Why I don't take oxygen into the store....

[Guest guest]

Pink Joyce

Since my pulmonary rehab, I have been able to control some situations without

the use of my oxygen. For example, I have a handicap parking sticker for my

car. It is very close to the entrance of my favorite grocery store. I use the

breathing techniques and walk a little slower and don't have a problem. I get

to the carts, take my time wiping down the handle (which I didn't used to bother

with until the swine flu scare) and then slowly cruise the store. I have my

oximeter with me and I actually stop if I hit 88. Most of my foray through the

store is between 90 and 95. When I get back to the car I unload and get in the

car. Again, using the breathing techniques and pacing strategies (I take longer

than most to load my car as I only do a bag at a time). I check my sats before

I start the car and usually it is 90-92, but sometimes it is 88. I don't use my

oxygen unless I need it. I monitor my sats like nobody's business. I just try

to keep my other strategies sharp. The breathing is helping a lot, and so does

the pacing strategy. When I go to movies or restaurants I take my oxygen as

even with handicap parking I need it. If I go anywhere that I am not familiar

with, my oxygen goes with me. Even the University rehab and doctors offices

(that have valet parking) I use my oxygen because there is extensive walking

involved and usually a schedule that I cannot control. That is the long answer

to why I don't take oxygen into the store. The short answer is I don't need it

(yet)... hence why I have it in the car and if something changes (like no

handicap spot close to the entrance), I will be equipped to handle it.

Stefani 61 year old Utahn (moved from MN)

ILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009

[Guest guest]

Hi Stefani,

I am in rehab now- halfway thru and able to exercise longer with less shortness

of breath. After work last night, I stopped at Rite-Aid to pick up an artificial

tree for my oldest son who recently moved into his 1st apt. It was raining and

as you do I have a handicapped sticker and parked in a spot close to the

entrance. I decided to see if going in and picking up tree would work with no O2

and it did. I monitored my sats and only once (when I reached up to shelf for

tree-it was light but I think the reaching up over my head did it)my sats fell

to 88-89, the rest of the time they were 90-92. I also have like you fibrotic

NSIP - do you think that has something to do with rehab working so well? MY PF

is 28% so I KNOW that is pretty bad and won't change. But you are right if you

walk slower and stop when sats < 90 and use the breathing techniques you are

taught you can do more.

nne,56, fibrotic NSIP 6/09, Sjogrens,RA and polymiolitis 11/09

>

> Pink Joyce

>

> Since my pulmonary rehab, I have been able to control some situations without

the use of my oxygen. For example, I have a handicap parking sticker for my

car. It is very close to the entrance of my favorite grocery store. I use the

breathing techniques and walk a little slower and don't have a problem. I get

to the carts, take my time wiping down the handle (which I didn't used to bother

with until the swine flu scare) and then slowly cruise the store. I have my

oximeter with me and I actually stop if I hit 88. Most of my foray through the

store is between 90 and 95. When I get back to the car I unload and get in the

car. Again, using the breathing techniques and pacing strategies (I take longer

than most to load my car as I only do a bag at a time). I check my sats before

I start the car and usually it is 90-92, but sometimes it is 88. I don't use my

oxygen unless I need it. I monitor my sats like nobody's business. I just try

to keep my other strategies sharp. The breathing is helping a lot, and so does

the pacing strategy. When I go to movies or restaurants I take my oxygen as

even with handicap parking I need it. If I go anywhere that I am not familiar

with, my oxygen goes with me. Even the University rehab and doctors offices

(that have valet parking) I use my oxygen because there is extensive walking

involved and usually a schedule that I cannot control. That is the long answer

to why I don't take oxygen into the store. The short answer is I don't need it

(yet)... hence why I have it in the car and if something changes (like no

handicap spot close to the entrance), I will be equipped to handle it.

>

> Stefani 61 year old Utahn (moved from MN)

> ILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009

>

[Guest guest]

Anyone know of a website where I can find info about pulmonary rehab?, I mean, the exercises.

I would like to try that at home.

