Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 Hi ! I wanted to respond to your question about BARD buttons/tubes. My daughter Sydney had one placed in July last year, and I don't know if read my other posting today, but it was a surprise because we thought she was getting a Mic-Key button. The surgeon at the time told us the BARD is easier for younger children because they lay flatter against the skin and also you don't have to replace them out like a Mic-Key. It all sounded great with me...except they didn't tell me that it couldn't lock in the tubing when she was connected to the feeding pump. This became our biggest problem with the BARD. Since you can't lock in your tubing, not only can you not hook your child up to a backpack during the day (since it'll fall out at mild twisting)...but at night my daughter rolls around and is pretty active and it would pop out of her, spilling the contents of her tube and stomach. I would find her soaked in her sheets the next day, extremely upset at the loss of calories and time wasted. I finally discovered that by putting medical tape on her stomach, taping down the tube on the side of her stomach at night, would indeed fix the nighttime problem...I still could not do daytime pumpings while she was awake and upright. I visited Dr. H in December and she said we absolutely had to get the BARD switched out, it was not doing us any good. Sydney just had her Mic-Key put in last week and the locking mechanism on this tube is FANTASTIC. If you have an active child and you either know or forsee having to have a backpack running during the daytime... I would suggest not doing the BARD. Ours was nothing but trouble and ended up breaking a valve in it anyway...so we would have had to have it replaced sooner or later. Granted, you may not have a choice in the matter, if the BARD is your only option - but if you do have the choice - I would go with the Mic-Key. I can't tell you how frustrated I was with that BARD tube. I wish I HAD taken a picture of it....I scrapbook and even took pictures during her stay at the hospital...but never did think to take a picture of her tube! Wish I had now that you ask about pictures. Sorry I can't offer one to you. Good luck with everything! Debbie, mom to Sydney, RSS, 17 months > > Does anyone have a picture or any experience with the Bard Button? This is the only button our Dr uses. Thanks! > > Mom to Dasia > 23mo RSS > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 Thanks for responding Debbie! This presents such a problem for me, after being on the internet all day (and not getting my house cleaned! ), I know I definitely want the Mic-Key, I just want this ng tube out so bad that I really hate to wait for too much longer for this to be rescheduled. I'll email our genetics/devel ped, maybe he can get us in somewhere quickly. He's at a major hospital and probably has connections. I had our first one scheduled at a different hospital. This is making me crazy! super28chick wrote: Hi ! I wanted to respond to your question about BARD buttons/tubes. My daughter Sydney had one placed in July last year, and I don't know if read my other posting today, but it was a surprise because we thought she was getting a Mic-Key button. The surgeon at the time told us the BARD is easier for younger children because they lay flatter against the skin and also you don't have to replace them out like a Mic-Key. It all sounded great with me...except they didn't tell me that it couldn't lock in the tubing when she was connected to the feeding pump. This became our biggest problem with the BARD. Since you can't lock in your tubing, not only can you not hook your child up to a backpack during the day (since it'll fall out at mild twisting)...but at night my daughter rolls around and is pretty active and it would pop out of her, spilling the contents of her tube and stomach. I would find her soaked in her sheets the next day, extremely upset at the loss of calories and time wasted. I finally discovered that by putting medical tape on her stomach, taping down the tube on the side of her stomach at night, would indeed fix the nighttime problem...I still could not do daytime pumpings while she was awake and upright. I visited Dr. H in December and she said we absolutely had to get the BARD switched out, it was not doing us any good. Sydney just had her Mic-Key put in last week and the locking mechanism on this tube is FANTASTIC. If you have an active child and you either know or forsee having to have a backpack running during the daytime... I would suggest not doing the BARD. Ours was nothing but trouble and ended up breaking a valve in it anyway...so we would have had to have it replaced sooner or later. Granted, you may not have a choice in the matter, if the BARD is your only option - but if you do have the choice - I would go with the Mic-Key. I can't tell you how frustrated I was with that BARD tube. I wish I HAD taken a picture of it....I scrapbook and even took pictures during her stay at the hospital...but never did think to take a picture of her tube! Wish I had now that you ask about pictures. Sorry I can't offer one to you. Good luck with everything! Debbie, mom to Sydney, RSS, 17 months > > Does anyone have a picture or any experience