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Swollen tongue, lips sound like a very important side effect. I would get to the emergency room!PJ in OH, 54, IPF 09, Sjogren's 95 Question azathioprine

Hi, All

Has anyone had problems with Azathioprine, I was put on azathioprine a week and a half ago and I have been having muscle pain and been very tired also. Between all my meetings and pulmonology rehab I am not able to do anything… the only thing I may have gotten accomplished when I could not make my meeting my partner did. My representative who was at this meeting and I had hoped to meet. My partner was able to talk to himwhen explained why I was not there and he then was able to ask him about to join in Brain Baird to co sponsor The PFREA, H.R. 1079. He right away went on the phone started to work on it…so that was my excitement of the day.

but now

The pulmonologist who used to go to in Bellingham and also uses same treatments Doctor Ragu I guess he worked together with him. Has a complete different picture of what I have from the biopsy report. The other pulmonologist who is mostly a lung cancer pulmonologist just gave me 5 mg of prednisone every other day.

When I went last week to my, pulmonologist he wanted me to go right away to Doctor Ragu and was somewhat worried that the appointment was not until the 5th of may.

He said we could not wait any longer, I had to go on azathioprine 50 milligrams and up it every other week to 300 mg then do 10 mg prednisone every other day. I have been sleeping all day through this meeting but now my face is getting swollen, lips and tongue…My belly is enlarged I usually have flat belly and itching but no rashes.

I quickly looked at side effects and it is a side effect I guess but it dangerous can I wait until Monday.? Or will I wait for my blood test on Wednesday. I have no clue I guess I will go to bed again and see if someone will respond tomorrow.

I hate going to the emergency room or should I just quit taking it? Thank you for your help, Erna

Erna

1992 bird fanciers syndrome,

CAD & MI 2004

ILD 2008 NSIP 2009

Washington State

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Erna,

Swelling of lips and tongue is a very serious side effect, in fact it could be an allergic reaction. You need to seek emergency help. Get to the ER immediately.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Sun, January 10, 2010 4:46:10 AMSubject: Question azathioprine

Hi, All

Has anyone had problems with Azathioprine, I was put on azathioprine a week and a half ago and I have been having muscle pain and been very tired also. Between all my meetings and pulmonology rehab I am not able to do anything… the only thing I may have gotten accomplished when I could not make my meeting my partner did. My representative who was at this meeting and I had hoped to meet. My partner was able to talk to him when explained why I was not there and he then was able to ask him about to join in Brain Baird to co sponsor The PFREA, H.R. 1079. He right away went on the phone started to

work on it…so that was my excitement of the day.

but now

The pulmonologist who used to go to in Bellingham and also uses same treatments Doctor Ragu I guess he worked together with him. Has a complete different picture of what I have from the biopsy report. The other pulmonologist who is mostly a lung cancer pulmonologist just gave me 5 mg of prednisone every other day.

When I went last week to my, pulmonologist he wanted me to go right away to Doctor Ragu and was somewhat worried that the appointment was not until the 5th of may.

He said we could not wait any longer, I had to go on azathioprine 50 milligrams and up it every other week to 300 mg then do 10 mg prednisone every other day. I have been sleeping all day through this meeting but now my face is getting swollen, lips and tongue…My belly is enlarged I usually have flat belly and itching but no rashes.

I quickly looked at side effects and it is a side effect I guess but it dangerous can I wait until Monday.? Or will I wait for my blood test on Wednesday. I have no clue I guess I will go to bed again and see if someone will respond tomorrow.

I hate going to the emergency room or should I just quit taking it? Thank you for your help, Erna

Erna

1992 bird fanciers syndrome,

CAD & MI 2004

ILD 2008 NSIP 2009

Washington State

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call the doctor who prescribed it ASAP

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Question azathioprineTo: Breathe-Support Date: Sunday, January 10, 2010, 4:46 AM

Hi, All

Has anyone had problems with Azathioprine, I was put on azathioprine a week and a half ago and I have been having muscle pain and been very tired also. Between all my meetings and pulmonology rehab I am not able to do anything… the only thing I may have gotten accomplished when I could not make my meeting my partner did. My representative who was at this meeting and I had hoped to meet. My partner was able to talk to him when explained why I was not there and he then was able to ask him about to join in Brain Baird to co sponsor The PFREA, H.R. 1079. He right away went on the phone started to

work on it…so that was my excitement of the day.

but now

The pulmonologist who used to go to in Bellingham and also uses same treatments Doctor Ragu I guess he worked together with him. Has a complete different picture of what I have from the biopsy report. The other pulmonologist who is mostly a lung cancer pulmonologist just gave me 5 mg of prednisone every other day.

