Re: mold?

[Guest guest]

Has anyone heard of Prebiotics and are they allowed on the diet? I was told to take them but then I read what they were and now I'm not sure. I'm talking about PRE biotics not PRO.

Does anybody have an illness from mold (water leak in house...)

Have you found any helpful treatments or health care people?

or way to diagnose?

We had it in the house and it occurred to me later that my and mother's health had gotten worse in last year, and possibly related to the mold behind the walls and in air. Maybe what helps with candida helps with mold.

Thank you

Lynn D

[Guest guest]

At 11:42 PM 8/25/2010, you wrote:

Has anyone heard of Prebiotics

and are they allowed on the diet? I was told to take them but then I read

what they were and now I'm not sure. I'm talking about PRE biotics not

PRO.

Prebiotics are things like inulin or FOS. They are not legal.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

Thank you!

At 11:42 PM 8/25/2010, you wrote:

Has anyone heard of Prebiotics

and are they allowed on the diet? I was told to take them but then I read

what they were and now I'm not sure. I'm talking about PRE biotics not

PRO.

Prebiotics are things like inulin or FOS. They are not legal.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

Does anybody have an illness from mold (water leak in house...)

[Janine replies:] yes - my family got VERY sick from mold behind the walls

of our old house

Have you found any helpful treatments or health care people?

[Janine replies:] we went to Dr Ali and Denville, NJ who is very well known

for environmental medicine. He said mold/yeast in the body are basically

the same.

or way to diagnose?

We had it in the house and it occurred to me later that my and mother's

health had gotten worse in last year, and possibly related to the mold

behind the walls and in air. Maybe what helps with candida helps with

mold.[Janine replies:] yup

[Guest guest]

there was an article in the nY times recently this celiac guy was SO sick until

he started treating the yeast and eventually moved and was totally find after

leaving the mold - i'm movong soon and GI doc is curious to see what happens -

me too!!!

eileen

>

> Does anybody have an illness from mold (water leak in house...)

> Have you found any helpful treatments or health care people?

> or way to diagnose?

> We had it in the house and it occurred to me later that my and mother's health

had gotten worse in last year, and possibly related to the mold behind the walls

and in air. Maybe what helps with candida helps with mold.

> Thank you

>

> Lynn D

>

[Guest guest]

Here's the link- originally posted it- it was a really interesting

article!!! The mold in this man's house was literally killing him:

http://well.blogs.nytimes.com/2010/07/20/for-a-celiac-sufferer-a-new-mystery-ill\

ness/?src=me & ref=health

-Joanna

>

>

> there was an article in the nY times recently this celiac guy was SO sick

until he started treating the yeast and eventually moved and was totally find

after leaving the mold - i'm movong soon and GI doc is curious to see what

happens - me too!!!

> eileen

[Guest guest]

Thank you

Will check that out, read there is also environmental Dr's at UC Irvine may call

them up. Did read that bleach is not best clean up (that's what hazmat suit

people who cleaned up here said. hydrogen pyroxide sounds promising. read also

that dont rid out of body till rid of heavy metals as candida binds to mercury

and if take antifungals have lots of stuff running loose in body to deal with.

Anybody have heavy metals got rid of?

Thought of methylene blue last night and looked it up (treat alzheimer), it also

is antifungal,malaria, co...

Thank you everybody as most Dr's think crazy, afraid mother is not going to make

it.

Lynn D

> >

> > Does anybody have an illness from mold (water leak in house...)

> > Have you found any helpful treatments or health care people?

> > or way to diagnose?

> > We had it in the house and it occurred to me later that my and mother's

health had gotten worse in last year, and possibly related to the mold behind

the walls and in air. Maybe what helps with candida helps with mold.

> > Thank you

> >

> > Lynn D

> >

>

[Guest guest]

Lynn- it boils my blood to think the doctors would look at you sideways when you

are the one who has done all of the research and educated yourself.

Best of luck- I hope your mother starts to improve!

-Joanna

> Thank you everybody as most Dr's think crazy, afraid mother is not going to

make it.

>

> Lynn D

[Guest guest]

Hi Lynn,

Yes, Yes, and Yes. Been SCD for 19 months with my family of 4. I have SBS dues

to bowel re-section post volvulus in 2003. My sons are ASD. My husband has lyme.

Was active on this list for first year. Learned I had chronic lyme last year.

