Guest guest Posted December 27, 2009 Report Share Posted December 27, 2009 I write this with a purpose. Read it and remember it if you find yourself in similar circumstances. Day 1 - I stumbled a bit and felt a quick sense of imblance. I thought nothing about it. Day 2 - I stumbled and again felt the imblance, only a bit stronger. I thought nothing about it. Day 3 - I stumbled again but it was greater than before. Also, my speech was garbled and the lack of balance was more pronounced. I went immediately to ER. I had all the classic symptons of stroke but failed to act on them. I was fortunate in having excellent basic health and superb care from the onset, as well as a top notch team of therapists. The therapy will continue as out patient for as long as I improve. My speech is normal, so is my mind which is as dirty as ever. I can walk alone as long as someone is beside me, otherwise I use a walker. I practice daily walking in various forms, backwards, up hill and down hill, cross step, carrying a cup of water. My small motor functions are good. I shave and bath myself. I dress myself and can tie my shoes. I can type, as you may have noticed, but it is laborius and very tiring. I'm glad to be back home; glad to back with my support family. I love you and I hope the new year brings you many blessings. Jack79/IPF - UIP/dx06/05 Maine To: Breathe-Support Sent: Sun, December 27, 2009 10:53:54 AMSubject: Re: Re: Disabililty interview Bruce i am the one who said i wore no make up and carried my helios with me -- the helios was new to me at the time -- i think i walked in with it on the pulmonary said that when people are on o2, SSDI is usually granted Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund. org From: Bruce <brucemoreland@ gmail.com>Subject: Re: Disabililty interviewTo: Breathe-Support@ yahoogroups. comDate: Saturday, December 26, 2009, 9:43 PM Being really bad isn't bad at this interview. If you do have one, themain thing you want to do is be sure they realize your full condition.This isn't the day to dress up and put on all your makeup and carryyourself as if you're healthy. I forget who here said they wore nomakeup that day. It's certainly a time to let them know how out ofbreath you are or how difficult the drive and walk were. I'm not sayingto act, but I'm saying most of the time we act and hide our truecondition and this is the day not to do that.>> I'm trying to get together what I need to file for disability and waswondering what sort of questions they ask at the interviw . I'm reallybad at any kind of interview , I get really nervous and I thought if Ihad an idea of what they ask I would do better .> Thanks> W./ Silicosis / 6/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2009 Report Share Posted December 27, 2009 Jack, May God continue to bless you in 2010.. Happy New Year.. WELCOME HOME. dirty mind and all. I am glad your mind is IN your head...LOLPS I have a little card for you (ready to go) that I have had for a week or so.. I am going to get it mailed even if it takes until Summer.. You will get it.. sorry. Love & PrayersPeggy, IPF 2004 I write this with a purpose. Read it and remember it if you find yourself in similar circumstances. Day 1 - I stumbled a bit and felt a quick sense of imblance. I thought nothing about it. Day 2 - I stumbled and again felt the imblance, only a bit stronger. I thought nothing about it. Day 3 - I stumbled again but it was greater than before. Also, my speech was garbled and the lack of balance was more pronounced. I went immediately to ER. I had all the classic symptons of stroke but failed to act on them. I was fortunate in having excellent basic health and superb care from the onset, as well as a top notch team of therapists. The therapy will continue as out patient for as long as I improve. My speech is normal, so is my mind which is as dirty as ever. I can walk alone as long as someone is beside me, otherwise I use a walker. I practice daily walking in various forms, backwards, up hill and down hill, cross step, carrying a cup of water. My small motor functions are good. I shave and bath myself. I dress myself and can tie my shoes. I can type, as you may have noticed, but it is laborius and very tiring. I'm glad to be back home; glad to back with my support family. I love you and I hope the new year brings you many blessings. Jack79/IPF - UIP/dx06/05 Maine From: Joyce T Rosenberg <pinkrockybeach (AT) yahoo (DOT) com>To: Breathe-Support Sent: Sun, December 27, 2009 10:53:54 AMSubject: Re: Re: Disabililty interview Bruce i am the one who said i wore no make up and carried my helios with me -- the helios was new to me at the time -- i think i walked in with it on the pulmonary said that when people are on o2, SSDI is usually granted Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund. org From: Bruce <brucemoreland@ gmail.com>Subject: Re: Disabililty interviewTo: Breathe-Support@ yahoogroups. comDate: Saturday, December 26, 2009, 9:43 PM Being really bad isn't bad at this interview. If you do have one, themain thing you want to do is be sure they realize your full condition.This isn't the day to dress up and put on all your makeup and carryyourself as if you're healthy. I forget who here said they wore nomakeup that day. It's certainly a time to let them know how out ofbreath you are or how difficult the drive and walk were. I'm not sayingto act, but I'm saying most of the time we act and hide our truecondition and this is the day not to do that.