Message regarding Mike M (Mango Man)

[Guest guest]

Oh, how very, very sad. My prayers are with him and his family.----- " Beth" wrote:

>

> > > >

Hi everyone,

Mike (Mango Man) has requested that I update the group regarding what is going on with him. His pulmonologist let him know that his most recent pft had dropped overall about 20% from his last one in September and apparently that one had dropped 20% from the one in May. Long story short his advice was that it was time to call in and request the support of hospice. So that is what he and his lovely wife Sandy are doing now....working on getting things set up the way they need to get Mike the comfort and support for this part of his journey.

Mike specifically requested that I mention that though many of us live alot longer than the often heard 3 years or so, Mike is someone in whom the disease has progressed much faster. That is the flip side of the coin and it's impossible to predict who will be stable for a long time and whose disease will progress quickly. The most important thing is to cherish every moment we have, spend time with those we love and don't take anything for granted.

I know you all join with me in wishing Mike well. I think of Peggy and how much help her hospice organization is helping to make her life enjoyable again. My hope is that hospice can do that for Mike too and that he has many days ahead. >

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

>

>

[Guest guest]

sorry to hear about mango man

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Message regarding Mike M (Mango Man)To: Breathe-Support Date: Saturday, January 30, 2010, 1:17 PM

Hi everyone,

Mike (Mango Man) has requested that I update the group regarding what is going on with him. His pulmonologist let him know that his most recent pft had dropped overall about 20% from his last one in September and apparently that one had dropped 20% from the one in May. Long story short his advice was that it was time to call in and request the support of hospice. So that is what he and his lovely wife Sandy are doing now....working on getting things set up the way they need to get Mike the comfort and support for this part of his journey.

Mike specifically requested that I mention that though many of us live alot longer than the often heard 3 years or so, Mike is someone in whom the disease has progressed much faster. That is the flip side of the coin and it's impossible to predict who will be stable for a long time and whose disease will progress quickly. The most important thing is to cherish every moment we have, spend time with those we love and don't take anything for granted.

I know you all join with me in wishing Mike well. I think of Peggy and how much help her hospice organization is helping to make her life enjoyable again. My hope is that hospice can do that for Mike too and that he has many days ahead.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

[Guest guest]

Beth,

Sorry to hear the sad update about Mike....I shall pray for strength for him and his family.

Patti Indianapolis PF 2007

[Guest guest]

As always, let Mango Man know our thoughts and prayers are with him. We all

know of surprise turnarounds, and " plateaus " or stabilization that sometimes

comes along. I am hoping that with the Hospice help we can hear from Mango Man

again. Like Dyane pointed out, he has always been such a bright spot on our

board.

Stefani 61 year old Utahn (original Minnesotan)

ILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009

>

> Hi everyone,

> Mike (Mango Man) has requested that I update the group regarding what is going

on with him. His pulmonologist let him know that his most recent pft had dropped

overall about 20% from his last one in September and apparently that one had

dropped 20% from the one in May. Long story short his advice was that it was

time to call in and request the support of hospice. So that is what he and his

lovely wife Sandy are doing now....working on getting things set up the way they

need to get Mike the comfort and support for this part of his journey.

>

> Mike specifically requested that I mention that though many of us live alot

longer than the often heard 3 years or so, Mike is someone in whom the disease

has progressed much faster. That is the flip side of the coin and it's

impossible to predict who will be stable for a long time and whose disease will

progress quickly.  The most important thing is to cherish every moment we have,

spend time with those we love and don't take anything for granted.

>

> I know you all join with me in wishing Mike well. I think of Peggy and how

much help her hospice organization is helping to make her life enjoyable

again. My hope is that hospice can do that for Mike too and that he has many

days ahead. 

>  

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>

[Guest guest]

As always, let Mango Man know our thoughts and prayers are with him. We all

know of surprise turnarounds, and " plateaus " or stabilization that sometimes

comes along. I am hoping that with the Hospice help we can hear from Mango Man

again. Like Dyane pointed out, he has always been such a bright spot on our

board.

