Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 Will I find info. on a Rotation Diet in the Archives? I have never heard of this and I think I need to check it out. Eileen Mother of 19 yo son with UC Eileen Cawood email: parvus@... From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of spookyhurst Sent: Friday, August 20, 2010 2:27 AM To: BTVC-SCD Subject: Rotation Diet I eat pretty much the same exact thing everyday, so I'm seriously thinking of implementing the rotation diet so that I don't become intolerant to any of my favorites. I know the basics, but have a few questions: Is there anything that DOESN'T need rotated? Like maybe spices, butter, oils, gelatin, or honey? Are eggs okay everyday if they are baked into something? If not, that sure limits the use of recipes. Do cow cheese/yogurt count as one day, and goat cheese/yogurt count as a second? At least I'd be able to eat yogurt every other day. I've never made goat yogurt, could be interesting. I think that's it for now :-). Hopefully, I have enough foods to make this work! Holly Crohn's SCD 12/01/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 I wouldn't unless it is prescribed by someone - it's a real pain in the ass to implement it.Are the additional s. boulardii helping your son?MaraWill I find info. on a Rotation Diet in the Archives? I have never heard of this and I think I need to check it out. EileenMother of 19 yo son with UC Eileen Cawoodemail: parvus@...From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of spookyhurstSent: Friday, August 20, 2010 2:27 AMTo: BTVC-SCD Subject: Rotation Diet I eat pretty much the same exact thing everyday, so I'm seriously thinking of implementing the rotation diet so that I don't become intolerant to any of my favorites. I know the basics, but have a few questions:Is there anything that DOESN'T need rotated? Like maybe spices, butter, oils, gelatin, or honey?Are eggs okay everyday if they are baked into something? If not, that sure limits the use of recipes.Do cow cheese/yogurt count as one day, and goat cheese/yogurt count as a second? At least I'd be able to eat yogurt every other day. I've never made goat yogurt, could be interesting.I think that's it for now :-). Hopefully, I have enough foods to make this work!HollyCrohn'sSCD 12/01/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 I tell you, it was a major miracle at our house. Pain in the ass, yes. WORTH it? YOU BET!!!!! The version I did was w/ " rare " foods as much as possible. That is, foods that we normally didn't eat. It was expensive for the couple of weeks to a month to figure things out and WELL worth every penny~~~~!!! I say prayers of gratitude for the rotation diet every day. Artful Carol Former me: From babyhood - CFS, Depression, Candida, Severe Chemical, Inhalant, and Food Allergies. Current me: Global Carb and Fungal Problems well-controlled past 30 yr. by extremely low-carb, no dairy, no grains allergy/anti-yeast diet, SCD 01/05. After 35 yrs. no need for allergy shots since SCD! Magnesium/Vits A, B, D, E/Evening Primrose, Fish, Olive, and Other Oils, Lecithin. 2 grown kids recovered from serious developmental problems which I believe were fungally-caused. > > I wouldn't unless it is prescribed by someone - it's a real pain in the ass to implement it. > > Are the additional s. boulardii helping your son? > > Mara > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 Eileen, ly, I wouldn't even consider it if you don't need it. Rotation diets are a pest. They aren't just rotating foods, they are rotating food groups. There are four-day and seven-day rotation diets. So, just to take meat, you will need poultry, beef, pork and I guess fish would give you four. You'd need to dig up bison, etc to get seven though I think there are different families under fish. Since oils come from various foods I guess you'd need those on the days you could eat that food. If you truly can eat anything and just need to organize it this way, I guess it would work. But the articles I've read on the subject always suggest things like getting a million colored stickers so everything in the house can be labelled " blue for day 1 " , " red for day 2 " etc. ly, I think we have enough to do here, BUT if you have trouble eating a certain thing often, it can be true that maybe you can have it now and then. That's rotation enough for me! You can just Google rotation diets and there's tons there. But one I just looked up says that they are valuable for helping allergy-prone