Chia flour/nut-free baking

October 4, 2010

My 8 y/o dd who has an anaphylactic nut allergy started on SCD last month after

being dx'ed w. Crohn's. I would really LOVE to find a flour substitute that she

can eat. How about chia flour? Chia seeds are illegal on SCD but I can't find

anything about the flour. The closest I see is that it's similar to flax seed,

and flax seed oil is okay (never found a mention about flax seed flour, if there

even is such a thing).

Also open to hearing other ideas for nut-free baking!

Tip for others: organic " Sunbutter " (special order from Whole Foods) contains

only roasted organic sunflower seeds.

Thanks,

Ellen in Boston

13 y/o dd scd for 4 years for Crohn's

8 y/o scd one month for crohn's

October 4, 2010

Could you bake with sunbutter like people bake with nutbutters? How about

coconut flour or a combo sunbutter-coconut flour? This sounds like some

interesting possibilities and experiments in the kitchen.

Your DD was also dx'd with Chrons'? Bless your heart and hers. We know that your

girls were placed into good hands. I wish them both good health.

PJ

>

> My 8 y/o dd who has an anaphylactic nut allergy started on SCD last month

after being dx'ed w. Crohn's. I would really LOVE to find a flour substitute

that she can eat. How about chia flour? Chia seeds are illegal on SCD but I

can't find anything about the flour. The closest I see is that it's similar to

flax seed, and flax seed oil is okay (never found a mention about flax seed

flour, if there even is such a thing).

>

> Also open to hearing other ideas for nut-free baking!

>

> Tip for others: organic " Sunbutter " (special order from Whole Foods) contains

only roasted organic sunflower seeds.

>

> Thanks,

>

> Ellen in Boston

> 13 y/o dd scd for 4 years for Crohn's

> 8 y/o scd one month for crohn's

>

October 4, 2010

At 03:01 PM 10/4/2010, you wrote:

My 8 y/o dd who has an

anaphylactic nut allergy started on SCD last month after being dx'ed w.

Crohn's. I would really LOVE to find a flour substitute that she can eat.

How about chia flour? Chia seeds are illegal on SCD but I can't find

anything about the flour. The closest I see is that it's similar to flax

seed, and flax seed oil is okay (never found a mention about flax seed

flour, if there even is such a thing).

Flax seed oil is okay, but flax seeds can create mucilage, which is not

legal, plus they can be very high in lignans, which can be a

problem.

Elaine really didn't want us using seeds for flour -- too much likelihood

of starches and all in it.

I've been tinkering with a lentil bread which makes a pretty decent

sponge bread, and you can also make good crackers with them.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

October 4, 2010

Ellen,

I recently bought coconut flour from Tropical Traditions, but have yet to try it. I know there are recipes out there for it and I have a recipe book. I know this blog from HEAL~BALANCE~LIVE:

http://heal-balance-live.blogspot.com/

Has SCD recipes that look awesome and some only have coconut flour in them.

You might find something there an 8 year old might like.

Terry

October 4, 2010

Oops--forgot to mention that we do use coconut flour (and Tropical Tradition is

the BEST. Make sure to sign up for their email list b/c they do wonderful sales

on there). Even before 2nd dd got sick, I would bake w. coconut flour b/c that

was the only flour they both could eat.

Thank you for the input!

Ellen

13 y/o dd scd for 4 years for Crohn's

8 y/o dd scd for 1 month for Crohn's

doing it all over again

October 4, 2010

Oops--forgot to mention that we do use coconut flour (and Tropical Tradition is

the BEST. Make sure to sign up for their email list b/c they do wonderful sales

on there). Even before 2nd dd got sick, I would bake w. coconut flour b/c that

was the only flour they both could eat.

Thank you for the input!

Ellen

13 y/o dd scd for 4 years for Crohn's

8 y/o dd scd for 1 month for Crohn's

doing it all over again

October 4, 2010

PJ, thank you for the kind and supportive words. I really appreciate (and need)

the good thoughts.

Ellen

(hoping my other two daughters stay healthy....)

