Guest guest Posted December 20, 2009 Report Share Posted December 20, 2009 Beth: We got an additional inch overnight, bringing our total to about 13". It's been interesting to see photos of Asheville and Canton!! on the national news. We like to keep a low profile out here - keeps the riff-raff out. ;-) We can't get out of the house - the driveway is too steep when covered by snow, and the road beyond is very curvy. But we are warm, and have food, and computers and football - so we are just fine. Mike's brother, who lives near Charlottesville, VA, got around 22" as of yesterday afternoon, and my sister, who lives in , NJ, had 19" as of midnight last night. How are things by you? Barbara McD PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever Beautiful Western NC Counting my blessings: #6 - Food to eat. To: Breathe-Support Sent: Sun, December 20, 2009 11:30:24 AMSubject: Barb Thank you!! How are you doing out there with all that snow? Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Barbara McD <bamny (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, December 20, 2009 11:15:36 AMSubject: Re: about pulmonary rehab Congrats, Beth! B Barbara McD PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever Beautiful Western NC Counting my blessings: #5 - Working electricity. From: Beth <mbmurtha (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, December 20, 2009 11:11:30 AMSubject: Re: about pulmonary rehab Good morning, In my opinion pulmonary rehab is the single best thing most of us can do for ourselves. There are hundreds and hundreds of programs across the country. Some of them are better and more comprehensive than others but almost all of them are better than nothing. You will learn more about your disease and how to manage it. Learn how to exert yourself and exercise safely. Personally I have been through rehab twice. Once in NY at Helen Hospital in 2006 and most recently here in NC at the Duke Center for Living. This time around I've been able to lose 27 pounds to date and my 6 minute walk distance increased by 25%. I am stronger and have more endurance than I did when I started. Here is a link to a searchable directory of programs from the American Association of Cardiovascular and Pulmonary Rehabilitation: http://www.aacvpr. org/Resources/ SearchableCertif iedProgramDirect ory/tabid/ 113/Default. aspx You need a doctors prescription to be able to go to a rehab program but many doctors don't think to suggest it or don't see the value. However in many places (Duke is one of them) rehab is required for transplant. It just makes sense to try to keep our bodies as healthy as possible in order to be able to live as best we can with this lung disease. If your doctor doesn't suggest it you can and should request it. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: iltopaint <iltopaint (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, December 20, 2009 9:57:52 AMSubject: about pulmonary rehab Hi everyone, I'm looking to see what everyone thought of pulmonary rehab. What did it do for you and did it really make a difference in your everyday life. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2009 Report Share Posted December 20, 2009 Barb, Out here in the central part of the state we are extremely wimpy by comparison. We got about 2 inches of snow Friday evening and about an inch of ice on top of that. Yesterday dried out and there is only snow left on the lawn. By contrast my sister in NY got a foot and my brother in Massachusetts is getting about 18 inches today. Stay warm! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Sun, December 20, 2009 11:57:29 AMSubject: Re: Barb- Beth Beth: We got an additional inch overnight, bringing our total to about 13". It's been interesting to see photos of Asheville and Canton!! on the national news. We like to keep a low profile out here - keeps the riff-raff out. ;-) We can't get out of the house - the driveway is too steep when covered by snow, and the road beyond is very curvy. But we are warm, and have food, and computers and football - so we are just fine. Mike's brother, who lives near Charlottesville, VA, got around 22" as of yesterday afternoon, and my sister, who lives in , NJ, had 19" as of midnight last night. How are things by you? Barbara McD PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever Beautiful Western NC Counting my blessings: #6 - Food to eat. From: Beth <mbmurtha (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, December 20, 2009 11:30:24 AMSubject: Barb Thank you!! How are you doing out there with all that snow? Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Barbara McD <bamny (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, December 20, 2009 11:15:36 AMSubject: Re: about pulmonary rehab Congrats, Beth! B Barbara McD PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever Beautiful Western NC Counting my blessings: #5 - Working electricity. From: Beth <mbmurtha (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, December 20, 2009 11:11:30 AMSubject: Re: about pulmonary rehab Good morning, In my opinion pulmonary rehab is the single best thing most of us can do for ourselves. There are hundreds and hundreds of programs across the country. Some of them are better and more comprehensive than others but almost all of them are better than nothing. You will learn more about your disease and how to manage it. Learn how to exert yourself and exercise safely. Personally I have