Re: NEW DOCTOR

[Guest guest]

It'll be a BIG prayer for sure. Are you OK? How is your wifie doin ?

Love & PrayersPeggy, IPF 2004

[Guest guest]

JoeSorry to hear of the situation at emory another new doctor. How are you feeling?Any recent changes?I keep everyone on the forum in my daily prayers. I will be saying a big one for you on thursday.Dorothy reineckeUIP-7/05Fayetteville, GASent via BlackBerry by AT&TDate: Mon, 4 Jan 2010 22:13:15 -0500 (Eastern Standard Time)To: Breathe-Support@yahoogrou<Breathe-Support >Subject: NEW DOCTOR Hi Gang, A few months ago I lost my doctor at Emory University Hospital as he went to Kentucky to start up an advanced pulmonary wing with another doctor from Emory. Today I received my new doctor is leanving for Texas. I am scheduled to have my PF tests Thursday. I am beginning to wonder what is happening at Emory to cause so many people to leave. Please say a small prayer for my test results on Thursday. Thanks, Joe   JOE & JOANIE LAMENSKIEIPF JAN. 2008

[Guest guest]

Joe

Does make you wonder as I already was based on the previous departures.

Could just be unwillingness to match salary offers or to grant

professorships. When you say Texas, is he by chance coming to UTSW? The

head of transplants here also recently left his position. Generally when

changes take place there are at least two different sides of the issue

and often three. Well, hopefully, your care will continue to be good.

>

> Hi Gang,

> A few months ago I lost my doctor at Emory University Hospital as

he

> went to Kentucky to start up an advanced pulmonary wing with another

doctor

> from Emory. Today I received my new doctor is leanving for Texas. I am

> scheduled to have my PF tests Thursday. I am beginning to wonder what

is

> happening at Emory to cause so many people to leave.

> Please say a small prayer for my test results on Thursday.

>

Thanks,

>

Joe

>   

> JOE & JOANIE LAMENSKIE

> IPF JAN. 2008

>

[Guest guest]

Joe

There appears to be some philosophical change as well as Emory is no

longer an IPF Center of Excellence. Whether any of the actions are

connected or not or what the reasons might be is anyone's guess.

They still have web pages with all the old staff on them even though the

moves were made months ago.

> >

> > Hi Gang,

> > A few months ago I lost my doctor at Emory University Hospital

as

> he

> > went to Kentucky to start up an advanced pulmonary wing with another

> doctor

> > from Emory. Today I received my new doctor is leanving for Texas. I

am

> > scheduled to have my PF tests Thursday. I am beginning to wonder

what

> is

> > happening at Emory to cause so many people to leave.

> > Please say a small prayer for my test results on Thursday.

> >

> Thanks,

> >

> Joe

> >   

> > JOE & JOANIE LAMENSKIE

> > IPF JAN. 2008

> >

>

[Guest guest]

Joe

Also, I should note that they are no longer an IPF Center of Excellence

and they were one of the original 13. Last, they haven't updated their

web sites regarding their ILD program and still have the old staff

listed, even though they've been gone for months.

> >

> > Hi Gang,

> > A few months ago I lost my doctor at Emory University Hospital

as

> he

> > went to Kentucky to start up an advanced pulmonary wing with another

> doctor

> > from Emory. Today I received my new doctor is leanving for Texas. I

am

> > scheduled to have my PF tests Thursday. I am beginning to wonder

what

> is

> > happening at Emory to cause so many people to leave.

> > Please say a small prayer for my test results on Thursday.

> >

> Thanks,

> >

> Joe

> >   

> > JOE & JOANIE LAMENSKIE

> > IPF JAN. 2008

> >

>

[Guest guest]

Joe,Many, many prayers for you on Thursday. May the test results be good.Kathy ILD/Hyersensitivity pneumonitis 3/08 Type 2 diabetes forever agoSubject: NEW DOCTORTo: "Breathe-Support@yahoogrou" <Breathe-Support >Date: Monday, January 4, 2010, 7:13 PM

Hi Gang,

A few months ago I lost my doctor at Emory University Hospital as he went to Kentucky to start up an advanced pulmonary wing with another doctor from Emory. Today I received my new doctor is leanving for Texas. I am scheduled to have my PF tests Thursday. I am beginning to wonder what is happening at Emory to cause so many people to leave.

Please say a small prayer for my test results on Thursday.

Thanks,

Joe

   JOE & JOANIE LAMENSKIE

IPF JAN. 2008

[Guest guest]

Joe,

I'm sorry to hear about all the changes. It does make you wonder what the heck is going on at Emory, it sounds a bit chaotic.

