Re: My GI says the reason I'm doing well is because of my diet :-)

[Guest guest]

  That's awesome news. Where is she located?

[Guest guest]

This is wonderful. I think some GI's don't recommend SCD because they don't know

much about it or fear rebuttal from colleagues ( who also don't know much about

it). However, they seem to show interest after they see success. Maybe this will

be the way to get more interest in SCD.

PJ

>

> I saw my GI this morning, and had a very interesting conversation with her.

First, I told her I was doing well, and she asked what I attributed that to. I

said that I was very strict with my diet, and reminded her of what I ate on SCD.

After we ran through all the symptoms I was not having, she said she also

thought the reason I was doing well was because of diet. Can you believe that?

She also wants me to send her more info on SCD.

>

> We then talked about how bad sugar is for you, and she said that she and her

husband had taken their twins off formula due to all the sugar. She said the

kids threw a hairy fit, but now eat mainly organic vegetables and home made

almond milk. She said that when the kids visit the grandparents (who give them

too much fruit and cookies), the kids come home and have a runny nose for a

week. She also said she just lent her vitamix to a friend to help their

constipated child get off sugar and onto healthy foods. We also talked about how

healthy soup is for a person. A GI who believes in good food, how about that!

>

> She also was interested that I'm doing better since starting Betaine HCl. She

said that GI's are taught to give acid blockers, not to give more acid. She said

she wishes she could help me with the dosing, but knows nothing about it and

suggested I see a naturopathic doctor sometime.

>

> The only downer was that my liver enzymes are high again :-(. I may end up

having to get a biopsy. Yuck! And my colonoscopy got scheduled for this month.

Yuck again! I'm curious to see how my bowel healed from surgery though.

>

> Maybe soon I'll admit to taking LDN on the sly ;-).

>

> Holly

> Crohn's

> SCD 12/01/08

>

[Guest guest]

That's awesome Holly! I know that you've historically not had good luck finding

supportive doctors. It must be nice for a change! So sorry to hear about the

liver enzymes. Keep us posted if they figure that one out?

-Joanna

SCD 9/2009, Crohn's 1992, 20mg Prednisone

>

>

> >

> > I saw my GI this morning, and had a very interesting conversation with her.

First, I told her I was doing well, and she asked what I attributed that to. I

said that I was very strict with my diet, and reminded her of what I ate on SCD.

After we ran through all the symptoms I was not having, she said she also

thought the reason I was doing well was because of diet. Can you believe that?

She also wants me to send her more info on SCD.

> > Holly

> > Crohn's

> > SCD 12/01/08

> >

>

[Guest guest]

At 03:04 PM 10/4/2010, you wrote:

Can you believe that? She also

wants me to send her more info on SCD.

Hooray! Maybe ONE day, the first question asked will be " What are

you eating? "

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

Her name is Dr. Cruz, and she's in Phoenix, Arizona. Very nice doctor!

Really listens, and spends as much time with you as you need.

Holly

>

> [?] That's awesome news. Where is she located?

>

[Guest guest]

Thanks, a little far for me, but I'm so happy for you. You should go to Vitals.com & leave her a good review.  http://www.vitals.com/doctors/Dr__Cruz.html

Her name is Dr. Cruz, and she's in Phoenix, Arizona. Very nice doctor! Really listens, and spends as much time with you as you need.

Holly

[Guest guest]

Hi Holly,

That's great news! I'm fearful of telling my GI anything about SCD, because I'm

afraid he'd just laugh it off and dismiss it. It's wonderful to have a doctor

who is supportive of your diet.

I'm curious, does your GI know you got off Humira? I go back and for debating on

possibly getting off of it, but I think my GI would freak.

I hope you don't have to get the liver biopsy. Good luck with the colonoscopy,

but you probably have such a beautiful colon from SCD!

Take care,

Amber

>

> I saw my GI this morning, and had a very interesting conversation with her.

First, I told her I was doing well, and she asked what I attributed that to. I

said that I was very strict with my diet, and reminded her of what I ate on SCD.

After we ran through all the symptoms I was not having, she said she also

thought the reason I was doing well was because of diet. Can you believe that?

She also wants me to send her more info on SCD.

>

> We then talked about how bad sugar is for you, and she said that she and her

husband had taken their twins off formula due to all the sugar. She said the

kids threw a hairy fit, but now eat mainly organic vegetables and home made

almond milk. She said that when the kids visit the grandparents (who give them

too much fruit and cookies), the kids come home and have a runny nose for a

week. She also said she just lent her vitamix to a friend to help their

constipated child get off sugar and onto healthy foods. We also talked about how

healthy soup is for a person. A GI who believes in good food, how about that!

>

> She also was interested that I'm doing better since starting Betaine HCl. She

said that GI's are taught to give acid blockers, not to give more acid. She said

she wishes she could help me with the dosing, but knows nothing about it and

suggested I see a naturopathic doctor sometime.

