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Re: Update on - the non RSS twin

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I don't understand why the doctors were upset with Becca's weight. My

non RSS child who is 5 weights 45 pounds... I don't think she's over

weight. No doctor has ever mentioned to me about putting her on a

special diet. We do need to watch what she eats.. she will always ask

for more, but we need to realize that after 2nds.. she has had enough.

Strangely my RSS child will eat with no problems. Today I " m trying to

feed her every hour. Not big things.. just snacks. I feel like I have

let the ball drop with . I need to take advantage of her

willingness to eat while I can. But no matter what I do.. she's still

under weight.

Hang in there Judith... keep us posted!

Pickett

Sidny27 wrote:

> Hi all,

>

> While we saw Dr H on Friday, she also weighed/measured . No

> surprise, she wasn't happy. Becca is currently 109.2 cm and 22.4 kg

> (43 inches and 49 1/2 pounds). That puts Becca in the 25% for

> height and 75% for weight. Needless to say, we got a lecture on

> what/how much we feed her. While I agree that we could push the

> healthier foods, I will NOT refuse my child food when she says she

> is hungry (which is ALWAYS)!!! She even hates our choice of

> vegetables - peas and corn are at the top of Becca's list. Dr H

> wants us to push the broccoli, asparagus, cauliflower, green beans

> and wax beans. Thankfully, Becca seems to like all of these except

> cauliflower, so we will try.

>

> Dr H wants us to bring Becca back in 6 months for a bone age. She

> is very concerned about early puberty (which runs in my family for

> the girls). I have a feeling that we will be doing blood work on

> her soon as well.

>

> Additionally, she feels that Becca is hyperlexic. Becca does fit

> many characteristics. She started reading at age 3 and is obsessed

> by books. She is awkward socially and doesn't quite fit in.

> However, the school counselor says that Becca is very advance in her

> compassion and will go over to children who are alone and try to

> befriend them. I am trying to decide if this is an issue I should

> bring up when we have our IEP meeting or not. Becca currently

> receives PT, OT and counseling. Becca is currently on anti-anxiety

> medication.

>

> Does anyone know anything about hyperlexia? If so, please email me

> or post.

>

> Judith, Steve, (RSS) and (non RSS) 6 year old twins

>

>

>

>

>

>

>

>

>

>

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Hey Judith...... great news for and as always, I suppose with twins, there

will be two sides to every coin!! But at least you have a knowledge of what to

expect if you are going to travel down THAT road once again!

I don't know a thing about hyperlexia.....I am intrigued to learn more. I hope

someone knows and they post it!! If you get any private ones, let me know the

gist of it!!

Have a good day and thanks for updating us!!

Debby B.

Update on - the non RSS twin

Hi all,

While we saw Dr H on Friday, she also weighed/measured . No

surprise, she wasn't happy. Becca is currently 109.2 cm and 22.4 kg

(43 inches and 49 1/2 pounds). That puts Becca in the 25% for

height and 75% for weight. Needless to say, we got a lecture on

what/how much we feed her. While I agree that we could push the

healthier foods, I will NOT refuse my child food when she says she

is hungry (which is ALWAYS)!!! She even hates our choice of

vegetables - peas and corn are at the top of Becca's list. Dr H

wants us to push the broccoli, asparagus, cauliflower, green beans

and wax beans. Thankfully, Becca seems to like all of these except

cauliflower, so we will try.

Dr H wants us to bring Becca back in 6 months for a bone age. She

is very concerned about early puberty (which runs in my family for

the girls). I have a feeling that we will be doing blood work on

her soon as well.

Additionally, she feels that Becca is hyperlexic. Becca does fit

many characteristics. She started reading at age 3 and is obsessed

by books. She is awkward socially and doesn't quite fit in.

However, the school counselor says that Becca is very advance in her

compassion and will go over to children who are alone and try to

befriend them. I am trying to decide if this is an issue I should

bring up when we have our IEP meeting or not. Becca currently

receives PT, OT and counseling. Becca is currently on anti-anxiety

medication.

Does anyone know anything about hyperlexia? If so, please email me

or post.

Judith, Steve, (RSS) and (non RSS) 6 year old twins

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Hi

I think the issue here is the height vs weight. Your non RSS 5 year old may be

much taller than Becca and that is the difference. You might check that out too!

Debby B.

Re: Update on - the non RSS twin

I don't understand why the doctors were upset with Becca's weight. My

non RSS child who is 5 weights 45 pounds... I don't think she's over

weight. No doctor has ever mentioned to me about putting her on a

special diet. We do need to watch what she eats.. she will always ask

for more, but we need to realize that after 2nds.. she has had enough.