Subject: Re: Why I don't take oxygen into the store....To: Breathe-Support Date: Thursday, December 10, 2009, 8:26 AM

Hi Stefani,I am in rehab now- halfway thru and able to exercise longer with less shortness of breath. After work last night, I stopped at Rite-Aid to pick up an artificial tree for my oldest son who recently moved into his 1st apt. It was raining and as you do I have a handicapped sticker and parked in a spot close to the entrance. I decided to see if going in and picking up tree would work with no O2 and it did. I monitored my sats and only once (when I reached up to shelf for tree-it was light but I think the reaching up over my head did it)my sats fell to 88-89, the rest of the time they were 90-92. I also have like you fibrotic NSIP - do you think that has something to do with rehab working so well? MY PF is 28% so I KNOW that is pretty bad and won't change. But you are right if you walk slower and stop when sats < 90 and use the breathing techniques you are taught you can do more.nne,56, fibrotic NSIP 6/09, Sjogrens,RA and

polymiolitis 11/09>> Pink Joyce> > Since my pulmonary rehab, I have been able to control some situations without the use of my oxygen. For example, I have a handicap parking sticker for my car. It is very close to the entrance of my favorite grocery store. I use the breathing techniques and walk a little slower and don't have a problem. I get to the carts, take my time wiping down the handle (which I didn't used to bother with until the swine flu scare) and then slowly cruise the store. I have my oximeter with me and I actually stop if I hit 88. Most of my foray through the store is between 90 and 95. When I get back to the car I unload and get in the car. Again, using the

breathing techniques and pacing strategies (I take longer than most to load my car as I only do a bag at a time). I check my sats before I start the car and usually it is 90-92, but sometimes it is 88. I don't use my oxygen unless I need it. I monitor my sats like nobody's business. I just try to keep my other strategies sharp. The breathing is helping a lot, and so does the pacing strategy. When I go to movies or restaurants I take my oxygen as even with handicap parking I need it. If I go anywhere that I am not familiar with, my oxygen goes with me. Even the University rehab and doctors offices (that have valet parking) I use my oxygen because there is extensive walking involved and usually a schedule that I cannot control. That is the long answer to why I don't take oxygen into the store. The short answer is I don't need it (yet)... hence why I have it in the car and if something changes (like no handicap spot close to the entrance), I will be

equipped to handle it.> > Stefani 61 year old Utahn (moved from MN)> ILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009>

[Guest guest]

Hi Stefani and nn,

The information in your posts is great for many of us. Not yet on O2 but expect

it won't be long. I had wondered about a handicap license plate and, when the

time comes, will ask for one. I had not thought to take an oximeter everywhere

to see how sats go up and down but I surely know they do. Right now the only

pulmo I have is Dr. Hines at National Jewish in Denver. I have an appt the 21st

with a new Doctor who lists himself as a internist/pulmo. Not sure what that

means but is the best show in town at the moment so no choice. Denver is too

far from St. to commute! I moved from East Tennessee to Utah because of

the HP. It has helped some but not enough. I suppose it is what it is and I'll

continue to live with it.... or not.. LOL!

ann, NSIP, Dx this October, Interstitial Pneumonitis '97, HP '04. Who

knows what I actually have but the results all the same.

> >

> > Pink Joyce

> >

> > Since my pulmonary rehab, I have been able to control some situations

without the use of my oxygen. For example, I have a handicap parking sticker

for my car. It is very close to the entrance of my favorite grocery store. I

use the breathing techniques and walk a little slower and don't have a problem.

I get to the carts, take my time wiping down the handle (which I didn't used to

bother with until the swine flu scare) and then slowly cruise the store. I have

my oximeter with me and I actually stop if I hit 88. Most of my foray through

the store is between 90 and 95. When I get back to the car I unload and get in

the car. Again, using the breathing techniques and pacing strategies (I take

longer than most to load my car as I only do a bag at a time). I check my sats

before I start the car and usually it is 90-92, but sometimes it is 88. I don't

use my oxygen unless I need it. I monitor my sats like nobody's business. I

just try to keep my other strategies sharp. The breathing is helping a lot, and

so does the pacing strategy. When I go to movies or restaurants I take my

oxygen as even with handicap parking I need it. If I go anywhere that I am not

familiar with, my oxygen goes with me. Even the University rehab and doctors

offices (that have valet parking) I use my oxygen because there is extensive

walking involved and usually a schedule that I cannot control. That is the long

answer to why I don't take oxygen into the store. The short answer is I don't

need it (yet)... hence why I have it in the car and if something changes (like

no handicap spot close to the entrance), I will be equipped to handle it.

