Re: Re: Telling your Children

[Guest guest]

My two kids have known from the getgo about this dreadful disease. My daughter is my biggest advocate, and supporter. My son (who we are now staying with in Iowa) I think is in a bit of denial. Or amybe he just can't talk about what he is feeling. Whenever I cough, he looks at me and says"are you ok". To me, it;s just part of the ILD, but to him---Kathy ILD/Hypersensitivity pneumonitis 3/08Subject: Re: Telling your ChildrenTo: Breathe-Support Date: Thursday, January 21, 2010, 6:13 AM

When tossing that out wasn't to you but to others struggling with it.

The fact that I know how you deal with the condition furthered that

thought in my mind. That you were able to talk to your son more easily

because you have both knowledge and acceptance of what your condition

is. (Note I use the word acceptance but not to mean you like it by any

means).

> > >

> >

> > >> From: worth hope2thend (AT) yahoo (DOT) com>

> > >> Subject: Workshops in your area

> > >> To: "Breath Support" <Breathe-Support@ yahoogroups. com>

> > >> Date: Saturday, January 16, 2010, 10:39 PM

> > >>

> > >>

> > >> Â

> > >>

> > >>

> > >There might be an organization in your area offering the Chronic

> Disease Self-Management Program workshop. That would be even better to

> attend an actual workshop instead of the on-line program.

> > >The Chronic Disease Self-Management Program is offered by

> organizations throughout the United States and Internationally. To

find

> a CDSMP program in your area click on your state or country for more

> details, or scroll down to find your state or country. A list of

> organizations that are licensed as of this date to give the workshop

> follows. http://patienteduca tion.stanford. edu/organ/ cdsites.html

> > >Â

> > >C_53_Familial IPF_5/09, Washington

> > >HOPEÂ doesn't disappoint!

> > >>

> > >>

> > >

> > >

> >

>

[Guest guest]

Bruce,

I knew what you meant and I agree with you as far as the value of a good counselor when a family is facing a situation like this.

I was fortunate in the sense that when I was diagnosed back in 2006 my son was already living in NC enrolled in a program for "at risk young men" up in the western NC mountains. He had 24/7 access to professionals who helped him through this difficult time. I also spoke to him on the phone almost daily so that he could hear my voice and know I was still here and still Mom.

I briefly contemplated pulling him from the program and flying him home but quickly realized that would be counterproductive. It was a judgement call that turned out ok. Had I died during that hospitalization obviously that choice would have been suspect but as it turned out I'm still here and still driving a little crazy.

I have my own counselor now. She's terrific. I see her every other week and credit her with the fact that you all haven't read about me in the paper under a headline like this:

"North Carolina woman runs amok after argument with elderly parents".

I'm kidding....well sort of kidding. LOL

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Thu, January 21, 2010 9:13:34 AMSubject: Re: Telling your Children

When tossing that out wasn't to you but to others struggling with it.The fact that I know how you deal with the condition furthered thatthought in my mind. That you were able to talk to your son more easilybecause you have both knowledge and acceptance of what your conditionis. (Note I use the word acceptance but not to mean you like it by anymeans).> > >> >> > >> From: worth hope2thend (AT) yahoo (DOT) com>> > >> Subject: Workshops in your area> > >> To: "Breath Support" <Breathe-Support@ yahoogroups. com>> > >> Date: Saturday, January 16, 2010, 10:39 PM> > >>> > >>> > >> Â> > >>> > >>> > >There might be an organization in your area offering the Chronic> Disease Self-Management Program workshop. That would be even better to> attend an actual workshop instead of the on-line program.> > >The Chronic Disease Self-Management

Program is offered by> organizations throughout the United States and Internationally. Tofind> a CDSMP program in your area click on your state or country for more> details, or scroll down to find your state or country. A list of> organizations that are licensed as of this date to give the workshop> follows. http://patienteduca tion.stanford. edu/organ/ cdsites.html> > >Â> > >C_53_Familial IPF_5/09, Washington> > >HOPEÂ doesn't disappoint!> > >>> > >>> > >> > >> >>

[Guest guest]

lol

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: Telling your ChildrenTo: Breathe-Support Date: Thursday, January 21, 2010, 11:12 AM

Bruce,

I knew what you meant and I agree with you as far as the value of a good counselor when a family is facing a situation like this.

I was fortunate in the sense that when I was diagnosed back in 2006 my son was already living in NC enrolled in a program for "at risk young men" up in the western NC mountains. He had 24/7 access to professionals who helped him through this difficult time. I also spoke to him on the phone almost daily so that he could hear my voice and know I was still here and still Mom.

I briefly contemplated pulling him from the program and flying him home but quickly realized that would be counterproductive. It was a judgement call that turned out ok. Had I died during that hospitalization obviously that choice would have been suspect but as it turned out I'm still here and still driving a little crazy.

I have my own counselor now. She's terrific. I see her every other week and credit her with the fact that you all haven't read about me in the paper under a headline like this:

"North Carolina woman runs amok after argument with elderly parents".

I'm kidding....well sort of kidding. LOL

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: Bruce <brucemoreland@ gmail.com>To: Breathe-Support@ yahoogroups. comSent: Thu, January 21, 2010 9:13:34 AMSubject: Re: Telling your Children

When tossing that out wasn't to you but to others struggling with it.The fact that I know how you deal with the condition furthered thatthought in my mind. That you were able to talk to your son more easilybecause you have both knowledge and acceptance of what your conditionis. (Note I use the word acceptance but not to mean you like it by anymeans).> > >> >> > >> From: worth hope2thend (AT) yahoo (DOT) com>> > >> Subject: Workshops in your area> > >> To: "Breath Support" <Breathe-Support@ yahoogroups. com>> > >> Date: Saturday, January 16, 2010, 10:39 PM> > >>> > >>> > >> Â> > >>> > >>> > >There might be an organization in your area offering the Chronic> Disease Self-Management Program workshop. That would be even

better to> attend an actual workshop instead of the on-line program.> > >The Chronic Disease Self-Management Program is offered by> organizations throughout the United States and Internationally. Tofind> a CDSMP program in your area click on your state or country for more> details, or scroll down to find your state or country. A list of> organizations that are licensed as of this date to give the workshop> follows. http://patienteduca tion.stanford. edu/organ/ cdsites.html> > >Â> > >C_53_Familial IPF_5/09, Washington> > >HOPEÂ doesn't disappoint!> > >>> > >>> > >> > >> >>