> Your DD was also dx'd with Chrons'? Bless your heart and hers. We know that

your girls were placed into good hands. I wish them both good health.

>

> PJ

October 4, 2010

PJ, thank you for the kind and supportive words. I really appreciate (and need)

the good thoughts.

Ellen

(hoping my other two daughters stay healthy....)

> Your DD was also dx'd with Chrons'? Bless your heart and hers. We know that

your girls were placed into good hands. I wish them both good health.

>

> PJ

October 5, 2010

Yes, the prayer all mothers know: please keep our children healthy. I hope that

all yours stay healthy too.

PJ

>

> PJ, thank you for the kind and supportive words. I really appreciate (and

need) the good thoughts.

>

> Ellen

> (hoping my other two daughters stay healthy....)

>

> > Your DD was also dx'd with Chrons'? Bless your heart and hers. We know that

your girls were placed into good hands. I wish them both good health.

> >

> > PJ

>

October 5, 2010

also, have you considered testing the family for celiac? It is genetic, and

putting family members on SCD could be a preventative step.

PJ

> >

> > PJ, thank you for the kind and supportive words. I really appreciate (and

need) the good thoughts.

> >

> > Ellen

> > (hoping my other two daughters stay healthy....)

> >

> > > Your DD was also dx'd with Chrons'? Bless your heart and hers. We know

that your girls were placed into good hands. I wish them both good health.

> > >

> > > PJ

> >

>

October 5, 2010

Thanks for the input, Marilyn. I'll look forward to hearing of your further

adventures w. lentil crackers!!!!

Ellen in Boston

13 y/o dd scd for 4 years for Crohn's

8 y/o dd scd for 1 month for new Crohn's diagnosis

October 5, 2010

Hmmm....that's an interesting thought, PJ. Testing how? Like with the

Prometheus test or another way? I can't imagine my insurance company would pay

since the other members are symptom-free, so hopefully there is a

reasonably-priced way to do it (Prometheus tests are something like $3-$400.

Eek!).

Thanks,

Ellen

13 y/o dd scd for 4 years for crohn's

8 year dd just dx'ed w. crohn's. SCD one month

>

> also, have you considered testing the family for celiac? It is genetic, and

putting family members on SCD could be a preventative step.

>

> PJ

October 6, 2010

Hi Ellen,

I'm not really sure of the best way. The GI docs want intestinal biopsies. I

would not want to do that! In fact, if you are already gluten- free, the test

won't work. You have to eat enough gluten for the test to be positive- so

personally I would refuse to do that after feeling better on SCD. I hear that it

is possible to test for the gene for celiac and you don't need to eat gluten for

that. Having the gene does not mean one has it, but means it is a possibility.

That would be enough information for me.

The test I have seen is expensive. I don't know about insurance coverage, but

the first step would be to ask a genetic counselor at a center where they do

genetic testing. They may be willing to run the test for the gene on your

daughters since they both have GI illness. If that is positive, then they may

test other family members. It's just a thought, since many doctors do not

recommend diet intervention on just the gene alone, but that may be enough for

me to do it personally.

It seems that the science behind these GI disorders is still lagging in enough

research, and making the intestinal biopsy the standard for diagnosing celiac-

and only recommending diet after that test overlooks the many people who seem to

benefit from SCD. It seems to me that some GI issues appear in families and we

don't know why yet.

Personally, I am starting to wonder if some people are just genetically designed

to not tolerate gluten, lactose, and other carbs as well as others, although I

have no proof.

It's a thought, not science, and I did not think of the expense/insurance

aspect. I am not a big fan of genetic testing if there is no way to treat it,

but I wonder if someone had the gene for celiac if SCD would be the better way

for them to eat. Since my own GI doc dismisses diet, I don't think this idea is

the medical standard. It's just my own thoughts after seeing so many people on

this board feel better on SCD.

PJ

> >

> > also, have you considered testing the family for celiac? It is genetic, and

putting family members on SCD could be a preventative step.