individuals from developing leaky gut. Well heck, we are already working on that! Will I find info. on a Rotation Diet in the Archives? I have never heard of this and I think I need to check it out. Eileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 Eileen, Must admit that I wasn't in on the beginning of this conversation and just assumed that you were just figuring out if you are dealing with sensitivities you weren't aware of. Responses from others make me think that you're talking about trying to AVOID DEVELOPING sensitivities by rotating. That would be a different situation. If that's the case I applaud it but I don't seem to have to rotate like I used to have to now that the gut flora are in better balance. Foods that used to be a problem no longer are. i.e.: mine has proven to be mostly a carb problem. And my son, thanks to the supplements specified for him by spectracell.com testing, eats anything with no ill effects! I do try to rotate but it's not legalistic at all. Artful Carol Former me: From babyhood - CFS, Depression, Candida, Severe Chemical, Inhalant, and Food Allergies. Current me: Global Carb and Fungal Problems well-controlled past 30 yr. by extremely low-carb, no dairy, no grains allergy/anti-yeast diet, SCD 01/05. After 35 yrs. no need for allergy shots since SCD! Magnesium/Vits A, B, D, E/Evening Primrose, Fish, Olive, and Other Oils, Lecithin. 2 grown kids recovered from serious developmental problems which I believe were fungally-caused. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 Has anyone had any experience with Remicade. I'm still having trouble with my UC while tapering the prednisone and am wondering if I should try that to get into remission and then continue the diet or should I just stick with the diet and try and do it all naturally? My problem is that the lower I get on the pred the more my symptoms come back. Anyone's advice would be appreciated? Also did anyone have bad side affects on Remicade? Eileen,Must admit that I wasn't in on the beginning of this conversation and just assumed that you were just figuring out if you are dealing with sensitivities you weren't aware of. Responses from others make me think that you're talking about trying to AVOID DEVELOPING sensitivities by rotating. That would be a different situation.If that's the case I applaud it but I don't seem to have to rotate like I used to have to now that the gut flora are in better balance. Foods that used to be a problem no longer are. i.e.: mine has proven to be mostly a carb problem. And my son, thanks to the supplements specified for him by spectracell.com testing, eats anything with no ill effects! I do try to rotate but it's not legalistic at all.Artful CarolFormer me: From babyhood - CFS, Depression, Candida, Severe Chemical, Inhalant, and Food Allergies. Current me: Global Carb and Fungal Problems well-controlled past 30 yr. by extremely low-carb, no dairy, no grains allergy/anti-yeast diet, SCD 01/05. After 35 yrs. no need for allergy shots since SCD! Magnesium/Vits A, B, D, E/Evening Primrose, Fish, Olive, and Other Oils, Lecithin. 2 grown kids recovered from serious developmental problems which I believe were fungally-caused. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 Meat would actually be pretty easy, because there are many different families of fish. A seven day rotation could be: 1. Salmon 2. Chicken / Cornish Hen / Pheasant / Quail 3. Cod 4. Pork 5. Turkey 6. Beef / Veal / Bison / Lamb / Mutton 7. Crab / Shrimp And that still leaves several more fish families (ie. tuna, catfish, halibut, whitefish), as well as a couple of rarer foods like Venison and Duck. Now eggs would be tough. If you had a local source, you could alternate duck, quail, and turkey with chicken eggs. But how many people live close enough to a farm to get these. For a food families chart, go to: http://www.thesuperallergycookbook.com/PDF/FoodFamilyChartbyFamily.pdf Holly Crohn's SCD 12/01/08 > > Eileen, > ly, I wouldn't even consider it if you don't need it. Rotation > diets are a pest. They aren't just rotating foods, they are rotating > food groups. There are four-day and seven-day rotation diets. So, > just to take meat, you will need poultry, beef, pork and I guess fish > would give you four. You'd need to dig up bison, etc to get seven > though I think there are different families under fish. Since oils > come from various foods I guess you'd need those on the days you > could eat that food. If you truly can eat anything and