Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 Hi Kate, My 8 month old is thought to have RSS, thank you for your point of view. We aren't faced with the decision of growth hormone yet, but it's in the back of our minds. I would love to hear your story.... if you would like to tell. My hubby and I haven't discussed GH, and our doctors won't consider it till stops growing. Thanks for tell us how you feel.. again... I would enjoy hearing your story. Pickett greenwalrus1975 wrote: > I'm not new to the site (just a new e-mail address), but reading all > the past posts have got me thinking. Growing up in the mid 70's to > early 80's having RSS we didn't have all the knowledge or know how you > all have today. My mom would tell me how I would throw up after every > feeding and how people would come up to her in the store and > congratulate her for adopting a child from a 3rd world country. They > assumed because I was so small and skinny that I was a malnurshed > child. We didn't have feeding tubes or meds, in fact I was not offered > growth hormones until the age of 12 ( I didn't take them). It just > seems like with the knowledge comes alot more jobs to do and my hats > off to all the parents out there. By the way, has anyone decided not > to give growth hormones? It seems like most of the posts I read > suggest alot of people have choosen the growth hormone route. I'm just > curious. Kate > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 Hi Kate. My 18 mo. old son, Brockton has RSS. I'm just wondering, as I'm sure many of us are, how tall are you now and how much do you weigh? Personal questions, I know! LOL I hope you don't mind! I haven't even considered the possibility of growth hormone or anything else yet as Brocktons Dr.s haven't even brought it up. I would love to hear more about you! Thanks, Jeanie (mom to 19.........as of yesterday! and Brockton 18 mo. RSS) wrote: Hi Kate, My 8 month old is thought to have RSS, thank you for your point of view. We aren't faced with the decision of growth hormone yet, but it's in the back of our minds. I would love to hear your story.... if you would like to tell. My hubby and I haven't discussed GH, and our doctors won't consider it till stops growing. Thanks for tell us how you feel.. again... I would enjoy hearing your story. Pickett greenwalrus1975 wrote: > I'm not new to the site (just a new e-mail address), but reading all > the past posts have got me thinking. Growing up in the mid 70's to > early 80's having RSS we didn't have all the knowledge or know how you > all have today. My mom would tell me how I would throw up after every > feeding and how people would come up to her in the store and > congratulate her for adopting a child from a 3rd world country. They > assumed because I was so small and skinny that I was a malnurshed > child. We didn't have feeding tubes or meds, in fact I was not offered > growth hormones until the age of 12 ( I didn't take them). It just > seems like with the knowledge comes alot more jobs to do and my hats > off to all the parents out there. By the way, has anyone decided not > to give growth hormones? It seems like most of the posts I read > suggest alot of people have choosen the growth hormone route. I'm just > curious. Kate > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 Hi! Just jumping in here....your dr. is way off if he thinks of not doing gh until your daughter stops growing - that will be in many years and probably too late! Emerence is just 3 but we hope to start shortly and she is big compared to most kids here! I do know of one family who debated from the time their daughter was 6 until 10 whether do go GH or not. Now the daughter wants it but she is already 10 and entering puberty and her growth is stopping and now they need to use Lupron in conjunction with Gh in order to get even a bit of height... However, the choice is very personal and everyone chooses what they think will be best. My daughter has personality and is strong and maybe she would be okay socially without having GH for height but I want her to have GH for all the OTHER more important issues - reduce fat to muscle ratio, decrease chances of hypoglycemia and hopefully ward off insulin resistance and type II diabets. Emerence is 3 and the oldest in her daycare class (she will move up to the next class at 39 mo of age) but the smallest. Even today I went to a birthday party for my 6 year old's friend. another mom (who goes tot he same daycare but we rarely see each other) said " oh,my son Sam is in Emerence's class - he says she is so SMALL! " . Emerence meanwhile can control any child no matter waht their size (Napolean complex maybe???? ) But GH is for health too, we are just waiting on the approval from the insurance. > > I'm not new to the site (just a new e-mail address), but reading all > > the past posts have got me thinking. Growing up in the mid 70's to > > early 80's having RSS we didn't have all the knowledge or know how you > > all have today. My mom would tell me how I would throw up after every > > feeding and how people would come up to her in the store and > > congratulate her for adopting a child from a 3rd world country. They > > assumed because I was so small and skinny that I was a malnurshed > > child. We didn't have feeding tubes or meds, in fact I was not offered > > growth hormones until the age of 12 ( I didn't take them). It just > > seems like with the knowledge comes alot more jobs to do and my hats > > off to all the parents out there. By the way, has anyone decided not > > to give growth hormones? It seems like most of the posts I read > > suggest alot of people have choosen the growth hormone route. I'm just > > curious. Kate > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 My son is 8 1/2 yrs old and has never been offered growth hormones of any type. He is now 4ft 1inch tall and weighs 3st 3lbs. (sorry my brain not working well enough to convert today) He is fit and healthy and doing really well at school. Although we do have problems with his diet he always eats plenty of the limited foods that he eats. I am hoping he wont need gh but am open to it should it become necessary in the future. You can see a pic of him in the folder on the support website. Its always nice to hear about others that havnt had gh seems to be one of the few who has never even been given it as an option. Lizzy k mum to Jessie 10yr, 8 1/2yrs RSS, and a very large bump actually due today. greenwalrus1975 wrote: I'm not new to the site (just a new e-mail address), but reading all the past posts have got me thinking. Growing up in the mid 70's to early 80's having RSS we didn't have all the knowledge or know how you all have today. My mom would tell me how I would throw up after every feeding and how people would come up to her in the store and congratulate her for adopting a child from a 3rd world country. They assumed because I was so small and skinny that I was a malnurshed child. We didn't have feeding tubes or meds, in fact I was not offered growth hormones until the age of 12 ( I didn't take them). It just seems like with the knowledge comes alot more jobs to do and my hats off to all the parents out there. By the way, has anyone decided not to give growth hormones? It seems like most of the posts I read suggest alot of people have choosen the growth hormone route. I'm just curious. Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 Good Luck Lizzy! Let us know what the bump is when it hatches. Jody I'm not new to the site (just a new e-mail address), but reading all > the past posts have got me thinking. Growing up in the mid 70's to > early 80's having RSS we didn't have all the knowledge or know how you > all have today. My mom would tell me how I would throw up after every > feeding and how people would come up to her in the store and > congratulate her for adopting a child from a 3rd world country. They > assumed because I was so small and skinny that I was a malnurshed > child. We didn't have feeding tubes or meds, in fact I was not offered > growth hormones until the age of 12 ( I didn't take them). It just > seems like with the knowledge comes alot more jobs to do and my hats > off to all the parents out there. By the way, has anyone decided not > to give growth hormones? It seems like most of the posts I read > suggest alot of people have choosen the growth hormone route. I'm just > curious. Kate > > > > > > Quote Link to comment Share on other sites More sharing options...
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