When I went last week to my, pulmonologist he wanted me to go right away to Doctor Ragu and was somewhat worried that the appointment was not until the 5th of may.

He said we could not wait any longer, I had to go on azathioprine 50 milligrams and up it every other week to 300 mg then do 10 mg prednisone every other day. I have been sleeping all day through this meeting but now my face is getting swollen, lips and tongue…My belly is enlarged I usually have flat belly and itching but no rashes.

I quickly looked at side effects and it is a side effect I guess but it dangerous can I wait until Monday.? Or will I wait for my blood test on Wednesday. I have no clue I guess I will go to bed again and see if someone will respond tomorrow.

I hate going to the emergency room or should I just quit taking it? Thank you for your help, Erna

Erna

1992 bird fanciers syndrome,

CAD & MI 2004

ILD 2008 NSIP 2009

Washington State

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What are the possible side effects of azathioprine?

Get emergency medical help if you have any of these signs of an allergic reaction: hives; difficulty breathing; swelling of your face, lips, tongue, or throat.

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Counting my blessings: #23 - grocery stores

Consider what a great forest is set ablaze by a small spark. ( 3:5)

To: Breathe-Support Sent: Sun, January 10, 2010 9:21:58 AMSubject: Re: Question azathioprine

call the doctor who prescribed it ASAP

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Erna <vrolijk50 (AT) yahoo (DOT) com>Subject: Question azathioprineTo: Breathe-Support@ yahoogroups. comDate: Sunday, January 10, 2010, 4:46 AM

Hi, All

Has anyone had problems with Azathioprine, I was put on azathioprine a week and a half ago and I have been having muscle pain and been very tired also. Between all my meetings and pulmonology rehab I am not able to do anything… the only thing I may have gotten accomplished when I could not make my meeting my partner did. My representative who was at this meeting and I had hoped to meet. My partner was able to talk to him when explained why I was not there and he then was able to ask him about to join in Brain Baird to co sponsor The PFREA, H.R. 1079. He right away went on the phone started to

work on it…so that was my excitement of the day.

but now

The pulmonologist who used to go to in Bellingham and also uses same treatments Doctor Ragu I guess he worked together with him. Has a complete different picture of what I have from the biopsy report. The other pulmonologist who is mostly a lung cancer pulmonologist just gave me 5 mg of prednisone every other day.

When I went last week to my, pulmonologist he wanted me to go right away to Doctor Ragu and was somewhat worried that the appointment was not until the 5th of may.

He said we could not wait any longer, I had to go on azathioprine 50 milligrams and up it every other week to 300 mg then do 10 mg prednisone every other day. I have been sleeping all day through this meeting but now my face is getting swollen, lips and tongue…My belly is enlarged I usually have flat belly and itching but no rashes. I quickly looked at side effects and it is a side effect I guess but it dangerous can I wait until Monday.? Or will I wait for my blood test on Wednesday. I have no clue I guess I will go to bed again and see if someone will respond tomorrow. I hate going to the emergency room or should I just quit taking it? Thank you for your help, Erna Erna

1992 bird fanciers syndrome, CAD & MI 2004

ILD 2008 NSIP 2009 Washington State

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Erna

People do have reactions to Azathioprine and thats why you start with

very frequent blood testing. If you've been on it a week and half you

already should have had your first blood test but if your doctor has an

emergency number I'd dial it. At the worst, I'd not take any today and

get to the doctor first thing tomorrow.