> >

> > Stefani 61 year old Utahn (moved from MN)

> > ILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009

> >

>

[Guest guest]

I don't know if NSIP has anything to do with being able to do some activities

with breathing strategies or not. I try to be watchful though because I

understand this disease can take a turn for the worse whenever it wants to (it

can sneak up on you). Hence, I have my oxygen tank and my oximeter with me

always. I also wear my Pulmonary Fibrosis wristband and have medical info on my

ipod Touch. I also have a hard copy of my prescriptions, physician contact info

and medical conditions (diabetes, sleep apnea, etc) that I keep in the sleeve of

my oxygen tank holder (backpack).

I do not know of anyplace online for pulmonary rehab info. You might want to

contact a recognized rehab facility and see if they can help you out. I gather

you are not located near one. The one here in Utah, at the University, is

recognized by the IPFNET. I was lucky. National Jewish Clinic also has a good

facility. That would be a valuable resource for people not close to a facility.

Maybe a " correspondence course " could/should be set up for those who could

benefit. There is more to it than just exercise.

Stefani 61 year old Utahn (transplant from MN)

ILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009

> >

> > Pink Joyce

> >

> > Since my pulmonary rehab, I have been able to control some situations

without the use of my oxygen. For example, I have a handicap parking sticker

for my car. It is very close to the entrance of my favorite grocery store. I

use the breathing techniques and walk a little slower and don't have a problem.

I get to the carts, take my time wiping down the handle (which I didn't used to

bother with until the swine flu scare) and then slowly cruise the store. I have

my oximeter with me and I actually stop if I hit 88. Most of my foray through

the store is between 90 and 95. When I get back to the car I unload and get in

the car. Again, using the breathing techniques and pacing strategies (I take

longer than most to load my car as I only do a bag at a time). I check my sats

before I start the car and usually it is 90-92, but sometimes it is 88. I don't

use my oxygen unless I need it. I monitor my sats like nobody's business. I

just try to keep my other strategies sharp. The breathing is helping a lot, and

so does the pacing strategy. When I go to movies or restaurants I take my

oxygen as even with handicap parking I need it. If I go anywhere that I am not

familiar with, my oxygen goes with me. Even the University rehab and doctors

offices (that have valet parking) I use my oxygen because there is extensive

walking involved and usually a schedule that I cannot control. That is the long

answer to why I don't take oxygen into the store. The short answer is I don't

need it (yet)... hence why I have it in the car and if something changes (like

no handicap spot close to the entrance), I will be equipped to handle it.

> >

> > Stefani 61 year old Utahn (moved from MN)

> > ILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009

> >

>

[Guest guest]

marianne. what is the PF # never seen that

<FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT>

To: Breathe-Support Sent: Thu, December 10, 2009 9:26:12 AMSubject: Re: Why I don't take oxygen into the store....

Hi Stefani,I am in rehab now- halfway thru and able to exercise longer with less shortness of breath. After work last night, I stopped at Rite-Aid to pick up an artificial tree for my oldest son who recently moved into his 1st apt. It was raining and as you do I have a handicapped sticker and parked in a spot close to the entrance. I decided to see if going in and picking up tree would work with no O2 and it did. I monitored my sats and only once (when I reached up to shelf for tree-it was light but I think the reaching up over my head did it)my sats fell to 88-89, the rest of the time they were 90-92. I also have like you fibrotic NSIP - do you think that has something to do with rehab working so well? MY PF is 28% so I KNOW that is pretty bad and won't change. But you are right if you walk slower and stop when sats < 90 and use the breathing techniques you are taught you can do more.nne,56, fibrotic NSIP 6/09, Sjogrens,RA and

polymiolitis 11/09>> Pink Joyce> > Since my pulmonary rehab, I have been able to control some situations without the use of my oxygen. For example, I have a handicap parking sticker for my car. It is very close to the entrance of my favorite grocery store. I use the breathing techniques and walk a little slower and don't have a problem. I get to the carts, take my time wiping down the handle (which I didn't used to bother with until the swine flu scare) and then slowly cruise the store. I have my oximeter with me and I actually stop if I hit 88. Most of my foray through the store is between 90 and 95. When I get back to the car I unload and get in the car. Again, using the breathing techniques and pacing

