Guest guest Posted January 7, 2010 Report Share Posted January 7, 2010 Tina, Good morning and welcome to Breathe Support. I apologize for not responding to you yesterday. I was distracted by a family situation. You have been through the mill and I'm so sorry for that. You've already gotten some good advice here. I would only reiterate that you should take one thing at a time. One symptom, one thing that's making your life more difficult and unhappy and attempt to find a way to make it a bit better. If it's sleep then address that first. For me if I could not sleep, the rest of my life would be a nightmare. If it's diet, then address that. Personally I am on Weil's anti-inflammatory diet. It's not specifically dairy free but you could easily eliminate dairy from it without significantly affecting the diet in any way. It's not a 'diet' in the sense of it being a weight loss plan but just a way to eat healthy. I follow this plan about 80-85%. Someone asked if you are on prednisone. That will cause bloating for sure. I'm also going to ask if you've had an echocardiogram since your diagnosis. Increased shortness of breath and swelling can be a symptom of pulmonary hypertension and heart failure. Make sure you are taking care of your heart. Tina, I could sit here and write all day but others have given you good suggestions and I don't want to overwhelm you. Stick around and keep reading, keep asking questions. You've found a place where people understand and care! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Wed, January 6, 2010 9:49:39 AMSubject: Re:lots of stomach problems Hi, My name is Tina I was diagnosed with IPF,UIP in April of 2004.I had a lung biopsy to find out what i had and went to 3 different doctors to confirm the diagnoses.I go to the lung center in my home town Decatur,Illinois i see them every 6 months i have a chest x ray and do the function test.Once a year i go to university of Chicago i do pretty much the same thing there.Except i like the University of Chicago better I have more faith with them.When i was first diagnosed my home town lung doctor said i will give you two years.Scared me to death i couldn't function any more .I had to now go to a head doctor just to help me take that all in and get over it.When i was first diagnosed i was just going in to have a cervical infusion on my neck and before i could have that done i had to have a chest xray and this was when everything started i was working doing fine had no shortness of breath nothing.Since i have had the lung biopsy i have shortness ofbreath and never feel good.Right after the biopsy the doctor told me i would have to quit my job i had no way to take care of my self the doctors said apply for SSI -SSD so i did got it .Not the way i wanted it but i feel like crap anymore.I have alot of bloating in my stomach I'm miserable all the time and body retains fluid all the time been fighting this since biopsy..Does any one else suffer from BLOATING what can i do ?And if you got a good diet that consist of being allergic to dairy please e- mail it to me.I'm 54 years old I need all the help i can get I'm about 40 pounds over weight.Ive had upper GI nothing 2 weeks ago other than having a small hiatal hernia.My e-mail address is tinadanner55@ yahoo.com Thanks Tina Quote Link to comment Share on other sites More sharing options...
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