B

[Guest guest]

,

Thank you for your kind words. In my particular situation my grasp of the information is helped by the fact I am a nurse by education. Bruce is the man for very thorough research and he does a fabulous job with it.

I think all of us here can understand the difficulty of adjusting to living with a life threatening lung disease. We all try to figure out what will help us, what will work to make our lives better and more comfortable. It's a process of trial and error for most of us. No two of us are going to do exactly the same thing and that's ok.

I've been working closely on my diet with a nutritionist at Duke. I've been following an anti-inflammatory diet for almost a year. I have no way of knowing whether it's helping me but it's a healthy way of eating so I'm content to keep on doing what I'm doing. Someone else could follow a different plan and that would be perfectly valid. We're all different.

I'm glad you are not giving up. Please just keep trying. We all wake up in the morning and gather our resources to live another day with this disease. It's not easy. Some have wonderful caregivers and that's a huge help. Others are on their own taking care of themselves. I fall into the latter category and as a matter of fact have my elderly parents living with me. I am more caregiver to them than anything else and that's ok. Maybe it helps me not think about my own problems as much as I would otherwise.

Look after yourself and I hope you have a wonderful holiday!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Wed, December 23, 2009 8:55:12 PMSubject: Re: Re: Tofu and Soy

Thanks Bruce and Beth:

I admire how much you have learned about pulmonary diseases and how very focus you both are.

I am living my life in a hurry and my to-do list grows longer each day. I am trying to eliminate milk and milk products from my diet. I am building my daily diet around three cans of Pulmocare made by Ensure. I am holding my weight steady and my oxygen-meter gives good reports after a year of IPF. I do not defend milk and meat production; however, I wish I knew a lot more about the food that I should be using to stay even with my disease.

These are not the best months of my life--I am not giving up. If you are able to focus and enjoy each day, I would bet you have one very caring and supportive care giver. Burns

From: Bruce <brucemoreland@ gmail.com>Subject: Re: Tofu and SoyTo: Breathe-Support@ yahoogroups. comDate: Wednesday, December 23, 2009, 8:39 AM

PinkSilk has been changed considerably since the acquisition by Dean Farms.Whether that now makes it any sort of problem of not, I can't say.However, you might want to google Silk a bit. It's sure been a matter ofmajor controversy in the industry and with vegetarians and moms.> > >> > >> > > From: Beth mbmurtha@> > > Subject: Spam> > > To: Breathe-Support@ yahoogroups. com> > > Date:

Tuesday, December 22, 2009, 7:15 AM> > >> > >> > > ÂÂ> > >> > >> > >> > >> > >> > >> > > Good morning everyone.> > > There was a message posted to the board from amember named> Colleen McCloud. It was filled with links toquestionableÂÂ> websites and was clearly spam. Oddly enough my Yahoo account delivered> the message directly into my Spam folder.> > > In any case I would advise everyone to delete this message fromyour> email and DO NOT click on any of the links contained in the message.> > > I've deleted this message from the board itself andas of 2> minutes ago this person is no longer a member of BreatheSupport.> > > I think

what happened here was this person's email account hasbeen> hijacked. She had been a member for over 9 months andthis is the> first time anything like this had ever happened.> > > ÂÂ> > > Please don't hesitate to contact me if anyone has any questions> about any of this. Thanks everyone!> > > ÂÂ> > >> > > ÂÂ> > > Beth> > > Moderator> > > Fibrotic NSIP 06/06 Dermatomyositis 11/08> > > ÂÂ> > > ÂÂ> > >> >>