Was treated intensively for it, and felt better thru this winter. I'm in NJ, and

we had terrible storms this past spring. The house never dried out, my " lyme "

symptoms came back with a vengence. My doc suggested mold & water infiltration

testing, and 4 months later, we have just filed an insurance claim for resulting

damage due to water from the spring storms.

I left the house for vacation in July - for 10 days. My symptoms cleared

IMMEDIATELY. Within 6 hours of my return to the house, my symptoms returned.

Lyme symptoms and biotoxin illness symptoms are nearly identical in some ways.

I am following a modified protocol by Dr. Ritchie Shoemaker thru my integrative

MD. I now take Cholestryamine (VERY SCD ILLEGAL) 3x per day, until we get the

water issues resolved. Biotoxin illness is REAL.

I have also come to terms with the fact that I need to start a yeast protocol

for SCD until I'm back to 100%. I'm working on that.

Anyway, check out Shoemakers site - the forums and FAQ's are intersting. His

videos are interesting too. He is a fanatic, but all I will say is that the CSM

is working for me. My inflammatory blood level markers are starting to come

down, and I feel better in general.

http://www.biotoxin.info/

Hope this helps you a bit.

Kim in NJ

>

> Does anybody have an illness from mold (water leak in house...)

> Have you found any helpful treatments or health care people?

> or way to diagnose?

>

[Guest guest]

I'm also getting rid of heavy metals too, thru chelation. They all run hand in

hand. Not sure of exact science. My doc who follows Shoemaker protocol is in NJ

- she is e Gedroic, MD, located in town NJ.

> > >

> > > Does anybody have an illness from mold (water leak in house...)

> > > Have you found any helpful treatments or health care people?

> > > or way to diagnose?

> > > We had it in the house and it occurred to me later that my and mother's

health had gotten worse in last year, and possibly related to the mold behind

the walls and in air. Maybe what helps with candida helps with mold.

> > > Thank you

> > >

> > > Lynn D

> > >

> >

>

[Guest guest]

>

> Hi Lynn,

> Yes, Yes, and Yes. Been SCD for 19 months with my family of 4. I have SBS dues

to bowel re-section post volvulus in 2003. My sons are ASD. My husband has lyme.

Was active on this list for first year. Learned I had chronic lyme last year.

Was treated intensively for it, and felt better thru this winter. I'm in NJ, and

we had terrible storms this past spring. The house never dried out, my " lyme "

symptoms came back with a vengence. My doc suggested mold & water infiltration

testing, and 4 months later, we have just filed an insurance claim for resulting

damage due to water from the spring storms.

>

> I left the house for vacation in July - for 10 days. My symptoms cleared

IMMEDIATELY. Within 6 hours of my return to the house, my symptoms returned.

Lyme symptoms and biotoxin illness symptoms are nearly identical in some ways.

>

> I am following a modified protocol by Dr. Ritchie Shoemaker thru my

integrative MD. I now take Cholestryamine (VERY SCD ILLEGAL) 3x per day, until

we get the water issues resolved. Biotoxin illness is REAL.

> I have also come to terms with the fact that I need to start a yeast protocol

for SCD until I'm back to 100%. I'm working on that.

Sorry to hear about all this happening, Kim, especially after you reversed the

Lyme symptoms.

Anyway, I would suggest the first step about the yeast protocol should be

getting ahold of

s. boulardii, if you are not already on them - start with 1 away from food and

keep increasing

until you feel them effecting your symptoms. It's a really easy way to start

and should help.

Mara

[Guest guest]

Moving? Are you staying in New York?

One day I'm going to visit New York again and hopefully get to meet you, Jodi

and Mara. Have y'all met in person yet?

Misty

>

>

> there was an article in the nY times recently this celiac guy was SO sick

until he started treating the yeast and eventually moved and was totally find

after leaving the mold - i'm movong soon and GI doc is curious to see what

happens - me too!!!

> eileen

[Guest guest]

staying in NY not sure where yet??? no sadly we've never met yet - hoping

SOMEDAY SOON!!

eileen

> >

> >

> > there was an article in the nY times recently this celiac guy was SO sick

until he started treating the yeast and eventually moved and was totally find

after leaving the mold - i'm movong soon and GI doc is curious to see what

happens - me too!!!