>> I'm trying to get together what I need to file for disability and waswondering what sort of questions they ask at the interviw . I'm reallybad at any kind of interview , I get really nervous and I thought if Ihad an idea of what they ask I would do better .> Thanks> W./ Silicosis / 6/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2009 Report Share Posted December 27, 2009 Jack First, glad to see you doing as well as you are. Second, great great advice. The same thing happened to my cousin. He was in a conference room with others and for a moment couldn't speak. Then was fine again. He was ready to continue. The man beside him said " you just had a stroke. " My cousin thought no way that it had happened the same way before and he was fine. Well, the other man insisted on an ambulance. They took him to the hospital and they said he'd had multiple mini-strokes. Now he's on meds and he's doing well (although the doctor did insist he no longer work in the stressful environment he was in). But the key is if something strange happens get help. You don't know what a stroke or a heart attack feels like because you haven't experienced it. My father had a heart attack but didn't know. My mother was the one who called 911 immediately based on the symptoms. He had another two hours later in the hospital and died. As in your case too strokes run cycles so typically a full stroke takes several days from start to finish. Hope we all listen to you. Again, most importantly so glad you are on the way to recovery. You emphasize your speech and mind and those are the most important. The other can come along slower. > >> > >> I'm trying to get together what I need to file for disability and was > >wondering what sort of questions they ask at the interviw . I'm really > >bad at any kind of interview , I get really nervous and I thought if I > >had an idea of what they ask I would do better . > >> Thanks > >> W./ Silicosis / 6/08 > >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2009 Report Share Posted December 27, 2009 Hey Jack glad to hear you are on the mend.If you know your mind is dirty your just about all better.Take care and best wishes. Merf 62 IPF 05 > >> > >> I'm trying to get together what I need to file for disability and was > >wondering what sort of questions they ask at the interviw . I'm really > >bad at any kind of interview , I get really nervous and I thought if I > >had an idea of what they ask I would do better . > >> Thanks > >> W./ Silicosis / 6/08 > >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2009 Report Share Posted December 27, 2009 Jack,Welcome home and especially thank you for the stroke warning. It's important for everyone to know. Keep on keeping on.Kathy ILD 3/08 From: Bruce <brucemoreland@ gmail.com>Subject: Re: Disabililty interviewTo: Breathe-Support@ yahoogroups. comDate: Saturday, December 26, 2009, 9:43 PM Being really bad isn't bad at this interview. If you do have one, themain thing you want to do is be sure they realize your full condition.This isn't the day to dress up and put on all your makeup and carryyourself as if you're healthy. I forget who here said they wore nomakeup that day. It's certainly a time to let them know how out ofbreath you are or how difficult the drive and walk were. I'm not sayingto act, but I'm saying most of the time we act and hide our truecondition and this is the day not to do that.>> I'm trying to get together what I need to file for disability and waswondering what sort of questions they ask at the interviw . I'm reallybad at any kind of interview , I get really nervous and I thought if Ihad an idea of what they ask I would do better .> Thanks> W./ Silicosis / 6/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2009 Report Share Posted December 28, 2009 I so dido all of that!!!! We have to all be aware of what is happening to our bodies, and if something does not seem right get it checked out. Glad you are doing better Jack I am a newbie about maybe month or so. Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009From: Jack Marshall To: Breathe-Support Sent: Sun, December 27, 2009 1:00:44 PMSubject: Re: Jack's Vacation I write this with a purpose. Read it and remember it if you find yourself in similar circumstances. Day 1 - I stumbled a bit and felt a quick sense of imblance. I thought nothing about it. Day 2 - I stumbled and again felt the imblance, only a bit stronger. I thought nothing about it. Day 3 - I stumbled again but it was greater than before. Also, my speech was garbled and the lack of balance was more pronounced. I went immediately to ER. I had all the classic symptons of stroke but failed to act on them. I was fortunate in having excellent basic health and superb care from the onset, as well as a top notch team of therapists. The therapy will continue as out patient for as long as I improve. My speech is normal, so is my mind which is as dirty as ever. I can walk alone as long as someone is beside me, otherwise I use a walker. I practice daily walking in various forms, backwards, up hill and down hill, cross step, carrying a cup of water. My small motor functions are good. I shave and bath myself. I dress myself and can tie my shoes. I can type, as you may have noticed, but it is laborius and very tiring. I'm glad to be back home; glad to back with my support family. I love you and I hope the new year brings you many blessings. Jack79/IPF - UIP/dx06/05 Maine From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Sun, December 27, 2009 10:53:54 AMSubject: Re: Re: Disabililty interview Bruce i am the one who said i wore no make up and carried my helios with me -- the helios was new to me at the time -- i think i walked in with it on the pulmonary said that when people are on o2, SSDI is usually granted Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund. org From: Bruce <brucemoreland@ gmail.com>Subject: Re: Disabililty interviewTo: Breathe-Support@ yahoogroups. comDate: Saturday, December 26, 2009, 9:43 PM Being really bad isn't bad at this interview. If you do have one, themain thing you want to do is be sure they realize your full condition.This isn't the day to dress up and put on all your makeup and carryyourself as if you're healthy. I forget who here said they wore nomakeup that day. It's certainly a time to let them know how out ofbreath you are or how difficult the drive and walk were. I'm not sayingto act, but I'm saying most of the time we act and hide our truecondition and this is the day not to do that.>> I'm trying to get together what I need to file for disability and waswondering what sort of questions they ask at the interviw . I'm reallybad at any kind of interview , I get really nervous and I thought if Ihad an idea of what they ask I would do better .> Thanks> W./ Silicosis / 6/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2010 Report Share Posted January 2, 2010 Jack, I am so glad you are doing well. I hope you have a full speedy recovery and a much better New Year. Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2010 Report Share Posted January 2, 2010 It's good to see that you are doing so well. I have heart disease but my mother had strokes so I know about them and I know that I am at risk. I have a question about low income housing but I don't want to bother you with it now. It can wait until typing isn't such a problem for you. I'm just very happy that you had the kind of stroke that you can get over. Beverley Joy,71, Birds and mold 1-09,Diabetes,Sjogren's,Fibromyalgia Idaho From: Bruce <brucemoreland@ gmail.com>Subject: Re: Disabililty interviewTo: Breathe-Support@ yahoogroups. comDate: Saturday, December 26, 2009, 9:43 PM Being really bad isn't bad at this interview. If you do have one, themain thing you want to do is be sure they realize your full condition.This isn't the day to dress up and put on all your makeup and carryyourself as if you're healthy. I forget who here said they wore nomakeup that day. It's certainly a time to let them know how out ofbreath you are or how difficult the drive and walk were. I'm not sayingto act, but I'm saying most of the time we act and hide our truecondition and this is the day not to do that.>> I'm trying to get together what I need to file for disability and waswondering what sort of questions they ask at the interviw . I'm reallybad at any kind of interview , I get really nervous and I thought if Ihad an idea of what they ask I would do better .