>

> The only downer was that my liver enzymes are high again :-(. I may end up

having to get a biopsy. Yuck! And my colonoscopy got scheduled for this month.

Yuck again! I'm curious to see how my bowel healed from surgery though.

>

> Maybe soon I'll admit to taking LDN on the sly ;-).

>

> Holly

> Crohn's

> SCD 12/01/08

>

[Guest guest]

Hi Amber,

My last GI would have laughed at SCD...actually he would have just glared. The

man had no bedside manner whatsoever, I think it might be physically impossible

for him to actually smile ;-).

My doctor knows I'm off of Humira. She was very worried initially, and really

encouraged me to stay on it. But now that I've been off it for 6 months (well,

actually over a year, but she doesn't know that), without a problem, she seems

less concerned. I live in a high risk area for fungal infections too, which is

one of the reasons I gave for not wanting to continue. I already got Valley

Fever/ pneumonia from prednisone a few years ago, I certainly don't need it

again! My doctor doesn't know about the LDN yet though. Maybe I'll tell her

after the colonoscopy :-).

I don't regret taking Humira. I really needed it at the time, and it helped get

me into a good place to be successful with SCD. But 1 year (actually a little

more) was enough.

Thanks for the good wishes :-). I hope I can report back here with great

results!

Holly

> >

> > I saw my GI this morning, and had a very interesting conversation with her.

First, I told her I was doing well, and she asked what I attributed that to. I

said that I was very strict with my diet, and reminded her of what I ate on SCD.

After we ran through all the symptoms I was not having, she said she also

thought the reason I was doing well was because of diet. Can you believe that?

She also wants me to send her more info on SCD.

> >

> > We then talked about how bad sugar is for you, and she said that she and her

husband had taken their twins off formula due to all the sugar. She said the

kids threw a hairy fit, but now eat mainly organic vegetables and home made

almond milk. She said that when the kids visit the grandparents (who give them

too much fruit and cookies), the kids come home and have a runny nose for a

week. She also said she just lent her vitamix to a friend to help their

constipated child get off sugar and onto healthy foods. We also talked about how

healthy soup is for a person. A GI who believes in good food, how about that!

> >

> > She also was interested that I'm doing better since starting Betaine HCl.

She said that GI's are taught to give acid blockers, not to give more acid. She

said she wishes she could help me with the dosing, but knows nothing about it

and suggested I see a naturopathic doctor sometime.

> >

> > The only downer was that my liver enzymes are high again :-(. I may end up

having to get a biopsy. Yuck! And my colonoscopy got scheduled for this month.

Yuck again! I'm curious to see how my bowel healed from surgery though.

> >

> > Maybe soon I'll admit to taking LDN on the sly ;-).

> >

> > Holly

> > Crohn's

> > SCD 12/01/08

> >

>

[Guest guest]

Thanks, I left my feedback. She deserved a much better rating then they had for

her. People really scored her down due to the long wait to get your first

appointment (it took me about 3 months or so), and the long waits in the waiting

room. But, she spends a lot of time with her patients, so you can expect a long

wait. Which is why I try to schedule first thing in the morning ;-).

Holly

>

> Thanks, a little far for me, but I'm so happy for you. You should go to

> Vitals.com & leave her a good review.

> http://www.vitals.com/doctors/Dr__Cruz.html

>

> Her name is Dr. Cruz, and she's in Phoenix, Arizona. Very nice

> > doctor! Really listens, and spends as much time with you as you need.

> >

> > Holly

> >

>

[Guest guest]

Thanks for sharing, Holly. I shouldn't be in any rush to get off my medications

since I'm just started feeling good, but I was curious how you handled it. It's

too bad we are afraid to be open with our doctors about these things, but I can

understand why they want us to stay on medications. However, I hate that most

doctors totally dismiss the idea that diet could have any effect whatsoever, but

I suppose they're just going by what they were taught in med school.

Keep us posted if you tell your doctor about LDN. I'd love to know what she

thinks.

I'm also hoping for good results for you!!

Take care,

Amber

>

> Hi Amber,

>

> My last GI would have laughed at SCD...actually he would have just glared. The

man had no bedside manner whatsoever, I think it might be physically impossible

for him to actually smile ;-).

>

> My doctor knows I'm off of Humira. She was very worried initially, and really

encouraged me to stay on it. But now that I've been off it for 6 months (well,

actually over a year, but she doesn't know that), without a problem, she seems

less concerned. I live in a high risk area for fungal infections too, which is

one of the reasons I gave for not wanting to continue. I already got Valley

Fever/ pneumonia from prednisone a few years ago, I certainly don't need it

again! My doctor doesn't know about the LDN yet though. Maybe I'll tell her

after the colonoscopy :-).

>

> I don't regret taking Humira. I really needed it at the time, and it helped

get me into a good place to be successful with SCD. But 1 year (actually a

little more) was enough.

>

> Thanks for the good wishes :-). I hope I can report back here with great

results!

>

> Holly

>

>