just need to > organize it this way, I guess it would work. But the articles I've > read on the subject always suggest things like getting a million > colored stickers so everything in the house can be labelled " blue for > day 1 " , " red for day 2 " etc. ly, I think we have enough to do > here, BUT if you have trouble eating a certain thing often, it can be > true that maybe you can have it now and then. That's rotation enough for me! > > You can just Google rotation diets and there's tons there. But one I > just looked up says that they are valuable for helping allergy-prone > individuals from developing leaky gut. Well heck, we are already > working on that! > > > > Will I find info. on a Rotation Diet in the Archives? I have never heard of > this and I think I need to check it out. > > Eileen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 I'm sorry I haven't followed this whole thread so forgive me if I'm off. I've spent many hours recently making on a food chart of sorts from sept through dec. Mon/tue are chicken. Wed is fish. Thursday/fri are beef. Sat is pizza. Sun is turkey. From there I'm plugging in meals. It's easier for me to find recipes this way. I don't know why. Then I'm making sure that colors are rotating. This chart is also containing breakfasts and lunches. When school starts I need to have this grand plan in place. Maybe that would help you too. My friends hink I'm over board but it will help simplify my life. Or at least I'm hoping. UC-C 12/09SCD 1/10Daily, CLO, Magnesium, bromelain, acidophilus Mom of 2 crazy monkeys :-)On Aug 20, 2010, at 7:05 PM, "spookyhurst" wrote: Meat would actually be pretty easy, because there are many different families of fish. A seven day rotation could be: 1. Salmon 2. Chicken / Cornish Hen / Pheasant / Quail 3. Cod 4. Pork 5. Turkey 6. Beef / Veal / Bison / Lamb / Mutton 7. Crab / Shrimp And that still leaves several more fish families (ie. tuna, catfish, halibut, whitefish), as well as a couple of rarer foods like Venison and Duck. Now eggs would be tough. If you had a local source, you could alternate duck, quail, and turkey with chicken eggs. But how many people live close enough to a farm to get these. For a food families chart, go to: http://www.thesuperallergycookbook.com/PDF/FoodFamilyChartbyFamily.pdf Holly Crohn's SCD 12/01/08 > > Eileen, > ly, I wouldn't even consider it if you don't need it. Rotation > diets are a pest. They aren't just rotating foods, they are rotating > food groups. There are four-day and seven-day rotation diets. So, > just to take meat, you will need poultry, beef, pork and I guess fish > would give you four. You'd need to dig up bison, etc to get seven > though I think there are different families under fish. Since oils > come from various foods I guess you'd need those on the days you > could eat that food. If you truly can eat anything and just need to > organize it this way, I guess it would work. But the articles I've > read on the subject always suggest things like getting a million > colored stickers so everything in the house can be labelled "blue for > day 1", "red for day 2" etc. ly, I think we have enough to do > here, BUT if you have trouble eating a certain thing often, it can be > true that maybe you can have it now and then. That's rotation enough for me! > > You can just Google rotation diets and there's tons there. But one I > just looked up says that they are valuable for helping allergy-prone > individuals from developing leaky gut. Well heck, we are already > working on that! > > > > Will I find info. on a Rotation Diet in the Archives? I have never heard of > this and I think I need to check it out. > > Eileen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2010 Report Share Posted August 21, 2010 Holly, That's great and very helpful. 'Course, pork and beef are of the same family - mammal ... as would be cow's or goat's milk. So it's not as strict a rotation as I did for my kidz... but it's a heck of a lot better rotation than most of us do! Blessings, Artful Carol Former me: From babyhood - CFS, Depression, Candida, Severe Chemical, Inhalant, and Food Allergies. Current me: Global Carb and Fungal Problems well-controlled past 30 yr. by extremely low-carb, no dairy, no grains allergy/anti-yeast diet, SCD 01/05. After 35 yrs. no need for allergy shots since SCD! Magnesium/Vits A, B, D, E/Evening Primrose, Fish, Olive, and Other Oils, Lecithin. 