Guest guest Posted January 7, 2010 Report Share Posted January 7, 2010 , I'm so sorry that you got bad news today. That is a very low DLCO. Are you feeling worse also? I wish there was something I could do or say to change this for you. What are the doctors saying? Are you making any progress towards possible lung transplant? Have you looked into going back to Mexico to get a transplant? please know that you are in my thoughts and prayers. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Thu, January 7, 2010 9:45:53 PMSubject: low DLCO I am sad today. My breathing is getting really bad. Today i had a breathing test, they had to stopped because my sats droped to 86. I coulndt finish the test. My DLCO was 11% My lungs are giving up! G. 36 years old. Baton Rouge LA. Scleroderma 2007, PF, COPD 2008, Achalasia of the Esophagus 2009 .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2010 Report Share Posted January 7, 2010 chin up , it will be ok. Might just have had a bad day. I remember when I did my last one I went from 29 to 21. And the doctor told me that I couldn't wait for another year to go for Transplant eval. And for your stats dropping that is generally where I am all the time, just standing. I think I was hypoxic for such a long time that my body just adjusted. WHat does your pulmo dude say Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009To: Breathe-Support Sent: Thu, January 7, 2010 8:45:53 PMSubject: low DLCO I am sad today. My breathing is getting really bad. Today i had a breathing test, they had to stopped because my sats droped to 86.. I coulndt finish the test. My DLCO was 11% My lungs are giving up! G. 36 years old. Baton Rouge LA. Scleroderma 2007, PF, COPD 2008, Achalasia of the Esophagus 2009 .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2010 Report Share Posted January 8, 2010 What is dlco? To: Breathe-Support Sent: Thu, January 7, 2010 8:45:53 PMSubject: low DLCO I am sad today. My breathing is getting really bad. Today i had a breathing test, they had to stopped because my sats droped to 86. I coulndt finish the test. My DLCO was 11% My lungs are giving up! G. 36 years old. Baton Rouge LA. Scleroderma 2007, PF, COPD 2008, Achalasia of the Esophagus 2009 .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2010 Report Share Posted January 9, 2010 Hi , Don't be sad...it's just a stupid test. How you doing today? C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint! To: Breathe-Support Sent: Thu, January 7, 2010 6:45:53 PMSubject: low DLCO I am sad today. My breathing is getting really bad. Today i had a breathing test, they had to stopped because my sats droped to 86. I coulndt finish the test. My DLCO was 11% My lungs are giving up! G. 36 years old. Baton Rouge LA. Scleroderma 2007, PF, COPD 2008, Achalasia of the Esophagus 2009 .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2010 Report Share Posted January 9, 2010 I am still short of breath, but i am feeling better. I am just leaving it to God. I am sure he will help me, if that is his will. Thanks eveyone for your comments. G. 36 years old. Baton Rouge LA. Scleroderma 2007, PF, COPD 2008, Achalasia of the Esophagus 2009 Subject: Re: low DLCOTo: Breathe-Support Date: Saturday, January 9, 2010, 7:03 PM Hi , Don't be sad...it's just a stupid test. How you doing today? C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint! From: laura getz <lr_getz (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Thu, January 7, 2010 6:45:53 PMSubject: low DLCO I am sad today. My breathing is getting really bad. Today i had a breathing test, they had to stopped because my sats droped to 86. I coulndt finish the test. My DLCO was 11% My lungs are giving up! G. 36 years old. Baton Rouge LA. Scleroderma 2007, PF, COPD 2008, Achalasia of the Esophagus 2009 .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2010 Report Share Posted January 9, 2010 I am still short of breath, but i am feeling better. I am just leaving it to God. I am sure he will help me, if that is his will. Thanks eveyone for your comments. G. 36 years old. Baton Rouge LA. Scleroderma 2007, PF, COPD 2008, Achalasia of the Esophagus 2009 Subject: Re: low DLCOTo: Breathe-Support Date: Saturday, January 9, 2010, 7:03 PM Hi , Don't be sad...it's just a stupid test. How you doing today? C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint! From: laura getz <lr_getz (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Thu, January 7, 2010 6:45:53 PMSubject: low DLCO I am sad today. My breathing is getting really bad. Today i had a breathing test, they had to stopped because my sats droped to 86. I coulndt finish the test. My DLCO was 11% My lungs are giving up! G. 36 years old. Baton Rouge LA. Scleroderma 2007, PF, COPD 2008, Achalasia of the Esophagus 2009 .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2010 Report Share Posted January 10, 2010 Hi , glad you a feeling better.. Leaving it to God is a good thing. Remember HE is fighting for us! Hang in there...we're all in this together...when one hurts, we all hurt! C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint! To: Breathe-Support Sent: Sat, January 9, 2010 8:25:07 PMSubject: Re: low DLCO I am still short of breath, but i am feeling better. I am just leaving it to God. I am sure he will help me, if that is his will. Thanks eveyone for your comments. G. 36 years old. Baton Rouge LA. Scleroderma 2007, PF, COPD 2008, Achalasia of the Esophagus 2009 From: worth <hope2thend (AT) yahoo (DOT) com>Subject: Re: low DLCOTo: Breathe-Support@ yahoogroups. comDate: Saturday, January 9, 2010, 7:03 PM Hi , Don't be sad...it's just a stupid test. How you doing today? C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint! From: laura getz <lr_getz (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Thu, January 7, 2010 6:45:53 PMSubject: low DLCO I am sad today. My breathing is getting really bad. Today i had a breathing test, they had to stopped because my sats droped to 86. I coulndt finish the test. My DLCO was 11% My lungs are giving up! G. 36 years old. Baton Rouge LA. Scleroderma 2007, PF, COPD 2008, Achalasia of the Esophagus 2009 .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2010 Report Share Posted January 11, 2010 Hi , You are right. God will alwalys make it better. I'm sorry you are experincing this distress, but remember God and the rest of us will pray for your best. AB To: Breathe-Support Sent: Sat, January 9, 2010 11:25:07 PMSubject: Re: low DLCO I am still short of breath, but i am feeling better. I am just leaving it to God. I am sure he will help me, if that is his will. Thanks eveyone for your comments. G. 36 years old. Baton Rouge LA. Scleroderma 2007, PF, COPD 2008, Achalasia of the Esophagus 2009 From: worth <hope2thend (AT) yahoo (DOT) com>Subject: Re: low DLCOTo: Breathe-Support@ yahoogroups. comDate: Saturday, January 9, 2010, 7:03 PM Hi , Don't be sad...it's just a stupid test. How you doing today? C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint! From: laura getz <lr_getz (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Thu, January 7, 2010 6:45:53 PMSubject: low DLCO I am sad today. My breathing is getting really bad. Today i had a breathing test, they had to stopped because my sats droped to 86. I coulndt finish the test. My DLCO was 11% My lungs are giving up! G. 36 years old. Baton Rouge LA. Scleroderma 2007, PF, COPD 2008, Achalasia of the Esophagus 2009 .. Quote Link to comment Share on other sites More sharing options...
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