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Hi ,

Thanks for sharing. Next time, skip the explanation and just strangle

her -- just kidding of course.

My wife and I have had many similar encounters with our son, so we

know what you mean.

I hope this helps.

Ken M

:)

>

> Okay here is a story that happened Yesterday when I was out with

Jed, , and Liam. I was signing Jed and into Van's Skate

Park, then going to take Liam to his OT,PT, and ST. The age

requirement for Van's is 6 year's old, Liam is 5 as of December

12....

>

> While on line there was a lady behind us. She was watching Liam and

> said to him " In a few years you'll be doing this too " ..

> I said " next year "

> she goes " Are you aware that the age requirement is 6? "

> I said " Yes, I am. In 11 months he can come with his brother " .

> She did not say anything, just kinda smiled at me and kept to

herself after that. Kinda like Yeah right that kid is not 5!!

>

> Just thought I'd share with a group that will understand the mixed

feelings I had of wanting to strangle her and inform her about growth

disorders in general........

>

> R

> Mom to Jed (12) Asthma, tics, CAPD

> Liam (5) Asthma, Epilepsy, Hearing impaired,

> SGA, Food Allergies.

> Orlando Fl

>

>

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laura,

it does get better with time i know how hard it is

keep your chin up cara

R wrote:

Okay here is a story that happened Yesterday when I was out with Jed, ,

and Liam. I was signing Jed and into Van's Skate Park, then going to take

Liam to his OT,PT, and ST. The age requirement for Van's is 6 year's old, Liam

is 5 as of December 12....

While on line there was a lady behind us. She was watching Liam and

said to him " In a few years you'll be doing this too " ..

I said " next year "

she goes " Are you aware that the age requirement is 6? "

I said " Yes, I am. In 11 months he can come with his brother " .

She did not say anything, just kinda smiled at me and kept to herself after

that. Kinda like Yeah right that kid is not 5!!

Just thought I'd share with a group that will understand the mixed feelings I

had of wanting to strangle her and inform her about growth disorders in

general........

R

Mom to Jed (12) Asthma, tics, CAPD

Liam (5) Asthma, Epilepsy, Hearing impaired,

SGA, Food Allergies.

Orlando Fl

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Just strangle... :) You would get so much frustration out that way!

Hang in there!

Pickett

>

> R wrote:

> Okay here is a story that happened Yesterday when I was out with Jed, ,

and Liam. I was signing Jed and into Van's Skate Park, then going to take

Liam to his OT,PT, and ST. The age requirement for Van's is 6 year's old, Liam

is 5 as of December 12....

>

>While on line there was a lady behind us. She was watching Liam and

>said to him " In a few years you'll be doing this too " ..

>I said " next year "

>she goes " Are you aware that the age requirement is 6? "

>I said " Yes, I am. In 11 months he can come with his brother " .

>She did not say anything, just kinda smiled at me and kept to herself after

that. Kinda like Yeah right that kid is not 5!!

>

>Just thought I'd share with a group that will understand the mixed feelings I

had of wanting to strangle her and inform her about growth disorders in

general........

>

> R

>Mom to Jed (12) Asthma, tics, CAPD

>Liam (5) Asthma, Epilepsy, Hearing impaired,

>SGA, Food Allergies.

>Orlando Fl

>

>

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You handled the situation very well. I think people

actually think they are helping and being nice but

what they don't realize is that they do not know the

whole story.

B

and Kelli

--- R wrote:

> Okay here is a story that happened Yesterday when I

> was out with Jed, , and Liam. I was signing Jed

> and into Van's Skate Park, then going to take

> Liam to his OT,PT, and ST. The age requirement for

> Van's is 6 year's old, Liam is 5 as of December

> 12....

>

> While on line there was a lady behind us. She was

> watching Liam and

> said to him " In a few years you'll be doing this

> too " ..

> I said " next year "

> she goes " Are you aware that the age requirement is

> 6? "

> I said " Yes, I am. In 11 months he can come with

> his brother " .

> She did not say anything, just kinda smiled at me

> and kept to herself after that. Kinda like Yeah

> right that kid is not 5!!