Stefani 61 year old Utahn (original Minnesotan)

ILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009

>

> Hi everyone,

> Mike (Mango Man) has requested that I update the group regarding what is going

on with him. His pulmonologist let him know that his most recent pft had dropped

overall about 20% from his last one in September and apparently that one had

dropped 20% from the one in May. Long story short his advice was that it was

time to call in and request the support of hospice. So that is what he and his

lovely wife Sandy are doing now....working on getting things set up the way they

need to get Mike the comfort and support for this part of his journey.

>

> Mike specifically requested that I mention that though many of us live alot

longer than the often heard 3 years or so, Mike is someone in whom the disease

has progressed much faster. That is the flip side of the coin and it's

impossible to predict who will be stable for a long time and whose disease will

progress quickly.  The most important thing is to cherish every moment we have,

spend time with those we love and don't take anything for granted.

>

> I know you all join with me in wishing Mike well. I think of Peggy and how

much help her hospice organization is helping to make her life enjoyable

again. My hope is that hospice can do that for Mike too and that he has many

days ahead. 

>  

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>

[Guest guest]

I am so sorry to hear about Mango Man-I thoroughly enjoyed meeting and talking

to him and Sandy in Chattanooga and I love his posts.

Hospice is good--they will do wonderful things for you. Take advantage of all of

their goodies.

My prayers are with both Mike and Sandy.

Love--Jan Titus

IPF 5/2003

TX listed 10/2003 --currently inactive--YEAH!!!!!

And yes I am definitely a lurker--just pop up now and then!!!

Looking forward to visiting Peggy and next week in FL!!!!

> >

> >

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> >

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>

> >

>

> Hi everyone,

> Mike (Mango Man) has requested that I update the group regarding what is going

on with him. His pulmonologist let him know that his most recent pft had dropped

overall about 20% from his last one in September and apparently that one had

dropped 20% from the one in May. Long story short his advice was that it was

time to call in and request the support of hospice. So that is what he and his

lovely wife Sandy are doing now....working on getting things set up the way they

need to get Mike the comfort and support for this part of his journey.

>

> Mike specifically requested that I mention that though many of us live alot

longer than the often heard 3 years or so, Mike is someone in whom the disease

has progressed much faster. That is the flip side of the coin and it's

impossible to predict who will be stable for a long time and whose disease will

progress quickly. The most important thing is to cherish every moment we have,

spend time with those we love and don't take anything for granted.

>

> I know you all join with me in wishing Mike well. I think of Peggy and how

much help her hospice organization is helping to make her life enjoyable again.

My hope is that hospice can do that for Mike too and that he has many days

ahead.

> >

>

> Beth

>

> Moderator

>

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>

>

>

>

>

>

>

> >

> >

>

[Guest guest]

Mike,I don't even know what to say except I wish you the best =and remember-there is still no date stamp on you. You will be in my thoughts and prayers.Kathy ILD/Hypersensitivity Pneumonitis 3/08Subject: Message regarding Mike M (Mango Man)To: Breathe-Support Date: Saturday, January 30, 2010, 10:17 AM

Hi everyone,

Mike (Mango Man) has requested that I update the group regarding what is going on with him. His pulmonologist let him know that his most recent pft had dropped overall about 20% from his last one in September and apparently that one had dropped 20% from the one in May. Long story short his advice was that it was time to call in and request the support of hospice. So that is what he and his lovely wife Sandy are doing now....working on getting things set up the way they need to get Mike the comfort and support for this part of his journey.

Mike specifically requested that I mention that though many of us live alot longer than the often heard 3 years or so, Mike is someone in whom the disease has progressed much faster. That is the flip side of the coin and it's impossible to predict who will be stable for a long time and whose disease will progress quickly. The most important thing is to cherish every moment we have, spend time with those we love and don't take anything for granted.