Strangely my RSS child will eat with no problems. Today I " m trying to

feed her every hour. Not big things.. just snacks. I feel like I have

let the ball drop with . I need to take advantage of her

willingness to eat while I can. But no matter what I do.. she's still

under weight.

Hang in there Judith... keep us posted!

Pickett

Sidny27 wrote:

> Hi all,

>

> While we saw Dr H on Friday, she also weighed/measured . No

> surprise, she wasn't happy. Becca is currently 109.2 cm and 22.4 kg

> (43 inches and 49 1/2 pounds). That puts Becca in the 25% for

> height and 75% for weight. Needless to say, we got a lecture on

> what/how much we feed her. While I agree that we could push the

> healthier foods, I will NOT refuse my child food when she says she

> is hungry (which is ALWAYS)!!! She even hates our choice of

> vegetables - peas and corn are at the top of Becca's list. Dr H

> wants us to push the broccoli, asparagus, cauliflower, green beans

> and wax beans. Thankfully, Becca seems to like all of these except

> cauliflower, so we will try.

>

> Dr H wants us to bring Becca back in 6 months for a bone age. She

> is very concerned about early puberty (which runs in my family for

> the girls). I have a feeling that we will be doing blood work on

> her soon as well.

>

> Additionally, she feels that Becca is hyperlexic. Becca does fit

> many characteristics. She started reading at age 3 and is obsessed

> by books. She is awkward socially and doesn't quite fit in.

> However, the school counselor says that Becca is very advance in her

> compassion and will go over to children who are alone and try to

> befriend them. I am trying to decide if this is an issue I should

> bring up when we have our IEP meeting or not. Becca currently

> receives PT, OT and counseling. Becca is currently on anti-anxiety

> medication.

>

> Does anyone know anything about hyperlexia? If so, please email me

> or post.

>

> Judith, Steve, (RSS) and (non RSS) 6 year old twins

>

>

>

>

>

>

>

>

>

>

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Judith,

I'm sorry to hear of your issues with . It must be difficult to

manage feeding every calorie you can while watching what

eats.

Have you ever tried putting cauliflower through the food processor? We

add some milk, butter and garlic and it tastes just like mashed

potatoes.

Colin (RSS) and Hayden - 5 years 2 mo.

Grant - 26 mo.

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Judith,

My 6 year old nephew has been diagnosed with hyperlexia. He was

reading at around 2 and when I say reading I mean words like wrench

and screwdriver. He was also obsessed with numbers and always has to

have stimulation in that area. I noticed when we went to Chilis one

night for dinner he just sat and read things and stared at any numbers

or letters, but he rarely interacts with people. He will not say hi,

bye or really acknowledge anyone unless he doesn't get his way. He is

easily angered and has difficulty handling anywhere that is loud, has

music or someone crying. He may be an extreme case. Most people

would think he was very immature, spoiled and/or autistic.

My sister in law has done a ton of speak therapy as well as

situational therapy trying to help him react better to the things that

bother him. THerapy has helped him a ton and they say the earlier

you can get it, the better. It doesn't sound like Becca is anywhere

as extreme as my nephew. He would never notice someone else in the

class unless they took his place in the front of the line!

Just to reassure you also, I had two children that learned to read

at around four and they were never taught to read. Some kids are very

visual and they just pick it up. They say hyperlexia children are the

ones that alphabetize everything when they are 2 years old. Letters

and numbers are their whole world. I hope you find some answers, if

you need any books let me know, I'll check with my sister in law.

Pattie

>

> Hi all,

>

> While we saw Dr H on Friday, she also weighed/measured . No

> surprise, she wasn't happy. Becca is currently 109.2 cm and 22.4 kg

> (43 inches and 49 1/2 pounds). That puts Becca in the 25% for

> height and 75% for weight. Needless to say, we got a lecture on

> what/how much we feed her. While I agree that we could push the

> healthier foods, I will NOT refuse my child food when she says she

> is hungry (which is ALWAYS)!!! She even hates our choice of

> vegetables - peas and corn are at the top of Becca's list. Dr H

> wants us to push the broccoli, asparagus, cauliflower, green beans

> and wax beans. Thankfully, Becca seems to like all of these except

> cauliflower, so we will try.

>

> Dr H wants us to bring Becca back in 6 months for a bone age. She

> is very concerned about early puberty (which runs in my family for

> the girls). I have a feeling that we will be doing blood work on

> her soon as well.

