Guest guest Posted January 20, 2010 Report Share Posted January 20, 2010 , Wonderfully stated! Ditto for my family................ Bob, 70, IPF 1/09, 5 Bypasses 7/01> > From: worth <hope2thend (AT) yahoo (DOT) com>> Subject: Workshops in your area> To: "Breath Support" <Breathe-Support@ yahoogroups. com>> Date: Saturday, January 16, 2010, 10:39 PM> > > > > There might be an organization in your area offering the Chronic Disease Self-Management Program workshop. That would be even better to attend an actual workshop instead of the on-line program. The Chronic Disease Self-Management Program is offered by organizations throughout the United States and Internationally. To find a CDSMP program in your area click on your state or country for more details, or scroll down to find your state or country. A list of organizations that are licensed as of this date to give the workshop follows. http://patienteduca tion.stanford. edu/organ/ cdsites.html C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint!> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2010 Report Share Posted January 21, 2010 , a beautiful story. You must be a wonderful mother to have raised your children into wonderful adults. Jack79/IPF - UIP/dx06/05 Maine To: Breathe-Support Sent: Wed, January 20, 2010 11:32:04 PMSubject: Re: Telling your Children , Wonderfully stated! Ditto for my family...... .......... . Bob, 70, IPF 1/09, 5 Bypasses 7/01> > From: worth <hope2thend (AT) yahoo (DOT) com>> Subject: Workshops in your area> To: "Breath Support" <Breathe-Support@ yahoogroups. com>> Date: Saturday, January 16, 2010, 10:39 PM> > > > > There might be an organization in your area offering the Chronic Disease Self-Management Program workshop. That would be even better to attend an actual workshop instead of the on-line program. The Chronic Disease Self-Management Program is offered by organizations throughout the United States and Internationally. To find a CDSMP program in your area click on your state or country for more details, or scroll down to find your state or country. A list of organizations that are licensed as of this date to give the workshop follows. http://patienteduca tion.stanford. edu/organ/ cdsites.html C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint!> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2010 Report Share Posted January 21, 2010 Right on, !!!maryTo: Breathe-Support Sent: Wed, January 20, 2010 10:47:38 PMSubject: Telling your Children I told all three of my children as soon as I was diagnosed. They were age 20, 22, and 29. I couldn’t imagine not telling them. We’ve always been very open, honest and communicative about everything. I need their support and companionship, I need to be able to talk about my health issues and they need to be able to talk about it too. They know I want to live as normal a life as possible, but they also understand that I need help sometimes and they respect that and are as attentive as they can be to me. They are all still living their lives and we talk more about their stuff than mine because I don’t want to burden them with all the details of my daily struggles. But when I need to talk or cry they are there for me and I for them. I think it has brought the three of them closer together as siblings too, they know someday they will have to rely on each without me. My oldest daughter lives in California, so she isn’t near me, but we talk daily, is an awesome listener and also lets me cry when I need too. My son will graduate from Central Washington University with a degree in Nutrition, so he is like my diet and exercise coach. He wants me to have the lung transplant and even had the word “hope†tattooed on his arm. My youngest daughter is working toward a medical assistant certificate program at the community college and works in a hospital where she serves patients their meals. She is my little trooper and will probably be my caretaker, should I need one. She has gone with me to almost all of my doctor’s appointments and helps me remember stuff. I just believe that life is about good and bad, sad and happy, life and death. It’s all about living and learning and sharing the good times and the bad times with one another. The disease is ugly and negative and telling them about my disease and the fatal diagnosis was difficult and sad.. But dealing with it together is the only way I know. Did telling them change our relationships with one another into a negative? NO WAY! We are a family united in hope, love, and courage! C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint! From: Arianne <Arianne377 (AT) comcast (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Mon, January 18, 2010 2:03:22 PMSubject: Re: Workshops in your area plus -- I am New I just found out that my oximeter won't be delivered until Thurs. I am so afraid to do much without it. I did have hubby take big concentrator upstairs yesterday so that I could do