Guest guest Posted August 18, 2010 Report Share Posted August 18, 2010 I have UC and considering the diet. The BTVC book states that one should continue with doctor's orders while following the SCD diet. I'm currently in a flare up. GI doc here in Mexico has prescribed 30mg of Calcort (corticosteroid) which I have been on for 4 weeks while continuing Asacol (3600 mg). Diarrhea is gone, one or two BM's daily, occasional (rare) blood in stool, still have gas but less. Next is weaning off the steroid, followed by hydrocortisone enema. 1) If I start the SCD diet now and get back to full remission, how will I know if the meds or the diet is responsible for the " cure " ? 2) If I wait until I'm in remission to start the SCD diet, how will I know that it is working? I have no symptoms when in remission. On another note, French bread is my favorite food. Any way to duplicate with almond flour? That flour is not available in this area, so I will have to buy large quantities of almonds and ground. Thanks for any advice you can provide. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2010 Report Share Posted August 18, 2010 How will you know? Many of us use all means to feel better, SCD, and medication. You can't stay on steroids forever. If you start SCD while taking Calcort- you won't know. Does it really matter if you are feeling well? At some point you will have to wean off, and if you are well into SCD you will have some idea. All of us are different, but many here would say we are much better off for being on SCD. PJ > > I have UC and considering the diet. > > The BTVC book states that one should continue with doctor's orders while following the SCD diet. > > I'm currently in a flare up. GI doc here in Mexico has prescribed 30mg of Calcort (corticosteroid) which I have been on for 4 weeks while continuing Asacol (3600 mg). Diarrhea is gone, one or two BM's daily, occasional (rare) blood in stool, still have gas but less. Next is weaning off the steroid, followed by hydrocortisone enema. > > 1) If I start the SCD diet now and get back to full remission, how will I know if the meds or the diet is responsible for the " cure " ? > > 2) If I wait until I'm in remission to start the SCD diet, how will I know that it is working? I have no symptoms when in remission. > > On another note, French bread is my favorite food. Any way to > duplicate with almond flour? That flour is not available in this area, so I will have to buy large quantities of almonds and ground. > > Thanks for any advice you can provide. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2010 Report Share Posted August 19, 2010 > 1) If I start the SCD diet now and get back to full remission, how will I know if the meds or the diet is responsible for the " cure " ? The only way to know for sure would be to get off the meds. I'm not saying that is a good thing. There are plenty of people that do SCD with meds and do fine. Remember, even though you take meds, you can still have flare ups. > 2) If I wait until I'm in remission to start the SCD diet, how will I know that it is working? I have no symptoms when in remission. You'll know it's working when you don't have anymore flare ups or testing from your doctor comes back UC negative. > On another note, French bread is my favorite food. Any way to duplicate with almond flour? That flour is not available in this area, so I will have to buy large quantities of almonds and ground. There are plenty of bread recipes out there. The BTVC has a souffle bread that doesn't have almond flour. Another option is coconut flour when you can tolerate it but it can be very advanced. I've tried plenty of bread recipes and nothing even comes close to the consistency and texture of French bread (I'm from South Louisiana and just about everything here is served with a buttered and sometimes garliced piece of French bread.) I just live without breads. My system doesn't tolerate many almonds anyway. Meds didn't work for my Crohn's so diet was my only choice. Well Humira, Remicaid or surgery were my choices. I chose to try the diet. =D Misty Kimble CD - no meds SCD - Jan 2008 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2010 Report Share Posted August 19, 2010 I was on prednisone and Pentasa and Imuran when I started SCD. I started tapering the prednisone very very slowly while I started the diet in the hopes I wouldn't flare up. It took about 5-6 months because I was pred dependent (would flare everytime I stopped taking it). You just have to be careful about cooking, peeling and deseeding everything, don't eat anything scratchy or with a tough husk because pred masks a lot of the signs. Just take everything slowly, introducing fruits and vegetables, the yogurt intake and when you are completely off the steroid, it will be easier to tell what is advanced or tolerated. No sub for French bread but recipes come out all the time for decent subs so it's a matter of time (maybe--still waiting on adecent biscuit recipe!) > 1) If I start the SCD diet now and get back to full remission, how will I know if the meds or the diet is responsible for the " cure " ?The only way to know for sure would be to get off the meds. I'm not saying that is a good thing. There are plenty of people that do SCD with meds and do fine. Remember, even though you take meds, you can still have flare ups. > 2) If I wait until I'm in remission to start the SCD diet, how will I know that it is working? I have no symptoms when in remission.You'll know it's working when you don't have anymore flare ups or testing from your doctor comes back UC negative. > On another note, French bread is my favorite food. Any way to duplicate with almond flour? That flour is not available in this area, so I will have to buy large quantities of almonds and ground. There are plenty of bread recipes out there. The BTVC has a souffle bread that doesn't have almond flour. Another option is coconut flour when you can tolerate it but it can be very advanced. I've tried plenty of bread recipes and nothing even comes close to the consistency and texture of French bread (I'm from South Louisiana and just about everything here is served with a buttered and sometimes garliced piece of French bread.) I just live without breads. My system doesn't tolerate many almonds anyway. Meds didn't work for my Crohn's so diet was my only choice. Well Humira, Remicaid or surgery were my choices. I chose to try the diet. =D Misty KimbleCD - no medsSCD - Jan 2008 -- 41 cd scd 12/05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2010 Report Share Posted August 19, 2010 > > 2) If I wait until I'm in remission to start the SCD diet, how will I know that it is working? I have no symptoms when in remission. > > You'll know it's working when you don't have anymore flare ups or testing from your doctor comes back UC negative. > > Misty Kimble > CD - no meds > SCD - Jan 2008 > Hi, Misty, I just had a question regarding your response: What kind of tests can we run through to know that we are UC negative? Are there any tests we can perform to verify if we are UC free other than colonscopy? Thank you, Frances Son 14 UC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2010 Report Share Posted August 19, 2010 I was talking about whatever tests your doctor does to confirm UC. I know the only way I'll know for sure that my Crohn's is in remission is to go to the doctor. I know it's not so I'm not even going to try. I haven't been to the doctor since I started SCD. When I feel symptom free I'll go to make sure it's in remission. Misty CD - no meds > Hi, Misty, > > I just had a question regarding your response: > What kind of tests can we run through to know that we are UC negative? Are there any tests we can perform to verify if we are UC free other than colonscopy? > > Thank you, > > Frances > Son 14 UC > Quote Link to comment Share on other sites More sharing options...
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