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this bronchitis feels a lot worse than the pf right now

at least with the pf and o2 i can be active

this has me homebound

excessive coughing, excessive mucus, some low grade fevers

runny nose

the mucinex makes me sleep alot

tried to walk the dog yesterday, didn't get very far, just across the street, when the coughing started

glad he is small and paper trained

this was the first week in a very very long time that i had something scheduled for everyday, i couldn't do any of it except for wednesday when i saw the pulmonary

linda zion -- how long did it take for your bronchitis to go away last year?

i think you were hospitalized with it too?

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org

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Pink,

I hope you feel better soon!

C_53_Familial IPF_5/09, Washington

HOPE doesn't disappoint!

To: breathe-support Sent: Fri, December 18, 2009 5:37:00 AMSubject: bronchitis

this bronchitis feels a lot worse than the pf right now

at least with the pf and o2 i can be active

this has me homebound

excessive coughing, excessive mucus, some low grade fevers

runny nose

the mucinex makes me sleep alot

tried to walk the dog yesterday, didn't get very far, just across the street, when the coughing started

glad he is small and paper trained

this was the first week in a very very long time that i had something scheduled for everyday, i couldn't do any of it except for wednesday when i saw the pulmonary

linda zion -- how long did it take for your bronchitis to go away last year?

i think you were hospitalized with it too?

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

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Hi Joyce,

I think we can commiserate together. I've had bronchitis since October. I've

been on Leviquin, Augmenten, Doxycycline, and now the second round of Omnicef.

It is not working this time either but will hold it down until my appt with my

new pulmo on Monday. I won't even mention asking for that stick of dynamite to

eat due to the absence of any microbes in my GI tract. The Urgent Care doc got

a chuckle out of that one! He is the one baffled by why I have bronchiectasis.

Absolutely NOBODY wants to treat me. They just look bewildered and Rx another

useless antibiotic. Had I not found this pulmo, I guess I'd be headed for

Vegas, 2 hours away, to get care. I am hopefully but guardedly optomistic.

Activity sends me into spasms of coughing which results in muscle spasms around

my rib cage, in my abdomen, neck pain.... the list goes on. We won't even

mention the taste of aging road kill that goes with the coughing. Misery loves

company? If that's true, then here ya go!

Funny thing is that I told my primary care doc that my pulmo left town, he knew

I was having a time with this bronchitis, and just this week, suggested I see

the pulmo that I didn't know existed before November. Why on earth didn't he

refer me months ago!!!

ann

>

> this bronchitis feels a lot worse than the pf right now

>  

> at least with the pf and o2 i can be active

>  

> this has me homebound

>  

> excessive coughing, excessive mucus, some low grade fevers

> runny nose

>  

> the mucinex makes me sleep alot

>  

> tried to walk the dog yesterday, didn't get very far, just across the street,

when the coughing started

>  

> glad he is small and paper trained

>

>  

> this was the first week in a very very long time that i had something

scheduled for everyday, i couldn't do any of it except for wednesday when i saw

the pulmonary

>  

> linda zion -- how long did it take for your bronchitis to go away last year?

> i think you were hospitalized with it too?

>

> Pink Joyce R (IPF 3/06)  IFA 5/09 Pennsylvania

> Donate Life Listed 1/09 Inactive 4/09

> www.transplantfund.org

>

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Pink, YES , I was in the hospital

for 3 days with acute bronchitis in March.

It really took many months before I was back to "me" again. The

prednisone had been

really jacked up ( from my usual 10mg to 60mg) and it took quite a

while to get back down.

The coughing was miserable for a while and no medication worked as

well as plain tea with honey!

I ran a fever too...usually my "normal" is 96...I was at 99 for several

weeks. It took three different

antibiotics to finally get things back to OK.Basically I was on

antibiotics straight for a month!

So...take care...rest...loads of fluids..be good to yourself.

Remember we all take longer to heal because of the PF.

Even now, my Penn pulmodude thinks that the inflammation seen on the

most recent HRCT is a result of the bronchitis!

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild” PH/10/07

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara

“I’m

gonna be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Joyce T Rosenberg wrote:

this bronchitis feels a lot worse than the pf right now

at least with the pf and o2 i can be active

this has me homebound

excessive coughing, excessive mucus, some low grade fevers

runny nose

the mucinex makes me sleep alot

tried to walk the dog yesterday, didn't get very far, just

across the street, when the coughing started

glad he is small and paper trained

this was the first week in a very very long time that i

had something scheduled for everyday, i couldn't do any of it except

for wednesday when i saw the pulmonary

linda zion -- how long did it take for your bronchitis to

go away last year?

i think you were hospitalized with it too?