> >

> > PJ

>

October 6, 2010

>

> The test I have seen is expensive. I don't know about insurance

> coverage, but the first step would be to ask a genetic counselor at a center

where they do genetic testing. They may be willing to run the test for the gene

on your daughters since they both have GI illness. If that is positive, then

they may test other family members. It's just a thought, since many doctors do

not recommend diet intervention on just the gene alone, but that may be enough

for me to do it personally.

>

> It seems that the science behind these GI disorders is still

> lagging in enough research, and making the intestinal biopsy the standard for

diagnosing celiac- and only recommending diet after that test overlooks the many

people who seem to benefit from SCD. It seems to me that some GI issues appear

in families and we don't know why yet.

>

Sidney Valentine Haas, creator of the SCD, considered celiac, UC, Crohn's, and

the rest of the digestive disease family to simply be different manifestations

of the same problem: dysbiosis and damaged intestines, and to be curable by

fixing these problems. That's what his book, The Management of Celiac Disease,

was all about. Remember -- he also reported that after treatment with the SCD,

children returned to an unrestricted diet without relapsing into disease. (The

situation is undoubtedly more complicated for adults today than it was for

children in the 1940s, but that's another story and a long one.)

It's no wonder this idea has been forgotten, since the medical orthodoxy would

have buried Haas entirely if not for Elaine Gottschall not accepting a crippled

half-life for her child, then going on a lifelong crusade to understand and

disseminate his truth.

I would bet anything that the real reason digestive diseases run in families is

that gut flora are hereditary. Note this -- hereditary, but obviously not

genetic. A child gets their first gut flora gulping in the amniotic fluid of

the mother. If she has lived on refined sugars, the pill, antibiotics, and

other things that promote dysbiosis, the child's digestive health will be

compromised from the start. Then those children grow up on refined sugars, the

pill, antibiotics, and so forth because that's what their family does (more

hereditary influence), and eventually they marry each other and start having

children! You can see where this goes.

> Personally, I am starting to wonder if some people are just genetically

designed to not tolerate gluten, lactose, and other carbs as well as others,

although I have no proof.

>

Personally, I doubt it. The rates of diseases of improper digestion (Crohn's,

UC, celiac, autism, etc.) are going through the roof, and doing so in a

generation or two at most. I don't see how anyone can look at how badly off a

lot of autistic children are and say with a straight face that they were always

around and we just didn't notice. This can't be a genetic phenomenon.

> It's a thought, not science, and I did not think of the expense/insurance

aspect. I am not a big fan of genetic testing if there is no way to treat it,

but I wonder if someone had the gene for celiac if SCD would be the better way

for them to eat. Since my own GI doc dismisses diet, I don't think this idea is

the medical standard. It's just my own thoughts after seeing so many people on

this board feel better on SCD.

>

I don't think the SCD can hurt anyone, but I don't think it should be necessary

to follow it for life for most people -- certainly not people who have never

developed any disease, but only might. My view is that if you need to follow a

diet that restricts foods that have been eaten by people who maintained good

health for generations on them, it's a problem with your digestion (as most of

us here know we have, so no news there), not a problem with those foods. I also

believe that these problems are predominantly curable, though it gets difficult

as they go untreated and you accumulate a whole host of interrelated illnesses.

> PJ

October 6, 2010

, I agree with your reply and I do think environment has a lot to do with

it. However, there is a gene for celiac and autism is thought to be polygenic.

But not all people with the gene(s) have the symptoms. This is where environment

comes in. Could it be a combination of both?

My in laws are in their '90's and eat sugary dessert (pie, donuts, ice cream)

twice a day. One of their meals alone would have put my diabetic father in a

coma. On my father's side, many people who are overweight become diabetic, while

the thin ones do not- genes + environment. While on the side of my in-laws, they

are all happily eating desserts and some are overweight and not a single one has

diabetes.

So maybe- there is some genetic tendency to acquire bad gut flora with the right

conditions? Who knows? One day I hope medical research resurrects Haas' work and

gives him and Elaine the credit they are due. I am the only one in my family

ever to be diagnosed with " mild UC " over several generations. I am still trying

to figure that one out. However, my mother has had IBS for years and I never had

a symptom until age 53. I ate very healthy too. However, I had taken frequent

antibiotics for sinusitis, UTI's and dental work over the years and if anything-

maybe that triggered something, or let the bad bugs that were hanging out for

half a century go wild...

