Re: Jodi - have you had checked by a pediatric dentist?

[Guest guest]

Frances,

Yes, actually we have taken him to a pediatric dentist. He didn't

indicate anything like what you mentioned, but it makes me wonder. I

think a lot of his problems is that he has been tube fed so long and

didn't " learn " how to chew things. I also know he has a high arched

palate and things tend to get lost pretty easily in his mouth.

Which, makes him gag. He has been practicing a lot with pretzels

lately and I think his chewing has gotten better because of it. But,

he still can't eat like he should be able to. Little bites of

pretzel and crackers take him all day! ;o)

Thanks for the suggestion though. That's why I love this list

serve. There is bound to be someone on here or lurking that has a

great idea.

Jodi R.

> > >

> > > Hi...i have a wonderful 8yr old son () who was diagnosed

> with

> > > Silver at about 9 months old. He has always been a

happy

> > and

> > > healthy boy and he has been lucky enough to have only minimal

> > health

> > > problems. I have joined this group in the hope that someone has

> > some

> > > ideas on helping me with his diet. eats well, gets

really

> > > hungry and has a very healthy diet. Unfortunately he will only

> eat

> > > the same six things all the time. This is an average day.

> > > Breakfast - Cow and gate creamed porridge for 4months+, carton

of

> > > choc soya milk.

> > > Lunch - Banana, Fromage fraise, Pringles (about 10),2 choc

> > biscuits.

> > > Carton of choc soya milk.

> > > Dinner - Cow and gate creamed porridge for 4months+, fromage

> > fraise,

> > > pringles (about 10), 2 choc biscuits, Carton of choc soya milk.

> > >

> > > gets through a whole box of baby porridge every day and

is

> > > prescribed a protein and calorie powder which i add to it. He

> will

> > > eat orange jelly aswell as various types of biscuit, crisps and

> > > fomage fraise, but his main intake is the porridge which he

will

> > not

> > > alter. It has to be Cow and gate or he wont eat it. And he is

not

> > > fooled by any sneaky changes. He has seen dieticians many times

> > over

> > > the years and they are basically clueless as to how to handle

> him.

> > > The last one told me there is nothing they can do and referred

us

> > > back to our GP. We are now waiting to see a psychologist.

> > > has a big sister Jessie aged 10 and a baby brother or

> sister

> > > on the way in febuary. Obviously i could talk about for

> > hours

> > > as he is an absolute love in every way, but really any help in

> how

> > > to improve his diet will be greatly appriciated. Hope to hear

> from

> > > someone soon. Liz Kaulbach.xxx

> > >

> >

>

[Guest guest]

Hey Jodi,

Thought I would mention that Bran has exactly the opposite problem. His low

jaw is so narrow that his front bottom teeth scrap the gums behind his front

top teeth when he chews. I don't know if he's outgrown this, as he is

chewing somewhat better these days, or maybe he's just learned to manipulate

his food better?? But the dentist at the convention showed us how sore those

gums were, and suggested that we take him a pediodontist that was associated

with a cranio-facial team.

Bran always seems to take one step forward, and then two steps back, when it

comes to his eating. He needs a very regular feeding therapy schedule to

make any advancements, and have them stick.

Pat (g-ma to , RSS, 3 yrs 10 months old, 25#, 34.6 " , G-tube, GHT)

[Guest guest]

Pat,

also saw Dr at the Convention, but he didn't say

anything about that. He only said how his teeth would more than

likely be crowded and he would need to have teeth pulled. And, that

he had a high arched palate. Nothing about having trouble eating???

I wonder if he does have some problem with that, or if he just needs

to learn how to chew. His therapist seems to think he has a

desensitization to food when it goes too far back in his mouth and

he " loses " food and then gags and chokes on it. But, he has been

practicing with pretzels lately and has been doing so much better. I

think a lot of 's problem is he needs to be hungry enough to

WANT to eat, too. When he isn't hungry, he seems to play more and

gag. When he is hungry after being on Orapred, he eats like a horse

and never gags or chokes!??? What's the deal?

Jodi R.

Speaking of therapy, it is time to get going.

>

> Hey Jodi,

>

> Thought I would mention that Bran has exactly the opposite problem.

His low

> jaw is so narrow that his front bottom teeth scrap the gums behind

his front

> top teeth when he chews. I don't know if he's outgrown this, as he

is

> chewing somewhat better these days, or maybe he's just learned to

manipulate

> his food better?? But the dentist at the convention showed us how

sore those

> gums were, and suggested that we take him a pediodontist that was

associated

> with a cranio-facial team.

>

> Bran always seems to take one step forward, and then two steps

back, when it

> comes to his eating. He needs a very regular feeding therapy

schedule to

> make any advancements, and have them stick.

>

> Pat (g-ma to , RSS, 3 yrs 10 months old, 25#, 34.6 " , G-tube,

GHT)

>