Re: Re: Leah chat-->

[Guest guest]

Leah

I am going to be nosy but what did Dr. D say? I would think going to dr. H.

would be even more expensive and possibly even more difficult to get scripts

filled. You might be able to work out a system where Dr. D calls in your refills

directly to Eli Lilly (assuming that's who you would use) and then they could

ship to you. There head office is here in TO (naturally! ( ) but at least he

would be recognized as a prescribing physician (as opposed to Dr. H.)

And don't forget, you have free accommodations here if you can fly into T.O. I

can even get you at the airport etc.

I hate to see you so upset and frustrated. If you were just one province over, I

would come and get you myself!!! LOL

Hang in there, and email me off line with the updates!!

Deb

Re: Leah chat--> Deb. B

Hi Deb,

Yep, Dr.D e-mailed me the moment he was back from holidays but

it's a whole other issue here. After several e-mails and phone

calls I've gotten NO response from the endo here. And the secretary

said her wait list is over 6 months. I've tried calling other endos

to " interview " them on the phone so I don't have to waste my time

waiting for an unproductive appt., also to no avail.

You know, not only do I feel Olivia's being left behind, I feel

she's being swept under the rug. I get so very frustrated in going

to the convention to see everything there is to be done and see how

wonderful the kids are doing there just to have it all dangled in my

face. Don't get me wrong (especially for you new parents who've

never been!!!!) We would do ANYTHING to go to the convention EVERY

year even if it means getting a loan or remortgaging the house

(which we won't have to do). We love it there and CHERISH our only

weekend of " normal " every year. However it feels like a big tease

once we get back to Canada and the Dr's are so ignorant.

I'm saddened when there are kids here bigger than Olivia that get

g-tubes and GHT, not that I want her to have a g-tube but how else

will we get her to grow? I do understand that every child is

different and treatment is therefore different but why do I have to

wait until she is is emaciated to get care or concern.

Sorry this is turning into a vent but I'm so very frustrated and

it's not in our budget to go to both the convention and TO in the

same year. We don't want to miss the convention for anything. We

would also have to contact our insurance and see if they will cover

GHT script from out of province before we went.

I've thought of e-mailing Dr. H and seeing if she has any insight

for me but I don't think there's anything she could do considering

the logistics...

Chat more soon,

Leah

> >

> > Oh, how I wish I had known to tape this!!!

> > Discovery Health and The Learning Channel showed an amazing

> program

> > following a family of 5, with both parents being

achondroplasic

> > dwarfs.

> >

> > Here's a link from the production company:

> > http://www.advancedmedical.tv/shows/mtf.htm#synapsis

> >

> > The program was absolutely, postively inspiring, funny, and

> practical

> > too! Here's a quote from the promo:

> > " It will introduce viewers to a family that faces challenges

head-

> on,

> > challenges that any average-sized family would find difficult

to

> > manage. We'll witness their daily struggle to fit into a world

> that

> > isn't built to fit them, and their amazing resolve to make

their

> > lives as normal as possible. Whatever preconceived notions

that

> exist

> > about dwarfs will be quickly forgotten upon meeting the Foos.

> Because

> > in the case of the Foos, it's not their first impression

they're

> > concerned with, it's their lasting impression. "

> >

> > IT also included a nice little segment about how meaningful

the

> > annual LPA Convention (Little People of America) is to the

> family.

> > Reminded me a lot of what the MAGIC Convention means to our

> RSS/SGA

> > families.

> >

> > I have NO idea when or if it will air again, but perhaps you

> Googlers

> > out there can find more info.

> >

> > Enjoy!

> > kATY

> >

>

>

>

>

>

>

>