>

> Just thought I'd share with a group that will

> understand the mixed feelings I had of wanting to

> strangle her and inform her about growth disorders

> in general........

>

> R

> Mom to Jed (12) Asthma, tics, CAPD

> Liam (5) Asthma, Epilepsy, Hearing impaired,

> SGA, Food Allergies.

> Orlando Fl

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

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I have similar encounters all the time and want to smack the

people...I get " oh, she looks like a doll " or something similar a

lot. And they can't believe how well she speaks - they are amazed.

Sheryl (Dalia, 26 mos, RSS and Hanna, 5.5 mos, non-RSS)

>

> Okay here is a story that happened Yesterday when I was out with

Jed, , and Liam. I was signing Jed and into Van's Skate

Park, then going to take Liam to his OT,PT, and ST. The age

requirement for Van's is 6 year's old, Liam is 5 as of December

12....

>

> While on line there was a lady behind us. She was watching Liam and

> said to him " In a few years you'll be doing this too " ..

> I said " next year "

> she goes " Are you aware that the age requirement is 6? "

> I said " Yes, I am. In 11 months he can come with his brother " .

> She did not say anything, just kinda smiled at me and kept to

herself after that. Kinda like Yeah right that kid is not 5!!

>

> Just thought I'd share with a group that will understand the mixed

feelings I had of wanting to strangle her and inform her about

growth disorders in general........

>

> R

> Mom to Jed (12) Asthma, tics, CAPD

> Liam (5) Asthma, Epilepsy, Hearing impaired,

> SGA, Food Allergies.

> Orlando Fl

>

>

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It's funny, I have gotten so used to people telling me how 'tiny' my

kids are that I am beginning to be surprised when I dont' hear it.

NOw with Summer being small too, the attention gets focused off of

Autumn at first and on to Summer. People think she is only a month

or so old, maybe 2 at most and are so surprised how amazingly 'alert'

she is and how she has such control! That is because she is 6.5 mos

old! Apparently EVERYONE'S baby was bigger than her at a few weeks

and they are just beaming with pride at that fact! they do really

think she is adorable though...because she is! Then Autumn gets

noticed and they are just shocked how old she is although now her

hair is really long (a few inches past the shoulders wet, but curly

when dry so only about 1 inche or so past shoulders) so it gives the

appearance of being older, but they can't believe how little she is

and are fascinated by it. One thing remains though, they get endless

compliments! I am dreadign the times when they understand the size

comments. My oldest son is very small and people can be very hurtful

with what they say. Those people I want to smack some sense into and

if my kids weren't with me, I may have...OK, just kidding, but I am

tired of rude comment made to children. If it is not a compliment,

then no one wants to hear it.

> >

> > Okay here is a story that happened Yesterday when I was out with

> Jed, , and Liam. I was signing Jed and into Van's Skate

> Park, then going to take Liam to his OT,PT, and ST. The age

> requirement for Van's is 6 year's old, Liam is 5 as of December

> 12....

> >

> > While on line there was a lady behind us. She was watching Liam

and

> > said to him " In a few years you'll be doing this too " ..

> > I said " next year "

> > she goes " Are you aware that the age requirement is 6? "

> > I said " Yes, I am. In 11 months he can come with his brother " .

> > She did not say anything, just kinda smiled at me and kept to

> herself after that. Kinda like Yeah right that kid is not 5!!

> >

> > Just thought I'd share with a group that will understand the

mixed

> feelings I had of wanting to strangle her and inform her about

> growth disorders in general........

> >

> > R

> > Mom to Jed (12) Asthma, tics, CAPD

> > Liam (5) Asthma, Epilepsy, Hearing impaired,

> > SGA, Food Allergies.

> > Orlando Fl

> >

> >

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My RSS daughter is about to turn sixteen. First day of school this

year a bunch of freshmen tried to hang with her...they didn't believe

she was a sophmore. It irked her but she got over it. She pretty

much understands her situation and how she wants to deal with it when

others make comments. Basically she doesn't have time for them and

just ignores them. She tells me they don't really bug her, it just

comes with the territory. Her only concern is her lack of appetite

and when she can get off the g-tube. She admits she is a little

spoiled as far as how easy it makes getting nutrition and calories.