>

> Hi, AllÂ

> Has anyone had problems with Azathioprine, I was put on azathioprine a

week and a half ago and I have been having muscle pain and been very

tired also. Between all my meetings andpulmonology rehab I am not able

to do anything… the only thing I may have gotten accomplished when

I could not make my meeting my partner did. My representative who was at

this meeting and I had hoped to meet. My partner was able to talk to him

when explained why I was not there and he then was able to ask

him about to join in Brain Baird to co sponsor The PFREA, H.R. 1079. He

right away went on the phone started to work on it…so that was my

excitement of the day.

> Â but now

> The pulmonologist who used to go to in Bellingham and also uses same

treatments Doctor Ragu I guess he worked together with him. Has a

complete different picture of what I have from the biopsy report. The

other pulmonologist who is mostly a lung cancer pulmonologist just gave

me 5 mg of prednisone every other day.Â

> When I went last week to my, pulmonologist he wanted me to go right

away to Doctor Ragu and was somewhat worried that the appointment was

not until the 5th of may.Â

> He said we could not wait any longer, I had to go on azathioprine 50

milligrams and up it every other week to 300 mg then do 10 mg prednisone

every other day. I have been sleeping all day through this meeting but

now my face is getting swollen, lips and tongue…My belly is

enlarged I usually have flat belly and itching but no rashes.

> I quickly looked at side effects and it is a side effect I guess but

it dangerous can I wait until Monday.? Or will I wait for my blood test

on Wednesday. I have no clue I guess I will go to bed again and see if

someone will respond tomorrow.

> I hate going to the emergency room or should I just quit taking it?

Thank you for your help, Erna

>

> Â

> Erna

> 1992 bird fanciers syndrome,

> CAD & MI 2004

> ILD 2008 NSIP 2009

> Washington State

>

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Share on other sites

Erna

I second the get to ER instructions.

>

> Erna,

> Swelling of lips and tongue is a very serious side effect, in fact it

could be an allergic reaction. You need to seek emergency help. Get to

the ER immediately.

>

> Â

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

> Â

> Â

>

>

>

>

> ________________________________

> From: Erna vrolijk50@...

> To: Breathe-Support

> Sent: Sun, January 10, 2010 4:46:10 AM

> Subject: Question azathioprine

>

> Â

> Hi, AllÂ

> Has anyone had problems with Azathioprine, I was put on azathioprine a

week and a half ago and I have been having muscle pain and been very

tired also. Between all my meetings andpulmonology rehab I am not able

to do anything… the only thing I may have gotten accomplished when

I could not make my meeting my partner did. My representative who was at

this meeting and I had hoped to meet. My partner was able to talk to him

when explained why I was not there and he then was able to ask

him about to join in Brain Baird to co sponsor The PFREA, H.R. 1079. He

right away went on the phone started to work on it…so that was my

excitement of the day.

> Â but now

> The pulmonologist who used to go to in Bellingham and also uses same

treatments Doctor Ragu I guess he worked together with him. Has a

complete different picture of what I have from the biopsy report. The

other pulmonologist who is mostly a lung cancer pulmonologist just gave

me 5 mg of prednisone every other day.Â

> When I went last week to my, pulmonologist he wanted me to go right

away to Doctor Ragu and was somewhat worried that the appointment was

not until the 5th of may.Â

> He said we could not wait any longer, I had to go on azathioprine 50

milligrams and up it every other week to 300 mg then do 10 mg prednisone

every other day. I have been sleeping all day through this meeting but

now my face is getting swollen, lips and tongue…My belly is

enlarged I usually have flat belly and itching but no rashes.

> I quickly looked at side effects and it is a side effect I guess but

it dangerous can I wait until Monday.? Or will I wait for my blood test

on Wednesday. I have no clue I guess I will go to bed again and see if

someone will respond tomorrow.

> I hate going to the emergency room or should I just quit taking it?