with the Bard Button? This is the only button our Dr uses. Thanks! > > Mom to Dasia > 23mo RSS > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 , This may be a stupid question but is the Bard Button made by a company called Bard International? My sister used to work for them and if information is needed she still has friends that work there that she can get. I know when needed a cardiac catheter the cardiologist said something about Bard and my sister knew what I was talking about and was starting to get me some information. B and Kelli Malcolm wrote: Thanks for responding Debbie! This presents such a problem for me, after being on the internet all day (and not getting my house cleaned! ), I know I definitely want the Mic-Key, I just want this ng tube out so bad that I really hate to wait for too much longer for this to be rescheduled. I'll email our genetics/devel ped, maybe he can get us in somewhere quickly. He's at a major hospital and probably has connections. I had our first one scheduled at a different hospital. This is making me crazy! super28chick wrote: Hi ! I wanted to respond to your question about BARD buttons/tubes. My daughter Sydney had one placed in July last year, and I don't know if read my other posting today, but it was a surprise because we thought she was getting a Mic-Key button. The surgeon at the time told us the BARD is easier for younger children because they lay flatter against the skin and also you don't have to replace them out like a Mic-Key. It all sounded great with me...except they didn't tell me that it couldn't lock in the tubing when she was connected to the feeding pump. This became our biggest problem with the BARD. Since you can't lock in your tubing, not only can you not hook your child up to a backpack during the day (since it'll fall out at mild twisting)...but at night my daughter rolls around and is pretty active and it would pop out of her, spilling the contents of her tube and stomach. I would find her soaked in her sheets the next day, extremely upset at the loss of calories and time wasted. I finally discovered that by putting medical tape on her stomach, taping down the tube on the side of her stomach at night, would indeed fix the nighttime problem...I still could not do daytime pumpings while she was awake and upright. I visited Dr. H in December and she said we absolutely had to get the BARD switched out, it was not doing us any good. Sydney just had her Mic-Key put in last week and the locking mechanism on this tube is FANTASTIC. If you have an active child and you either know or forsee having to have a backpack running during the daytime... I would suggest not doing the BARD. Ours was nothing but trouble and ended up breaking a valve in it anyway...so we would have had to have it replaced sooner or later. Granted, you may not have a choice in the matter, if the BARD is your only option - but if you do have the choice - I would go with the Mic-Key. I can't tell you how frustrated I was with that BARD tube. I wish I HAD taken a picture of it....I scrapbook and even took pictures during her stay at the hospital...but never did think to take a picture of her tube! Wish I had now that you ask about pictures. Sorry I can't offer one to you. Good luck with everything! Debbie, mom to Sydney, RSS, 17 months > > Does anyone have a picture or any experience with the Bard Button? This is the only button our Dr uses. Thanks! > > Mom to Dasia > 23mo RSS > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 You're so kind . As I was just telling Jodi, this button will not work for us, I wish it would! Things would be so much easier. Oh well, at least it's not an emergency, we do have the ng tube, and Dasia's getting what she needs until we can get the right button, I just wish I had known about all this already, before wasting this much time, waiting on this appt. I can't understand why a hospital like Riley's wouldn't have the option of choosing which button though. Oh well, live and learn. Mom to Dasia 23mo RSS Briggs wrote: , This may be a stupid question but is the Bard Button made by a company called Bard International? My sister used to work for them and if information is needed she still has friends that work there that she can get. I know when needed a cardiac catheter the cardiologist said something about Bard and my sister knew what I was talking about and was starting to get me some information. B and Kelli Malcolm wrote: Thanks for responding Debbie! This presents such a problem for me, after being on the internet all day (and not getting my house cleaned! ), I know I definitely want the Mic-Key, I just want this ng tube out so bad that I really hate to wait for too much longer for this to be rescheduled. I'll email our genetics/devel ped, maybe he can get us in somewhere quickly. He's at a major hospital and probably has connections. I had our first one scheduled at a different hospital. This is making me crazy! super28chick wrote: Hi ! I wanted to respond to your question about BARD buttons/tubes. My daughter Sydney had one placed in July last year, and I don't know if read my other posting today, but it was a surprise because we thought she was getting a Mic-Key button. The surgeon at the time told us the BARD is easier for