>

> Additionally, she feels that Becca is hyperlexic. Becca does fit

> many characteristics. She started reading at age 3 and is obsessed

> by books. She is awkward socially and doesn't quite fit in.

> However, the school counselor says that Becca is very advance in her

> compassion and will go over to children who are alone and try to

> befriend them. I am trying to decide if this is an issue I should

> bring up when we have our IEP meeting or not. Becca currently

> receives PT, OT and counseling. Becca is currently on anti-anxiety

> medication.

>

> Does anyone know anything about hyperlexia? If so, please email me

> or post.

>

> Judith, Steve, (RSS) and (non RSS) 6 year old twins

>

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Judith,

My 6 year old nephew has been diagnosed with hyperlexia. He was

reading at around 2 and when I say reading I mean words like wrench

and screwdriver. He was also obsessed with numbers and always has to

have stimulation in that area. I noticed when we went to Chilis one

night for dinner he just sat and read things and stared at any numbers

or letters, but he rarely interacts with people. He will not say hi,

bye or really acknowledge anyone unless he doesn't get his way. He is

easily angered and has difficulty handling anywhere that is loud, has

music or someone crying. He may be an extreme case. Most people

would think he was very immature, spoiled and/or autistic.

My sister in law has done a ton of speak therapy as well as

situational therapy trying to help him react better to the things that

bother him. THerapy has helped him a ton and they say the earlier

you can get it, the better. It doesn't sound like Becca is anywhere

as extreme as my nephew. He would never notice someone else in the

class unless they took his place in the front of the line!

Just to reassure you also, I had two children that learned to read

at around four and they were never taught to read. Some kids are very

visual and they just pick it up. They say hyperlexia children are the

ones that alphabetize everything when they are 2 years old. Letters

and numbers are their whole world. I hope you find some answers, if

you need any books let me know, I'll check with my sister in law.

Pattie

>

> Hi all,

>

> While we saw Dr H on Friday, she also weighed/measured . No

> surprise, she wasn't happy. Becca is currently 109.2 cm and 22.4 kg

> (43 inches and 49 1/2 pounds). That puts Becca in the 25% for

> height and 75% for weight. Needless to say, we got a lecture on

> what/how much we feed her. While I agree that we could push the

> healthier foods, I will NOT refuse my child food when she says she

> is hungry (which is ALWAYS)!!! She even hates our choice of

> vegetables - peas and corn are at the top of Becca's list. Dr H

> wants us to push the broccoli, asparagus, cauliflower, green beans

> and wax beans. Thankfully, Becca seems to like all of these except

> cauliflower, so we will try.

>

> Dr H wants us to bring Becca back in 6 months for a bone age. She

> is very concerned about early puberty (which runs in my family for

> the girls). I have a feeling that we will be doing blood work on

> her soon as well.

>

> Additionally, she feels that Becca is hyperlexic. Becca does fit

> many characteristics. She started reading at age 3 and is obsessed

> by books. She is awkward socially and doesn't quite fit in.

> However, the school counselor says that Becca is very advance in her

> compassion and will go over to children who are alone and try to

> befriend them. I am trying to decide if this is an issue I should

> bring up when we have our IEP meeting or not. Becca currently

> receives PT, OT and counseling. Becca is currently on anti-anxiety

> medication.

>

> Does anyone know anything about hyperlexia? If so, please email me

> or post.

>

> Judith, Steve, (RSS) and (non RSS) 6 year old twins

>

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After reading these posts I looked up this condition on the web and

Isaac fits into many of the characteristics and is obsessed with

doing. He counts everything and lines them up by threes. He has

always loved books from the time he was about 9 months old.

There are a couple of noises that send him into a panic one is the

doorbell and my in'laws phone is the other. He goes ballistic when

he hears them and so I have taped a note over my doorbell that says

please knock. He has been crying at the phone for over a year.

When he is counting or looking at a book he is in his own little

world. I can call his name over and over and he doesn't look at me

or seem to realize I have been talking to him.

In the last month I have noticed that whenever his pants or shirt

ride up and leave skin exposed (ankles, belly, etc.) he immediately

pulls them down. Even when I change his diaper he is constantly

tugging at his shirt to cover his belly. Tonight I put on short

sleeved- pj's and he kept tugging at the sleeves and crying until I

put on long sleeves. His speech therapist is coming tomorrow. Is she

the appropriate person to ask about this? We see the pediatrician on

Friday for a weight check (yikes..I am not looking forward to

another one) should I ask him?

I am so glad you shared this info...

P.S.- Thank you to everyone who gave advice on potty training. It is

very helpful!!