You'll be in my prayers. Please let us know how things go. Hope you and Joanie are doing well and staying warm!!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: "Breathe-Support@yahoogrou" <Breathe-Support >Sent: Mon, January 4, 2010 10:13:15 PMSubject: NEW DOCTOR

Hi Gang,

A few months ago I lost my doctor at Emory University Hospital as he went to Kentucky to start up an advanced pulmonary wing with another doctor from Emory. Today I received my new doctor is leanving for Texas. I am scheduled to have my PF tests Thursday. I am beginning to wonder what is happening at Emory to cause so many people to leave.

Please say a small prayer for my test results on Thursday.

Thanks,

Joe

   JOE & JOANIE LAMENSKIE

IPF JAN. 2008

[Guest guest]

good luck with your testing and good luck with your new doctor

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: NEW DOCTORTo: "Breathe-Support@yahoogrou" <Breathe-Support >Date: Monday, January 4, 2010, 10:13 PM

Hi Gang,

A few months ago I lost my doctor at Emory University Hospital as he went to Kentucky to start up an advanced pulmonary wing with another doctor from Emory. Today I received my new doctor is leanving for Texas. I am scheduled to have my PF tests Thursday. I am beginning to wonder what is happening at Emory to cause so many people to leave.

Please say a small prayer for my test results on Thursday.

Thanks,

Joe

   JOE & JOANIE LAMENSKIE

IPF JAN. 2008

[Guest guest]

You got it, Joe! I see Staton at Emory; hope there's no problem going on there. Good luck with the test results, and with the "next" doctor!

B

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Counting my blessings: #20 - Springtime; can't wait!

Consider what a great forest is set ablaze by a small spark. ( 3:5)

To: "Breathe-Support@yahoogrou" <Breathe-Support >Sent: Mon, January 4, 2010 10:13:15 PMSubject: NEW DOCTOR

Hi Gang,

A few months ago I lost my doctor at Emory University Hospital as he went to Kentucky to start up an advanced pulmonary wing with another doctor from Emory. Today I received my new doctor is leanving for Texas. I am scheduled to have my PF tests Thursday. I am beginning to wonder what is happening at Emory to cause so many people to leave.

Please say a small prayer for my test results on Thursday.

Thanks,

Joe

   JOE & JOANIE LAMENSKIE

IPF JAN. 2008

[Guest guest]

Hmmm. The main reason I went to Emory was that it was a Center of Excellence. Now that it is not - am I wasting my time there? What does this mean, I wonder.

B

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Counting my blessings: #20 - Springtime; can't wait!

Consider what a great forest is set ablaze by a small spark. ( 3:5)

To: Breathe-Support Sent: Mon, January 4, 2010 10:53:48 PMSubject: Re: NEW DOCTOR

JoeAlso, I should note that they are no longer an IPF Center of Excellenceand they were one of the original 13. Last, they haven't updated theirweb sites regarding their ILD program and still have the old stafflisted, even though they've been gone for months.> >> > Hi Gang,> > A few months ago I lost my doctor at Emory University Hospitalas> he> > went to Kentucky to start up an advanced pulmonary wing with another> doctor> > from Emory. Today I received my new doctor is leanving for Texas. Iam> > scheduled to have my PF tests Thursday. I am beginning to wonderwhat> is> > happening at Emory to cause so many people to leave.> > Please say a small prayer for my test results on Thursday.> >> Thanks,> >> Joe> >   > > JOE & JOANIE

LAMENSKIE> > IPF JAN. 2008> >>

[Guest guest]

Thanks for the response. To Peggy Joanie is still smart and sassy!!!!!

Bruce, I heard there was some funding problems and that could be the reason for doctors bailing. Now there are only 3 doctors and Dr. Staton may not be taking new patients. My neighbor had a daughter die of cystic fibrosis and Dr. Staton was her doctor. Highly thought of. Does not give a warm fuzzy feeling if funding is a problem. Welcome to the NEW health care. This stupid disease seems to be beating the odds.

I do believe I am a little worse but hope I am not.

Sorry I did not answer last night as I crashed.

I have to leave for now as I have to go to have the surgeon who operated on my wrist have a look at his handiwork.

Talk to you later.

Thanks again,

Joe

   JOE & JOANIE LAMENSKIE

IPF JAN. 2008

-- NEW DOCTOR

Hi Gang,

A few months ago I lost my doctor at Emory University Hospital as he went to Kentucky to start up an advanced pulmonary wing with another doctor from Emory. Today I received my new doctor is leanving for Texas. I am scheduled to have my PF tests Thursday. I am beginning to wonder what is happening at Emory to cause so many people to leave.

Please say a small prayer for my test results on Thursday.

Thanks,

Joe

   JOE & JOANIE LAMENSKIE

IPF JAN. 2008

[Guest guest]

A few months after meeting the pulmonary at Penn and going through all of the diagnostic stuff and getting a treatment plan started, he told me that he was leaving to go into private practice in the suburbs

my debate-- should i follow him or should i go to someone else at Penn

his recommendation was to see someone else at Penn, since all of my records were there and I was also working with the transplant team at Penn and both the regular pulmonary and the transplant pulmonary work together

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: NEW DOCTORTo: Breathe-Support Date: Tuesday, January 5, 2010, 8:30 AM

Joe,

Good luck with those PFT's Thursday and sorry about the comings and goings with the doctors at Emory. That would be hard to build up confidence in a doctor only to have them leave.

