Re: Re: ng tube questions

[Guest guest]

Hey . Did they happen to tell you how long Ian will have to have the

G-tube? I know that when Brockton was in the NICU he had one right up until

about a week before we left and the tape on his face really bothered him. I

HATED IT and couldn't wait to see it GONE. I'm sure you must feel the same way

even though we all know that it's there for a very good reason! I am really

hoping that they dont start talking about a G-tube for Brockton again once he

sees the GI specialist on the 27th. We were so excited when they took Brocktons

out in the NICU that we have a ZILLION pictures of him on that day. LOL

Thanks!

Jeanie

advocate22003 wrote:

- you are going to hate me. Ian hasn't touched it once. He

just says " ow " if I clean around his nose. He seems to have

constant congestion in the nose with the tube and I'm constantly

having to clean it out. I threatened Ian and his brother when we

got home from the hospital - that if they touched it - he would have

to go back to the hospital to put in another one!! I guess that was

enough for him - he has never touched it. I can't remember how old

Dalia is - maybe that would be enough for her to not touch it as

well. Ian coughs and gags occassionally when he eats with it - he's

gotten a pea and blueberry skin stuck somehow and coughed it back

up - but, he's been able to eat pizza, pretzels, salami, and other

stuff with it. I'm wondering if you tempted her with a special

treat for not touching it - that would work. Do you check placement

with it too with a stethoscope? I was told to do this prior to

every feeding - but, I do it once a day - my mother-in-law is a

nurse and said that he would turn blue, cough, and gag continuously

if it were in the wrong place.

As far as it moving out a few inches - it should be taped very

securely to her face enough so that it barely moves. You don't see

Ian's move much at all. Maybe the fact that it is moving so freely -

it is causing her more discomfort. Look at the pictures I posted -

you will see how we taped it.

Keep me posted. I'm here if you need me. Hugs to you.

- H

>

> Hi Everyone,

> Another eventful weekend. Dasia is doing much better though,

it was well worth it. She's drinking 2 Nutrens a day by mouth now,

since she's feeling so much better. She pulled the ng tube out first

thing after we got home, and I hate that thing so much. She coughed,

sneezed, and threw up all at the same time when they placed it. Then

whenever she'd sneeze, the tube would be forced out a few inches,

and even pushing it back in causes all the gagging and sneezing.

She's sopposed to be getting 3 cans of Nutren a day, which is so

frustrating becuase she has been readily drinking 2. We didn't put

the tube back in last night since she had gotten what she needed for

the day. And the plan was to put it back in today. I'm very weak

when it comes to this. She is not even close to being used to it,

how long does it take for them to get used to it, and not want to

pull it out? As long as I'm flushing it, and Dasia isn't messing

with it, will I be able to keep it in for 3 weeks until her

> surgery? And any other suggetions to make this easier would be

great!

> Thanks everyone for all of your support through this hard time!

>

> Mom to Dasia

>

>

>

> ---------------------------------

> Yahoo! Photos

> Ring in the New Year with Photo Calendars. Add photos, events,

holidays, whatever.

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>

[Guest guest]

I wish Dasia were old enough to reason with! They gave us the whole kit with the

stethoscope too, I hated the idea of putting air in her belly before each

feeding. Once a day sounds much better. Now I just have to worry about placing

it without puncturing a lung! I hope the risk isn't very high, my neighbor said

that happened to her preemie son in the nicu. This is so hard, but so necessary.

We'll all get through it. When is Ian's g-tube scheduled for?

Mom to Dasia

23mo RSS

advocate22003 wrote:

- you are going to hate me. Ian hasn't touched it once. He

just says " ow " if I clean around his nose. He seems to have

constant congestion in the nose with the tube and I'm constantly

having to clean it out. I threatened Ian and his brother when we

got home from the hospital - that if they touched it - he would have

to go back to the hospital to put in another one!! I guess that was

enough for him - he has never touched it. I can't remember how old

Dalia is - maybe that would be enough for her to not touch it as

well. Ian coughs and gags occassionally when he eats with it - he's

gotten a pea and blueberry skin stuck somehow and coughed it back

up - but, he's been able to eat pizza, pretzels, salami, and other

stuff with it. I'm wondering if you tempted her with a special

treat for not touching it - that would work. Do you check placement

with it too with a stethoscope? I was told to do this prior to

every feeding - but, I do it once a day - my mother-in-law is a

nurse and said that he would turn blue, cough, and gag continuously

if it were in the wrong place.