Thank you for your help, Erna

>

> Â

> Erna

> 1992 bird fanciers syndrome,

> CAD & MI 2004

> ILD 2008 NSIP 2009

> Washington State

> Â

>

Link to comment
Share on other sites

This is my opinion Erna it sounds like you are having some side effects to the Azathioprine(generic for Imuran). I only take 100 mgs daily, and I'm doing ok. Last three or four days have had some muscle problems in my legs. I know if it was me I would not take it. But you should talk to doctor. Hope things get better for you Will be thinking of you Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009. To: Breathe-Support Sent: Sun, January 10, 2010 3:46:10 AMSubject: Question azathioprine

Hi, All Has anyone had problems with Azathioprine, I was put on azathioprine a week and a half ago and I have been having muscle pain and been very tired also. Between all my meetings and pulmonology rehab I am not able to do anything… the only thing I may have gotten accomplished when I could not make my meeting my partner did. My representative who was at this meeting and I had hoped to meet. My partner was able to talk to him

when explained why I was not there and he then was able to ask him about to join in Brain Baird to co sponsor The PFREA, H.R. 1079. He right away went on the phone started to work on it…so that was my excitement of the day. but now The pulmonologist who used to go to in Bellingham and also uses same treatments Doctor Ragu I guess he worked together with him. Has a complete different picture of what I have from the biopsy report. The other pulmonologist who is mostly a lung cancer pulmonologist just gave me 5 mg of prednisone every other day. When I went last week to my, pulmonologist he wanted me to go right away to Doctor Ragu and was somewhat worried that the appointment was not until the 5th of may. He said we could not wait any longer, I had to go on azathioprine 50 milligrams and up it every other week to 300 mg then do 10 mg prednisone every other day.. I have been sleeping all day through this meeting but now my face is getting swollen, lips and tongue…My belly is enlarged I usually have flat belly and itching but no rashes.

I quickly looked at side effects and it is a side effect I guess but it dangerous can I wait until Monday.? Or will I wait for my blood test on Wednesday. I have no clue I guess I will go to bed again and see if someone will respond tomorrow. I hate going to the emergency room or should I just quit taking it? Thank you for your help, Erna

Erna

1992 bird fanciers syndrome,

CAD & MI 2004

ILD 2008 NSIP 2009

Washington State

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Share on other sites

Erna, I got sick about that same time after starting Azathioprine. I got very sick. I slept all of the time and ran a fever. I wound up in Whidbey General Hospital with Pancreatitis. They took me off the stuff and I was in there 3 days recovering. I don't know what to tell you about quitting on your own. It might be a bad Idea but get checked. I was very, very sick from it.Beverley Joy,71,PF, Chronic HP, birds and mold 1-09,Diabetes,Sjogren's,Fibromyalgia IdahoSubject: Question azathioprineTo: Breathe-Support Date: Sunday, January 10, 2010, 1:46 AM

Hi, All Has anyone had problems with Azathioprine, I was put on azathioprine a week and a half ago and I have been having muscle pain and been very tired also. Between all my meetings and pulmonology rehab I am not able to do anything… the only thing I may have gotten accomplished when I could not make my meeting my partner did. My representative who was at this meeting and I had hoped to meet. My partner was able to talk to him

when explained why I was not there and he then was able to ask him about to join in Brain Baird to co sponsor The PFREA, H.R. 1079. He right away went on the phone started to work on it…so that was my excitement of the day. but now The pulmonologist who used to go to in Bellingham and also uses same treatments Doctor Ragu I guess he worked together with him. Has a complete different picture of what I have from the biopsy report. The other pulmonologist who is mostly a lung cancer pulmonologist just gave me 5 mg of prednisone every other day. When I went last week to my, pulmonologist he wanted me to go right away to Doctor Ragu and was somewhat worried that the appointment was not until the 5th of may. He said we could not wait any longer, I had to go on azathioprine 50 milligrams and up it every other week to 300 mg then do 10 mg prednisone every other day. I have been sleeping all day through this meeting but now my face is getting swollen, lips and tongue…My belly is enlarged I usually have flat belly and itching but no rashes.

I quickly looked at side effects and it is a side effect I guess but it dangerous can I wait until Monday.? Or will I wait for my blood test on Wednesday. I have no clue I guess I will go to bed again and see if someone will respond tomorrow. I hate going to the emergency room or should I just quit taking it? Thank you for your help, Erna

Erna

1992 bird fanciers syndrome,

CAD & MI 2004

ILD 2008 NSIP 2009

Washington State

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Thank you, all for your responses you are such a great bunch of support.