Patti Indianapolis IPF 2007

[Guest guest]

Barb

if emory still has a department specializing in ILD's , it may not be necessary to worry about whether or not it is a center of excellence

a few months ago i questioned the business of center of excellence and found out that it is a group of facilities working together coordinating their resources

since there used to be 13 centers and now there are 22 centers, does that mean the other centers improved, or does it mean that they decided to join the group for better PR

that is the kind of thing that does not impress me

i happen to be fortunate in that i live in an area that is close to 2 ILD centers, i chose Penn because of location

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: NEW DOCTORTo: Breathe-Support Date: Tuesday, January 5, 2010, 8:37 AM

Hmmm. The main reason I went to Emory was that it was a Center of Excellence. Now that it is not - am I wasting my time there? What does this mean, I wonder.

B

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Counting my blessings: #20 - Springtime; can't wait!

Consider what a great forest is set ablaze by a small spark. ( 3:5)

From: Bruce <brucemoreland@ gmail.com>To: Breathe-Support@ yahoogroups. comSent: Mon, January 4, 2010 10:53:48 PMSubject: Re: NEW DOCTOR

JoeAlso, I should note that they are no longer an IPF Center of Excellenceand they were one of the original 13. Last, they haven't updated theirweb sites regarding their ILD program and still have the old stafflisted, even though they've been gone for months.> >> > Hi Gang,> > A few months ago I lost my doctor at Emory University Hospitalas> he> > went to Kentucky to start up an advanced pulmonary wing with another> doctor> > from Emory. Today I received my new doctor is leanving for Texas. Iam> > scheduled to have my PF tests Thursday. I am beginning to wonderwhat> is> > happening at Emory to cause so many people to leave.> > Please say a small prayer for my test results on Thursday.> >> Thanks,> >>

Joe> >   > > JOE & JOANIE LAMENSKIE> > IPF JAN. 2008> >>

[Guest guest]

Thanks, Joyce. I have an appt on the 22nd - we'll see how it goes.

B

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Counting my blessings: #20 - Springtime; can't wait!

Consider what a great forest is set ablaze by a small spark. ( 3:5)

To: Breathe-Support Sent: Tue, January 5, 2010 8:54:19 AMSubject: Re: Re: NEW DOCTOR

Barb

if emory still has a department specializing in ILD's , it may not be necessary to worry about whether or not it is a center of excellence

a few months ago i questioned the business of center of excellence and found out that it is a group of facilities working together coordinating their resources

since there used to be 13 centers and now there are 22 centers, does that mean the other centers improved, or does it mean that they decided to join the group for better PR

that is the kind of thing that does not impress me

i happen to be fortunate in that i live in an area that is close to 2 ILD centers, i chose Penn because of location

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Barbara McD <bamny (AT) yahoo (DOT) com>Subject: Re: Re: NEW DOCTORTo: Breathe-Support@ yahoogroups. comDate: Tuesday, January 5, 2010, 8:37 AM

Hmmm. The main reason I went to Emory was that it was a Center of Excellence. Now that it is not - am I wasting my time there? What does this mean, I wonder.

B

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Counting my blessings: #20 - Springtime; can't wait!

Consider what a great forest is set ablaze by a small spark. ( 3:5)

From: Bruce <brucemoreland@ gmail.com>To: Breathe-Support@ yahoogroups. comSent: Mon, January 4, 2010 10:53:48 PMSubject: Re: NEW DOCTOR

JoeAlso, I should note that they are no longer an IPF Center of Excellenceand they were one of the original 13. Last, they haven't updated theirweb sites regarding their ILD program and still have the old stafflisted, even though they've been gone for months.> >> > Hi Gang,> > A few months ago I lost my doctor at Emory University Hospitalas> he> > went to Kentucky to start up an advanced pulmonary wing with another> doctor> > from Emory. Today I received my new doctor is leanving for Texas. Iam> > scheduled to have my PF tests Thursday. I am beginning to wonderwhat> is> > happening at Emory to cause so many people to leave.> > Please say a small prayer for my test results on Thursday.> >> Thanks,> >> Joe> >   > > JOE & JOANIE LAMENSKIE> > IPF JAN.

2008> >>

[Guest guest]

Joyce,

Wow that is a cynical outlook. The purpose of the 'centers of excellence' program is mainly to coordinate research into ILD's. The fact that there were 13 originally and are now 22 is good news as far as I'm concerned. The more the experts talk to each other and work together the better off we all are in the long run. I would question your belief that it has to do with pr. Considering what how small the ILD community is, the pr benefit of joining the C of E program would be really limited.