some special cleaning jobs. It did work well. I went to the gym this morning and don't use air there. I did use my pro-air and I only walk very slowly on the treadmill and recumbent bike is pedaled slowly. I guess I am still in denial about all of this. I have some tanks that I can hang in a bag on my shoulder but haven't used them yet at all, nor have I used any air while out and about which is only twice a week. I walk slowly and haven't really been breathless.. Also, how did you tell your children about your dx? About a week after I was dx, I told my daughter (age 52) who didn't understand what it is and I didn't go into detail.. I simply told her that I need oxygen when walking. She worked for a lady years ago who had emphysema and told me on New Years day that the lady would never wear her oxygen when going out and she was gone within 2 years. My problem is also my 48 year old son. I haven't told him anything. I am concerned about how they both would take the truth. I would really rather not go into detail with them. Has anyone been in this situation? Also, my hubby is not quite convinced my stats go as low as they do. It was his initial idea to get the oximeter. Such is my dilemma. ----- "Alice Foote" <alydiafoote@ yahoo.com> wrote: > > > > Hello, I am new.. I have been reading your notes for a little over a month and I am learning a lot. Introducing myself: I just turned 80. I was diagnosed with PF in June of 05, verified by biopsy the following August by my Pulmonologist in Kalamazoo, MI: diagnosed NSIP March of 06 after tests at the University of Michigan Teaching Hospital in Ann Arbor, MI. You have referred to this as a "life changing" disease and it is!! We made the decision in 08 to leave our loved community in Kalamazoo, MI and move to Champagn-Urbana, IL where our daughter lives and near our son who lives in Crawfordsville, IN. We have spent a year getting used to the medical system here and doctors. I have a pulmonologist here but I continue my relationship with Ann Arbor and will return to the specialists there in the spring for tests. I also have regular testing here. I am down to 5 mg of pred, take 100 mg of Imuran, take ranididan for acid reflux (for comfort and because I understand that esophugus problems can be "real problems." I also take 3 NAC --3 a day if I can get them down -- supposed to be on an empty stomach with fruitjuice, according to what I have read, and i do not have trouble --- I just forget because I take everything else with a meal: above plus vitamins, calcium, aspirin, lopressor, bactrim (every other day to guard aginst infection.) I, like all of you, try to avoid crowds, etc. I am maintaining quite well, but I lack energy much of the time and seem to have a bad -- spike in blood sugar, should I eat things that are sweet, so i have to be careful to "eat well." If I am not careful, I get weak, and very fatigued, blurry eyes, muffled ears. This has been puzzling to my docors. Also, I have had a bad reaction to Prylosec -- these are all personal idiosyncracies, I guess. We all respond differently. If any of you can shed light... The reason I am writing now is that I took the course Chronic Disease Management in Kalamazoo and it is an excellent course and the manual -- or book by the Stanford people is very good. There were seven of us in the class, each with something different. The thing we all had in common was the Chronic Disease part. When this course is put on, the cost is about $5, sometimes free -- the book is about $18.00. At least, this is my experience. I, too, get discouraged because as you say, "people don't "get it." --That is most people don't. Some people do and, like some of you, I have had wonderful family support; but i, too have felt there is "no one" to talk to-- no support group -- because, as you say any support program deals with COPD or emphasema so I am very happy to get in on these discussions and that this "chat" experience is available. I am understanding from you the importance of keeping the lungs going in exercise -- and have to keep nudging myself to walk, do weights, etc. to keep my self maintaing, as many others do. I do not know what SATS are and I have not paid real attention to the reports as you all have. I will have to start... You all have so much knowledge. Alice --NSIP '06 It is helpful to hear of your experiences. I find it hard to keep such a balanced life style and find that if/when I overdo, I pay for it. > > > > From: worth <hope2thend (AT) yahoo (DOT) com>> Subject: Workshops in your area> To: "Breath Support" <Breathe-Support@ yahoogroups. com>> Date: Saturday, January 16, 2010, 10:39 PM> > > > > There might be an organization in your area offering the Chronic Disease Self-Management Program workshop. That would be even better to attend an actual workshop instead of the on-line program. The Chronic Disease Self-Management Program is offered by organizations throughout the United States and Internationally. To find a CDSMP program in your area click on your state or country for more details, or scroll down to find your state or country. A list of organizations that are licensed as of this date to give the workshop follows. http://patienteduca tion.stanford. edu/organ/ cdsites.html C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint!> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2010 Report Share Posted January 21, 2010 , You stated this so beautifully, I just wanted to say thank you. My experience is similar to yours though I only have one son. He was a month short of 21 when I was diagnosed. I've always been honest with him and at the same time tried not to frighten him unnecessarily. His relationship with his father (my ex-husband) is limited and I've always been the 'go to' parent for him. I raised him by myself which made this more difficult initially. It was scary for him. These days I always update him when I see the doctor and we rejoice when I maintain stability. He's my biggest cheerleader and I can't imagine walking this path without his love and support. Everyone must make their own decisions when dealing with this with family. It's never easy, this is news no one wants to share or hear. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Wed, January 20, 2010 10:47:38 PMSubject: Telling your Children I told all three of my children as soon as I was diagnosed. They were age 20, 22, and 29. I couldn’t imagine not telling them. We’ve always been very open, honest and communicative about everything. I need their support and companionship, I need to be able to talk about my health issues and they need to be able to talk about it too. They know I want to live as normal a life as possible, but they also understand that I need help sometimes and they respect that and are as attentive as they can be to me. They are all still living their lives and we talk more about their stuff than mine because I don’t want to burden them with all the details of my daily struggles. But when I need to talk or cry they are there for me and I for them. I think it has brought the three of them closer together as siblings too, they know someday they will have to rely on each without me. My oldest daughter lives in California, so she isn’t near me, but we talk daily, is an awesome listener and also lets me cry when I need too. My son will graduate from Central Washington University with a degree in Nutrition, so he is like my diet and exercise coach. He wants me to have the lung transplant and even had the word “hope†tattooed on his arm. My youngest daughter is working toward a medical assistant certificate program at the community college and works in a hospital where she serves patients their meals. She is my little trooper and will probably be my caretaker, should I need one. She has gone with me to almost all of my doctor’s appointments and helps me remember stuff. I just believe that life is about good and bad, sad and happy, life and death. It’s all about living and learning and sharing the good times and the bad times with one another. The disease is ugly and negative and telling them about my disease and the fatal diagnosis was difficult and sad.. But dealing with it together is the only way I know. Did telling them change our relationships with one another into a negative? NO WAY! We are a family united in hope, love, and courage! C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint! From: Arianne <Arianne377 (AT) comcast (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Mon, January 18, 2010 2:03:22 PMSubject: Re: Workshops in your area plus -- I am New I just found out that my oximeter won't be delivered until Thurs. I am so afraid to do much without it. I did have hubby take big concentrator upstairs yesterday so that I could do some special cleaning jobs. It did work well. I went to the gym this morning and don't use air there. I did use my pro-air and I only walk very slowly on the treadmill and recumbent bike is pedaled slowly. I guess I am still in denial about all of this. I have some tanks that I can hang in a bag on my shoulder but haven't used them yet at all, nor have I used any air while out and about which is only twice a week. I walk slowly and haven't really been breathless.. Also, how did you tell your children about your dx? About a week after I was dx, I told my daughter (age 52) who didn't understand what it is and I didn't go into detail. I simply told her that I need oxygen when walking. She worked for a lady years ago who had emphysema and told me on New Years day that the lady would never wear her oxygen when going out and she was gone within 2 years. My problem is also my 48 year old son. I haven't told him anything. I am concerned about how they both would take the truth. I would really rather not go into detail with them. Has anyone been in this situation? Also, my hubby is not quite