> Thanks> W./ Silicosis / 6/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2010 Report Share Posted January 3, 2010 Thank you, Beverley. I am doing better each day. Typing isn't a chore unless it is a long piece. You can ask me about low income housing any time. I'm back to work, both doing the work and trying to find a way to get out of it. To all the board members who have sent cards and/or expressed your concern for me through email, I want to say thank you and to tell you how much they meant to my spirits. I was over whelmed with flowers and cards from all over the country while I was in the hospital which contributed a great deal to y up beat emotional attitude. It was similar to when I was diagnosed with IPF. OK, that's a part of me and I accept that; now I'll learn all I can about it and how to live with it and do just that. So far it's been a reasonably good partnership. I expect that will be true of the conequences of stroke. Already I can care for myself down to giving myself a manicure. I shave, bathe, dress, help keep house, some cooking, my work, and exercise daily. I am close to walking with out a walker or cane and expect to do so within the next few weeks. Enough about me. How are all you folks doing? My best to each of you for healthy and prosperous 2010. Jack79/IPF - UIP/dx06/05 Maine To: Breathe-Support Sent: Sat, January 2, 2010 5:13:28 PMSubject: Re: Jack's Vacation It's good to see that you are doing so well. I have heart disease but my mother had strokes so I know about them and I know that I am at risk. I have a question about low income housing but I don't want to bother you with it now. It can wait until typing isn't such a problem for you. I'm just very happy that you had the kind of stroke that you can get over. Beverley Joy,71, Birds and mold 1-09,Diabetes, Sjogren's, Fibromyalgia Idaho From: Bruce <brucemoreland@ gmail.com>Subject: Re: Disabililty interviewTo: Breathe-Support@ yahoogroups. comDate: Saturday, December 26, 2009, 9:43 PM Being really bad isn't bad at this interview. If you do have one, themain thing you want to do is be sure they realize your full condition.This isn't the day to dress up and put on all your makeup and carryyourself as if you're healthy. I forget who here said they wore nomakeup that day. It's certainly a time to let them know how out ofbreath you are or how difficult the drive and walk were. I'm not sayingto act, but I'm saying most of the time we act and hide our truecondition and this is the day not to do that.>> I'm trying to get together what I need to file for disability and waswondering what sort of questions they ask at the interviw . I'm reallybad at any kind of interview , I get really nervous and I thought if Ihad an idea of what they ask I would do better .> Thanks> W./ Silicosis / 6/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2010 Report Share Posted January 3, 2010 Hi Jack, Wow you are like Superman just up and ready to go already.... Well NO more of that stuff going on with you.. The #1 ruleis "NO GETTING SICK" so just behave yourself and know we are all happy you are doing so well. Love & PrayersPeggy, IPF 2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2010 Report Share Posted January 3, 2010 Wow Jack, that is absolutely amazing! Keep on keeping on, and get better every day!Kathy ILD 3/08 Type 2 diabetes forever ago From: Bruce <brucemoreland@ gmail.com>Subject: Re: Disabililty interviewTo: Breathe-Support@ yahoogroups. comDate: Saturday, December 26, 2009, 9:43 PM Being really bad isn't bad at this interview. If you do have one, themain thing you want to do is be sure they realize your full condition.This isn't the day to dress up and put on all your makeup and carryyourself as if you're healthy. I forget who here said they wore nomakeup that day. It's certainly a time to let them know how out ofbreath you are or how difficult the drive and walk were. I'm not sayingto act, but I'm saying most of the time we act and hide our truecondition and this is the day not to do that.>> I'm trying to get together what I need to file for disability and waswondering what sort of questions they ask at the interviw . I'm reallybad at any kind of interview , I get really nervous and I thought if Ihad an idea of what they ask I would do better .> Thanks> W./ Silicosis / 6/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2010 Report Share Posted January 3, 2010 Jack,HRoxanne, 59, South Carolina 2006 Asthma/ PF 2008 PF/ Sarcoidosis/Gerd I pray you enough..... From: Bruce <brucemoreland@ gmail.com>Subject: Re: Disabililty interviewTo: Breathe-Support@ yahoogroups. comDate: Saturday, December 26, 2009, 9:43 PM  Being really bad isn't bad at this interview. If you do have one, themain thing you want to do is be sure they realize your full condition.This isn't the day to dress up and put on all your makeup and carryyourself as if you're healthy. I forget who here said they wore nomakeup that day. It's certainly a time to let them know how out ofbreath you are or how difficult the drive and walk were. I'm not sayingto act, but I'm saying most of the time we act and hide our truecondition and this is the day not to do that.>> I'm trying to get together what I need to file for disability and waswondering what sort of questions they ask at the interviw . I'm reallybad at any kind of interview , I get really nervous and I thought if Ihad an idea of what they ask I would do better .> Thanks> W./ Silicosis / 6/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2010 Report Share Posted January 3, 2010 Jack,How wonderful to hear from you and that you are doing so well.  