I know you all join with me in wishing Mike well. I think of Peggy and how much help her hospice organization is helping to make her life enjoyable again. My hope is that hospice can do that for Mike too and that he has many days ahead.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

[Guest guest]

Sorry to hear Mike is not doing well. I am putting him and Sandy on my prayer list, and hoping that hospice afford them both peace and comfort - and maybe a little fun!

B

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Counting my blessings: #35 - Dogs playing in the snow.

Consider what a great forest is set ablaze by a small spark. ( 3:5)

To: Breathe-Support Sent: Sat, January 30, 2010 2:57:47 PMSubject: Re: Message regarding Mike M (Mango Man)

sorry to hear about mango man

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Message regarding Mike M (Mango Man)To: Breathe-Support@ yahoogroups. comDate: Saturday, January 30, 2010, 1:17 PM

Hi everyone,

Mike (Mango Man) has requested that I update the group regarding what is going on with him. His pulmonologist let him know that his most recent pft had dropped overall about 20% from his last one in September and apparently that one had dropped 20% from the one in May. Long story short his advice was that it was time to call in and request the support of hospice. So that is what he and his lovely wife Sandy are doing now....working on getting things set up the way they need to get Mike the comfort and support for this part of his journey.

Mike specifically requested that I mention that though many of us live alot longer than the often heard 3 years or so, Mike is someone in whom the disease has progressed much faster. That is the flip side of the coin and it's impossible to predict who will be stable for a long time and whose disease will progress quickly. The most important thing is to cherish every moment we have, spend time with those we love and don't take anything for granted.

I know you all join with me in wishing Mike well. I think of Peggy and how much help her hospice organization is helping to make her life enjoyable again. My hope is that hospice can do that for Mike too and that he has many days ahead.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

[Guest guest]

beth,

Thanks for sending an update for Mango Man. I'm so sorry to hear Mike's rapid progression. I know this stupid disease takes a course that can't be pre-determined..

I just want to kick-it...this disease...I hate it!

I'm glad Mike is taking advantage of hospice and I wish him comfort, love, and lots of humor as he walks this unfamiliar path. I hope he knows we are all here for him, waiting patiently for the next "funny email forward" from him soon!

C_53_Familial IPF_5/09, Washington

HOPE doesn't disappoint!

To: Breathe-Support Sent: Sat, January 30, 2010 10:17:19 AMSubject: Message regarding Mike M (Mango Man)

Hi everyone,

Mike (Mango Man) has requested that I update the group regarding what is going on with him. His pulmonologist let him know that his most recent pft had dropped overall about 20% from his last one in September and apparently that one had dropped 20% from the one in May. Long story short his advice was that it was time to call in and request the support of hospice. So that is what he and his lovely wife Sandy are doing now....working on getting things set up the way they need to get Mike the comfort and support for this part of his journey.

Mike specifically requested that I mention that though many of us live alot longer than the often heard 3 years or so, Mike is someone in whom the disease has progressed much faster. That is the flip side of the coin and it's impossible to predict who will be stable for a long time and whose disease will progress quickly. The most important thing is to cherish every moment we have, spend time with those we love and don't take anything for granted.

I know you all join with me in wishing Mike well. I think of Peggy and how much help her hospice organization is helping to make her life enjoyable again. My hope is that hospice can do that for Mike too and that he has many days ahead.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

[Guest guest]

Thanks for letting us know Queenie Bee....Mango Man is much loved by all of us...I add my support along with everyone else & a big fat wish that hge has many days left & that the Hospice people will take good care of all of them!

in Oz>> Hi everyone,> Mike (Mango Man) has requested that I update the group regarding what is going on with him. His pulmonologist let him know that his most recent pft had dropped overall about 20% from his last one in September and apparently that one had dropped 20% from the one in May. Long story short his advice was that it was time to call in and request the support of hospice. So that is what he and his lovely wife Sandy are doing now....working on getting things set up the way they need to get Mike the comfort and support for this part of his journey.> > Mike specifically requested that I mention that though many of us live alot longer than the often heard 3 years or so, Mike is someone in whom the disease has progressed much faster. That is the flip side of the coin and it's impossible to predict who will be stable for a long time and whose disease will progress quickly. The most important thing is to cherish every moment we have, spend time with those we love and don't take anything for granted.> > I know you all join with me in wishing Mike well. I think of Peggy and how much help her hospice organization is helping to make her life enjoyable again. My hope is that hospice can do that for Mike too and that he has many days ahead. > > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08>