younger children because they lay flatter against the skin and also you don't have to replace them out like a Mic-Key. It all sounded great with me...except they didn't tell me that it couldn't lock in the tubing when she was connected to the feeding pump. This became our biggest problem with the BARD. Since you can't lock in your tubing, not only can you not hook your child up to a backpack during the day (since it'll fall out at mild twisting)...but at night my daughter rolls around and is pretty active and it would pop out of her, spilling the contents of her tube and stomach. I would find her soaked in her sheets the next day, extremely upset at the loss of calories and time wasted. I finally discovered that by putting medical tape on her stomach, taping down the tube on the side of her stomach at night, would indeed fix the nighttime problem...I still could not do daytime pumpings while she was awake and upright. I visited Dr. H in December and she said we absolutely had to get the BARD switched out, it was not doing us any good. Sydney just had her Mic-Key put in last week and the locking mechanism on this tube is FANTASTIC. If you have an active child and you either know or forsee having to have a backpack running during the daytime... I would suggest not doing the BARD. Ours was nothing but trouble and ended up breaking a valve in it anyway...so we would have had to have it replaced sooner or later. Granted, you may not have a choice in the matter, if the BARD is your only option - but if you do have the choice - I would go with the Mic-Key. I can't tell you how frustrated I was with that BARD tube. I wish I HAD taken a picture of it....I scrapbook and even took pictures during her stay at the hospital...but never did think to take a picture of her tube! Wish I had now that you ask about pictures. Sorry I can't offer one to you. Good luck with everything! Debbie, mom to Sydney, RSS, 17 months > > Does anyone have a picture or any experience with the Bard Button? This is the only button our Dr uses. Thanks! > > Mom to Dasia > 23mo RSS > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2006 Report Share Posted January 13, 2006 I know what you mean about not wanting to wait! We had to reschedule our first surgery due to a cold Sydney got (they wouldn't put her under anethesia with congestion)...so we had to delay it out a few more weeks and that drove me crazy. Good luck to you - I'm glad for you that you know what you want and know your options. Debbie > > > > Does anyone have a picture or any experience with the Bard Button? > This is the only button our Dr uses. Thanks! > > > > Mom to Dasia > > 23mo RSS > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 Hi , had a Bard button for a very short time when he was a baby maybe 10 or 11 years ago (he is now 12). These may be made differently now, but if it is the same as the one had, I wouldn't recommend this type. It is different, because it can only be replaced by a doctor with a special hook-like instrument. I don't want to scare you, but the one time had to get this button changed, he screamed in pain & bled a lot, but I also think the surgeon who did it had a terrible bedside manner & wasn't too gentle with him. has a Mic-key button now, as do many of the kids who have g-tubes. This one you can change yourself, and is easy to do. It stays in the stomach by inflating a small balloon with water through a special port. Please don't just take my advice though - try to get as much information you can on various types of g-tubes before you make any decisions. Good luck! Kim C. On Jan 12, 2006, at 5:22 PM, RSS-Support wrote: > Does anyone have a picture or any experience with the Bard Button? > This is the only button our Dr uses. Thanks! > > Mom to Dasia > 23mo RSS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 , Yikes - I should have read this before I posted my response to your original question... It sounds like you have thought this out, and the good thing is that your doctor will use an anesthetic to take the Bard out. 's doctor did not - hence the reason he screamed in pain. I think things will go fine for you & Dasia, and I'm sending good thoughts your way! for the surgery. Kim C. On Jan 14, 2006, at 10:04 AM, RSS-Support wrote: > > Hi Everyone, > I just got off the phone with the GI Dr., I've decided to keep > our appt for Thursday. They can do the MIC-key, but not in a one > step process like the Bard. So either I could leave surgery with > the long tube, and go back in 8 weeks getting the MIC-key button, > or leave surgery with the Bard button, and go back in 8 weeks and > get the MIC-key. So I suppose I'd rather have the Bard button than > a long tube for the 8 weeks. That would be nice to get the MIC-key > right away like did, but oh well, this is better than > waiting for a rescheduled appt. At least I'll still end up with > what I want, and I'll have the experience of the Bard. And he said, > since the Bard button can be painful to take out, he puts the kids > under light anesthesia first. I'll let you guys know how everythong > goes! > > Mom to Dasia > 23mo 17lbs 30 1/4in > Avery 6, Jaden 3 Quote Link to comment Share on other sites More sharing options...
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