2 grown kids recovered from serious developmental problems which I believe were fungally-caused. > > > > Eileen, > > ly, I wouldn't even consider it if you don't need it. Rotation > > diets are a pest. They aren't just rotating foods, they are rotating > > food groups. There are four-day and seven-day rotation diets. So, > > just to take meat, you will need poultry, beef, pork and I guess fish > > would give you four. You'd need to dig up bison, etc to get seven > > though I think there are different families under fish. Since oils > > come from various foods I guess you'd need those on the days you > > could eat that food. If you truly can eat anything and just need to > > organize it this way, I guess it would work. But the articles I've > > read on the subject always suggest things like getting a million > > colored stickers so everything in the house can be labelled " blue for > > day 1 " , " red for day 2 " etc. ly, I think we have enough to do > > here, BUT if you have trouble eating a certain thing often, it can be > > true that maybe you can have it now and then. That's rotation enough for me! > > > > You can just Google rotation diets and there's tons there. But one I > > just looked up says that they are valuable for helping allergy-prone > > individuals from developing leaky gut. Well heck, we are already > > working on that! > > > > > > > > Will I find info. on a Rotation Diet in the Archives? I have never heard of > > this and I think I need to check it out. > > > > Eileen > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2010 Report Share Posted August 21, 2010 Hi , This sounds like a good idea too! I don't think you're going overboard either. Having a plan makes life a lot easier! Holly Crohn's SCD 12/01/08 > > I'm sorry I haven't followed this whole thread so forgive me if I'm off. I've spent many hours recently making on a food chart of sorts from sept through dec. Mon/tue are chicken. Wed is fish. Thursday/fri are beef. Sat is pizza. Sun is turkey. From there I'm plugging in meals. It's easier for me to find recipes this way. I don't know why. Then I'm making sure that colors are rotating. This chart is also containing breakfasts and lunches. When school starts I need to have this grand plan in place. Maybe that would help you too. My friends hink I'm over board but it will help simplify my life. Or at least I'm hoping. > > > UC-C 12/09 > SCD 1/10 > Daily, CLO, Magnesium, bromelain, acidophilus > Mom of 2 crazy monkeys :-) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2010 Report Share Posted August 21, 2010 Hi Carol, In the food family lists I've seen, animals are divided into the mammal, bird, fish, mollusk, and amphibian families, and there are several sub-familes under each one (just like the plant family has a bajillion sub-families under it). The Bovid (or Bovine) family has beef cattle, beef suet, gelatin, rennin (rennet), sausage casings, veal, buffalo, goat, sheep, lamb, mutton, bison, and all milk products coming from beef, buffalo, goats, sheep, lamb and bison. The Swine family has Hog (pork or Pig), bacon, ham, lard, pork gelatin, pork sausage, and scrapple (whatever the heck that is). Holly Crohn's SCD 12/01/08 > > > > Meat would actually be pretty easy, because there are many different families of fish. A seven day rotation could be: > > > > 1. Salmon > > > > 2. Chicken / Cornish Hen / Pheasant / Quail > > > > 3. Cod > > > > 4. Pork > > > > 5. Turkey > > > > 6. Beef / Veal / Bison / Lamb / Mutton > > > > 7. Crab / Shrimp > > > > And that still leaves several more fish families (ie. tuna, catfish, halibut, whitefish), as well as a couple of rarer foods like Venison and Duck. > > > > Now eggs would be tough. If you had a local source, you could alternate duck, quail, and turkey with chicken eggs. But how many people live close enough to a farm to get these. > > > > For a food families chart, go to: http://www.thesuperallergycookbook.com/PDF/FoodFamilyChartbyFamily.pdf > > > > Holly > > Crohn's > > SCD 12/01/08 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2010 Report Share Posted August 22, 2010 Thanks for the advice Mara…we are going to stick with what we have been doing. The s. boulardi is doing something at this point. He has gradually increased dosage and just last night took 5 for the first time. He is taking them all at once prior to bedtime. Is this the best time? We remember reading somewhere that it is best on an empty stomach so he has been wondering if bedtime is best or first thing in the morning. There is either residual food in the stomach by 10 PM or there WILL be food