HOWEVER that is not to say that excellent ILD programs don't exist outside the centers of excellence. Pennsylvania is blessed with more than one. In the end we all have to make our own decisions about where to receive our care. I generally offer the ipfnet.org website as a place to start, a way to begin the search looking for a specialist in ILD.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Tue, January 5, 2010 8:54:19 AMSubject: Re: Re: NEW DOCTOR

Barb

if emory still has a department specializing in ILD's , it may not be necessary to worry about whether or not it is a center of excellence

a few months ago i questioned the business of center of excellence and found out that it is a group of facilities working together coordinating their resources

since there used to be 13 centers and now there are 22 centers, does that mean the other centers improved, or does it mean that they decided to join the group for better PR

that is the kind of thing that does not impress me

i happen to be fortunate in that i live in an area that is close to 2 ILD centers, i chose Penn because of location

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Barbara McD <bamny (AT) yahoo (DOT) com>Subject: Re: Re: NEW DOCTORTo: Breathe-Support@ yahoogroups. comDate: Tuesday, January 5, 2010, 8:37 AM

Hmmm. The main reason I went to Emory was that it was a Center of Excellence. Now that it is not - am I wasting my time there? What does this mean, I wonder.

B

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Counting my blessings: #20 - Springtime; can't wait!

Consider what a great forest is set ablaze by a small spark. ( 3:5)

From: Bruce <brucemoreland@ gmail.com>To: Breathe-Support@ yahoogroups. comSent: Mon, January 4, 2010 10:53:48 PMSubject: Re: NEW DOCTOR

JoeAlso, I should note that they are no longer an IPF Center of Excellenceand they were one of the original 13. Last, they haven't updated theirweb sites regarding their ILD program and still have the old stafflisted, even though they've been gone for months.> >> > Hi Gang,> > A few months ago I lost my doctor at Emory University Hospitalas> he> > went to Kentucky to start up an advanced pulmonary wing with another> doctor> > from Emory. Today I received my new doctor is leanving for Texas. Iam> > scheduled to have my PF tests Thursday. I am beginning to wonderwhat> is> > happening at Emory to cause so many people to leave.> > Please say a small prayer for my test results on Thursday.> >> Thanks,> >> Joe> >   > > JOE & JOANIE LAMENSKIE> > IPF JAN.

2008> >>

[Guest guest]

Barbara

It may mean nothing. Maybe they felt they could do better on their own.

It's hard for anyone to know. However, the turnover of doctors to me is

a concern as to what expertise remains. How does the ILD center there

stand now? Does it still have its own dedicated staff or has it been

incorporated into their general pulmonology? If I were a patient, I

honestly would ask the questions. They might offend them, but I think

when you see such change there are sure reasonable. I'd sure look at the

resume and history of the doctor I got assigned to and see his

experience and who he had worked under and for how long. It may be some

personalities, but, if so, that can work against care.

Jane has been there longest and is good at scoping things out and

knowing what is going on. Hopefully she'll know something or find

something out to share. Maybe something will come out in their support

group.

> > >

> > > Hi Gang,

> > > A few months ago I lost my doctor at Emory University Hospital

> as

> > he

> > > went to Kentucky to start up an advanced pulmonary wing with

another

> > doctor

> > > from Emory. Today I received my new doctor is leanving for Texas.

I

> am

> > > scheduled to have my PF tests Thursday. I am beginning to wonder

> what

> > is

> > > happening at Emory to cause so many people to leave.

> > > Please say a small prayer for my test results on Thursday.

> > >

> > Thanks,

> > >

> > Joe

> > >   

> > > JOE & JOANIE LAMENSKIE

> > > IPF JAN. 2008

> > >

> >

>

[Guest guest]

Pink

I agree that the label isn't the thing. However, most of the good ILD

centers I'm familiar with are on the list. There are certain exceptions

such as in Pennsylvania where Penn is a member and Temple and Pitt are

excellent ILD centers. I suspect Penn shares a great deal with the

others. In New York Columbia and Cornell have exchanged positions

officially but I still consider them both to be IPF Centers of

Excellence. Not being a center of excellence by itself didn't alarm me

regarding Emory, but when you couple that with the top two

Pulmonologists leaving and now another and the Nursing Coordinator gone,

there has been a lot of knowledge lost and I don't know if or how it has

been replaced. Perhaps they've just decided to no longer participate in

research and clinical trials at the same level. I don't know. I do know

that I thought the world of Tamra and Dr. and would have not

hesitated to go to him. I don't now know enough of any of the doctors

there to even have an opinion on them or to go there. Not being close,

it's not something for me to find out. But, if I was a patient or

prospective patient, I would want to know more. How would you feel if

Penn lost their top three PF experts including the doctors you knew,

their nursing coordinator and withdrew from the IPF centers of

excellence? I suspect you'd want to know what was going on and something

about the doctor you were now assigned to.