This morning my eyes are so small and my Nasal cannulas, for oxygen do fit in my nose hardly at all and I just got off the telephone with the doctor in my pulmonologist practice. He said to take Benadryl every 4 hours if I swell more and get sicker or cannot breathe at all, to go to the emergency room. He also talked to Phil so he would not what to look for. Tomorrow I will have to see my own pulmonologist and see him. I guess I will go to bed again… Thank you, all Erna

1992 bird fanciers syndrome

CAD & MI 2004

ILD 2008 NSIP 2009

Washington State

To: Breathe-Support Sent: Sun, January 10, 2010 11:34:38 AMSubject: Re: Question azathioprine

Erna, I got sick about that same time after starting Azathioprine. I got very sick. I slept all of the time and ran a fever. I wound up in Whidbey General Hospital with Pancreatitis. They took me off the stuff and I was in there 3 days recovering. I don't know what to tell you about quitting on your own. It might be a bad Idea but get checked. I was very, very sick from it.Beverley Joy,71,PF, Chronic HP, birds and mold 1-09,Diabetes, Sjogren's, Fibromyalgia Idaho

From: Erna <vrolijk50 (AT) yahoo (DOT) com>Subject: Question azathioprineTo: Breathe-Support@ yahoogroups. comDate: Sunday, January 10, 2010, 1:46 AM

Hi, All

Has anyone had problems with Azathioprine, I was put on azathioprine a week and a half ago and I have been having muscle pain and been very tired also. Between all my meetings and pulmonology rehab I am not able to do anything… the only thing I may have gotten accomplished when I could not make my meeting my partner did. My representative who was at this meeting and I had hoped to meet. My partner was able to talk to him when explained why I was not there and he then was able to ask him about to join in Brain Baird to co sponsor The PFREA, H.R. 1079. He right away went on the phone started to

work on it…so that was my excitement of the day.

but now

The pulmonologist who used to go to in Bellingham and also uses same treatments Doctor Ragu I guess he worked together with him. Has a complete different picture of what I have from the biopsy report. The other pulmonologist who is mostly a lung cancer pulmonologist just gave me 5 mg of prednisone every other day.

When I went last week to my, pulmonologist he wanted me to go right away to Doctor Ragu and was somewhat worried that the appointment was not until the 5th of may.

He said we could not wait any longer, I had to go on azathioprine 50 milligrams and up it every other week to 300 mg then do 10 mg prednisone every other day. I have been sleeping all day through this meeting but now my face is getting swollen, lips and tongue…My belly is enlarged I usually have flat belly and itching but no rashes.

I quickly looked at side effects and it is a side effect I guess but it dangerous can I wait until Monday.? Or will I wait for my blood test on Wednesday. I have no clue I guess I will go to bed again and see if someone will respond tomorrow.

I hate going to the emergency room or should I just quit taking it? Thank you for your help, Erna

Erna

1992 bird fanciers syndrome,

CAD & MI 2004

ILD 2008 NSIP 2009

Washington State

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Erna,

I agree with MB, you should go to ER and definitely stop the medication. I don't understand your prescription for Prednisone...taking it every other day? Why is that? Why not daily?

C_53_Familial IPF_5/09, Washington

HOPE doesn't disappoint!

To: Breathe-Support Sent: Sun, January 10, 2010 4:26:28 AMSubject: Re: Question azathioprine

Erna,

Swelling of lips and tongue is a very serious side effect, in fact it could be an allergic reaction. You need to seek emergency help. Get to the ER immediately.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: Erna <vrolijk50 (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, January 10, 2010 4:46:10 AMSubject: Question azathioprine

Hi, All

Has anyone had problems with Azathioprine, I was put on azathioprine a week and a half ago and I have been having muscle pain and been very tired also. Between all my meetings and pulmonology rehab I am not able to do anything… the only thing I may have gotten accomplished when I could not make my meeting my partner did. My representative who was at this meeting and I had hoped to meet. My partner was able to talk to him when explained why I was not there and he then was able to ask him about to join in Brain Baird to co sponsor The PFREA, H.R. 1079. He right away went on the phone started to

work on it…so that was my excitement of the day..

but now

The pulmonologist who used to go to in Bellingham and also uses same treatments Doctor Ragu I guess he worked together with him. Has a complete different picture of what I have from the biopsy report. The other pulmonologist who is mostly a lung cancer pulmonologist just gave me 5 mg of prednisone every other day.