convinced my stats go as low as they do. It was his initial idea to get the oximeter. Such is my dilemma. ----- "Alice Foote" <alydiafoote@ yahoo.com> wrote: > > > > Hello, I am new.. I have been reading your notes for a little over a month and I am learning a lot. Introducing myself: I just turned 80. I was diagnosed with PF in June of 05, verified by biopsy the following August by my Pulmonologist in Kalamazoo, MI: diagnosed NSIP March of 06 after tests at the University of Michigan Teaching Hospital in Ann Arbor, MI. You have referred to this as a "life changing" disease and it is!! We made the decision in 08 to leave our loved community in Kalamazoo, MI and move to Champagn-Urbana, IL where our daughter lives and near our son who lives in Crawfordsville, IN. We have spent a year getting used to the medical system here and doctors. I have a pulmonologist here but I continue my relationship with Ann Arbor and will return to the specialists there in the spring for tests. I also have regular testing here. I am down to 5 mg of pred, take 100 mg of Imuran, take ranididan for acid reflux (for comfort and because I understand that esophugus problems can be "real problems." I also take 3 NAC --3 a day if I can get them down -- supposed to be on an empty stomach with fruitjuice, according to what I have read, and i do not have trouble --- I just forget because I take everything else with a meal: above plus vitamins, calcium, aspirin, lopressor, bactrim (every other day to guard aginst infection.) I, like all of you, try to avoid crowds, etc. I am maintaining quite well, but I lack energy much of the time and seem to have a bad -- spike in blood sugar, should I eat things that are sweet, so i have to be careful to "eat well." If I am not careful, I get weak, and very fatigued, blurry eyes, muffled ears. This has been puzzling to my docors. Also, I have had a bad reaction to Prylosec -- these are all personal idiosyncracies, I guess. We all respond differently. If any of you can shed light... The reason I am writing now is that I took the course Chronic Disease Management in Kalamazoo and it is an excellent course and the manual -- or book by the Stanford people is very good. There were seven of us in the class, each with something different. The thing we all had in common was the Chronic Disease part. When this course is put on, the cost is about $5, sometimes free -- the book is about $18.00. At least, this is my experience. I, too, get discouraged because as you say, "people don't "get it." --That is most people don't. Some people do and, like some of you, I have had wonderful family support; but i, too have felt there is "no one" to talk to-- no support group -- because, as you say any support program deals with COPD or emphasema so I am very happy to get in on these discussions and that this "chat" experience is available. I am understanding from you the importance of keeping the lungs going in exercise -- and have to keep nudging myself to walk, do weights, etc. to keep my self maintaing, as many others do. I do not know what SATS are and I have not paid real attention to the reports as you all have. I will have to start... You all have so much knowledge. Alice --NSIP '06 It is helpful to hear of your experiences. I find it hard to keep such a balanced life style and find that if/when I overdo, I pay for it. > > > > From: worth <hope2thend (AT) yahoo (DOT) com>> Subject: Workshops in your area> To: "Breath Support" <Breathe-Support@ yahoogroups. com>> Date: Saturday, January 16, 2010, 10:39 PM> > > > > There might be an organization in your area offering the Chronic Disease Self-Management Program workshop. That would be even better to attend an actual workshop instead of the on-line program. The Chronic Disease Self-Management Program is offered by organizations throughout the United States and Internationally. To find a CDSMP program in your area click on your state or country for more details, or scroll down to find your state or country. A list of organizations that are licensed as of this date to give the workshop follows. http://patienteduca tion.stanford. edu/organ/ cdsites.html C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint!> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2010 Report Share Posted January 21, 2010 Beth One thing I'd toss out for others to really think about too. Are you really not talking about it to protect the other? Or deep down is it that you can't bring yourself to that discussion? Have you not come to terms with it yourself? I think if you haven't accepted it then that does make it especially hard. I do believe my comfort and acceptance of my condition does make it easier for me to discuss it honestly with others but also makes it less difficult for them to accept. I have to toss in the word " counselor " as well. If you're having difficulty knowing what to say or how to say it they can be a great help. In fact, you could ask the person most difficult for you to accompany you. I had no problem telling . However, I was more concerned about adding the burden upon her of making decisions if I was incapacitated and of handling my death and everything related to it. I did take her with me to my counselor to further talk through those topics and be sure we were both comfortable, she fully understood my desires, I wasn't putting too much on her, and just to facilitate the communication in that area. > > > > >> From: worth hope2thend (AT) yahoo (DOT) com> > >> Subject: Workshops in your area > >> To: " Breath Support " <Breathe-Support@ yahoogroups. com> > >> Date: Saturday, January 16, 2010, 10:39 PM > >> > >> > >> Â > >> > >> > >There might be an organization in your area offering the Chronic Disease Self-Management Program workshop. That would be even better to attend an actual workshop instead of the on-line program. > >The Chronic Disease Self-Management Program is offered by organizations throughout the United States and Internationally. To find a CDSMP program in your area click on your state or country for more details, or scroll down to find your state or country. A list of organizations that are licensed as of this date to give the workshop follows. http://patienteduca tion.stanford. edu/organ/ cdsites.html > >Â > >C_53_Familial IPF_5/09, Washington > >HOPEÂ doesn't disappoint! > >> > >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2010 Report Share Posted January 21, 2010 When tossing that out wasn't to you but to others struggling with it. The fact that I know how you deal with the condition furthered that thought in my mind. That you were able to talk to your son more easily because you have both knowledge and acceptance of what your condition is. (Note I use the word acceptance but not to mean you like it by any means). > > > > > > > >> From: worth hope2thend (AT) yahoo (DOT) com> > > >> Subject: Workshops in your area > > >> To: " Breath Support " <Breathe-Support@ yahoogroups. com> > > >> Date: Saturday, January 16, 2010, 10:39 PM > > >> > > >> > > >> Â > > >> > > >> > > >There might be an organization in your area offering the Chronic > Disease Self-Management Program workshop. That would be even better to > attend an actual workshop instead of the on-line program. > > >The Chronic Disease Self-Management Program is offered by > organizations throughout the United States and Internationally. To find > a CDSMP program in your area click on your state or country for more > details, or scroll down to find your state or country. A list of > organizations that are licensed as of this date to give the workshop > follows. http://patienteduca tion.stanford. edu/organ/ cdsites.html > > >Â > > >C_53_Familial IPF_5/09, Washington > > >HOPEÂ doesn't disappoint! > > >> > > >> > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2010 Report Share Posted January 21, 2010 That is awesome!!!! I've got two children, both boys and yes we are very close. is 25 and Garred is 21 they only live about 75 miles from me, which is great!!! Don't get to see them as often as I would like, but talk to them also at least everyother day. They will be coming home this weekend to see me off. I head to Denver next Wednesday for appointments at National Jewish, will probably be gone until the end of March, Will probably go for transplant eval too while I'm there, my pulmo dude thinks that needs to be done soon we will see what they say after all the testing. Will really miss seeing them, but it is just to cold here. I am blessed!!!!!!!!!!!!!! Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009To: Breathe-Support Sent: Wed, January 20, 2010 9:47:38 PMSubject: Telling your Children I told all three of my children as soon as I was diagnosed. They were age 20, 22, and 29. I couldn’t imagine not telling them. We’ve always been very open, honest and communicative about everything. I need their support and companionship, I need to be able to talk about my health issues and they need to be able to talk about it too. They know I want to live as normal a life as possible, but they also understand that I need help sometimes and they respect that and are as attentive as they can be to me. They are all still living their lives and we talk more about their stuff than mine because I don’t want to burden them with all the details of my daily struggles. But when I need to talk or cry they are there for me and I for them. I think it has brought the three of them closer together as siblings too, they know someday they will have to rely on each without me. My oldest daughter lives in California, so she isn’t near me, but we talk daily, is an awesome listener and also lets me cry when I need too. My son will graduate from Central Washington University with a degree in Nutrition, so he is like my diet and exercise coach. He wants me to have the lung transplant and even had the word “hope†tattooed on