I figured you had about a million emails, so I waited until you said you were good to go before writing.  Everything is good here in SC (cold but not as bad as having snow). Are you still up north or have you officially moved south to your new home?  I'll continue to send good thoughts and wishes your way and you'll be back to normal in no time.Roxanne, 59, South Carolina 2006 Asthma/ PF 2008 PF/ Sarcoidosis/Gerd I pray you enough..... From: Bruce <brucemoreland@ gmail.com>Subject: Re: Disabililty interviewTo: Breathe-Support@ yahoogroups. comDate: Saturday, December 26, 2009, 9:43 PM  Being really bad isn't bad at this interview. If you do have one, themain thing you want to do is be sure they realize your full condition.This isn't the day to dress up and put on all your makeup and carryyourself as if you're healthy. I forget who here said they wore nomakeup that day. It's certainly a time to let them know how out ofbreath you are or how difficult the drive and walk were. I'm not sayingto act, but I'm saying most of the time we act and hide our truecondition and this is the day not to do that.>> I'm trying to get together what I need to file for disability and waswondering what sort of questions they ask at the interviw . I'm reallybad at any kind of interview , I get really nervous and I thought if Ihad an idea of what they ask I would do better .> Thanks> W./ Silicosis / 6/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2010 Report Share Posted January 5, 2010 Hi Jack.... I'm peeking over your shoulder at BJ's post and will add I'm glad to read you are doing well! Heck, you do more than I do. MamaSher; IPF 2006; Cellular NSIP, PH, 2009, OR,.Don't fret about tomorrow, God is already there! From: Jack Marshall Sent: Sunday, January 03, 2010 9:13 AM To: Breathe-Support Subject: Re: Jack's Vacation Thank you, Beverley. I am doing better each day. Typing isn't a chore unless it is a long piece. You can ask me about low income housing any time. I'm back to work, both doing the work and trying to find a way to get out of it. To all the board members who have sent cards and/or expressed your concern for me through email, I want to say thank you and to tell you how much they meant to my spirits. I was over whelmed with flowers and cards from all over the country while I was in the hospital which contributed a great deal to y up beat emotional attitude. It was similar to when I was diagnosed with IPF. OK, that's a part of me and I accept that; now I'll learn all I can about it and how to live with it and do just that. So far it's been a reasonably good partnership. I expect that will be true of the conequences of stroke. Already I can care for myself down to giving myself a manicure. I shave, bathe, dress, help keep house, some cooking, my work, and exercise daily. I am close to walking with out a walker or cane and expect to do so within the next few weeks. Enough about me. How are all you folks doing? My best to each of you for healthy and prosperous 2010. Jack79/IPF - UIP/dx06/05 Maine From: Beverley Joy <sparrow_98367 (AT) yahoo (DOT) com>To: Breathe-Support Sent: Sat, January 2, 2010 5:13:28 PMSubject: Re: Jack's Vacation It's good to see that you are doing so well. I have heart disease but my mother had strokes so I know about them and I know that I am at risk. I have a question about low income housing but I don't want to bother you with it now. It can wait until typing isn't such a problem for you. I'm just very happy that you had the kind of stroke that you can get over. Beverley Joy,71, Birds and mold 1-09,Diabetes, Sjogren's, Fibromyalgia Idaho From: Bruce <brucemoreland@ gmail.com>Subject: Re: Disabililty interviewTo: Breathe-Support@ yahoogroups. comDate: Saturday, December 26, 2009, 9:43 PM Being really bad isn't bad at this interview. If you do have one, themain thing you want to do is be sure they realize your full condition.This isn't the day to dress up and put on all your makeup and carryyourself as if you're healthy. I forget who here said they wore nomakeup that day. It's certainly a time to let them know how out ofbreath you are or how difficult the drive and walk were. I'm not sayingto act, but I'm saying most of the time we act and hide our truecondition and this is the day not to do that.>> I'm trying to get together what I need to file for disability and waswondering what sort of questions they ask at the interviw . I'm reallybad at any kind of interview , I get really nervous and I thought if Ihad an idea of what they ask I would do better .> Thanks> W./ Silicosis / 6/08> No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.725 / Virus Database: 270.14.124/2597 - Release Date: 01/02/10 00:22:00 Quote Link to comment Share on other sites More sharing options...
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