> > >

> > > Hi Gang,

> > > A few months ago I lost my doctor at Emory University Hospital

> as

> > he

> > > went to Kentucky to start up an advanced pulmonary wing with

another

> > doctor

> > > from Emory. Today I received my new doctor is leanving for Texas.

I

> am

> > > scheduled to have my PF tests Thursday. I am beginning to wonder

> what

> > is

> > > happening at Emory to cause so many people to leave.

> > > Please say a small prayer for my test results on Thursday.

> > >

> > Thanks,

> > >

> > Joe

> > >   

> > > JOE & JOANIE LAMENSKIE

> > > IPF JAN. 2008

> > >

> >

>

[Guest guest]

Pink

Sometimes the choices involve other issues as well. UTSW is a newer IPF

center of excellence and not my choice for PF or Rheumatology, although

it is for Pulmonary Hypertension. They also aren't coordinated like the

others and I find the way they work very frustrating. Last, I want to

see the doctor I go to see. The expert. I do not like the fact at UTSW

you'll be shuffled to a resident and see very little of the experienced

expert pulmonologist. I can see those residents without going through

the hassle because the year they graduate they all seem to be joining my

pirmary physician's group. They hired two pulmonologist last year and

have two already picked out from this years class. I strongly dislike

making an appointment with one doctor but ending up seeing only an

assistant or resident. My last trip to UTSW I ended up with someone who

knew nothing about my case or why I was even there.

> > > >

> > > > Hi Gang,

> > > > A few months ago I lost my doctor at Emory University Hospital

> > as

> > > he

> > > > went to Kentucky to start up an advanced pulmonary wing with

> another

> > > doctor

> > > > from Emory. Today I received my new doctor is leanving for

Texas.

> I

> > am

> > > > scheduled to have my PF tests Thursday. I am beginning to wonder

> > what

> > > is

> > > > happening at Emory to cause so many people to leave.

> > > > Please say a small prayer for my test results on Thursday.

> > > >

> > > Thanks,

> > > >

> > > Joe

> > > >   

> > > > JOE & JOANIE LAMENSKIE

> > > > IPF JAN. 2008

> > > >

> > >

> >

>

[Guest guest]

Pink

One doctor leaving and the whole group leaving are two different things,

however. If Noble, on, and Steele suddenly left Duke, leaving only

Metzger and no announcement of who was coming in or what was going on,

then I'd be strongly considering another hospital at least for the time

being. Most of the departments aren't so large as to afford the loss of

multiple doctors in a short time. They normal staff at the ILD centers

is three or four doctors. Emory did consist of six doctors so not quite

as large a percentage. I'd also worry about getting appointments in the

short term. As I understand, Penn has four: Rossman, Kreider, Hoffman,

and Tino. We're not arguing IPF centers of excellence, although I do

consider that worthy of consideration. But, when an ILD center of any

sort loses the majority of its medical staff and makes other changes

then as a patient I'd be concerned. The movement of one doctor wouldn't

so much concern me. Similarly, while Louisville is not an IPF center of

excellence, with the doctors who went there, I wouldn't hesitate to go

there now as those doctors came from an excellent program and have an

excellent reputation.

You're fortunate in Pennsylvania. We're not as fortunate in Texas. Just

looking at General Hospital Ratings in all areas by US News and World

Report (certainly not authoritative but a lot of doctor input in the

ratings). Pitt and Penn rate 7th and 8th in Respiratory in the country.

Jefferson rates 27th. No hospital in the Dallas area is in the top 50.

You may take for granted that you are in an area with a well deserved

reputation for excellence in medical care. New York to the north and

land to the south also have that reputation. In certain areas of the

country we are not so fortunate. Health care in Texas is not highly

rated in spite of the size of Dallas, Houston, and San . An

article on Web MD showed Texas 48th in the country.

> > > >

> > > > Hi Gang,

> > > > A few months ago I lost my doctor at Emory University Hospital

> > as

> > > he

> > > > went to Kentucky to start up an advanced pulmonary wing with

> another

> > > doctor

> > > > from Emory. Today I received my new doctor is leanving for

Texas.

> I

> > am

> > > > scheduled to have my PF tests Thursday. I am beginning to wonder

> > what

> > > is

> > > > happening at Emory to cause so many people to leave.

> > > > Please say a small prayer for my test results on Thursday.

> > > >

> > > Thanks,

> > > >

> > > Joe

> > > >   

> > > > JOE & JOANIE LAMENSKIE

> > > > IPF JAN. 2008

> > > >

> > >

> >

>

[Guest guest]

Pink

Doesn't happen that way at UTSW unfortunately. I've had three

appointments there with Dr. , one of the leading experts on

Pulmonary Hypertension in the country, and I've seen him once. I did not

see him at the completion of the testing. I saw Nurse Practitioners

twice. If you go to the ER here in Plano, you do not see a doctor the

majority of the time. You see nurse practitioners there 2/3 of the time.

Let me toss another criticism of some of the local facilities here too.