> > >

> > > Okay here is a story that happened Yesterday when I was out

with

> > Jed, , and Liam. I was signing Jed and into Van's Skate

> > Park, then going to take Liam to his OT,PT, and ST. The age

> > requirement for Van's is 6 year's old, Liam is 5 as of December

> > 12....

> > >

> > > While on line there was a lady behind us. She was watching Liam

> and

> > > said to him " In a few years you'll be doing this too " ..

> > > I said " next year "

> > > she goes " Are you aware that the age requirement is 6? "

> > > I said " Yes, I am. In 11 months he can come with his brother " .

> > > She did not say anything, just kinda smiled at me and kept to

> > herself after that. Kinda like Yeah right that kid is not 5!!

> > >

> > > Just thought I'd share with a group that will understand the

> mixed

> > feelings I had of wanting to strangle her and inform her about

> > growth disorders in general........

> > >

> > > R

> > > Mom to Jed (12) Asthma, tics, CAPD

> > > Liam (5) Asthma, Epilepsy, Hearing impaired,

> > > SGA, Food Allergies.

> > > Orlando Fl

> > >

> > >

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My RSS daughter is about to turn sixteen. First day of school this

year a bunch of freshmen tried to hang with her...they didn't believe

she was a sophmore. It irked her but she got over it. She pretty

much understands her situation and how she wants to deal with it when

others make comments. Basically she doesn't have time for them and

just ignores them. She tells me they don't really bug her, it just

comes with the territory. Her only concern is her lack of appetite

and when she can get off the g-tube. She admits she is a little

spoiled as far as how easy it makes getting nutrition and calories.

> > >

> > > Okay here is a story that happened Yesterday when I was out

with

> > Jed, , and Liam. I was signing Jed and into Van's Skate

> > Park, then going to take Liam to his OT,PT, and ST. The age

> > requirement for Van's is 6 year's old, Liam is 5 as of December

> > 12....

> > >

> > > While on line there was a lady behind us. She was watching Liam

> and

> > > said to him " In a few years you'll be doing this too " ..

> > > I said " next year "

> > > she goes " Are you aware that the age requirement is 6? "

> > > I said " Yes, I am. In 11 months he can come with his brother " .

> > > She did not say anything, just kinda smiled at me and kept to

> > herself after that. Kinda like Yeah right that kid is not 5!!

> > >

> > > Just thought I'd share with a group that will understand the

> mixed

> > feelings I had of wanting to strangle her and inform her about

> > growth disorders in general........

> > >

> > > R

> > > Mom to Jed (12) Asthma, tics, CAPD

> > > Liam (5) Asthma, Epilepsy, Hearing impaired,

> > > SGA, Food Allergies.

> > > Orlando Fl

> > >

> > >

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Hi,

I am sorry I don't know you or your daughter's name, but I'd love to

hear more about her. There aren't as many parents of older RSS kids

on this listserve as some of the younger ones, and it is always nice

to hear about others' experiences. My son, , is 12 and also

has a g-tube. It will be a long time (if ever) before he doesn't

require g-tube feedings anymore, as he essentially eats nothing by

mouth. He has had a g-tube his whole life. Where are you from and

what are your daughter's stats (height, weight, etc)? How much does

she use the g-tube? My son is much smaller than all his friends, but

that has never really been an issue for him as far as making friends

(very thankful for this). In fact, most of his friends are older

than him. His best friend is 15 and in high school. If you are

willing to share more about yourself and your daughter, I look

forward to hearing it!

Kim C.

Subject: Re: Size encounter

My RSS daughter is about to turn sixteen. First day of school this

year a bunch of freshmen tried to hang with her...they didn't believe

she was a sophmore. It irked her but she got over it. She pretty

much understands her situation and how she wants to deal with it when

others make comments. Basically she doesn't have time for them and

just ignores them. She tells me they don't really bug her, it just

comes with the territory. Her only concern is her lack of appetite

and when she can get off the g-tube. She admits she is a little

spoiled as far as how easy it makes getting nutrition and calories.

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