Re: what is a good solution?

[Guest guest]

Hi christine,

Madison was very behind when it came to Physical activity. She hadn;t been

able to sit untill she was 10 months and NEVER did belly time, The Physical

therapist told us this was due to the heavyness of her head compared to the rest

of her skinny body. She didn't crawl untill she was 1yrs. and even then

she only scooted on her butt never on hands and knees. She begane walking at 1

1/2 years. We had OT and PT for her and now at 4 years she has been discharged

from all and completly where she should be. She actually Takes ballet and

tap and happens to be the best in her class she hasn't let asymetry slow her

down. Her doc also talked to us about the bone lengthening but they said at 16.

The way they explained it was that they don't believe in legthening the

short leg because it's very tramatic for the child. But they try to stop the

growth of the long leg letting the short leg catch up. How they do this I

believe

( and I may be wrong) but they brake the growth plate in the long leg once

the growth plate is broken that leg will be done growing by the time it heals.

And then over the next year or so the short leg ( which only has 2 1/2 cm to

go) will catch up and her growth will be complete. Femals are done growing

around 16 and boys at 18. Or so this is how he told it to us. We decided that

either way by this age our child will be old enough to decide for herself

what she wants it's one of the few decisions we are going to be most happy with

since finally she will have a say and we won't regret the decison later in

life. I hope this helps a little.

Chrissy

Mom to

Louis 6 Madison 4 RSS Shane 2 1

[Guest guest]

Hi ,

I'm not sure about the asymetry as I haven't even had Noah checked

yet, but I do know that he was quite delayed in the gross motors such

as the sitting up. He was about 9 months old before he finally sat

up and it took him a long time to rollover too. He didn't walk till

about 21 mos.

Hope that helps.

Dawna

Matt 12 (two days and whose the one counting anyway), 11,

Kaitlyn 8 and Noah 3 RSS

>

> My little one has asymetry... what is a good solution for her? Docs

have

> mentioned breaking the growth plate in her longer leg around the

age of

> 13, or having the shorter leg extended. Is that the only way to

help

> head off problems as an adult?

>

> Also.. at what age did most of your children start sitting up? My

> is 5 months and not meeting all her milestones.. but I have been

told

> that's normal for RSS kids. Mentally she's all there and a bright

happy

> baby... just wondering about the physical side of it.

>

> On a much happier note... Happy Thanksgiving everyone.. I hope your

day

> is a great one spent with friends and family.

>

>

> >

> >

> >

> >

>

[Guest guest]

Hi

My daughter has asymetry. She was late doing everything. na sat at 8.5 to

9 months. We called her our rag doll becuse we thought she would never sit

alone.Then when she started walking she kept falling because of the difference

which we didn't know at the time. We took her to a great ortho pedi who made

these plastic pieces that go in her shoes. One bigger to compensate and keep her

hips and back aligned so her scoliosis would not get worse. He called them

braces( plastic piece in shoe or sneakers). He said we would start with those

because at the time we were told she had RSS and any non emegency surgerory

should waittill she stops growing. He decided to not brake her growth bone so

far. Her R leg also curved but after wearing the braces over a year,it has

straighted out a little. We go this month becuase she has started on GH about 3

months now. I haven't noticed that her asymetry has changed but I have noticed

she is stronger. She will walk a little longer we don't have to

carry her from the living room to the kitchen( 15 feet). She now carries her

back pack herself. She has grown, I'm just amazed how her arms feel like there

is a muscle there in stead of being floppy.She will be 5yrs in January and still

can not write her name. Her fine motor needs a lot of help. We work on different

exercises for each extremity. We have been in Physical therapy since she was 3

months old. i think and i have the same ortho ped for our children in

Mass. I see him dec 19 i can ask for a copy of the exercises her gave us when

she was 5 months to do with her.

Marcy

wrote:

My little one has asymetry... what is a good solution for her? Docs have

mentioned breaking the growth plate in her longer leg around the age of

13, or having the shorter leg extended. Is that the only way to help

head off problems as an adult?

Also.. at what age did most of your children start sitting up? My

is 5 months and not meeting all her milestones.. but I have been told

that's normal for RSS kids. Mentally she's all there and a bright happy

baby... just wondering about the physical side of it.

On a much happier note... Happy Thanksgiving everyone.. I hope your day

is a great one spent with friends and family.

>

>

>

>