about an hour after he takes it in the morning…so which is most effective? He had a bad night’s sleep last night (very achy back which is normal but last night was worse and disrupted his sleep) and woke up with a stuffy nose. This is what he has whenever he increases the dosage which I think is the die off reaction. Am I correct on this? Overall, we realized that though his stools are not yet formed and normal, he is improving. He pointed out to me that the eczema on his thighs is gone and he has not gotten sick all summer. He used to come down with extreme fatigue followed by chills, low grade fever, sore throat, body aches and diarrhea about every three weeks. That was his MO all last year in school. Now he is working 5-7 days a week on a farm and hasn’t experienced this since early June, which was early in the diet. My thoughts have been that he isn’t really improving because of his lack of weight gain and still unformed stools but reflecting on the above encourages me that there is healing happening…it is just slow and that is OK as long as it just IS! There was a recent post from someone who just after 6 months had a normal stool and that also helped me to see that patience is needed here. We really are all different and apparently do heal at different rates and in different ways. Thanks for the check up. Eileen Cawood Mother of 19 yo son with UC Eileen Cawood email: parvus@... From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of Mara Schiffren Sent: Friday, August 20, 2010 9:53 AM To: BTVC-SCD Subject: Re: Rotation Diet? I wouldn't unless it is prescribed by someone - it's a real pain in the ass to implement it. Are the additional s. boulardii helping your son? Mara Will I find info. on a Rotation Diet in the Archives? I have never heard of this and I think I need to check it out. Eileen Mother of 19 yo son with UC Eileen Cawood email: parvus@... From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of spookyhurst Sent: Friday, August 20, 2010 2:27 AM To: BTVC-SCD Subject: Rotation Diet I eat pretty much the same exact thing everyday, so I'm seriously thinking of implementing the rotation diet so that I don't become intolerant to any of my favorites. I know the basics, but have a few questions: Is there anything that DOESN'T need rotated? Like maybe spices, butter, oils, gelatin, or honey? Are eggs okay everyday if they are baked into something? If not, that sure limits the use of recipes. Do cow cheese/yogurt count as one day, and goat cheese/yogurt count as a second? At least I'd be able to eat yogurt every other day. I've never made goat yogurt, could be interesting. I think that's it for now :-). Hopefully, I have enough foods to make this work! Holly Crohn's SCD 12/01/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2010 Report Share Posted August 22, 2010 At 09:04 AM 8/22/2010, you wrote: We really are all different and apparently do heal at different rates and in different ways. Eileen, This is one reason I constantly suggest keeping a food diary, either you or your son. Obviously, your son is more aware of his body than many people are! (Good for him!) It's so very easy to feel that when things aren't perfect, we aren't improving. Although some people can and do respond in days or weeks, for the most part, SCD works gradually. It's great to hear that he's doing better! — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling Beagle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2010 Report Share Posted August 22, 2010 Thanks for the advice Mara…we are going to stick with what we have been doing.The s. boulardi is doing something at this point. He has gradually increased dosage and just last night took 5 for the first time. He is taking them all at once prior to bedtime. Is this the best time? We remember reading somewhere that it is best on an empty stomach so he has been wondering if bedtime is best or first thing in the morning. There is either residual food in the stomach by 10 PM or there WILL be food about an hour after he takes it in the morning…so which is most effective?I did both - they seem to work as effectively for me. Others might have a different experience, but if he hasn't eatenfor a while right before bedtime, that is fine. If he just had a midnight snack before retiring - which I do occasionally,he should wait until morning - half hour is fine. It sounds like they are helping him - ask him if, with the increased dosage he noticed a bowelchange or change in other respects. He had a bad