Re: If your child has reflux, read this

[Guest guest]

Hi Jodi

Would it make a difference if Max new, all our kids will grow up

knowing Max was the brave one that helped find ways for everything

to not hurt as much!!! Maybe not, but we do appreciate you sharing

all this.

Im going to show your email to our dentist, as Liam has already got

signs of decay from reflux.

Is there any procedure Max has not had a go of!

Liam is being booked in for a barium enema and endoscope FINALLY in

January. We now have to give him movicol everyday and 1000mls of

glycoprep(the stuff that clears your bowels when you go for

endoscopy) twice a week, to stop Liam being constipated. Very

difficult. His new GI specialist is pretty sure there is something

stopping everything getting through. In a way I dont want to know,

but cannot continue on with this regime, it gets worse and worse.

As Im sure Max has probably had these tests and you know the worry,

Im guessing you know how we feel.

Thanks for the info on the teeth.

Have a great Christmas.

It is going to be 40 celsius(does that make sense to you) HOT HOT

HOT today. Santa will be in his shorts when he crosses Australia

tonight.

Love Jody

>

> I just came back from taking Max to the dentist. While we were

> there, the dentist said he needed to talk to me, so I got kind of

> nervous. I thought Max had a lot of cavities or needed root canal

> or something.... Well, it turns out that Max has no calcification

on

> his teeth. His saliva is extremely acidic and there is no tartar

or

> plaque on them. While too much of that stuff is not good, they do

> work to protect the teeth from decay, so some is needed.

>

> I asked the dentist why this could be. Then I happened to mention

> his ongoing reflux issues (despite the Nissen surgery, I might

add!)

> and he said that is most definitely the cause. (This is also seen

> in people with bulemia.) If we did not do something, then Max's

> teeth would soften around the gumline, turn brown and begin to

decay.

>

> Fortunately, there is a new treatment out that is totally

painless.

> Like a flouride treatment, he placed a paste on Max's teeth and

put

> them under a light for several minutes. This is supposed to put

> that calcium on his teeth (it's called recalcification). Max has

to

> put the paste on every night after brushing his teeth before bed

and

> cannot eat again until the morning. Then every three months we

have

> to go back to have the process done again.

>

> We are not sure if my dental insurance will pay for it, but it

> doesn't matter. The whole thing costs $95 every three months.

It's

> worth it.

>

> Hmmmm....Another thing we have to watch out for in our kids. And,

> of course, Max is one of the first. Can't someone else have a

turn

> just one time???

>

> Jodi Z

>

[Guest guest]

Jody,

I am so sorry to read about Liam and his ongoing motility issues. I

have to say that, thank goodness, bowel obstruction is not something

we have had to face. Doctors have suspected it and run tests for

it, but they always came back negative. It appears that Liam is in

a lot of discomfort and things are complicated for him. I hope you

are able to find answers soon. These kids just don't deserve to go

through all they do. Please keep me posted, okay?

As for Max usually being the first: We talk about that often with

him. Sometimes he gets really anxious and overwhelmed. (Don't we

all with these medical issues?) He is old enough now to know about

the trail he has blazed. Just yesterday I told him that every

person has a mission or goal in this lifetime and his is to help

lead the way with RSS. I explained how so many people all over the

world love to hear about him and how he has grown up and matured and

developed. That always makes him feel good. Even today (we drove

to Philadelphia to see Chrissy and Madison), he proudly stood up

when Chrissy introduced him to her oldest son Louis and told him

that Max has RSS, too, just like Maddy. She wanted Louis to know

that Maddy WILL grow up and that she will be okay, just like Max.

As for your warm temps, I am well aware of them. ne emailed

me and told me it was too hot to do anything but go to the beach. I

sure was jealous. Has she told you about the deer that

bought? Those deer have been through some exciting adventures. Just

last night someone replaced their lightbulb noses with red ones.

Too cute.

Merry Christmas to you. I can't envision a HOT Christmas as it's

always cold here. I'd sure like to try, though.

Jodi Z

[Guest guest]

Wow, Jodi. That's scary. Of course, will probably be in the

same boat. He rarely goes a day without spitting up. I have often

thought about his teeth though. I know that people with bulimia have

this problem with their teeth and since spits up at least once

a day......UGH! Thanks goodness I have him going to the dentist

regularly and they will let me know if it becomes a problem. Man, it

is always something.

Jodi R.

>

> I just came back from taking Max to the dentist. While we were

> there, the dentist said he needed to talk to me, so I got kind of

> nervous. I thought Max had a lot of cavities or needed root canal

> or something.... Well, it turns out that Max has no calcification

on

> his teeth. His saliva is extremely acidic and there is no tartar

or

> plaque on them. While too much of that stuff is not good, they do

> work to protect the teeth from decay, so some is needed.

>

> I asked the dentist why this could be. Then I happened to mention

> his ongoing reflux issues (despite the Nissen surgery, I might

add!)

> and he said that is most definitely the cause. (This is also seen

> in people with bulemia.) If we did not do something, then Max's

> teeth would soften around the gumline, turn brown and begin to

decay.

>

> Fortunately, there is a new treatment out that is totally

painless.

> Like a flouride treatment, he placed a paste on Max's teeth and put

> them under a light for several minutes. This is supposed to put

> that calcium on his teeth (it's called recalcification). Max has

to

> put the paste on every night after brushing his teeth before bed

and

> cannot eat again until the morning. Then every three months we

have

> to go back to have the process done again.

>

> We are not sure if my dental insurance will pay for it, but it

> doesn't matter. The whole thing costs $95 every three months.

It's

> worth it.

>

> Hmmmm....Another thing we have to watch out for in our kids. And,

> of course, Max is one of the first. Can't someone else have a turn

> just one time???

>

> Jodi Z

>

[Guest guest]

That is really interesting to see. We had the twins at the dentist a

few weeks ago. 's dental age is about as delayed as his bone

age, and therefore he is not expected to lose his first baby tooth for

another 2-3 years.

However, Becca grew a permanent molar when we weren't looking. This

tooth was tremendously deformed. There is an entire section missing

the enamel and another section that looks like someone peeled the

enamal off. Becca had to have this tooth bonded.

Judith, Steve, (RSS) and (non RSS) 5 3/4 year old twins