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Hi Kamil,

Welcome to our group. I will try and answer some of your question.

As far as I know, Norditropin is just as good as any other brand of

growth hormone. My son take Genotropin.

The dosage depends on your daughter's weight. I am not a docotr so I

cannot tell you if your daughter is getting the correct dosage. Yes,

the growth hormone should help her final height.

Most doctors here in the USA prescribe a lower dose but give it

daily, since that more closly mimicks how your body produces it.

AS for specialists, there are few. There is a Dr. Wolman in Germany.

Sorry, I do not know his exact location. There is a Dr. Stanhope at

the Great Ormond Street Hospital in London, England and there is Dr.

Harbison in NY, NY USA.

Please tell us more about your daughter. How big is she? How is her

appetite?

Again, welcome to our group and I hope we can answer all your

questions.

Ken M

:)

>

> Hi All;

>

>

> I have just joined this group today.

>

> I have a seven yeas old daughter who has rss and now for the past

> six months the indo following up her case put her on gh, she gained

> some height.

>

> The dose is 4 times a week, sat, sun tues and wed, it started of

> with 8 IU p/w, 2.6 mg p/w, and now she takes 12p/w and from Jan 06

> she will take 16 units p/w. the gh is norditopin by a company

called

> novo nordisk, ever heard of it? is it good? Is there a better

> product?

>

> Can anyone tell me what is the recommended does for her age? Is it

> going to have an effect on her overall final height?

>

> Since we live in Oman, in the middle east, there are hardly any

> doctors specialized in rss, again does any one know of a good

clinic

> around, although I haven't heard of any, what are the good

clinics

> in the US, far east, India, or Europe, anyone knows?

>

> Regards Kamil

>

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Hi Kamil!

My daughter is only 21 months, so I don't have any input for you on the

gh, I just wanted to officially say hello and welcome! Hope to hear more about

you and your family!

Mom to Dasia

kshalwani wrote:

Hi All;

I have just joined this group today.

I have a seven yeas old daughter who has rss and now for the past

six months the indo following up her case put her on gh, she gained

some height.

The dose is 4 times a week, sat, sun tues and wed, it started of

with 8 IU p/w, 2.6 mg p/w, and now she takes 12p/w and from Jan 06

she will take 16 units p/w. the gh is norditopin by a company called

novo nordisk, ever heard of it? is it good? Is there a better

product?

Can anyone tell me what is the recommended does for her age? Is it

going to have an effect on her overall final height?

Since we live in Oman, in the middle east, there are hardly any

doctors specialized in rss, again does any one know of a good clinic

around, although I haven't heard of any, what are the good clinics

in the US, far east, India, or Europe, anyone knows?

Regards Kamil

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Hi Kamil. Welcome to our group. I don't know alot about GH but,

you have definately come to the right place. Keep posting your

questions - you will definately learn alot from everyone here.

Great job on the linear growth! That's very exciting! Take Care.

- H

>

> Hi All;

>

>

> I have just joined this group today.

>

> I have a seven yeas old daughter who has rss and now for the past

> six months the indo following up her case put her on gh, she

gained

> some height.

>

> The dose is 4 times a week, sat, sun tues and wed, it started of

> with 8 IU p/w, 2.6 mg p/w, and now she takes 12p/w and from Jan 06

> she will take 16 units p/w. the gh is norditopin by a company

called

> novo nordisk, ever heard of it? is it good? Is there a better

> product?

>

> Can anyone tell me what is the recommended does for her age? Is it

> going to have an effect on her overall final height?

>

> Since we live in Oman, in the middle east, there are hardly any

> doctors specialized in rss, again does any one know of a good

clinic

> around, although I haven't heard of any, what are the good

clinics

> in the US, far east, India, or Europe, anyone knows?

>

> Regards Kamil

>

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Kamil,

If you want to stay in Europe, go to see Dr. Stanhope at Great

Ormond Street Hospital in London. He and Dr. Harbison in NYC are the

best in the world for RSS. Of course, you could always come to New

York....

Jodi Z

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