night’s sleep last night (very achy back which is normal but last night was worse and disrupted his sleep) and woke up with a stuffy nose. This is what he has whenever he increases the dosage which I think is the die off reaction. Am I correct on this?Sounds like. If he is having bad nights of sleep with an achy back, you should recommend he take epsom baths in the lateevenings before he goes to bed, it will help with this enormously. WIth UC, sciatica is also a symptom of active UC - so if he is having an achy back, it's likelysymptomatic and epsom will help with that a lot. Wish I had known about it when I used to getbad sciatica before I was diagnosed and got my act together. Mara Overall, we realized that though his stools are not yet formed and normal, he is improving. He pointed out to me that the eczema on his thighs is gone and he has not gotten sick all summer. He used to come down with extreme fatigue followed by chills, low grade fever, sore throat, body aches and diarrhea about every three weeks. That was his MO all last year in school. Now he is working 5-7 days a week on a farm and hasn’t experienced this since early June, which was early in the diet. My thoughts have been that he isn’t really improving because of his lack of weight gain and still unformed stools but reflecting on the above encourages me that there is healing happening…it is just slow and that is OK as long as it just IS! There was a recent post from someone who just after 6 months had a normal stool and that also helped me to see that patience is needed here. We really are all different and apparently do heal at different rates and in different ways. Thanks for the check up. Eileen CawoodMother of 19 yo son with UC Eileen Cawoodemail: parvus@...From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of Mara SchiffrenSent: Friday, August 20, 2010 9:53 AMTo: BTVC-SCD Subject: Re: Rotation Diet? I wouldn't unless it is prescribed by someone - it's a real pain in the ass to implement it. Are the additional s. boulardii helping your son? Mara Will I find info. on a Rotation Diet in the Archives? I have never heard of this and I think I need to check it out. EileenMother of 19 yo son with UC Eileen Cawoodemail: parvus@...From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of spookyhurstSent: Friday, August 20, 2010 2:27 AMTo: BTVC-SCD Subject: Rotation Diet I eat pretty much the same exact thing everyday, so I'm seriously thinking of implementing the rotation diet so that I don't become intolerant to any of my favorites. I know the basics, but have a few questions:Is there anything that DOESN'T need rotated? Like maybe spices, butter, oils, gelatin, or honey?Are eggs okay everyday if they are baked into something? If not, that sure limits the use of recipes.Do cow cheese/yogurt count as one day, and goat cheese/yogurt count as a second? At least I'd be able to eat yogurt every other day. I've never made goat yogurt, could be interesting.I think that's it for now :-). Hopefully, I have enough foods to make this work!HollyCrohn'sSCD 12/01/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2010 Report Share Posted August 23, 2010 Thanks for answering me. I really appreciate it. It's seems like my doctor doesn't think I'm ill enough for Remicade as I think they keep it for when prednisone doesn't work or when you are in the hospital. I'm sorry it only worked for you for a few months. I believe the medicines can click you into remission but then I feel like you have to change your diet and lifestyle if you don't want to get sick again. That's my achilles heal because when I'm better I think I can do anything and work too hard, and eat and drink what I like. Anyway, I have learned my lesson this time. Two things have really helped me which I would never normally give any credence to. 1. meditation. I got this chi anti stress meditation cd from the Tao of Wellness in Santa which really works and 2. Acupressure massage. And I gave up alot of the herbal medicines as they were making me feel so sick. Anyway, I have spent the last month in bed reading endlessly on line how people get better from this illness and I think you have to deal with the mind as well as taking drugs because of the mind body (brain/gut) connection. I think visualizing yourself as healthy is worth a try. I know it all sounds like hooey but anything is worth a try right?Thank you for your feedback. I was on Remicade for a year. I was just diagnosed last year, and after a month on Prednisone and getting