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Hi everyone,

I am the one that sent a post the other day about feeding tube

confusion with our ped. GI. He is making the button sound like it is

more maintenance and keeps talking about the balloon busting. Before

we had the surgery we asked about the button and he said we would

get it in 2-3 months. Now he is telling us or making it sound like

it is bad. I have a few questions:

1. Did everyone here get the button type of tube?

2. Did anyone here get a the tube like we have then have another

procedure and then get the button?

3. How often or how easy do they bust?

Also, I keep hereing how much more energy their child has and how

they can keep up with their peers, but we have not noticed a big

change in energy level or stamina. Come Tue and Wed after school

she is give out. Maybe because it has only been two months. Also her

weight hasn't done what I thought it would. She has gained almost

two pounds in a month but the got a stomach virus. Is the weight

gain slow?

I'll start with theose.

Tolbert

Maddison Tolbert 5 yrs (in one week) 26 1/2 lbs

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Hi . Ian just received a G-tube - it's about 6-8 inches long

and hangs out of his belly. In about 4 more weeks - he will receive

what is called a Mic-Key button - which does not hang out and lays

flat against the stomach. Ian has gained two pounds in 4 weeks -

his intake of calories has increased because of the g-tube. But,

Ian used to only gain 1 pound every 3 months. It is very important

to note that I will now have to watch Ian's weight gain because of

other insulin issues that can arise. Ian was put on the feeding

tube for help in weight gain - but, more importantly for his

hypoglycemia issues. If we miss a feeding - he still has issues.

Did that answer any of your questions? I hope so. Keep asking if

not - and don't worry about asking a lot of questions - it's very

important that you feel comfortable with everything and that's what

we are here for.

- H

>

> Hi everyone,

> I am the one that sent a post the other day about feeding tube

> confusion with our ped. GI. He is making the button sound like it

is

> more maintenance and keeps talking about the balloon busting.

Before

> we had the surgery we asked about the button and he said we would

> get it in 2-3 months. Now he is telling us or making it sound like

> it is bad. I have a few questions:

>

> 1. Did everyone here get the button type of tube?

>

> 2. Did anyone here get a the tube like we have then have another

> procedure and then get the button?

>

> 3. How often or how easy do they bust?

>

> Also, I keep hereing how much more energy their child has and how

> they can keep up with their peers, but we have not noticed a big

> change in energy level or stamina. Come Tue and Wed after school

> she is give out. Maybe because it has only been two months. Also

her

> weight hasn't done what I thought it would. She has gained almost

> two pounds in a month but the got a stomach virus. Is the weight

> gain slow?

>

> I'll start with theose.

>

> Tolbert

> Maddison Tolbert 5 yrs (in one week) 26 1/2 lbs

>

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