Re: Pickett Update

[Guest guest]

>Hang in there. Like I said before me and my husband had to deal with

post army life as well. It really is quite an adjustment. It will all

work itself out. My husband is also under tremendous pressure to

provide for our family. We are in a similar situation as I cannot

work right now. I made the mistake of waiting to long to give our

breastfed baby a bottle. He now refuses to take one, and it is

preventing me from returning to work. Maybye it is just our time to

be there for our children. After all they only have one childhood ,

and with all the appointments has it is like a full time job

anyways. iel also has a congenital birth defect a brain

malformation the doctor has recomended surgery to correct it.

is so precious good luck with everything with her, and we'll

gladly listen anytime.

Anita mom to iel (7y.o.34lbs.RSS?,chiari brain

malformation, & Jordan 3y.o. & 4.5 months)

>

> Well.. is a fighter.. she's got an awful diaper rash from

having

> the runs..at least she's not throwing up anymore. I " m afraid she

was

> exposed to strep today. Now I just have to wait a few days to see

if she

> caught it. We go to the Shriners Feb 1st to have her turned foot

looked

> at again. The month of casts didn't turn the foot at all.. so she

might

> have to have surgery to correct it. Then in March we see the

genetic doc

> again. We are blessed to have been accepted into the Shriners

because of

> 's other birth defects.... the RSS is being treated for free

at the

> Shriners also.... We haven't started any meds dealing with RSS

yet.. and

> I was wondering if she needed any GH if that would be covered thru

the

> Shriners. Thru all of this is still a very happy baby.

She's

> always got a smile for a stranger.... she's such a joy. She's

a

> whopping 10.5 pounds at 7 months, still in 0-3 month clothes....

Hey..

> at least I " m getting my money's worth!

>

> My hubby and I are struggeling with his new job. Starting over is

hard

> and he's under huge amounts of pressure to provide for our family.

I

> have offered to get a night job.. but he insists to be the one to

get an

> extra job. I " m trying to do what I can.. by going thru the house,

> hunting for things to auction on ebay. I know non of this has to do

with

> RSS... this is the first time I have 'talked' to anyone about this.

It's

> embarrassing.... it' s like we are failing in life, no one wants to

> admit that. I'm usually optimistic... but that's wearing thin.

> ANYWAY..................

>

> Thanks for asking about ... I know you got more than you asked

> about though... thanks for listening.

>

>

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