his arm. My youngest daughter is working toward a medical assistant certificate program at the community college and works in a hospital where she serves patients their meals. She is my little trooper and will probably be my caretaker, should I need one. She has gone with me to almost all of my doctor’s appointments and helps me remember stuff. I just believe that life is about good and bad, sad and happy, life and death. It’s all about living and learning and sharing the good times and the bad times with one another. The disease is ugly and negative and telling them about my disease and the fatal diagnosis was difficult and sad.. But dealing with it together is the only way I know. Did telling them change our relationships with one another into a negative? NO WAY! We are a family united in hope, love, and courage! C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint! From: Arianne <Arianne377 (AT) comcast (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Mon, January 18, 2010 2:03:22 PMSubject: Re: Workshops in your area plus -- I am New I just found out that my oximeter won't be delivered until Thurs. I am so afraid to do much without it. I did have hubby take big concentrator upstairs yesterday so that I could do some special cleaning jobs. It did work well. I went to the gym this morning and don't use air there. I did use my pro-air and I only walk very slowly on the treadmill and recumbent bike is pedaled slowly. I guess I am still in denial about all of this. I have some tanks that I can hang in a bag on my shoulder but haven't used them yet at all, nor have I used any air while out and about which is only twice a week. I walk slowly and haven't really been breathless.. Also, how did you tell your children about your dx? About a week after I was dx, I told my daughter (age 52) who didn't understand what it is and I didn't go into detail. I simply told her that I need oxygen when walking. She worked for a lady years ago who had emphysema and told me on New Years day that the lady would never wear her oxygen when going out and she was gone within 2 years. My problem is also my 48 year old son. I haven't told him anything. I am concerned about how they both would take the truth. I would really rather not go into detail with them. Has anyone been in this situation? Also, my hubby is not quite convinced my stats go as low as they do. It was his initial idea to get the oximeter. Such is my dilemma.. ----- "Alice Foote" <alydiafoote@ yahoo.com> wrote: > > > > Hello, I am new.. I have been reading your notes for a little over a month and I am learning a lot. Introducing myself: I just turned 80. I was diagnosed with PF in June of 05, verified by biopsy the following August by my Pulmonologist in Kalamazoo, MI: diagnosed NSIP March of 06 after tests at the University of Michigan Teaching Hospital in Ann Arbor, MI. You have referred to this as a "life changing" disease and it is!! We made the decision in 08 to leave our loved community in Kalamazoo, MI and move to Champagn-Urbana, IL where our daughter lives and near our son who lives in Crawfordsville, IN. We have spent a year getting used to the medical system here and doctors. I have a pulmonologist here but I continue my relationship with Ann Arbor and will return to the specialists there in the spring for tests. I also have regular testing here. I am down to 5 mg of pred, take 100 mg of Imuran, take ranididan for acid reflux (for comfort and because I understand that esophugus problems can be "real problems." I also take 3 NAC --3 a day if I can get them down -- supposed to be on an empty stomach with fruitjuice, according to what I have read, and i do not have trouble --- I just forget because I take everything else with a meal: above plus vitamins, calcium, aspirin, lopressor, bactrim (every other day to guard aginst infection.) I, like all of you, try to avoid crowds, etc. I am maintaining quite well, but I lack energy much of the time and seem to have a bad -- spike in blood sugar, should I eat things that are sweet, so i have to be careful to "eat well." If I am not careful, I get weak, and very fatigued, blurry eyes, muffled ears. This has been puzzling to my docors. Also, I have had a bad reaction to Prylosec -- these are all personal idiosyncracies, I guess. We all respond differently. If any of you can shed light... The reason I am writing now is that I took the course Chronic Disease Management in Kalamazoo and it is an excellent course and the manual -- or book by the Stanford people is very good. There were seven of us in the class, each with something different. The thing we all had in common was the Chronic Disease part. When this course is put on, the cost is about $5, sometimes free -- the book is about $18.00. At least, this is my experience. I, too, get discouraged because as you say, "people don't "get it." --That is most people don't. Some people do and, like some of you, I have