The notes are transponded by persons who do not have a good command of

the English language or of medical terms and often are not reviewed by

the doctor and I have found many many errors in them, from humorous

(referring to me as " she " ) to serious inaccuracies.

> > > > >

> > > > > Hi Gang,

> > > > > A few months ago I lost my doctor at Emory University Hospital

> > > as

> > > > he

> > > > > went to Kentucky to start up an advanced pulmonary wing with

> > another

> > > > doctor

> > > > > from Emory. Today I received my new doctor is leanving for

> Texas.

> > I

> > > am

> > > > > scheduled to have my PF tests Thursday. I am beginning to

wonder

> > > what

> > > > is

> > > > > happening at Emory to cause so many people to leave.

> > > > > Please say a small prayer for my test results on Thursday.

> > > > >

> > > > Thanks,

> > > > >

> > > > Joe

> > > > >   

> > > > > JOE & JOANIE LAMENSKIE

> > > > > IPF JAN. 2008

> > > > >

> > > >

> > >

> >

>

[Guest guest]

i didn't realize that penn only has 4, it seems like they have more

maybe because the lung transplant docs are also pulmonary docs

i would have to check it out

yes, the northeast part of the country does have a lot of medical centers with good reputations

don't know anything about jeff's pulmonary dept, wasn't informed that it is an ild center

it is a transplant center, but don't know what kind of transplants

surprised that Texas doesn't have a better reputation from what you say for ILD depts, there are some very large cities there

i remember when I was new and reading about people who had to travel many hours to get to an ILD center, that's when i realized how lucky i am to be living in an area with several choices

yes to Beth, i do tend to be cynical at times -- learned that from my ex

however when he got his diagnosis, i know he went to several places, including Hopkins, before deciding on Hahnemann, don't know why he chose Hahnemann,

i remember him telling me about reading the literature and having to stop, it was too upsetting for him

i no longer read a lot of literature about pf, it can be too upsetting, and too much jargon for me, when there is a breakthrough, i will read about that

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: NEW DOCTORTo: Breathe-Support Date: Tuesday, January 5, 2010, 4:05 PM

PinkOne doctor leaving and the whole group leaving are two different things,however. If Noble, on, and Steele suddenly left Duke, leaving onlyMetzger and no announcement of who was coming in or what was going on,then I'd be strongly considering another hospital at least for the timebeing. Most of the departments aren't so large as to afford the loss ofmultiple doctors in a short time. They normal staff at the ILD centersis three or four doctors. Emory did consist of six doctors so not quiteas large a percentage. I'd also worry about getting appointments in theshort term. As I understand, Penn has four: Rossman, Kreider, Hoffman,and Tino. We're not arguing IPF centers of excellence, although I doconsider that worthy of consideration. But, when an ILD center of anysort loses the majority of its medical staff and makes other changesthen as a patient I'd be concerned. The movement of one

doctor wouldn'tso much concern me. Similarly, while Louisville is not an IPF center ofexcellence, with the doctors who went there, I wouldn't hesitate to gothere now as those doctors came from an excellent program and have anexcellent reputation.You're fortunate in Pennsylvania. We're not as fortunate in Texas. Justlooking at General Hospital Ratings in all areas by US News and WorldReport (certainly not authoritative but a lot of doctor input in theratings). Pitt and Penn rate 7th and 8th in Respiratory in the country.Jefferson rates 27th. No hospital in the Dallas area is in the top 50.You may take for granted that you are in an area with a well deservedreputation for excellence in medical care. New York to the north andland to the south also have that reputation. In certain areas of thecountry we are not so fortunate. Health care in Texas is not highlyrated in spite of the size of

Dallas, Houston, and San . Anarticle on Web MD showed Texas 48th in the country.> > > >> > > > Hi Gang,> > > > A few months ago I lost my doctor at Emory University Hospital> > as> > > he> > > > went to Kentucky to start up an advanced pulmonary wing with> another> > > doctor> > > > from Emory. Today I received my new doctor is leanving forTexas.> I> > am> > > > scheduled to have my PF tests Thursday. I am beginning to wonder> > what> > > is> > > > happening at Emory to

cause so many people to leave.> > > > Please say a small prayer for my test results on Thursday.> > > >> > > Thanks,> > > >> > > Joe> > > >   > > > > JOE & JOANIE LAMENSKIE> > > > IPF JAN. 2008> > > >> > >> >>

[Guest guest]

Bruce,

Dr. Corey Kershaw who is leaving Emory is going to the University of Texas Southwestern medical School in Dallas. He sent a letter and his last day is Feb 12.