Mimi

Mom to Isaac 25 months (RSS, MCAD, congenital hypothyroidism)

Sofia- 5 months

> >

> > Hi all,

> >

> > While we saw Dr H on Friday, she also weighed/measured .

No

> > surprise, she wasn't happy. Becca is currently 109.2 cm and

22.4 kg

> > (43 inches and 49 1/2 pounds). That puts Becca in the 25% for

> > height and 75% for weight. Needless to say, we got a lecture on

> > what/how much we feed her. While I agree that we could push the

> > healthier foods, I will NOT refuse my child food when she says

she

> > is hungry (which is ALWAYS)!!! She even hates our choice of

> > vegetables - peas and corn are at the top of Becca's list. Dr H

> > wants us to push the broccoli, asparagus, cauliflower, green

beans

> > and wax beans. Thankfully, Becca seems to like all of these

except

> > cauliflower, so we will try.

> >

> > Dr H wants us to bring Becca back in 6 months for a bone age.

She

> > is very concerned about early puberty (which runs in my family

for

> > the girls). I have a feeling that we will be doing blood work

on

> > her soon as well.

> >

> > Additionally, she feels that Becca is hyperlexic. Becca does

fit

> > many characteristics. She started reading at age 3 and is

obsessed

> > by books. She is awkward socially and doesn't quite fit in.

> > However, the school counselor says that Becca is very advance in

her

> > compassion and will go over to children who are alone and try to

> > befriend them. I am trying to decide if this is an issue I

should

> > bring up when we have our IEP meeting or not. Becca currently

> > receives PT, OT and counseling. Becca is currently on anti-

anxiety

> > medication.

> >

> > Does anyone know anything about hyperlexia? If so, please email

me

> > or post.

> >

> > Judith, Steve, (RSS) and (non RSS) 6 year old twins

> >

>

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Judith - When it rains, it pours, doesn't it....

I read some of the replies to your post. Did Dr. H explain where

Becca's BMI is? I charted her (just entered it as a 6-year-old) and

you are correct, 25% for height and 75% for weight, but that makes

her BMI more than the 95th percentile. I just finished revising DR.

Czernichow's chapter for our Guidebook, and had to do a lot of

research. Dr. Harbison is worried, obviously. Her worry is

dictated by her research on children born SGA. Was Becca born SGA

as well as her brother? I remember they were born early, but can't

recall if Becca was SGA and caught up normally or not.

But either way, children in the highest BMI in childhood run

significant risks of developing early puberty, insulin resistance

and a host of other medical issues. This risk increases multifold

if the child is also born small for gestational age.

I am guessing she explained why peas and corns are not high on the

list of ideal vegies, but thank goodness that Becca likes other

vegies!!! My own son eats ONE vegetable.... carrots.... dipped in

hummus, or ranch dressing, etc.

It sounds like you will have two kids on the opposite spectrum. One

has a strong appetite that will have to be monitored in terms of

caloric intake, and the other has the weak appetite that will also

have to be monitored in terms of caloric intake. I have NO idea how

you balance that! I wish you the absolute best. I hope others can

have some answers for you on the ...lexic question.

Lots of love!!!

>

> Hi all,

>

> While we saw Dr H on Friday, she also weighed/measured .

No

> surprise, she wasn't happy. Becca is currently 109.2 cm and 22.4

kg

> (43 inches and 49 1/2 pounds). That puts Becca in the 25% for

> height and 75% for weight. Needless to say, we got a lecture on

> what/how much we feed her. While I agree that we could push the

> healthier foods, I will NOT refuse my child food when she says she

> is hungry (which is ALWAYS)!!! She even hates our choice of

> vegetables - peas and corn are at the top of Becca's list. Dr H

> wants us to push the broccoli, asparagus, cauliflower, green beans

> and wax beans. Thankfully, Becca seems to like all of these

except

> cauliflower, so we will try.

>

> Dr H wants us to bring Becca back in 6 months for a bone age. She

> is very concerned about early puberty (which runs in my family for

> the girls). I have a feeling that we will be doing blood work on

> her soon as well.

>

> Additionally, she feels that Becca is hyperlexic. Becca does fit

> many characteristics. She started reading at age 3 and is

obsessed

> by books. She is awkward socially and doesn't quite fit in.

> However, the school counselor says that Becca is very advance in

her

> compassion and will go over to children who are alone and try to

> befriend them. I am trying to decide if this is an issue I should

> bring up when we have our IEP meeting or not. Becca currently

> receives PT, OT and counseling. Becca is currently on anti-

anxiety

> medication.