been through rehab twice. Once in NY at Helen Hospital in 2006 and most recently here in NC at the Duke Center for Living. This time around I've been able to lose 27 pounds to date and my 6 minute walk distance increased by 25%. I am stronger and have more endurance than I did when I started. Here is a link to a searchable directory of programs from the American Association of Cardiovascular and Pulmonary Rehabilitation: http://www.aacvpr. org/Resources/ SearchableCertif iedProgramDirect ory/tabid/ 113/Default. aspx You need a doctors prescription to be able to go to a rehab program but many doctors don't think to suggest it or don't see the value. However in many places (Duke is one of them) rehab is required for transplant. It just makes sense to try to keep our bodies as healthy as possible in order to be able to live as best we can with this lung disease. If your doctor doesn't suggest it you can and should request it. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: iltopaint <iltopaint (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, December 20, 2009 9:57:52 AMSubject: about pulmonary rehab Hi everyone, I'm looking to see what everyone thought of pulmonary rehab. What did it do for you and did it really make a difference in your everyday life. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2009 Report Share Posted December 20, 2009 Beth - Wow! You lucked out. Glad to hear it. We will be stuck here for a couple of days - the snow plows never come up here so we have to wait for the sun to do its work. And it's cloudy, so...... B Barbara McD PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever Beautiful Western NC Counting my blessings: #6 - Food to eat. To: Breathe-Support Sent: Sun, December 20, 2009 12:05:53 PMSubject: Re: Barb- Beth Barb, Out here in the central part of the state we are extremely wimpy by comparison. We got about 2 inches of snow Friday evening and about an inch of ice on top of that. Yesterday dried out and there is only snow left on the lawn. By contrast my sister in NY got a foot and my brother in Massachusetts is getting about 18 inches today. Stay warm! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Barbara McD <bamny (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, December 20, 2009 11:57:29 AMSubject: Re: Barb- Beth Beth: We got an additional inch overnight, bringing our total to about 13". It's been interesting to see photos of Asheville and Canton!! on the national news. We like to keep a low profile out here - keeps the riff-raff out. ;-) We can't get out of the house - the driveway is too steep when covered by snow, and the road beyond is very curvy. But we are warm, and have food, and computers and football - so we are just fine. Mike's brother, who lives near Charlottesville, VA, got around 22" as of yesterday afternoon, and my sister, who lives in , NJ, had 19" as of midnight last night. How are things by you? Barbara McD PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever Beautiful Western NC Counting my blessings: #6 - Food to eat. From: Beth <mbmurtha (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, December 20, 2009 11:30:24 AMSubject: Barb Thank you!! How are you doing out there with all that snow? Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Barbara McD <bamny (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, December 20, 2009 11:15:36 AMSubject: Re: about pulmonary rehab Congrats, Beth! B Barbara McD PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever Beautiful Western NC Counting my blessings: #5 - Working electricity. From: Beth <mbmurtha (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, December 20, 2009 11:11:30 AMSubject: Re: about pulmonary rehab Good morning, In my opinion pulmonary rehab is the single best thing most of us can do for ourselves. There are hundreds and hundreds of programs across the country. Some of them are better and more comprehensive than others but almost all of them are better than nothing. You will learn more about your disease and how to manage it. Learn how to exert yourself and exercise safely. Personally I have been through rehab twice. Once in NY at Helen Hospital in 2006 and most recently here in NC at the Duke Center for Living. This time around I've been able to lose 27 pounds to date and my 6 minute walk distance increased by 25%. I am stronger and have more endurance than I did when I started. Here is a link to a searchable directory of programs from the American Association of Cardiovascular and Pulmonary Rehabilitation: http://www.aacvpr. org/Resources/ SearchableCertif iedProgramDirect ory/tabid/ 113/Default. aspx You need a doctors prescription to be able to go to a rehab program but many doctors don't think to suggest it or don't see the value. However in many places (Duke is one of them) rehab is required for transplant. It just makes sense to try to keep our bodies as healthy as possible in order to be able to live as best we can with this lung disease. If your doctor doesn't suggest it you can and should request it. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: iltopaint <iltopaint (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, December 20, 2009 9:57:52 AMSubject: about pulmonary rehab Hi everyone, I'm looking to see what everyone thought of pulmonary rehab. What did it do for you and did it really make a difference in your everyday life. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2009 Report Share Posted December 20, 2009 this area got about 22 inches this development was plowed by 7 am and even our driveway was plowed then Jerry went out with the leaf blower and cleared my car and the porch they said it is a light snow and easy to get rid of the snow in the sun is already melting Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Barb- BethTo: Breathe-Support Date: Sunday, December 20, 2009, 11:57 AM Beth: We got an additional inch overnight, bringing our total to about 13". It's been interesting to see photos of Asheville and Canton!! on the national news. We like to keep a low profile out here - keeps the riff-raff out. ;-) We can't get out of the house - the driveway is too steep when covered by snow, and the road beyond is very curvy. But we are warm, and have food, and computers and football - so we are just fine. Mike's brother, who lives near Charlottesville, VA, got around 22" as of yesterday afternoon, and my sister, who lives in , NJ, had 19" as of midnight last night. How are things by you? Barbara McD PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever Beautiful Western NC Counting my blessings: #6 - Food to eat. From: Beth <mbmurtha (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, December 20, 2009 11:30:24 AMSubject: Barb Thank you!! How are you doing out there with all that snow? Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Barbara McD <bamny (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, December 20, 2009 11:15:36 AMSubject: Re: about pulmonary rehab Congrats, Beth! B Barbara McD PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever Beautiful Western NC Counting my blessings: #5 - Working electricity. From: Beth <mbmurtha (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, December 20, 2009 11:11:30 AMSubject: Re: about pulmonary rehab Good morning, In my opinion pulmonary rehab is the single best thing most of us can do for ourselves. There are hundreds and hundreds of programs across the country. Some of them are better and more comprehensive than others but almost all of them are better than nothing. You will learn more about your disease and how to manage it. Learn how to exert yourself and exercise safely. Personally I have been through rehab twice. Once in NY at Helen Hospital in 2006 and most recently here in NC at the Duke Center for Living. This time around I've been able to lose 27 pounds to date and my 6 minute walk distance increased by 25%. I am stronger and have more endurance than I did when I started. Here is a link to a searchable directory of programs from the American Association of Cardiovascular and Pulmonary Rehabilitation: http://www.aacvpr. org/Resources/ SearchableCertif iedProgramDirect ory/tabid/ 113/Default. aspx You need a doctors prescription to be able to go to a rehab program but many doctors don't think to suggest it or don't see the value. However in many places (Duke is one of them) rehab is required for transplant. It just makes sense to try to keep our bodies as healthy as possible in order to be able to live as best we can with this lung disease. If your doctor doesn't suggest it you can and should request it. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: iltopaint <iltopaint (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, December 20, 2009 9:57:52 AMSubject: about pulmonary rehab Hi everyone, I'm looking to see what everyone thought of pulmonary rehab. What did it do for you and did it really make a difference in your everyday life. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2009 Report Share Posted December 20, 2009 barb i can't imagine living in such an isolated area Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Barb- BethTo: Breathe-Support Date: Sunday, December 20, 2009, 11:57 AM Beth: We got an additional inch overnight, bringing our total to about 13". It's been interesting to see photos of Asheville and Canton!! on the national news. We like to keep a low profile out here - keeps the riff-raff out. ;-) We can't get out of the house - the driveway is too steep when covered by snow, and the road beyond is very curvy. But we are warm, and have food, and computers and football - so we are just fine. Mike's brother, who lives near Charlottesville, VA, got around 22" as of yesterday afternoon, and my sister, who lives in , NJ, had 19" as of midnight last night. How are things by you? Barbara McD PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever Beautiful Western NC Counting my blessings: #6 - Food to eat. From: Beth <mbmurtha (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, December 20, 2009 11:30:24 AMSubject: Barb Thank you!! How are you doing out there with all that snow? Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Barbara McD <bamny (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, December 20, 2009 11:15:36 AMSubject: Re: about pulmonary rehab Congrats, Beth! B Barbara McD PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever Beautiful Western NC Counting my blessings: #5 - Working electricity. From: Beth <mbmurtha (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, December 20, 2009 11:11:30 AMSubject: Re: about pulmonary rehab Good morning, In my opinion pulmonary rehab is the single best thing most of us can do for ourselves. There are hundreds and hundreds of programs across the country. Some of them are better and more comprehensive than others but almost all of them are better than nothing. You will learn more about your disease and how to manage it. Learn how to exert yourself and exercise safely. Personally I have been through rehab twice. Once in NY at Helen Hospital in 2006 and most recently here in NC at the Duke Center for Living. This time around I've been able to lose 27 pounds to date and my 6 minute walk distance increased by 25%. I am stronger and have more endurance than I did when I started. Here is a link to a searchable directory of programs from the American Association of Cardiovascular and Pulmonary Rehabilitation: http://www.aacvpr. org/Resources/ SearchableCertif iedProgramDirect ory/tabid/ 113/Default. aspx You need a doctors prescription to be able to go to a rehab program but many doctors don't think to suggest it or don't see the value. However in many places (Duke is one of them) rehab is required for transplant. It just makes sense to try to keep our bodies as healthy as possible in order to be able to live as best we can with this lung disease. If your doctor doesn't suggest it you can and should request it. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: iltopaint <iltopaint (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, December 20, 2009 9:57:52 AMSubject: about pulmonary rehab Hi everyone, I'm looking to see what everyone thought of pulmonary rehab. What did it do for you and did it really make a difference in your everyday life. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2009 Report Share Posted December 20, 2009 Joyce - It's really not that isolated. It is a small development, so there are houses around. Adjacent properties are from one to three acres. It is set in a semi-rural area - lots of farms, goats, horses, chickens. We are about seven miles from two good-sized towns. It is beautiful here. Only problem is when it snows! ;-) B Barbara McD PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever Beautiful Western NC Counting my blessings: #6 - Food to eat. To: Breathe-Support Sent: Sun, December 20, 2009 12:41:25 PMSubject: Re: Barb- Beth barb i can't imagine living in such an isolated area Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund. org From: Barbara McD <bamny (AT) yahoo (DOT) com>Subject: Re: Barb- BethTo: Breathe-Support@ yahoogroups. comDate: Sunday, December 20, 2009, 11:57 AM Beth: We got an additional inch overnight, bringing our total to about 13". It's been interesting to see photos of Asheville and Canton!! on the national news. We like to keep a low profile out here - keeps the riff-raff out. ;-) We can't get out of the house - the driveway is too steep when covered by snow, and the road beyond is very curvy. But we are warm, and have food, and computers and football - so we are just fine. Mike's brother, who lives near Charlottesville, VA, got around 22" as of yesterday afternoon, and my sister, who lives in , NJ, had 19" as of midnight last night. How are things by you? Barbara McD PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever Beautiful Western NC Counting my blessings: #6 - Food to eat. From: Beth <mbmurtha (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, December 20, 2009 11:30:24 AMSubject: Barb Thank you!! How are you doing out there with all that snow? Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Barbara McD <bamny (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, December 20, 2009 11:15:36 AMSubject: Re: about pulmonary rehab Congrats, Beth! B Barbara McD PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever Beautiful Western NC Counting my blessings: #5 - Working electricity. From: Beth <mbmurtha (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, December 20, 2009 11:11:30 AMSubject: Re: about pulmonary rehab Good morning, In my opinion pulmonary rehab is the single best thing most of us can do for ourselves. There are hundreds and hundreds of programs across the country. Some of them are better and more comprehensive than others but almost all of them are better than nothing. You will learn more about your disease and how to manage it. Learn how to exert yourself and exercise safely. Personally I have been through rehab twice. Once in NY at Helen Hospital in 2006 and most recently here in NC at the Duke Center for Living. This time around I've been able to lose 27 pounds to date and my 6 minute walk distance increased by 25%. I am stronger and have more endurance than I did when I started. Here is a link to a searchable directory of programs from the American Association of Cardiovascular and Pulmonary Rehabilitation: http://www.aacvpr. org/Resources/ SearchableCertif iedProgramDirect ory/tabid/ 113/Default. aspx You need a doctors prescription to be able to go to a rehab program but many doctors don't think to suggest it or don't see the value. However in many places (Duke is one of them) rehab is required for transplant. It just makes sense to try to keep our bodies as healthy as possible in order to be able to live as best we can with this lung disease. If your doctor doesn't suggest it you can and should request it. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: iltopaint <iltopaint (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sun, December 20, 2009 9:57:52 AMSubject: about pulmonary rehab Hi everyone, I'm looking to see what everyone thought of pulmonary rehab. What did it do for you and did it really make a difference in your everyday life. Quote Link to comment Share on other sites More sharing options...
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