As far as it moving out a few inches - it should be taped very

securely to her face enough so that it barely moves. You don't see

Ian's move much at all. Maybe the fact that it is moving so freely -

it is causing her more discomfort. Look at the pictures I posted -

you will see how we taped it.

Keep me posted. I'm here if you need me. Hugs to you.

- H

>

> Hi Everyone,

> Another eventful weekend. Dasia is doing much better though,

it was well worth it. She's drinking 2 Nutrens a day by mouth now,

since she's feeling so much better. She pulled the ng tube out first

thing after we got home, and I hate that thing so much. She coughed,

sneezed, and threw up all at the same time when they placed it. Then

whenever she'd sneeze, the tube would be forced out a few inches,

and even pushing it back in causes all the gagging and sneezing.

She's sopposed to be getting 3 cans of Nutren a day, which is so

frustrating becuase she has been readily drinking 2. We didn't put

the tube back in last night since she had gotten what she needed for

the day. And the plan was to put it back in today. I'm very weak

when it comes to this. She is not even close to being used to it,

how long does it take for them to get used to it, and not want to

pull it out? As long as I'm flushing it, and Dasia isn't messing

with it, will I be able to keep it in for 3 weeks until her

> surgery? And any other suggetions to make this easier would be

great!

> Thanks everyone for all of your support through this hard time!

>

> Mom to Dasia

>

>

>

> ---------------------------------

> Yahoo! Photos

> Ring in the New Year with Photo Calendars. Add photos, events,

holidays, whatever.

>

>

[Guest guest]

AMEN, SISTER! I couldn't do it either.

Brockton is upstairs right now screaming because he's fighting sleep and it's

KILLING ME. I can't imagine placing a G-tube. His pediatrician told me that if

I just let him cry himself to sleep for 2 nights he'll adjust. I'm really

beginning to wonder if he'll hate me forever...........

advocate22003 wrote:

- I was FORCED at the hospital to place the ng tube while I

was there to make sure I know how to do it in the event it came out

at home. I'm telling you right now. If the NG - tube miracuously

fell out at home, car or the mall - I WOULD NOT put it back in

myself! LOL LOL - I already have it in my mind that I would go to

the ER and make them do it. So, I commend you greatly for doing it

yourself. I did it in the hospital and I didn't like it one bit. I

also do not believe that I should cause discomfort to my son.

Giving a shot, dealing with diaper rash, checking b/s, dealing with

other less difficult discomforts are reasonable - but, shoving a

tube down my son's nose is not in my realm. I know I could do it or

any other more invasive procedure if it were an emergency - but, in

my opinion - this is not an emergency for Ian. Again, I'm very

proud of you to take it on. Great job!

- H

> >

> > Hi Everyone,

> > Another eventful weekend. Dasia is doing much better

though,

> it was well worth it. She's drinking 2 Nutrens a day by mouth now,

> since she's feeling so much better. She pulled the ng tube out

first

> thing after we got home, and I hate that thing so much. She

coughed,

> sneezed, and threw up all at the same time when they placed it.

Then

> whenever she'd sneeze, the tube would be forced out a few inches,

> and even pushing it back in causes all the gagging and sneezing.

> She's sopposed to be getting 3 cans of Nutren a day, which is so

> frustrating becuase she has been readily drinking 2. We didn't put

> the tube back in last night since she had gotten what she needed

for

> the day. And the plan was to put it back in today. I'm very weak

> when it comes to this. She is not even close to being used to it,

> how long does it take for them to get used to it, and not want to

> pull it out? As long as I'm flushing it, and Dasia isn't messing

> with it, will I be able to keep it in for 3 weeks until her

> > surgery? And any other suggetions to make this easier would be

> great!

> > Thanks everyone for all of your support through this hard time!

> >

> > Mom to Dasia

> >

> >

> >

> > ---------------------------------

> > Yahoo! Photos

> > Ring in the New Year with Photo Calendars. Add photos, events,

> holidays, whatever.