>

> Does anyone know anything about hyperlexia? If so, please email

me

> or post.

>

> Judith, Steve, (RSS) and (non RSS) 6 year old twins

>

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Judith - When it rains, it pours, doesn't it....

I read some of the replies to your post. Did Dr. H explain where

Becca's BMI is? I charted her (just entered it as a 6-year-old) and

you are correct, 25% for height and 75% for weight, but that makes

her BMI more than the 95th percentile. I just finished revising DR.

Czernichow's chapter for our Guidebook, and had to do a lot of

research. Dr. Harbison is worried, obviously. Her worry is

dictated by her research on children born SGA. Was Becca born SGA

as well as her brother? I remember they were born early, but can't

recall if Becca was SGA and caught up normally or not.

But either way, children in the highest BMI in childhood run

significant risks of developing early puberty, insulin resistance

and a host of other medical issues. This risk increases multifold

if the child is also born small for gestational age.

I am guessing she explained why peas and corns are not high on the

list of ideal vegies, but thank goodness that Becca likes other

vegies!!! My own son eats ONE vegetable.... carrots.... dipped in

hummus, or ranch dressing, etc.

It sounds like you will have two kids on the opposite spectrum. One

has a strong appetite that will have to be monitored in terms of

caloric intake, and the other has the weak appetite that will also

have to be monitored in terms of caloric intake. I have NO idea how

you balance that! I wish you the absolute best. I hope others can

have some answers for you on the ...lexic question.

Lots of love!!!

>

> Hi all,

>

> While we saw Dr H on Friday, she also weighed/measured .

No

> surprise, she wasn't happy. Becca is currently 109.2 cm and 22.4

kg

> (43 inches and 49 1/2 pounds). That puts Becca in the 25% for

> height and 75% for weight. Needless to say, we got a lecture on

> what/how much we feed her. While I agree that we could push the

> healthier foods, I will NOT refuse my child food when she says she

> is hungry (which is ALWAYS)!!! She even hates our choice of

> vegetables - peas and corn are at the top of Becca's list. Dr H

> wants us to push the broccoli, asparagus, cauliflower, green beans

> and wax beans. Thankfully, Becca seems to like all of these

except

> cauliflower, so we will try.

>

> Dr H wants us to bring Becca back in 6 months for a bone age. She

> is very concerned about early puberty (which runs in my family for

> the girls). I have a feeling that we will be doing blood work on

> her soon as well.

>

> Additionally, she feels that Becca is hyperlexic. Becca does fit

> many characteristics. She started reading at age 3 and is

obsessed

> by books. She is awkward socially and doesn't quite fit in.

> However, the school counselor says that Becca is very advance in

her

> compassion and will go over to children who are alone and try to

> befriend them. I am trying to decide if this is an issue I should

> bring up when we have our IEP meeting or not. Becca currently

> receives PT, OT and counseling. Becca is currently on anti-

anxiety

> medication.

>

> Does anyone know anything about hyperlexia? If so, please email

me

> or post.

>

> Judith, Steve, (RSS) and (non RSS) 6 year old twins

>

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Hi Pattie,

Based on your information and what I have been finding online, I am

just not sure this fits . She taught herself to read when she

was 3, but she is very interactive. She is awkward socially, but not

at all withdrawn (onless there is too much activity around her in

which case she will read a book). Becca has read the first 3 Harry

Potter books by herself.

Thanks for the information,

Judith, Steve, (RSS) and (non RSS) 6 year old twins

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Hi ,

Dr H didn't say anything about Becca's BMI. Becca was not born SGA,

she was born at 33 weeks 5 pounds 3 ounces and 17 inches.

Dr H did explain that peas and corn are too starchy. Thankfully I

located a stack of cans of green and wax beans in the cabinet and

pulled some out for dinner tonight. There is also fresh broccoli

that my nanny didn't cook because she didn't think Becca liked it!

I also spoke with my nanny last night about feeding Becca healthier

snacks etc. Part of the problem is that Becca is a grazer. She

comes home from school and asks for snacks all afternoon. Then she

doesn't want to eat dinner but is starving at 7:30 (bedtime is 8).

Last night at 7:30 she ate 2 leftover dumplings, 1/2 banana (shared

with ) and 1 slice of cheese. She then complained she was

still hungry!

Dr H wants to do a bone age on Becca in August and will start

following her more closely now as well. Thankfully the weather will

warm up soon. We start soccer again in April and tball as well.

Judith, Steve, (RSS) and (non RSS) 6 year old twins

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