> > eileen

>

[Guest guest]

There was a very famous young actress (sorry - don't recall her name) who

died this year and shortly after her husband died of the same thing - come

to find out what they had was caused by mold. Be very careful with this

stuff - if you are still living with the mold make sure fresh air circulates

in the house, get rid of any materials that have the mold, get rid of the

moisture feeding the mold, and run an air purifier if you have one. Glad

you will be moving out!! ~ Janine

Janine Burnham Ruth - " Make conscience choices based on what you believe and

your life will be a reflection of who you are. "

Neurodevelopmentalist & Energy Healer

Developmental Assessments and Home Based Activity Programs

Automonic Response Testing (ART)

TKM Light Touch Bio-Electrical Balancing

Bio-Acoustic Frequency Based Reports

Co-founder of Conscious Parenting for Aware Kids

Beauty is Life when Life unveils her holy face. But you are Life and you are

the veil. -Kahlil Gibran

Re: mold?

there was an article in the nY times recently this celiac guy was SO sick

until he started treating the yeast and eventually moved and was totally

find after leaving the mold - i'm movong soon and GI doc is curious to see

what happens - me too!!!

eileen

>

> Does anybody have an illness from mold (water leak in house...)

> Have you found any helpful treatments or health care people?

> or way to diagnose?

> We had it in the house and it occurred to me later that my and mother's

health had gotten worse in last year, and possibly related to the mold

behind the walls and in air. Maybe what helps with candida helps with mold.

> Thank you

>

> Lynn D

>

------------------------------------

[Guest guest]

Thank you

Will check that out, read there is also environmental Dr's at UC Irvine may

call them up. Did read that bleach is not best clean up (that's what hazmat

suit people who cleaned up here said. hydrogen pyroxide sounds promising.

[Janine replies:] baking soda! Kills it at the root but you must get rid of

what is feeding it - materials and moisture

read also that dont rid out of body till rid of heavy metals as candida

binds to mercury and if take antifungals have lots of stuff running loose in

body to deal with.

Anybody have heavy metals got rid of?

[Janine replies:] yup - seeing a specialist/dentist at the end of Oct to

start the process of amalgam removal.

[Guest guest]

Oh my gosh- that was Brittany - I didn't hear that they suspected mold

until I just googled it. That's scary!!!

-Joanna

> >

> > Does anybody have an illness from mold (water leak in house...)

> > Have you found any helpful treatments or health care people?

> > or way to diagnose?

> > We had it in the house and it occurred to me later that my and mother's

> health had gotten worse in last year, and possibly related to the mold

> behind the walls and in air. Maybe what helps with candida helps with mold.

> > Thank you

> >

> > Lynn D

> >

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

Oh my gosh- that was Brittany - I didn't hear that they suspected mold

until I just googled it. That's scary!!!

-Joanna

> >

> > Does anybody have an illness from mold (water leak in house...)

> > Have you found any helpful treatments or health care people?

> > or way to diagnose?

> > We had it in the house and it occurred to me later that my and mother's

> health had gotten worse in last year, and possibly related to the mold

> behind the walls and in air. Maybe what helps with candida helps with mold.

> > Thank you

> >

> > Lynn D

> >

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

no way I had no idea that's what caused it - scary stuff - our bathroom gets it,

I bleach it away but always feel it's hiding behind the wall (no fan in there)

so I try to keep window open as much as possible

eileen

> > >

> > > Does anybody have an illness from mold (water leak in house...)

> > > Have you found any helpful treatments or health care people?

> > > or way to diagnose?

> > > We had it in the house and it occurred to me later that my and mother's

> > health had gotten worse in last year, and possibly related to the mold

> > behind the walls and in air. Maybe what helps with candida helps with mold.

> > > Thank you

> > >

> > > Lynn D

> > >

> >

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

Apparently, it was just internet speculation. The coroner says mold wasn't an

issue:

http://www.cnn.com/2010/SHOWBIZ/celebrity.news.gossip/07/26/murphy.monjack.mold/\

index.html . Sure sounds like it could have been caused by something

environmental though. What are the chances of 2 young people dying of

pneumonia/anemia within months of each other?

Holly

Crohn's

SCD 12/01/08

> >

> > There was a very famous young actress (sorry - don't recall her name) who

> > died this year and shortly after her husband died of the same thing - come

> > to find out what they had was caused by mold. Be very careful with this

> > stuff - if you are still living with the mold make sure fresh air circulates

> > in the house, get rid of any materials that have the mold, get rid of the

> > moisture feeding the mold, and run an air purifier if you have one. Glad

> > you will be moving out!! ~ Janine

[Guest guest]

Agreed. I saw that they were denying it as " cause of death " ... but if pneumonia

was the cause of death, what caused the pneumonia?!