had wonderful family support; but i, too have felt there is "no one" to talk to-- no support group -- because, as you say any support program deals with COPD or emphasema so I am very happy to get in on these discussions and that this "chat" experience is available. I am understanding from you the importance of keeping the lungs going in exercise -- and have to keep nudging myself to walk, do weights, etc. to keep my self maintaing, as many others do. I do not know what SATS are and I have not paid real attention to the reports as you all have. I will have to start... You all have so much knowledge. Alice --NSIP '06 It is helpful to hear of your experiences. I find it hard to keep such a balanced life style and find that if/when I overdo, I pay for it. > > > > From: worth <hope2thend (AT) yahoo (DOT) com>> Subject: Workshops in your area> To: "Breath Support" <Breathe-Support@ yahoogroups. com>> Date: Saturday, January 16, 2010, 10:39 PM> > > > > There might be an organization in your area offering the Chronic Disease Self-Management Program workshop. That would be even better to attend an actual workshop instead of the on-line program. The Chronic Disease Self-Management Program is offered by organizations throughout the United States and Internationally. To find a CDSMP program in your area click on your state or country for more details, or scroll down to find your state or country. A list of organizations that are licensed as of this date to give the workshop follows. http://patienteduca tion.stanford. edu/organ/ cdsites.html C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint!> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2010 Report Share Posted January 21, 2010 MB Oh that was so funny....but I think so much truth in it too as to all of us getting whatever assistance we need to deal with all this. Sounds like your son was in the perfect place to be told. Whether its elderly parents or others, I know my counselor is critical to non-amok behavior. I also find myself using every day the things I've learned through her. It's such a safety net too for me now as none of us can predict how we're going to deal with aspects of our future. But, I do know that if I'm not dealing well, the help I need is here for me. > > > > > > > > > > >> From: worth hope2thend (AT) yahoo (DOT) com> > > > >> Subject: Workshops in your area > > > >> To: " Breath Support " <Breathe-Support@ yahoogroups. com> > > > >> Date: Saturday, January 16, 2010, 10:39 PM > > > >> > > > >> > > > >> Â > > > >> > > > >> > > > >There might be an organization in your area offering the Chronic > > Disease Self-Management Program workshop. That would be even better to > > attend an actual workshop instead of the on-line program. > > > >The Chronic Disease Self-Management Program is offered by > > organizations throughout the United States and Internationally. To > find > > a CDSMP program in your area click on your state or country for more > > details, or scroll down to find your state or country. A list of > > organizations that are licensed as of this date to give the workshop > > follows. http://patienteduca tion.stanford. edu/organ/ cdsites.html > > > >Â > > > >C_53_Familial IPF_5/09, Washington > > > >HOPEÂ doesn't disappoint! > > > >> > > > >> > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2010 Report Share Posted January 21, 2010 Thanks Jack, I am a proud mother and very blessed.. C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint! To: Breathe-Support Sent: Thu, January 21, 2010 5:12:35 AMSubject: Re: Telling your Children , a beautiful story. You must be a wonderful mother to have raised your children into wonderful adults. Jack79/IPF - UIP/dx06/05 Maine From: Bob Sciba <scibar (AT) sbcglobal (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Wed, January 20, 2010 11:32:04 PMSubject: Re: Telling your Children , Wonderfully stated! Ditto for my family...... .......... . Bob, 70, IPF 1/09, 5 Bypasses 7/01> > From: worth <hope2thend (AT) yahoo (DOT) com>> Subject: Workshops in your area> To: "Breath Support" <Breathe-Support@ yahoogroups. com>> Date: Saturday, January 16, 2010, 10:39 PM> > > > > There might be an organization in your area offering the Chronic Disease Self-Management Program workshop. That would be even better to attend an actual workshop instead of the on-line program. The Chronic Disease Self-Management Program is offered by organizations throughout the United States and Internationally. To find a CDSMP program in your area click on your state or country for more details, or scroll down to find your state or country. A list of organizations that are licensed as of this date to give the workshop follows. http://patienteduca tion.stanford. edu/organ/ cdsites.html C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint!> > > > Quote Link to comment Share on other sites More sharing options...
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