Guest guest Posted January 21, 2010 Report Share Posted January 21, 2010 You are in my prayers and there will be a next time, Good Luck Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009To: Breathe-Support Sent: Thu, January 21, 2010 2:16:16 PMSubject: My Wednesday I was just making breakfast when the phone rang and it was Shand's asking me how I was doing....... ..they told me to come, they had a single lung for me. and I ran around the house as fast as I could, called Jim who was at work and we both left to go to our agreed upon meeting place....a road side stop. He did fine. I got lost twice on a road I know as well as the bback of my hand. We finally connetd and left in one car for Gainesville. "We got to the hospital yesterday at a little after 11 AM. After registering, they took us to Cardiac Intensive Care Unit. The Cardiac ICU is right next to Operating Room and is the most intensive unit they have. They told us the operation would probably be in the afternoon. At about 3:00 PM, they said the operation involved a young woman who was donating various organs, and the teams harvesting those organs needed to coordinate their timing and complicating this issue was that they were coming from different hospitals. At 4 PM, they said it would be sometimes between 6 and 7. At 7:00, they said it would be between 8 and 9. At 9, they said sometime after 10, and at about 10:30, they came in and said the lung was not suitable and that we would be discharged within about an hour. We were out of the hospital around 11:30.and I needed to eat so we stopped for that. I trust Dr. Baz and the tx team conpletely with their decisions. We got to the hotel around 1 AM and are now on our way home. We continue the wait for the next time. Thank you all for your concern and prayers and well wishes. We are exhausted but no worse for the wear. I plan to be back in the office on Friday morning." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2010 Report Share Posted January 21, 2010 Wow...what an emotional roller coaster ride you've been on!!! I hope the next call means the right lung has arrived for you. You are in my thoughts. Z fibriotic NSIP/05 Z 65, fibriotic NSIP/05/PA And “mild” PH/10/07 No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower patrickkathleen wrote: I was just making breakfast when the phone rang and it was Shand's asking me how I was doing.........they told me to come, they had a single lung for me. and I ran around the house as fast as I could, called Jim who was at work and we both left to go to our agreed upon meeting place....a road side stop. He did fine. I got lost twice on a road I know as well as the bback of my hand. We finally connetd and left in one car for Gainesville. "We got to the hospital yesterday at a little after 11 AM. After registering, they took us to Cardiac Intensive Care Unit. The Cardiac ICU is right next to Operating Room and is the most intensive unit they have. They told us the operation would probably be in the afternoon. At about 3:00 PM, they said the operation involved a young woman who was donating various organs, and the teams harvesting those organs needed to coordinate their timing and complicating this issue was that they were coming from different hospitals. At 4 PM, they said it would be sometimes between 6 and 7. At 7:00, they said it would be between 8 and 9. At 9, they said sometime after 10, and at about 10:30, they came in and said the lung was not suitable and that we would be discharged within about an hour. We were out of the hospital around 11:30.and I needed to eat so we stopped for that. I trust Dr. Baz and the tx team conpletely with their decisions. We got to the hotel around 1 AM and are now on our way home. We continue the wait for the next time. Thank you all for your concern and prayers and well wishes. We are exhausted but no worse for the wear. I plan to be back in the office on Friday morning." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2010 Report Share Posted January 21, 2010 Well everyone needs one dry run right? Next time will be the perfect lung for you! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Thu, January 21, 2010 3:16:16 PMSubject: My Wednesday I was just making breakfast when the phone rang and it was Shand's asking me how I was doing....... ..they told me to come, they had a single lung for me. and I ran around the house as fast as I could, called Jim who was at work and we both left to go to our agreed upon meeting place....a road side stop. He did fine. I got lost twice on a road I know as well as the bback of my hand. We finally connetd and left in one car for Gainesville."We got to the hospital yesterday at a little after 11 AM. After registering, they took us to Cardiac Intensive Care Unit. The Cardiac ICU is right next to Operating Room and is the most intensive unit they have. They told us the operation would probably be in the afternoon. At about 3:00 PM, they said the operation involved a young woman who was donating various organs, and the teams harvesting those organs needed to coordinate their timing and complicating this issue was that they were coming from different hospitals. At 4 PM, they said it would be sometimes between 6 and 7. At 7:00, they said it would be between 8 and 9. At 9, they said sometime after 10, and at about 10:30, they came in and said the lung was not suitable and that we would be discharged within about an hour. We were out of the hospital around 11:30.and I needed to eat so we stopped for that. I trust Dr. Baz and the tx team conpletely with their decisions. We got to the hotel around 1 AM and are now on our way home. We continue the wait for the next time. Thank you all for your concern and prayers and well wishes. We are exhausted but no worse for the wear.I plan to be back in the office on Friday morning." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2010 Report Share Posted January 21, 2010 You must have been so disappointed. But I know the next time will be the winner. My thoughts & prayers are with you. Cees, S Calif IPF/UIP 10/08 > > You are in my prayers and there will be a next time, Good Luck > > Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009 > > > > > > ________________________________ > > To: Breathe-Support > Sent: Thu, January 21, 2010 2:16:16 PM > Subject: My Wednesday > > > I was just making breakfast when the phone rang and it was Shand's asking me how I was doing....... ..they told me to come, they had a single lung for me. and I ran around the house as fast as I could, called Jim who was at work and we both left to go to our agreed upon meeting place....a road side stop. He did fine. I got lost twice on a road I know as well as the bback of my hand.. We finally connetd and left in one car for Gainesville. > " We got to the hospital yesterday at a little after 11 AM. After registering, they took us to Cardiac Intensive Care Unit. The Cardiac ICU is right next to Operating Room and is the most intensive unit they have. They told us the operation would probably be in the afternoon. At about 3:00 PM, they said the operation involved a young woman who was donating various organs, and the teams harvesting those organs needed to coordinate their timing and complicating this issue was that they were coming from different hospitals. At 4 PM, they said it would be sometimes between 6 and 7. At 7:00, they said it would be between 8 and 9. At 9, they said sometime after 10, and at about 10:30, they came in and said the lung was not suitable and that we would be discharged within about an hour. We were out of the hospital around 11:30.and I needed to eat so we stopped for that. I trust Dr. Baz and the tx team conpletely with their decisions. We got to the > hotel around 1 AM and are now on our way home. We continue the wait for the next time. > > Thank you all for your concern and prayers and well wishes. We are exhausted but no worse for the wear. > > I plan to be back in the office on Friday morning. " > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2010 Report Share Posted January 22, 2010 what an eventful & uneventful night next time will be the correct lung Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: My WednesdayTo: Breathe-Support Date: Thursday, January 21, 2010, 3:16 PM I was just making breakfast when the phone rang and it was Shand's asking me how I was doing....... ..they told me to come, they had a single lung for me. and I ran around the house as fast as I could, called Jim who was at work and we both left to go to our agreed upon meeting place....a road side stop. He did fine. I got lost twice on a road I know as well as the bback of my hand. We finally connetd and left in one car for Gainesville."We got to the hospital yesterday at a little after 11 AM. After registering, they took us to Cardiac Intensive Care Unit. The Cardiac ICU is right next to Operating Room and is the most intensive unit they have. They told us the operation would probably be in the afternoon. At about 3:00 PM, they said the operation involved a young woman who was donating various organs, and the teams harvesting those organs needed to coordinate their timing and complicating this issue was that they were coming from different hospitals. At 4 PM, they said it would be sometimes between 6 and 7. At 7:00, they said it would be between 8 and 9. At 9, they said sometime after 10, and at about 10:30, they came in and said the lung was not suitable and that we would be discharged within about an hour. We were out of the hospital around 11:30.and I needed to eat so we stopped for that. I trust Dr. Baz and the tx team conpletely with their decisions. We got to the hotel around 1 AM and are now on our way home. We continue the wait for the next time. Thank you all for your concern and prayers and well wishes. We are exhausted but no worse for the wear.I plan to be back in the office on Friday morning." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2010 Report Share Posted January 22, 2010 Thank you so much everyone for your thoughts and writing.........this was our 2nd dry run. The first one was cancelled an hour after the initial call..........this one was cancelled 10 minutres before I was to go to the OP. But it was a good practice run. We have a list of things to do that needed tweaking here and there, but now that is ready again for the next call. I woulkd have been the 3rd lung tx in 3 days for Shands. Take care and hope everyone has a happy weekend. KAthy...F: pf...07 Wtg for tx call > > > > You are in my prayers and there will be a next time, Good Luck > > > > Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009 > > > > > > > > > > > > ________________________________ > > From: patrickkathleen <patrickkathleen@> > > To: Breathe-Support > > Sent: Thu, January 21, 2010 2:16:16 PM > > Subject: My Wednesday > > > > > > I was just making breakfast when the phone rang and it was Shand's asking me how I was doing....... ..they told me to come, they had a single lung for me. and I ran around the house as fast as I could, called Jim who was at work and we both left to go to our agreed upon meeting place....a road side stop. He did fine. I got lost twice on a road I know as well as the bback of my hand.. We finally connetd and left in one car for Gainesville. > > " We got to the hospital yesterday at a little after 11 AM. After registering, they took us to Cardiac Intensive Care Unit. The Cardiac ICU is right next to Operating Room and is the most intensive unit they have. They told us the operation would probably be in the afternoon. At about 3:00 PM, they said the operation involved a young woman who was donating various organs, and the teams harvesting those organs needed to coordinate their timing and complicating this issue was that they were coming from different hospitals. At 4 PM, they said it would be sometimes between 6 and 7. At 7:00, they said it would be between 8 and 9. At 9, they said sometime after 10, and at about 10:30, they came in and said the lung was not suitable and that we would be discharged within about an hour. We were out of the hospital around 11:30.and I needed to eat so we stopped for that. I trust Dr. Baz and the tx team conpletely with their decisions. We got to the > > hotel around 1 AM and are now on our way home. We continue the wait for the next time. > > > > Thank you all for your concern and prayers and well wishes. We are exhausted but no worse for the wear. > > > > I plan to be back in the office on Friday morning. " > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2010 Report Share Posted January 22, 2010 Kathy, I think Dr. B is going to give you the PPERRRRfect lung. give me a call next time you head N on 75 maybe we can meet for coffee somewhere.. Love & PrayersPeggyIPF, 2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2010 Report Share Posted January 22, 2010 Prayers re with you. Knowing your day will come Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009To: Breathe-Support Sent: Fri, January 22, 2010 9:15:10 AMSubject: Re: My Wednesday Thank you so much everyone for your thoughts and writing..... .....this was our 2nd dry run. The first one was cancelled an hour after the initial call........ ..this one was cancelled 10 minutres before I was to go to the OP. But it was a good practice run. We have a list of things to do that needed tweaking here and there, but now that is ready again for the next call. I woulkd have been the 3rd lung tx in 3 days for Shands. Take care and hope everyone has a happy weekend. KAthy...F: pf...07 Wtg for tx call > > > > You are in my prayers and there will be a next time, Good Luck > > > > Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009 > > > > > > > > > > > > ____________ _________ _________ __ > > From: patrickkathleen <patrickkathleen@ > > > To: Breathe-Support@ yahoogroups. com > > Sent: Thu, January 21, 2010 2:16:16 PM > > Subject: My Wednesday > > > > > > I was just making breakfast when the phone rang and it was Shand's asking me how I was doing....... ..they told me to come, they had a single lung for me. and I ran around the house as fast as I could, called Jim who was at work and we both left to go to our agreed upon meeting place....a road side stop. He did fine. I got lost twice on a road I know as well as the bback of my hand.. We finally connetd and left in one car for Gainesville. > > "We got to the hospital yesterday at a little after 11 AM. After registering, they took us to Cardiac Intensive Care Unit. The Cardiac ICU is right next to Operating Room and is the most intensive unit they have. They told us the operation would probably be in the afternoon. At about 3:00 PM, they said the operation involved a young woman who was donating various organs, and the teams harvesting those organs needed to coordinate their timing and complicating this issue was that they were coming from different hospitals. At 4 PM, they said it would be sometimes between 6 and 7. At 7:00, they said it would be between 8 and 9. At 9, they said sometime after 10, and at about 10:30, they came in and said the lung was not suitable and that we would be discharged within about an hour. We were out of the hospital around 11:30.and I needed to eat so we stopped for that. I trust Dr. Baz and the tx team conpletely with their decisions. We got to the > > hotel around 1 AM and are now on our way home. We continue the wait for the next time. > > > > Thank you all for your concern and prayers and well wishes. We are exhausted but no worse for the wear. > > > > I plan to be back in the office on Friday morning." > > > Quote Link to comment Share on other sites More sharing options...
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