Re: Parent of SGA baby: Please READ esp NJ people

[Guest guest]

Hi,

and I talked. Baby Jordan 5.5 mo is in the hospital at

Summit Overlook (?) Hospital in NJ. She basically stopped eating.

The drs. have brilliantly told the mom " to relax " as that would fix

things! She is in need of support, she hasnt had much time to read

the emails I didn't think b/c she and her husband are trading shifts

at the hospital but she did say she had recevied several messages

and emails. So if anyone knows Summit Overlook Hospital she will be

there tommorrow or you can email her or leave her a message or even

try calling the hospitals pedi ward. She has secured an appt with

Dr. H next week. Tonight she said she was going to sleep as she and

her husband have been feeding Jordan every 2 hours since birht and

they are both exhausted.

>

> Hi All,

> Just spoke with a parent of a 5.5 month old girl, weighs 10

pounds,

> small head size, so diagnosis is SGA. Severe reflux issues.

> Here's the deal:

> -Her name is . Her daughter is Jordan.

> -A feeding clinic is strongly recommending that her daughter

> immediately get an NG Tube because baby appears to have stopped

food

> intake. However, ketones are ok.

> -She has been in contact with Dr.H,but does not meet her until

next

> week. She does not know if she should hold off until next week to

> see if tube (g or ng) is recommended.

> -Her immediate need: She wants HOPE. She wants to talk with

parents

> of other SGA children who had NG or G tubes as infants, and who

are

> now doing okay. She is very worried about her child's future.

> -I told her that I would post on the listserve..hopefully, when

> things get less hectic in their home, she'll join the group too.

> - She said it was okay for other parents in a similar situation to

> reach out to her by phone or email.

> 's number is:

> Email is: denisellli@a...

>

> Thanks everyone, hope you are well and " enjoying " the pre-holiday

> frenzy!

>

> Katy Frissora

> (RSS Division Co-Consultant, MAGIC)

>

[Guest guest]

, Jodi, and others: THANK YOU!!!

I am sure that and her husband will find great strength from

your voices (electronic or otherwise!). This is the POWER of this

listserve in action.

Hopefully, the family will be able to " enjoy " the holiday weekend and

then find even more wisdom from Dr. H. next week.

Thanks again, everyone..

Katy

>

> Hi,

>

> and I talked. Baby Jordan 5.5 mo is in the hospital at

> Summit Overlook (?) Hospital in NJ. She basically stopped

eating.

> The drs. have brilliantly told the mom " to relax " as that would fix

> things! She is in need of support, she hasnt had much time to read

> the emails I didn't think b/c she and her husband are trading

shifts

> at the hospital but she did say she had recevied several messages

> and emails. So if anyone knows Summit Overlook Hospital she will

be

> there tommorrow or you can email her or leave her a message or even

> try calling the hospitals pedi ward. She has secured an appt with

> Dr. H next week. Tonight she said she was going to sleep as she

and

> her husband have been feeding Jordan every 2 hours since birht and

> they are both exhausted.

>

>

>

>

[Guest guest]

Overlook Hospital is 15 minutes from my house. I wonder what town lives

in? I

don't know her last name, so I can't call the hospital. Please, if you talk to

her, give her my

phone number, if you have it, and I will email her, too. Or give me hers and I

will call.

Actually, she can have my cell phone number: .

Jodi Z

[Guest guest]

One more thing: The GI team at Overlook is the same team that we use at

town

Memorial Hospital. I love them, except for the female doctor in the practice.

They know

about RSS, Dr. H's protocol, etc. is lucky. They will consult and work

with her if

she requests it.

I can't wait to talk to her!

Jodi Z

[Guest guest]

I'm finally finding time to check the listserve. I am

about 25 minutes from Overlook. Please give my

work number (since I will be there tomorrow

). If anyone talks with her and she wants

someone to talk to let me know how I can get a hold of

her. Also, if you know when her Dr. H visit is please

let me know. We have a Dr. H appointment on Wednesday

12/28 at 9:30.

I'm sorry for not keeping up with all of you and your

families. I will read on and hope you are all doing

well. I miss you all so much.

B

and Kelli

--- katyudine wrote:

> , Jodi, and others: THANK YOU!!!

> I am sure that and her husband will find

> great strength from

> your voices (electronic or otherwise!). This is the

> POWER of this

> listserve in action.

>

> Hopefully, the family will be able to " enjoy " the

> holiday weekend and

> then find even more wisdom from Dr. H. next week.

>

> Thanks again, everyone..

> Katy

>

>

> >

> > Hi,

> >

> > and I talked. Baby Jordan 5.5 mo is in the

> hospital at

> > Summit Overlook (?) Hospital in NJ. She

> basically stopped

> eating.

> > The drs. have brilliantly told the mom " to relax "

> as that would fix

> > things! She is in need of support, she hasnt had

> much time to read

> > the emails I didn't think b/c she and her husband

> are trading

> shifts

> > at the hospital but she did say she had recevied

> several messages

> > and emails. So if anyone knows Summit Overlook

> Hospital she will

> be

> > there tommorrow or you can email her or leave her

> a message or even

> > try calling the hospitals pedi ward. She has

> secured an appt with

> > Dr. H next week. Tonight she said she was going

> to sleep as she

> and

> > her husband have been feeding Jordan every 2 hours

> since birht and

> > they are both exhausted.

> >

> >

> >

> >

>

>

>

>

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