Pink Joyce R (IPF 3/06) IFA 5/09

Pennsylvania

Donate Life

Listed 1/09 Inactive

4/09

www.transplantfund.org

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Share on other sites

thanks for your response

in the er on sunday, they gave me steriods via IV, then upped my prednisone to 30 mgs for 3 days, saw pulmonary on Wed and we are weaning the prednisone again

was on a z-pack

take mepron daily anyway

have been taking mucinex to break up the mucus, but it makes me sleep a good portion of the day

example took it about 10 or 11 last night, woke up about 6 am, was asleep on sofa by 9 am till almost 1pm

er also gave me albuterol inhaler

i have discovered if i use it during a coughing spell, even though i don't use it correctly, it helps calm down the cough

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: bronchitisTo: Breathe-Support Date: Friday, December 18, 2009, 1:08 PM

Pink, YES , I was in the hospital for 3 days with acute bronchitis in March.It really took many months before I was back to "me" again. The prednisone had beenreally jacked up ( from my usual 10mg to 60mg) and it took quite a while to get back down.The coughing was miserable for a while and no medication worked as well as plain tea with honey!I ran a fever too...usually my "normal" is 96...I was at 99 for several weeks. It took three differentantibiotics to finally get things back to OK.Basically I was on antibiotics straight for a month! So...take care...rest. ..loads of fluids..be good to yourself.Remember we all take longer to heal because of the PF.Even now, my Penn pulmodude thinks that the inflammation seen on the most recent HRCT is a result of the bronchitis!

Z 65, fibriotic NSIP/05/PA

And “mild†PH/10/07

No, NSIP was not self-inflicted…I never smoked!

Potter, reader,carousel lover and MomMom to Darah and Sara

“I’m gonna be iron like a lion in Zion†Bob Marley

Vinca Minor-periwinkle is my flower

Joyce T Rosenberg wrote:

this bronchitis feels a lot worse than the pf right now

at least with the pf and o2 i can be active

this has me homebound

excessive coughing, excessive mucus, some low grade fevers

runny nose

the mucinex makes me sleep alot

tried to walk the dog yesterday, didn't get very far, just across the street, when the coughing started

glad he is small and paper trained

this was the first week in a very very long time that i had something scheduled for everyday, i couldn't do any of it except for wednesday when i saw the pulmonary

linda zion -- how long did it take for your bronchitis to go away last year?

i think you were hospitalized with it too?

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

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Share on other sites

sorry you have been sick for so long

now i am beginning to know what to expect

the literature i received from the er about bronchitis indicated that a cause could be envirionmental, pollution

it reallly became noticeable after the smoke alarms went offf while broiling a steak

all of that stuff in the air irritated my lungs

then if it's viral, anti biotics won't help, just if it's bacterial

hope you feel better soon

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: bronchitisTo: Breathe-Support Date: Friday, December 18, 2009, 11:19 AM

Hi Joyce,I think we can commiserate together. I've had bronchitis since October. I've been on Leviquin, Augmenten, Doxycycline, and now the second round of Omnicef. It is not working this time either but will hold it down until my appt with my new pulmo on Monday. I won't even mention asking for that stick of dynamite to eat due to the absence of any microbes in my GI tract. The Urgent Care doc got a chuckle out of that one! He is the one baffled by why I have bronchiectasis.Absolutely NOBODY wants to treat me. They just look bewildered and Rx another useless antibiotic. Had I not found this pulmo, I guess I'd be headed for Vegas, 2 hours away, to get care. I am hopefully but guardedly optomistic. Activity sends me into spasms of coughing which results in muscle spasms around my rib cage, in my abdomen, neck pain.... the list goes on. We won't even mention the taste of aging road kill that goes with the coughing. Misery loves

company? If that's true, then here ya go!Funny thing is that I told my primary care doc that my pulmo left town, he knew I was having a time with this bronchitis, and just this week, suggested I see the pulmo that I didn't know existed before November. Why on earth didn't he refer me months ago!!!ann>> this bronchitis feels a lot worse than the pf right now> > at least with the pf and o2 i can be active> > this has me homebound> > excessive coughing, excessive mucus, some low grade fevers> runny nose> > the mucinex makes me sleep alot> > tried

to walk the dog yesterday, didn't get very far, just across the street, when the coughing started> > glad he is small and paper trained> > > this was the first week in a very very long time that i had something scheduled for everyday, i couldn't do any of it except for wednesday when i saw the pulmonary> > linda zion -- how long did it take for your bronchitis to go away last year?> i think you were hospitalized with it too?> > Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania > Donate Life Listed 1/09 Inactive 4/09> www.transplantfund. org>

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