Re: head circumference below 3rd %

[Guest guest]

,

I don't know much about the head circumference issue, but I do know a

bit about when to start gh. According to both Dr. Harbison and Dr.

Stanhope, the maximum effects of gh are obtained after the child has

achieved catch-up growth through caloric intake/weight gain. If gh is

started too soon, then it is possible that the effect will be minimal.

As Dr. H. says each year at the convention, " These kids can't grow on

air. " Their bodies need to make up for the lack of weight which then

sort of jumpstarts gains in height. Eventually the height levels off

and then gh therapy is begun.

Jodi Z

[Guest guest]

hi jessica,

my son is 9 and also had a head circumfance below the 3% pecen we just

finished our first year og ght and now it is the normal range for the first time

in his life. he is doing well in school and has little problem hope this helps

cara mom to jacob 9

Malcolm wrote:

This is probably a shot in the dark, but I'm hoping there will be someone who

knows something about this. It seems to be more rare, that Dasia's head is also

below the 3rd% along with height and weight. She was diagnosed RSS without

hesitation, having low tone, assym theetry, shoreart turned in pinkys, blue

sclera, and cafe au lait spots. And I was reading a Magic article that says if

HC is less than 10% at birth and again at 9 months, risk is greatest for

significant impairments. Then, in another article, a point was made, HC

significantly improved while on GH, raising the question on effect for

intelligence. It was found that the greater the change in HC was tied to the

younger the age at which they started GH. So, if in fact, the Endo thinks this a

good reason to start earlier, what are the risks if Dasia started GH at a sooner

time, rather than waiting for a certain weight gain or height plateau? I'll be

asking her Endo all of the same questions in Jan, I just want to be

prepared and

learn as much as I can before I go. And hoping between your experiences, and

this Endo, the right decision can be made. Any knowledge anyone has about this

would be greatly appreciated!

Mom to Dasia

22mo 17lbs 30in

Avery 6, Jaden 3

__________________________________________________

[Guest guest]

Cara, thank you, that is so comforting. I'm glad is doing well. I'll rest

easier, knowing Dasia's head size doesn't mean for sure she'll have an

impairment.

Mom to Dasia

cara schobert wrote:

hi jessica,

my son is 9 and also had a head circumfance below the 3% pecen we just

finished our first year og ght and now it is the normal range for the first time

in his life. he is doing well in school and has little problem hope this helps

cara mom to jacob 9

Malcolm wrote:

This is probably a shot in the dark, but I'm hoping there will be someone who

knows something about this. It seems to be more rare, that Dasia's head is also

below the 3rd% along with height and weight. She was diagnosed RSS without

hesitation, having low tone, assym theetry, shoreart turned in pinkys, blue

sclera, and cafe au lait spots. And I was reading a Magic article that says if

HC is less than 10% at birth and again at 9 months, risk is greatest for

significant impairments. Then, in another article, a point was made, HC

significantly improved while on GH, raising the question on effect for

intelligence. It was found that the greater the change in HC was tied to the

younger the age at which they started GH. So, if in fact, the Endo thinks this a

good reason to start earlier, what are the risks if Dasia started GH at a sooner

time, rather than waiting for a certain weight gain or height plateau? I'll be

asking her Endo all of the same questions in Jan, I just want to be

prepared and

learn as much as I can before I go. And hoping between your experiences, and

this Endo, the right decision can be made. Any knowledge anyone has about this

would be greatly appreciated!

Mom to Dasia

22mo 17lbs 30in

Avery 6, Jaden 3

__________________________________________________

[Guest guest]

Hi . I am sorry I dont' have any answers for you but I am

> very glad you asked this question. Although Summer is only 5.5 mos

> old, I have done research and have read similar info about small

head

> circ as you. Her head was very small at birth, even further off the

> charts than her weight/height and it still remains below. She has

> not been diagnosed anything...I haven't taken her to a specialist

> yet, but she remains the same weight but a slight bit shorter than

> Autumn was at this age, but her head circ is a lot

smaller...although

> ironically there was only a 1/2 cm difference head circ at birth

> between them. I am also concerned with brain development. I know

Summer can still catch up with head circ, but she is predictably

following her curve under 3rd so far.

> Good luck with the appointment!

>

> mom to Autumn RSS, Summer SGA, Ocean, Skye

>

>

> This is probably a shot in the dark, but I'm hoping there will be

someone who knows something about this. It seems to be more rare,

that Dasia's head is also below the 3rd% along with height and

weight. She was diagnosed RSS without hesitation, having low tone,

assymetry, short turned in pinkys, blue sclera, and cafe au lait

spots. And I was reading a Magic article that says if HC is less than

10% at birth and again at 9 months, risk is greatest for significant

impairments. Then, in another article, a point was made, HC

significantly improved while on GH, raising the question on effect

for intelligence. It was found that the greater the change in HC was

tied to the younger the age at which they started GH. So, if in fact,

the Endo thinks this a good reason to start earlier, what are the

risks if Dasia started GH at a sooner time, rather than waiting for a

certain weight gain or height plateau? I'll be asking her Endo all of

the same questions in Jan, I just want to be prepared and

> learn as much as I can before I go. And hoping between your

experiences, and this Endo, the right decision can be made. Any

knowledge anyone has about this would be greatly appreciated!

>

> Mom to Dasia

> 22mo 17lbs 30in

> Avery 6, Jaden 3

>

> __________________________________________________

>

[Guest guest]

your welcome

glad i was here to share

cara mom to jacob

Malcolm wrote:

Cara, thank you, that is so comforting. I'm glad is doing well. I'll

rest easier, knowing Dasia's head size doesn't mean for sure she'll have an

impairment.

Mom to Dasia

cara schobert wrote:

hi jessica,

my son is 9 and also had a head circumfance below the 3% pecen we just

finished our first year og ght and now it is the normal range for the first time

in his life. he is doing well in school and has little problem hope this helps

cara mom to jacob 9

Malcolm wrote:

This is probably a shot in the dark, but I'm hoping there will be someone who

knows something about this. It seems to be more rare, that Dasia's head is also

below the 3rd% along with height and weight. She was diagnosed RSS without

hesitation, having low tone, assym theetry, shoreart turned in pinkys, blue

sclera, and cafe au lait spots. And I was reading a Magic article that says if

HC is less than 10% at birth and again at 9 months, risk is greatest for

significant impairments. Then, in another article, a point was made, HC

significantly improved while on GH, raising the question on effect for

intelligence. It was found that the greater the change in HC was tied to the

younger the age at which they started GH. So, if in fact, the Endo thinks this a

good reason to start earlier, what are the risks if Dasia started GH at a sooner

time, rather than waiting for a certain weight gain or height plateau? I'll be

asking her Endo all of the same questions in Jan, I just want to be

prepared and

learn as much as I can before I go. And hoping between your experiences, and

this Endo, the right decision can be made. Any knowledge anyone has about this

would be greatly appreciated!

Mom to Dasia

22mo 17lbs 30in

Avery 6, Jaden 3

__________________________________________________