[Guest guest]

Mike.... I need to jump in here someplace and let you know that you and Sandy and your family are in thoughts and prayers. I'm so glad to hear you are with Hospice now, it will make the rest of your journey easier for all of you.

I'm sorry Mike, that you now face the emotional side of this damn disease.

Thanks for all the 'funnies' and I'll keep watching for you.....

MamaSher; IPF 2006; Cellular NSIP, PH, 2009, OR,.Don't fret about tomorrow, God is already there!

From: worth

Sent: Saturday, January 30, 2010 6:19 PM

To: Breathe-Support

Subject: Re: Message regarding Mike M (Mango Man)

beth,

Thanks for sending an update for Mango Man. I'm so sorry to hear Mike's rapid progression. I know this stupid disease takes a course that can't be pre-determined..

I just want to kick-it...this disease...I hate it!

I'm glad Mike is taking advantage of hospice and I wish him comfort, love, and lots of humor as he walks this unfamiliar path. I hope he knows we are all here for him, waiting patiently for the next "funny email forward" from him soon!

C_53_Familial IPF_5/09, Washington

HOPE doesn't disappoint!

From: Beth <mbmurtha (AT) yahoo (DOT) com>To: Breathe-Support Sent: Sat, January 30, 2010 10:17:19 AMSubject: Message regarding Mike M (Mango Man)

Hi everyone,

Mike (Mango Man) has requested that I update the group regarding what is going on with him. His pulmonologist let him know that his most recent pft had dropped overall about 20% from his last one in September and apparently that one had dropped 20% from the one in May. Long story short his advice was that it was time to call in and request the support of hospice. So that is what he and his lovely wife Sandy are doing now....working on getting things set up the way they need to get Mike the comfort and support for this part of his journey.

Mike specifically requested that I mention that though many of us live alot longer than the often heard 3 years or so, Mike is someone in whom the disease has progressed much faster. That is the flip side of the coin and it's impossible to predict who will be stable for a long time and whose disease will progress quickly. The most important thing is to cherish every moment we have, spend time with those we love and don't take anything for granted.

I know you all join with me in wishing Mike well. I think of Peggy and how much help her hospice organization is helping to make her life enjoyable again. My hope is that hospice can do that for Mike too and that he has many days ahead.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.733 / Virus Database: 271.1.1/2658 - Release Date: 01/30/10 11:35:00

[Guest guest]

God bless you Mike and Sandy and family. Your in my thoughts and prayers. Breathe easy.PJ in OH, 54, IPF 09, Sjogren's Message regarding Mike M (Mango Man)

Hi everyone,

Mike (Mango Man) has requested that I update the group regarding what is going on with him. His pulmonologist let him know that his most recent pft had dropped overall about 20% from his last one in September and apparently that one had dropped 20% from the one in May. Long story short his advice was that it was time to call in and request the support of hospice. So that is what he and his lovely wife Sandy are doing now....working on getting things set up the way they need to get Mike the comfort and support for this part of his journey.

Mike specifically requested that I mention that though many of us live alot longer than the often heard 3 years or so, Mike is someone in whom the disease has progressed much faster. That is the flip side of the coin and it's impossible to predict who will be stable for a long time and whose disease will progress quickly. The most important thing is to cherish every moment we have, spend time with those we love and don't take anything for granted.

I know you all join with me in wishing Mike well. I think of Peggy and how much help her hospice organization is helping to make her life enjoyable again. My hope is that hospice can do that for Mike too and that he has many days ahead.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.733 / Virus Database: 271.1.1/2658 - Release Date: 01/30/10 11:35:00