-Joanna

>

> Apparently, it was just internet speculation. The coroner says mold wasn't an

issue:

http://www.cnn.com/2010/SHOWBIZ/celebrity.news.gossip/07/26/murphy.monjack.mold/\

index.html . Sure sounds like it could have been caused by something

environmental though. What are the chances of 2 young people dying of

pneumonia/anemia within months of each other?

>

> Holly

[Guest guest]

Kim

Does the Shoemaker treatment deal with mold and heavy metals?

Do you have side effects from it?

Just feeling pain to breath in morning and eyes getting grittier...

thought was from certain foods and dealing with stress. Cant find the charcoal

capsules have, maybe the bacon I burnt would work(ha ha)

How did you get rid of Lyme?

Thanks

Lynn

> >

> > Does anybody have an illness from mold (water leak in house...)

> > Have you found any helpful treatments or health care people?

> > or way to diagnose?

>

> >

>

[Guest guest]

Hi Mara,

Thanks for the note - appreciate the support

I was taking Sacc Boul., but my doc pulled me off of it. In the interim between

the lyme and mold issues, I developed oxalate kidney stones, and had surgery in

may - invasive & non-invasive on both kidneys - to remove the stones. One side

had a stone larger than a golf ball.

Anyway, I'm working on the Trying Low Oxalate list with Owens. Yeasts are

a factor in oxalate stone development for someone with SBS, so I will post some

? there to ask about this.

Thanks again...this list is wonderful.

Kim

> Anyway, I would suggest the first step about the yeast protocol should be

getting ahold of

> s. boulardii, if you are not already on them - start with 1 away from food and

keep increasing

> until you feel them effecting your symptoms. It's a really easy way to start

and should help.

>

> Mara

>

[Guest guest]

Lynn,

For the lyme, I had 74 days of IV Rocephin. I also had IVIG - 10 days total over

2 months. I also had oral ABX and anti-malarial drugs for co-infections. My case

was pretty severe, with apparrent nerve damage.

Its definately chronic lyme as well.

The gritty eyes are a definite symptoms of molds - That is the one thing that I

had and could not get rid of until I began the CSM per Shoemaker, then it

magically disappeared.

Last evening, I had some raw goats milk cheddar - which my husband tasted and

thought it tasted " moldy " . This mornig, my eyes are gritter than usual - my

point is that the molds are pervasive in foods too, which is why I'm working on

the anti-yeast SCD protocol too.

For metals, I am taking Bioray products (NDF). These are not SCD legal.

Shoemaker's protocol binds toxins, but I'm not sure to what extent. I think that

you need a mechanism to move the toxins effectively to your bowel or kidneys for

excretion, and I'm not sure if his protocol addresses that directly. But check

the link for more info:

http://www.biotoxin.info/

Hope this helps,

Kim

> > >

> > > Does anybody have an illness from mold (water leak in house...)

> > > Have you found any helpful treatments or health care people?

> > > or way to diagnose?

> >

> > >

> >

>

[Guest guest]

Kim

going to Dr tomorrow and want to type questions up(hurts to type but worse to

write today) and wondered how they test your inflammatory blood markers?

Trying to list questions and symptoms. This Dr says he knows about mold and

results of tests he ordered are in. Other Dr ordered 2hr postprandial blood

glucose. ate 2 bananas,1apple/Dr order before test.

Then had intest. cramps for days.

Will take an aspirin , they work for me so maybe no trouble for salicilates.

Posible trouble with oxylates, did see websites with calcium or mag. citrate to

help reduce symptoms and other causes beside yeast.

http://momsagainstmold.org/index.php?option=com_content & view=article & id=108 & Item\

id=35 and

http://moldrecovery.blogspot.com/2009/06/where-do-i-begin.html

trying to order antioxidents, probiotics and enzymes but brain is not organized

enough to sort thru if SCD legal sources or not.

Temperature seems to go up or down, will get sick in sun somedays. Am supposed

to take care of house and Mom's stuff and 2 sons, ....

Want to try something fun

Hope everyone is doing well and thank you for info

Thank you

Lynn D

> >

> > Does anybody have an illness from mold (water leak in house...)

> > Have you found any helpful treatments or health care people?

> > or way to diagnose?

>

> >

>