Wish I knew.... then we could help others. Something ( the SAD? ) is making more

cases of IBD and autism appear over the years, maybe undoing some protective

mechanism.

Thanks,

PJ

>

> >

> > The test I have seen is expensive. I don't know about insurance

> > coverage, but the first step would be to ask a genetic counselor at a center

where they do genetic testing. They may be willing to run the test for the gene

on your daughters since they both have GI illness. If that is positive, then

they may test other family members. It's just a thought, since many doctors do

not recommend diet intervention on just the gene alone, but that may be enough

for me to do it personally.

> >

> > It seems that the science behind these GI disorders is still

> > lagging in enough research, and making the intestinal biopsy the standard

for diagnosing celiac- and only recommending diet after that test overlooks the

many people who seem to benefit from SCD. It seems to me that some GI issues

appear in families and we don't know why yet.

> >

>

> Sidney Valentine Haas, creator of the SCD, considered celiac, UC, Crohn's, and

the rest of the digestive disease family to simply be different manifestations

of the same problem: dysbiosis and damaged intestines, and to be curable by

fixing these problems. That's what his book, The Management of Celiac Disease,

was all about. Remember -- he also reported that after treatment with the SCD,

children returned to an unrestricted diet without relapsing into disease. (The

situation is undoubtedly more complicated for adults today than it was for

children in the 1940s, but that's another story and a long one.)

>

> It's no wonder this idea has been forgotten, since the medical orthodoxy would

have buried Haas entirely if not for Elaine Gottschall not accepting a crippled

half-life for her child, then going on a lifelong crusade to understand and

disseminate his truth.

>

> I would bet anything that the real reason digestive diseases run in families

is that gut flora are hereditary. Note this -- hereditary, but obviously not

genetic. A child gets their first gut flora gulping in the amniotic fluid of

the mother. If she has lived on refined sugars, the pill, antibiotics, and

other things that promote dysbiosis, the child's digestive health will be

compromised from the start. Then those children grow up on refined sugars, the

pill, antibiotics, and so forth because that's what their family does (more

hereditary influence), and eventually they marry each other and start having

children! You can see where this goes.

>

> > Personally, I am starting to wonder if some people are just genetically

designed to not tolerate gluten, lactose, and other carbs as well as others,

although I have no proof.

> >

>

> Personally, I doubt it. The rates of diseases of improper digestion (Crohn's,

UC, celiac, autism, etc.) are going through the roof, and doing so in a

generation or two at most. I don't see how anyone can look at how badly off a

lot of autistic children are and say with a straight face that they were always

around and we just didn't notice. This can't be a genetic phenomenon.

>

> > It's a thought, not science, and I did not think of the expense/insurance

aspect. I am not a big fan of genetic testing if there is no way to treat it,

but I wonder if someone had the gene for celiac if SCD would be the better way

for them to eat. Since my own GI doc dismisses diet, I don't think this idea is

the medical standard. It's just my own thoughts after seeing so many people on

this board feel better on SCD.

> >

>

> I don't think the SCD can hurt anyone, but I don't think it should be

necessary to follow it for life for most people -- certainly not people who have

never developed any disease, but only might. My view is that if you need to

follow a diet that restricts foods that have been eaten by people who maintained

good health for generations on them, it's a problem with your digestion (as most

of us here know we have, so no news there), not a problem with those foods. I

also believe that these problems are predominantly curable, though it gets

difficult as they go untreated and you accumulate a whole host of interrelated

illnesses.

>

> > PJ

>

October 6, 2010

So maybe- there is some genetic tendency to acquire bad gut flora with the right conditions?This is indisputable - they've located some of the genome now. And babies get exposed to their mother's bacteria while going through the birthcanal. Mara

October 9, 2010

If only I took after my mom! She has always been healthy, and has always been a

healthy eater. Unfortunately, I take after my dad and got all his health

problems (crohn's being the biggie).

Holly

Crohn's

SCD 12/01/08

<snip>