worse with tons of weight loss the Remicade thankfully got me out of the hospital and back to my life and job. I've always been anti-medicine and tried to do things naturally, and I hated the possible side effects, but I needed to get out of the hospital and back to work. It worked for me right away and gave me complete remission for a few months. Then symptoms were up and down for a while, we tried doubling the dose which only helped slightly, and now we have finally have decided to switch meds. I didn't have any side effects from the Remicade, and it really did help me get my life back for a while. I really wish it still worked, actually, because I am in a huge flare and really would like to stay out of the hospital. I am not a med taker, so it was a big deal for me to take that medication, but I think if I hadn't I would have had to have surgery because the ulcers in my colon were so deep that they almost went through the muscle.I can't tell you wether or not to take it, because ideally I think we all would like to be able to be healed completely naturally. I guess it depends on how bad your symptoms are and how much it's affecting your quality of life. Good luck, and I hope you can wean off the Pred soon.Take care,Amber> > > Eileen,> >> > Must admit that I wasn't in on the beginning of this conversation > > and just assumed that you were just figuring out if you are dealing > > with sensitivities you weren't aware of. Responses from others make > > me think that you're talking about trying to AVOID DEVELOPING > > sensitivities by rotating. That would be a different situation.> >> > If that's the case I applaud it but I don't seem to have to rotate > > like I used to have to now that the gut flora are in better balance. > > Foods that used to be a problem no longer are. i.e.: mine has proven > > to be mostly a carb problem. And my son, thanks to the supplements > > specified for him by spectracell.com testing, eats anything with no > > ill effects! I do try to rotate but it's not legalistic at all.> >> > Artful Carol> > Former me: From babyhood - CFS, Depression, Candida, Severe > > Chemical, Inhalant, and Food Allergies. Current me: Global Carb and > > Fungal Problems well-controlled past 30 yr. by extremely low-carb, > > no dairy, no grains allergy/anti-yeast diet, SCD 01/05. After 35 > > yrs. no need for allergy shots since SCD! Magnesium/Vits A, B, D, > > E/Evening Primrose, Fish, Olive, and Other Oils, Lecithin. 2 grown > > kids recovered from serious developmental problems which I believe > > were fungally-caused.> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2010 Report Share Posted August 24, 2010 If you're not ill enough for Remicade, you'd probably be best to save it in case you really do need it. Hopefully you won't even get to that point though. Thanks for your input. I absolutely believe in the mind body connection. You make great points about that. I have to get back to being positive, which can be hard when you're in a really bad flare. But I do believe in the power of the mind. Thanks for the reminder. Take care, Amber > > Thanks for answering me. I really appreciate it. It's seems like my > doctor doesn't think I'm ill enough for Remicade as I think they keep > it for when prednisone doesn't work or when you are in the hospital. > I'm sorry it only worked for you for a few months. I believe the > medicines can click you into remission but then I feel like you have > to change your diet and lifestyle if you don't want to get sick again. > That's my achilles heal because when I'm better I think I can do > anything and work too hard, and eat and drink what I like. Anyway, I > have learned my lesson this time. > Two things have really helped me which I would never normally give any > credence to. 1. meditation. I got this chi anti stress meditation cd > from the Tao of Wellness in Santa which really works and 2. > Acupressure massage. And I gave up alot of the herbal medicines as > they were making me feel so sick. Anyway, I have spent the last month > in bed reading endlessly on line how people get better from this > illness and I think you have to deal with the mind as well as taking > drugs because of the mind body (brain/gut) connection. I think > visualizing yourself as healthy is worth a try. I know it all sounds > like hooey but anything is worth a try right? > Thank you for your feedback. > > Quote Link to comment Share on other sites More sharing options...
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