Re: Re: NEW DOCTOR

[Guest guest]

that's what happened when the first pulmonary left, but i checked out Kreider on line and Penn has several ild specialists so i wasn't too concerned

besides when i started at penn, i never even heard of centers for excellence

that had nothing to do with my decicision to go there

one of the lung transplant nurses left the lung transplant dept, but she is still at Penn

i heard she left because of the stress and on call crazy hours that go with transplant, but that is just hearsay

at any rate the last i heard is that she is still at penn

as far as the original pulmonary doc leaving, he went into private practice, i presume money had a lot to do with that decision, but don't know for sure

if i weren't happy with Penn i would check out Temple

i happen to live in an area with a lot of choices, a 2 hour drive to New York to go to an ILD center seems far to me

i never checked out Hopkins, that would be about 3 hours in a different direction, but if necessary, i would look at that

Pittsburgh is far, at least 6 hours by car

Hershey is about 2 hours by car

I do know that the docs go to conferences all over the place, so they seem to be up to date on the latest research, and when i mention someone's name that i read about here, they usually seem to know who the doctor is

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: NEW DOCTORTo: Breathe-Support Date: Tuesday, January 5, 2010, 10:42 AM

PinkI agree that the label isn't the thing. However, most of the good ILDcenters I'm familiar with are on the list. There are certain exceptionssuch as in Pennsylvania where Penn is a member and Temple and Pitt areexcellent ILD centers. I suspect Penn shares a great deal with theothers. In New York Columbia and Cornell have exchanged positionsofficially but I still consider them both to be IPF Centers ofExcellence. Not being a center of excellence by itself didn't alarm meregarding Emory, but when you couple that with the top twoPulmonologists leaving and now another and the Nursing Coordinator gone,there has been a lot of knowledge lost and I don't know if or how it hasbeen replaced. Perhaps they've just decided to no longer participate inresearch and clinical trials at the same level. I don't know. I do knowthat I thought the world of Tamra and Dr. and would have nothesitated to go

to him. I don't now know enough of any of the doctorsthere to even have an opinion on them or to go there. Not being close,it's not something for me to find out. But, if I was a patient orprospective patient, I would want to know more. How would you feel ifPenn lost their top three PF experts including the doctors you knew,their nursing coordinator and withdrew from the IPF centers ofexcellence? I suspect you'd want to know what was going on and somethingabout the doctor you were now assigned to.> > >> > > Hi Gang,> > > A few months ago I lost my doctor at Emory University Hospital> as> > he> > > went to Kentucky to start up an advanced pulmonary wing withanother> > doctor> > > from Emory. Today I received my new doctor is leanving for Texas.I> am> > > scheduled to have my PF tests Thursday. I am beginning to wonder> what> > is> > > happening at Emory to cause so many people to leave.> > > Please say a small prayer for my test results on

Thursday.> > >> > Thanks,> > >> > Joe> > >   > > > JOE & JOANIE LAMENSKIE> > > IPF JAN. 2008> > >> >>

[Guest guest]

interesting

whenever there is a fellow or a resident, they seem to review my case prior to seeing me, then after they see me, the pulmonary comes in, sometimes they stay in the room with the pulmonary, sometimes they don't

since it is a teaching hospital, it's like having multiple consults at the same time

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: NEW DOCTORTo: Breathe-Support Date: Tuesday, January 5, 2010, 10:50 AM

PinkSometimes the choices involve other issues as well. UTSW is a newer IPFcenter of excellence and not my choice for PF or Rheumatology, althoughit is for Pulmonary Hypertension. They also aren't coordinated like theothers and I find the way they work very frustrating. Last, I want tosee the doctor I go to see. The expert. I do not like the fact at UTSWyou'll be shuffled to a resident and see very little of the experiencedexpert pulmonologist. I can see those residents without going throughthe hassle because the year they graduate they all seem to be joining mypirmary physician's group. They hired two pulmonologist last year andhave two already picked out from this years class. I strongly dislikemaking an appointment with one doctor but ending up seeing only anassistant or resident. My last trip to UTSW I ended up with someone whoknew nothing about my case or why I was even there.---

In Breathe-Support@ yahoogroups. com, "Bruce" <brucemoreland@ ...>wrote:>> Pink>> I agree that the label isn't the thing. However, most of the good ILD> centers I'm familiar with are on the list. There are certainexceptions> such as in Pennsylvania where Penn is a member and Temple and Pitt are> excellent ILD centers. I suspect Penn shares a great deal with the> others. In New York Columbia and Cornell have exchanged positions> officially but I still consider them both to be IPF Centers of> Excellence. Not being a center of excellence by itself didn't alarm me> regarding Emory, but when you couple that with the top two> Pulmonologists leaving and now another and the Nursing

Coordinatorgone,> there has been a lot of knowledge lost and I don't know if or how ithas> been replaced. Perhaps they've just decided to no longer participatein> research and clinical trials at the same level. I don't know. I doknow> that I thought the world of Tamra and Dr. and would have not> hesitated to go to him. I don't now know enough of any of the doctors> there to even have an opinion on them or to go there. Not being close,> it's not something for me to find out. But, if I was a patient or> prospective patient, I would want to know more. How would you feel if> Penn lost their top three PF experts including the doctors you knew,> their nursing coordinator and withdrew from the IPF centers of> excellence? I suspect you'd want to know what was going on andsomething> about the doctor you were now assigned to.>> > > > >> > > > Hi Gang,> > > > A few months ago I lost my doctor at Emory University Hospital> > as> > > he> > > > went to Kentucky to start up an advanced pulmonary wing with> another> > > doctor> > > > from Emory. Today I received my new doctor is leanving forTexas.> I> > am> > > > scheduled to have my PF tests Thursday. I am beginning to wonder> > what> > > is> > > > happening at Emory to cause so many people to leave.> > > > Please say a small prayer for my test

results on Thursday.> > > >> > > Thanks,> > > >> > > Joe> > > >   > > > > JOE & JOANIE LAMENSKIE> > > > IPF JAN. 2008> > > >> > >> >>