Re: Esophagitis and Ulcerative Colitis

[Guest guest]

You might try asking this at the pecanbread group. I know I've read posts from a

few parents whose kids have this problem.

Holly

Crohn's

SCD 12/01/08

>

> My 11 year old was diagnosed with esophagitis and acid reflux last year. We

followed an typical acid reflux diet with whole grains and fresh fruit and low

fat. Less that a year later she got diagnosed with the UC but her esophagitis

was cleared up.

>

> We follow scd and had great success. We had a couple slip ups and we have

learned the hard way that either make it yourself,find a good supplier and

beware when you dine out. For example shelf stable almond milk is not legal,

regardless of what the ingrediants say in case anyone is wondering...

>

> Anyway after a terrible week of awful stomach pain, an abdominal CT and a trip

to the ER it looks like it may be her esophagitis is back in full force. They

took the blood work and it is NOT a UC flare up.

>

> I put her back on the intro diet (just in case) and was looking for anyone

that has had esophagitis / GERD or an ulcer that have followed this diet and how

they modified it to lower the fat and up the fiber.

>

> Thanks,

> A very unhappy mom to a daughter with UC and esophagitis

>

> Bentyl 60 mg

> Protonix

> Pepcid 20 mg

> Asacol 1600 mg

> Zyrtech and Singulair for allergies

>

[Guest guest]

Thanks i will!

> >

> > My 11 year old was diagnosed with esophagitis and acid reflux last year. We

followed an typical acid reflux diet with whole grains and fresh fruit and low

fat. Less that a year later she got diagnosed with the UC but her esophagitis

was cleared up.

> >

> > We follow scd and had great success. We had a couple slip ups and we have

learned the hard way that either make it yourself,find a good supplier and

beware when you dine out. For example shelf stable almond milk is not legal,

regardless of what the ingrediants say in case anyone is wondering...

> >

> > Anyway after a terrible week of awful stomach pain, an abdominal CT and a

trip to the ER it looks like it may be her esophagitis is back in full force.

They took the blood work and it is NOT a UC flare up.

> >

> > I put her back on the intro diet (just in case) and was looking for anyone

that has had esophagitis / GERD or an ulcer that have followed this diet and how

they modified it to lower the fat and up the fiber.

> >

> > Thanks,

> > A very unhappy mom to a daughter with UC and esophagitis

> >

> > Bentyl 60 mg

> > Protonix

> > Pepcid 20 mg

> > Asacol 1600 mg

> > Zyrtech and Singulair for allergies

> >

>

[Guest guest]

Hi, thanks for your post, which I found in my researching.

It sounds like the low fat diet of grains & fruit was therapeutic for your

daughter's GERD but exacerbated her IBD, and SCD healed her IBD but exacerbated

her GERD. I have Crohn's disease and have kept it at bay by following SCD

successfully for about 9 years. However, within the last 4 years I have

developed esophagitis/GERD and in the last year it has become worse enough to

put me on Prilosec, which my docs want me on forever. Being that I worked so

hard to avoid meds by being on SCD, I am not about to succumb to med taking for

the GERD.

Thus I am experimenting with eliminating foods, trying to discover a possible

food allergy; so far I suspect the yogurt or dairy may be a culprit but it is

also a possibility that the high animal fat content, food heating, or other

characteristic of SCD may promote acid reflux, as in your daughter's experience.

There is a another patient who posted on the internet that he developed GERD on

SCD too. SCD is a great dietary therapy & has helped me a lot but due to my

experience and that of a few others it may not be optimum for perfect health or

perhaps it is healthy for only a certain number of years. Then again, some

people have had their GERD helped by SCD. I guess it is person-specific and

related to the kind of diet a person was consuming before SCD.

I am in the process of experimenting with the raw food diet, which is related to

SCD but variated, and contains lot of digestive support. The raw food diet has

helped a number of those with UC. The Paleothian/ " caveman " diet, similar to SCD

& the raw food diet, yet slightly different, has helped many with inflammatory

disease as well and is another option for my experimentation.

SCD 9 years

>

> My 11 year old was diagnosed with esophagitis and acid reflux last year. We

followed an typical acid reflux diet with whole grains and fresh fruit and low

fat. Less that a year later she got diagnosed with the UC but her esophagitis

was cleared up.

>

> We follow scd and had great success. We had a couple slip ups and we have

learned the hard way that either make it yourself,find a good supplier and

beware when you dine out. For example shelf stable almond milk is not legal,

regardless of what the ingrediants say in case anyone is wondering...

>

> Anyway after a terrible week of awful stomach pain, an abdominal CT and a trip

to the ER it looks like it may be her esophagitis is back in full force. They

took the blood work and it is NOT a UC flare up.

>

> I put her back on the intro diet (just in case) and was looking for anyone

that has had esophagitis / GERD or an ulcer that have followed this diet and how

they modified it to lower the fat and up the fiber.

>

> Thanks,

> A very unhappy mom to a daughter with UC and esophagitis

>

> Bentyl 60 mg

> Protonix

> Pepcid 20 mg

> Asacol 1600 mg

> Zyrtech and Singulair for allergies

>

[Guest guest]

I struggle with occasional GERD and what I've found is that avoiding anything overly acidic helps a lot.  That is: tea, tomatoes, lemon, vinegar, and diet cola if you have one occasionally.So it might not be the SCD per se, but acidic foods you're eating on it.  I'd rather not take long term Prilosec either, because supposedly it weakens your bones.

If raw foods work for you, that's great. I find that eating Paleo SCD helps me also, although I refuse to give up peanut butter, as I tolerate it well.--

 

Hi, thanks for your post, which I found in my researching.

It sounds like the low fat diet of grains & fruit was therapeutic for your daughter's GERD but exacerbated her IBD, and SCD healed her IBD but exacerbated her GERD. I have Crohn's disease and have kept it at bay by following SCD successfully for about 9 years. However, within the last 4 years I have developed esophagitis/GERD and in the last year it has become worse enough to put me on Prilosec, which my docs want me on forever. Being that I worked so hard to avoid meds by being on SCD, I am not about to succumb to med taking for the GERD.

Thus I am experimenting with eliminating foods, trying to discover a possible food allergy; so far I suspect the yogurt or dairy may be a culprit but it is also a possibility that the high animal fat content, food heating, or other characteristic of SCD may promote acid reflux, as in your daughter's experience.