Joe

   JOE & JOANIE LAMENSKIE

IPF JAN. 2008

-- Re: NEW DOCTORTo: Breathe-Support Date: Tuesday, January 5, 2010, 4:05 PM

PinkOne doctor leaving and the whole group leaving are two different things,however. If Noble, on, and Steele suddenly left Duke, leaving onlyMetzger and no announcement of who was coming in or what was going on,then I'd be strongly considering another hospital at least for the timebeing. Most of the departments aren't so large as to afford the loss ofmultiple doctors in a short time. They normal staff at the ILD centersis three or four doctors. Emory did consist of six doctors so not quiteas large a percentage. I'd also worry about getting appointments in theshort term. As I understand, Penn has four: Rossman, Kreider, Hoffman,and Tino. We're not arguing IPF centers of excellence, although I doconsider that worthy of consideration. But, when an ILD center of anysort loses the majority of its medical staff and makes other changesthen as a patient I'd be concerned. The movement of one doctor wouldn'tso much concern me. Similarly, while Louisville is not an IPF center ofexcellence, with the doctors who went there, I wouldn't hesitate to gothere now as those doctors came from an excellent program and have anexcellent reputation.You're fortunate in Pennsylvania. We're not as fortunate in Texas. Justlooking at General Hospital Ratings in all areas by US News and WorldReport (certainly not authoritative but a lot of doctor input in theratings). Pitt and Penn rate 7th and 8th in Respiratory in the country.Jefferson rates 27th. No hospital in the Dallas area is in the top 50.You may take for granted that you are in an area with a well deservedreputation for excellence in medical care. New York to the north andland to the south also have that reputation. In certain areas of thecountry we are not so fortunate. Health care in Texas is not highlyrated in spite of the size of Dallas, Houston, and San . Anarticle on Web MD showed Texas 48th in the country.> > > >> > > > Hi Gang,> > > > A few months ago I lost my doctor at Emory University Hospital> > as> > > he> > > > went to Kentucky to start up an advanced pulmonary wing with> another> > > doctor> > > > from Emory. Today I received my new doctor is leanving forTexas.> I> > am> > > > scheduled to have my PF tests Thursday. I am beginning to wonder> > what> > > is> > > > happening at Emory to cause so many people to leave.> > > > Please say a small prayer for my test results on Thursday.> > > >> > > Thanks,> > > >> > > Joe> > > >   > > > > JOE & JOANIE LAMENSKIE> > > > IPF JAN. 2008> > > >> > >> >>

[Guest guest]

Bruce

that would annoy me too

at the local ER, a doctor always sees me, even though lots of other people come in

at the family docs office, sometimes a student doc or a student PA will see me, then consult with the doc and then he comes in

the only time a PA saw me, was the first time that i went to the local family doc after I moved

it was a last minute appt

but i could hear her consulting with the doc

she said it could be acid reflux and gave me something for that

then she told me to call my cardiologist as soon as possible

the cardiologist was not in his office the following day,

but told me to go to the ER where he would meet me

which is what he did and referred me to a local pulmonary

saw him the following week, 3 or 4 visits later we had the ILD diagnosis and he discharged me

gave me tessalon pearls to pacify me and told me about Penn and Temple

you heard the rest of the story a million times

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: NEW DOCTORTo: Breathe-Support Date: Tuesday, January 5, 2010, 4:15 PM

PinkDoesn't happen that way at UTSW unfortunately. I've had threeappointments there with Dr. , one of the leading experts onPulmonary Hypertension in the country, and I've seen him once. I did notsee him at the completion of the testing. I saw Nurse Practitionerstwice. If you go to the ER here in Plano, you do not see a doctor themajority of the time. You see nurse practitioners there 2/3 of the time.Let me toss another criticism of some of the local facilities here too.The notes are transponded by persons who do not have a good command ofthe English language or of medical terms and often are not reviewed bythe doctor and I have found many many errors in them, from humorous(referring to me as "she") to serious inaccuracies.> > > > >> > > > > Hi Gang,>

> > > > A few months ago I lost my doctor at Emory University Hospital> > > as> > > > he> > > > > went to Kentucky to start up an advanced pulmonary wing with> > another> > > > doctor> > > > > from Emory. Today I received my new doctor is leanving for> Texas.> > I> > > am> > > > > scheduled to have my PF tests Thursday. I am beginning towonder> > > what> > > > is> > > > > happening at Emory to cause so many people to leave.> > > > > Please say a small prayer for my test results on Thursday.> > > > >> > > > Thanks,> > > > >> > > > Joe> > > > >   > > > >

> JOE & JOANIE LAMENSKIE> > > > > IPF JAN. 2008> > > > >> > > >> > >> >>

[Guest guest]

bruce

you are right, there are only 4 listed under ild's

even though there are lots of pulmonary docs listed with a variety of sub specialties

even in the lung transplant dept, there are only 2 listed

it always seems like there are a lot more

the docs listed in the lung transplant dept are not the surgeons, they are the ones who determine whether or not you would be a transplant candidate, and when you need to be listed, then they are the ones who follow you after the surgery

i did meet the surgeon last year, a different dept, he trained 2 surgeons to do lung transplants and at that time was looking for a fourth surgeon to train