When I went last week to my, pulmonologist he wanted me to go right away to Doctor Ragu and was somewhat worried that the appointment was not until the 5th of may.

He said we could not wait any longer, I had to go on azathioprine 50 milligrams and up it every other week to 300 mg then do 10 mg prednisone every other day. I have been sleeping all day through this meeting but now my face is getting swollen, lips and tongue…My belly is enlarged I usually have flat belly and itching but no rashes.

I quickly looked at side effects and it is a side effect I guess but it dangerous can I wait until Monday.? Or will I wait for my blood test on Wednesday. I have no clue I guess I will go to bed again and see if someone will respond tomorrow.

I hate going to the emergency room or should I just quit taking it? Thank you for your help, Erna

Erna

1992 bird fanciers syndrome,

CAD & MI 2004

ILD 2008 NSIP 2009

Washington State

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Good grief! Wait until you can't breathe at all!!! Who is going to watch you

as you sleep and judge the condition of your mucous membranes? If your nose is

so swollen you can't get your o2 cannula in right you need ER now!

ann

>

> Erna,

> I agree with MB, you should go to ER and definitely stop the medication.  I

don't understand your prescription for Prednisone....taking it every other day?

Why is that? Why not daily?

>  

> C_53_Familial IPF_5/09, Washington

> HOPE doesn't disappoint!

>

>

>

>

>

> ________________________________

>

> To: Breathe-Support

> Sent: Sun, January 10, 2010 4:26:28 AM

> Subject: Re: Question azathioprine

>

>  

> Erna,

> Swelling of lips and tongue is a very serious side effect, in fact it could be

an allergic reaction. You need to seek emergency help. Get to the ER

immediately.

>

>  

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>  

>  

>

>

>

>

> ________________________________

> From: Erna <vrolijk50 (AT) yahoo (DOT) com>

> To: Breathe-Support@ yahoogroups. com

> Sent: Sun, January 10, 2010 4:46:10 AM

> Subject: Question azathioprine

>

>  

> Hi, All 

> Has anyone had problems with Azathioprine, I was put on azathioprine a week

and a half ago and I have been having muscle pain and been very tired also.

Between all my meetings andpulmonology rehab I am not able to do anything… the

only thing I may have gotten accomplished when I could not make my meeting my

partner did. My representative who was at this meeting and I had hoped to meet.

My partner was able to talk to him when explained why I was not there and he

then was able to ask him about to join in Brain Baird to co sponsor The PFREA,

H.R. 1079. He right away went on the phone started to work on it…so that was

my excitement of the day.

>  but now

> The pulmonologist who used to go to in Bellingham and also uses same

treatments Doctor Ragu I guess he worked together with him. Has a complete

different picture of what I have from the biopsy report. The other pulmonologist

who is mostly a lung cancer pulmonologist just gave me 5 mg of prednisone every

other day. 

> When I went last week to my, pulmonologist he wanted me to go right away to

Doctor Ragu and was somewhat worried that the appointment was not until the 5th

of may. 

> He said we could not wait any longer, I had to go on azathioprine 50

milligrams and up it every other week to 300 mg then do 10 mg prednisone every

other day. I have been sleeping all day through this meeting but now my face is

getting swollen, lips and tongue…My belly is enlarged I usually have flat

belly and itching but no rashes.

> I quickly looked at side effects and it is a side effect I guess but it

dangerous can I wait until Monday.? Or will I wait for my blood test on

Wednesday. I have no clue I guess I will go to bed again and see if someone will

respond tomorrow.

> I hate going to the emergency room or should I just quit taking it? Thank you

for your help, Erna

>

>  

> Erna

> 1992 bird fanciers syndrome,

> CAD & MI 2004

> ILD 2008 NSIP 2009

> Washington State

>  

>

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