> >

> >

[Guest guest]

Thanks ,

You're right, it is nothing short of life saving! Now I can feed her

first thing in the morning. For the last 2 months, it came to the point where

she would never even drink anything before noon. Now I'm feeding her from the

time we wake up till bedtime, and it feels so good! She has gotten more used to

it too, she sits and colors while I do it. She used to cry the whole time from

the time she saw me bring in the syringe. She pulled her tube out for the 2nd

time now. My husband put it back while I held her the first time, and this

morning she woke up without it in, so I had to lay her down and swaddle her in a

blanket while I put it in myself. It went right in, I was surprised how easy it

was. That's the only time she gags now. As for the tape, I have the large piece

of clear tape that is like very sticky saran wrap. It stays very well, but the

smaller, different piece of tape that goes next to her nose ALWAYS comes off.

Otherwise, I don't think she'd be able to pull the tube

out. I'll check the pharmacy, and hopefully find some of the tape you

mentioned.

She messes with everything, including her earrings. She has pulled out and

lost 5 pair, but I finally found infant earrings with screw on backs at

JCPenneys.

For the g-tube I've always thought I'll need to use an ace bandage or

something to keep it covered. Then Amy told me, they make their own pretty,

colorful belt-like wraps sewed with velcro to fasten it. I like that idea a lot.

They have us giving Dasia 4oz every 3 hours 6 times a day. It's going very

well. Then next week go up to 5oz. to get closer to 4 cans. It will be 2oz less

than 4 cans. Is this similar to your plan? I know Autumn is eating now, but when

she wasn't? This will be almost 1000 calories, and said for Ian they

want 1000 calories, but he weighs more and is, I think, a little more than 6

months older, and they went by age and weight. For Dasia they said, normally it

would be 770 calories, but for catch-up growth, it will need to be more, around

950. Autumn and Dasia are the same age, so I just want to compare, and get this

done right. Thank you ~

anderkat3 wrote:

HI! I am glad Dasia is doing better! I HATED the ng tube and loved

it at the same time because it was a lifesaver for Autumn. I have to

say the g-tube is so much easier to deal with for everyone. The

gagging and vomiting never ended for her with the ng although I

believe she only had hers for 10 or so days. It did get better over

time but never went away. The tape around her nose always got wet

from a drippy nose and came of. It would pop out some too and she

would gag as I put it back. We used something called DuoDerm...fake

skin tape then put the tube over it and and taped it to the DuoDerm

with clear Tegaderm tape. The DuoDerm stays on the skin very well

regarless of moisture and the Tegaderm didn't come off as quick as it

did on bare skin. That was the tape on the cheek but it was tought

to get it closer to the nostril and that is where they really need

the secure hold to keep it from popping out.

one thing I found work very well around the nose area to hold the

tube secure is the nasal oxygen sticker things at the hospital, at

her hospital they were brown circles with some tape on top that are

used to hold the nasal oxygen tubes in place, or in our case an ng

tube in place. They stay secure and hold the tube still.

Also, I never placed the ng tube. I had the kit too and checked for

air/placement but just couldn't handle the thought of doing it on my

own. We had a home care nurse available 24/7 and I was told just to

call them if it was needed. I was given that choice although I was

shown how to do it on my own. If she would have needed it longer

than that short period of time, then I would have done it. Also,

Autumn never pulled at hers. She is oblivious to so much. She

doens't mess with her g-tube or earings either.

The g-tube will seem like a piece of cake compared to this.

Good luck!

mom to Autumn RSS, Summer SGA, OCean, Skye

>

> Hi Everyone,

> Another eventful weekend. Dasia is doing much better though,

it was well worth it. She's drinking 2 Nutrens a day by mouth now,

since she's feeling so much better. She pulled the ng tube out first

thing after we got home, and I hate that thing so much. She coughed,

sneezed, and threw up all at the same time when they placed it. Then

whenever she'd sneeze, the tube would be forced out a few inches, and

even pushing it back in causes all the gagging and sneezing. She's

sopposed to be getting 3 cans of Nutren a day, which is so

frustrating becuase she has been readily drinking 2. We didn't put

the tube back in last night since she had gotten what she needed for

the day. And the plan was to put it back in today. I'm very weak when

it comes to this. She is not even close to being used to it, how long

does it take for them to get used to it, and not want to pull it out?

As long as I'm flushing it, and Dasia isn't messing with it, will I

be able to keep it in for 3 weeks until her

> surgery? And any other suggetions to make this easier would be

great!

> Thanks everyone for all of your support through this hard time!

>

> Mom to Dasia

>

>

>

> ---------------------------------

> Yahoo! Photos

> Ring in the New Year with Photo Calendars. Add photos, events,

holidays, whatever.

>

>