Re: Chat: Jodi, Deb, Mimi and Jeanie .... H

[Guest guest]

AND H ... we are all truly blessed to have you on here too! You have

a lot of wonderful encouragement and beautiful writing!

Dawna

>

> You are all blessed. And I'm so happy to have the opportunity to

> know each and every one of you. You are all so special in every

> way. Your amazing words and eloquent writings were a perfect

> summarization of what we all deal with. I thank each one of you

for

> touching on a subject that we all deal with. For reasons that only

> we can fully explain to ourselves, we continually question

> ourselves, GOD, and physicians about why our child must deal with a

> rare disorder. But, as each one of you mentioned - we all have

each

> other - and that's another gift we will all cherish forever.

>

> Thank you ladies and to everyone else here on the listserve for all

> your beauty, hope, selfless acts of kindness, and love. Thank you

> to all that can share with us your most intimate feelings, yet make

> someone else's life better with your intimate words.

>

> Jodi - I'm sorry about not fully understanding your concerns with

> Max. I know we have discussed this previously - but, apparently, I

> didn't fully understand where you were coming from. Now I do. I'm

> sorry you have to be the first one. But, isn't being first

> amazing? I mean - look at all the change and heartfelt love, and

> amazing information you have provided to SO many people here. You

> remind me of my mother - she's very humble and doesn't even realize

> sometimes she is doing good to another until someone reminds her.

> You have done so much good - and you were " chosen " to be first -

> because YOU alone can handle it. But, in the meantime - know that

> we are ALL here for you. We may not have the answers, but we

> certainly have hugs, help and kindness to give to you when you need

> it. Remember that.

>

> Deb - you too are amazing. You may be the brunt of a funny topic

> here and there - but, where would we be - honestly, if we didn't

> have you to enjoy with a little humor? You too have such a great

> clear sense of understanding of things and are so insightful that

> you make all of us cope with our issues just that much better. You

> make me laugh so much. I look forward to reading your posts all

the

> time to see what you plan to say next.

>

> Mimi, Jeanie and everyone on the listserve - we are so fortunate to

> have you all. This is one beautiful, courageous family. And as

> many of us have said in the past - we are all wonderful parents -

we

> have each other and we will all find peace in knowing that we can

> count on each other to get us through the issues that we will face

> with our absolutely adorable children.

>

> Happy Holidays Everyone.

>

> - H

>