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: NEW DOCTORTo: Breathe-Support Date: Tuesday, January 5, 2010, 4:54 PM

Bruce

that would annoy me too

at the local ER, a doctor always sees me, even though lots of other people come in

at the family docs office, sometimes a student doc or a student PA will see me, then consult with the doc and then he comes in

the only time a PA saw me, was the first time that i went to the local family doc after I moved

it was a last minute appt

but i could hear her consulting with the doc

she said it could be acid reflux and gave me something for that

then she told me to call my cardiologist as soon as possible

the cardiologist was not in his office the following day,

but told me to go to the ER where he would meet me

which is what he did and referred me to a local pulmonary

saw him the following week, 3 or 4 visits later we had the ILD diagnosis and he discharged me

gave me tessalon pearls to pacify me and told me about Penn and Temple

you heard the rest of the story a million times

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Bruce <brucemoreland@ gmail.com>Subject: Re: NEW DOCTORTo: Breathe-Support@ yahoogroups. comDate: Tuesday, January 5, 2010, 4:15 PM

PinkDoesn't happen that way at UTSW unfortunately. I've had threeappointments there with Dr. , one of the leading experts onPulmonary Hypertension in the country, and I've seen him once. I did notsee him at the completion of the testing. I saw Nurse Practitionerstwice. If you go to the ER here in Plano, you do not see a doctor themajority of the time. You see nurse practitioners there 2/3 of the time.Let me toss another criticism of some of the local facilities here too.The notes are transponded by persons who do not have a good command ofthe English language or of medical terms and often are not reviewed bythe doctor and I have found many many errors in them, from humorous(referring to me as "she") to serious inaccuracies.> > > > >> > > > > Hi Gang,> > > > > A few months ago I lost my doctor at Emory University Hospital> > > as> > > > he> > > >

> went to Kentucky to start up an advanced pulmonary wing with> > another> > > > doctor> > > > > from Emory. Today I received my new doctor is leanving for> Texas.> > I> > > am> > > > > scheduled to have my PF tests Thursday. I am beginning towonder> > > what> > > > is> > > > > happening at Emory to cause so many people to leave.> > > > > Please say a small prayer for my test results on Thursday.> > > > >> > > > Thanks,> > > > >> > > > Joe> > > > >   > > > > > JOE & JOANIE LAMENSKIE> > > > > IPF JAN. 2008> > > > >> > > >> > >>

>>

[Guest guest]

my mistake, they actually list 6, but one has his office a few blocks away at Presbyterian

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: NEW DOCTORTo: Breathe-Support Date: Tuesday, January 5, 2010, 4:54 PM

Bruce

that would annoy me too

at the local ER, a doctor always sees me, even though lots of other people come in

at the family docs office, sometimes a student doc or a student PA will see me, then consult with the doc and then he comes in

the only time a PA saw me, was the first time that i went to the local family doc after I moved

it was a last minute appt

but i could hear her consulting with the doc

she said it could be acid reflux and gave me something for that

then she told me to call my cardiologist as soon as possible

the cardiologist was not in his office the following day,

but told me to go to the ER where he would meet me

which is what he did and referred me to a local pulmonary

saw him the following week, 3 or 4 visits later we had the ILD diagnosis and he discharged me

gave me tessalon pearls to pacify me and told me about Penn and Temple

you heard the rest of the story a million times

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Bruce <brucemoreland@ gmail.com>Subject: Re: NEW DOCTORTo: Breathe-Support@ yahoogroups. comDate: Tuesday, January 5, 2010, 4:15 PM

PinkDoesn't happen that way at UTSW unfortunately. I've had threeappointments there with Dr. , one of the leading experts onPulmonary Hypertension in the country, and I've seen him once. I did notsee him at the completion of the testing. I saw Nurse Practitionerstwice. If you go to the ER here in Plano, you do not see a doctor themajority of the time. You see nurse practitioners there 2/3 of the time.Let me toss another criticism of some of the local facilities here too.The notes are transponded by persons who do not have a good command ofthe English language or of medical terms and often are not reviewed bythe doctor and I have found many many errors in them, from humorous(referring to me as "she") to serious inaccuracies.> > > > >> > > > > Hi Gang,> > > > > A few months ago I lost my doctor at Emory University Hospital> > > as> > > > he> > > >

> went to Kentucky to start up an advanced pulmonary wing with> > another> > > > doctor> > > > > from Emory. Today I received my new doctor is leanving for> Texas.> > I> > > am> > > > > scheduled to have my PF tests Thursday. I am beginning towonder> > > what> > > > is> > > > > happening at Emory to cause so many people to leave.> > > > > Please say a small prayer for my test results on Thursday.> > > > >> > > > Thanks,> > > > >> > > > Joe> > > > >   > > > > > JOE & JOANIE LAMENSKIE> > > > > IPF JAN. 2008> > > > >> > > >> > >>

>>