think actually get better on this?

>

> thanks,

>

>

[Guest guest]

Donna, this is wonderful- thanks for posting.

PJ

>

> >

>

> > Hi,

>

> >

>

> > This is mainly for the crohn's veterans on SCD.

>

> > But from what I've read online I've seen articles that mentioned that

there's an 80% chance of getting better on SCD. I'd like to know if this is what

you have experienced on this discussion board or is that statistic just

inflated. If it is, what percentage of people do you think actually get better

on this?

>

> >

>

> > thanks,

>

> >

>

> >

>

[Guest guest]

our family has changed so much due to her miraculous success with SCD!!Wow! Thank you so much for your inspiring story. Congratulations to you and all your family. Anne-Marie in AustraliaIBS 2007SCD 4 months (almost)

[Guest guest]

At 10:14 AM 10/12/2010, you wrote:

I rarely even check this group

any more because life for my 11yr old and the rest of our family has

changed so much due to her miraculous success with

SCD!!

This is wonderful to hear -- and thank you for posting!

It's hard, sometimes, to get a good answer from a group like this because

the ones who have gotten well usually don't post here any more. (Some of

us are crazy and stay to teach.) Most folks who have gotten well are

going on about their lives, having gotten their health back.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

Thanks Donna, Crohn's is very tricky. From my research there's an entire

spectrum of people that are helped from SCD. Some moreso than others. Sometimes,

I suspect as in your daughter's case, Crohn's was completely caused by gut

disbiosis due to some kind of food and then can be helped or even cured with

SCD. Thanks for your story!

.

>

> >

>

> > Hi,

>

> >

>

> > This is mainly for the crohn's veterans on SCD.

>

> > But from what I've read online I've seen articles that mentioned that

there's an 80% chance of getting better on SCD. I'd like to know if this is what

you have experienced on this discussion board or is that statistic just

inflated. If it is, what percentage of people do you think actually get better

on this?

>

> >

>

> > thanks,

>

> >

>

> >

>

[Guest guest]

Wow Donna..

What a lovely thing to read in the AM.

Thank you for sharing!

Jodi

[Guest guest]

This was very humbling and encouraging to read... thank you for posting it Donna

O'connor!!!

I am inspired!!!

I am persisting with the SCD, and could not agree more on the situation with

dairy and gluten/grains.

OUt of curiosity, do you and your family eat grains now/again?? Or is it just

gluten you cut out??

I am learning so so much about true, real, deep gut healing, and it was lovely

to read of a whole family, extended family and their friends all getting

wonderful, lifechanging results!

Keep spreading the knowledge and empowering people!!!

Fiona

xo

>

> >

>

> > Hi,

>

> >

>

> > This is mainly for the crohn's veterans on SCD.

>

> > But from what I've read online I've seen articles that mentioned that

there's an 80% chance of getting better on SCD. I'd like to know if this is what

you have experienced on this discussion board or is that statistic just

inflated. If it is, what percentage of people do you think actually get better

on this?

>

> >

>

> > thanks,

>

> >

>

> >

>

[Guest guest]

I'm a big fan of scd! This is my 1 year mark and have had no flare ups for about

14 months and on NO meds! I'm also about to deliver a baby in couple weeks and

plan on staying fanatically on this diet for atleast another 6 months! I do hope

to introduce certain foods in the upcoming year but I'll go slow....Your message

was so hopeful...Thank you! Becky

> >

> > Hi,

> >

> > This is mainly for the crohn's veterans on SCD.

> > But from what I've read online I've seen articles that mentioned that

there's an 80% chance of getting better on SCD. I'd like to know if this is what

you have experienced on this discussion board or is that statistic just

inflated. If it is, what percentage of people do you think actually get better

on this?

> >

> > thanks,

> >

> >

>

[Guest guest]

I just want to say a big thank you to Donna and Becky and all of the others who took the time to tell your story.. It is a big boost to those of us who have just started this journey.. I reached my 3 month mark yesterday and it is at these times that you think OMG I still have such a long way to go.. But stories like these make it oh so worth the time..

Thanks for reaching a hand back to those of us just starting out..

Blessing to you and your families for many many years of Great Health

41

Sept 2009 UC

July 12 2010 SCD

To: BTVC-SCD Sent: Wed, October 13, 2010 8:51:00 PMSubject: Re: Is there really an 80% chance?

I'm a big fan of scd! This is my 1 year mark and have had no flare ups for about 14 months and on NO meds! I'm also about to deliver a baby in couple weeks and plan on staying fanatically on this diet for atleast another 6 months! I do hope to introduce certain foods in the upcoming year but I'll go slow....Your message was so hopeful...Thank you! Becky> >> > Hi, > > > > This is mainly for the crohn's veterans on SCD.> > But from what I've read online I've seen articles that mentioned that there's an 80% chance of getting better on SCD. I'd like to know if this is what you have experienced on this discussion board or is that statistic just inflated. If it is, what percentage of people do you think actually get better on this?> > > > thanks,> > > >>