Re: the endo called...and I wished he didnt... Pat

[Guest guest]

Pat

did you see the other email I sent to your last post to me? I forgot to

answer the gtube question. No, he doens't have one...but I don't feel like I

can even get anyone to think about it until we have some answers...that don't

seem like they are coming.

Deb

[Guest guest]

Hey Deb,

At 20% weight and 20% height I wouldn't say he needs a g-tube... but the way

you described what the dr was saying, I thought he was emaciated or

something! LOL

My best suggestion is, that if you think he has a growth disorder, or any

kind... bring him to the convention in july... you can get a free appt with

Dr H... and meet a lot of our fellow list servers!!

Pat (g-ma to , RSS, 4yrs 1m old, 28# 10oz, 35 " , G-tube, GHT)

[Guest guest]

Deb,

I agree with Pat, that if there is any way you can see Dr. H. (either at her

office or at the convention) that would be the best. She has many doctor

connections all over the country & could probably steer you to a good doctor, no

matter what diagnosis True has. Another thought - MAGIC also has a list of

doctors. If you are a member, you could contact MAGIC for help.

in Alaska

RSS-Support wrote:

Date: Fri, 10 Feb 2006 20:37:41 -0500

From: " pat "

Subject: Re: the endo called...and I wished he didnt... Pat

Hey Deb,

At 20% weight and 20% height I wouldn't say he needs a g-tube... but the way

you described what the dr was saying, I thought he was emaciated or

something! LOL

My best suggestion is, that if you think he has a growth disorder, or any

kind... bring him to the convention in july... you can get a free appt with

Dr H... and meet a lot of our fellow list servers!!

Pat (g-ma to , RSS, 4yrs 1m old, 28# 10oz, 35 " , G-tube, GHT)

---------------------------------

Relax. Yahoo! Mail virus scanning helps detect nasty viruses!

[Guest guest]

In a message dated 2/10/2006 7:39:36 PM Central Standard Time,

pcpets@... writes:

At 20% weight and 20% height I wouldn't say he needs a g-tube... but the way

you described what the dr was saying, I thought he was emaciated or

something! LOL

LOL! That's why it didn't make sense...his upper body, there is not much

fat but he doesn't look 'skinny' to me. His lower body...he has some thighs

now!

have you gotten to see his picture in the photo file labeled True? Some

poeple will say to me in public 'he's so big for a year " and I am like...yeah

right. But then on the elevator at the hospital the other day there was a big

ole porky baby...and I asked how old he was and they said 13 months...he had

10 pounds on him I am sure...so I guess its all relative really. He also

said that because his height was higher percentage than weight, this was a

problem...its like 2 points...not a vast difference. I just don't get

it...which

is why he got mad at me. I am still so frustrated about the whole thing!

deb...mom to four fab adopted kiddos... (07.04.96-05.26.03) with

Mitochondrial Myopathy...G, 6, with High Functioning Autism, Hypoglycemia and

Precocious Puberty...B, 4, with VERY mild Cerebral Palsy...and True 1yo, with

Neuromotor Disorder, Hypoglycemia, Myoclonus, ulcers, undiagnosed GI problems

plus severe food allergies (Eggs, Peanut, Milk, Soy, Corn, Rice, Oats and

Crab/Neocate-only), Plagiocephaly and Dysphagia....Married for 12 years to

F--one

swell guy!_ www.caringbridge.org/tn/wells/_

(http://www.caringbridge.org/tn/wells/) (http://www.lifeofloveproject.org/)