strategies (I take longer than most to load my car as I only do a bag at a time). I check my sats before I start the car and usually it is 90-92, but sometimes it is 88. I don't use my oxygen unless I need it. I monitor my sats like nobody's business. I just try to keep my other strategies sharp. The breathing is helping a lot, and so does the pacing strategy. When I go to movies or restaurants I take my oxygen as even with handicap parking I need it. If I go anywhere that I am not familiar with, my oxygen goes with me. Even the University rehab and doctors offices (that have valet parking) I use my oxygen because there is extensive walking involved and usually a schedule that I cannot control. That is the long answer to why I don't take oxygen into the store. The short answer is I don't need it (yet)... hence why I have it in the car and if something changes (like no handicap spot close to the entrance), I will be equipped to handle it.>

> Stefani 61 year old Utahn (moved from MN)> ILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009>

[Guest guest]

michaelann

i asked for a handicapped plate as soon as i got the diagnosis

in Pennsylvania you have a choice of a plate or a hang tag that you can carry from car to car

the first specialty or residency would be internal medicine, the sub specialty would be pulmonary medicine, that involves a few more years of study

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Why I don't take oxygen into the store....To: Breathe-Support Date: Thursday, December 10, 2009, 2:07 PM

Hi Stefani and nn,The information in your posts is great for many of us. Not yet on O2 but expect it won't be long. I had wondered about a handicap license plate and, when the time comes, will ask for one. I had not thought to take an oximeter everywhere to see how sats go up and down but I surely know they do. Right now the only pulmo I have is Dr. Hines at National Jewish in Denver. I have an appt the 21st with a new Doctor who lists himself as a internist/pulmo. Not sure what that means but is the best show in town at the moment so no choice. Denver is too far from St. to commute! I moved from East Tennessee to Utah because of the HP. It has helped some but not enough. I suppose it is what it is and I'll continue to live with it.... or not.. LOL!ann, NSIP, Dx this October, Interstitial Pneumonitis '97, HP '04. Who knows what I actually have but the results all the same. > >> > Pink Joyce> > > > Since my pulmonary rehab, I have been able to control some situations without the use of my oxygen. For example, I have a handicap parking sticker for my car. It is very close to the entrance of my favorite grocery store. I use the breathing techniques and walk a little slower and don't have a problem. I get to the carts, take my time wiping

down the handle (which I didn't used to bother with until the swine flu scare) and then slowly cruise the store. I have my oximeter with me and I actually stop if I hit 88. Most of my foray through the store is between 90 and 95. When I get back to the car I unload and get in the car. Again, using the breathing techniques and pacing strategies (I take longer than most to load my car as I only do a bag at a time). I check my sats before I start the car and usually it is 90-92, but sometimes it is 88. I don't use my oxygen unless I need it. I monitor my sats like nobody's business. I just try to keep my other strategies sharp. The breathing is helping a lot, and so does the pacing strategy. When I go to movies or restaurants I take my oxygen as even with handicap parking I need it. If I go anywhere that I am not familiar with, my oxygen goes with me. Even the University rehab and doctors offices (that have valet parking) I use my oxygen because there is

extensive walking involved and usually a schedule that I cannot control. That is the long answer to why I don't take oxygen into the store. The short answer is I don't need it (yet)... hence why I have it in the car and if something changes (like no handicap spot close to the entrance), I will be equipped to handle it.> > > > Stefani 61 year old Utahn (moved from MN)> > ILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009> >>

[Guest guest]

I just don't have any smell issues....maybe that will come with time......nothing bothers me ....... I even sometimes wear cologne.

<FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT>

To: Breathe-Support Sent: Thu, December 10, 2009 6:24:40 PMSubject: Re: Re: Why I don't take oxygen into the store....

michaelann

i asked for a handicapped plate as soon as i got the diagnosis

in Pennsylvania you have a choice of a plate or a hang tag that you can carry from car to car

the first specialty or residency would be internal medicine, the sub specialty would be pulmonary medicine, that involves a few more years of study

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: smoo <mikefergg (AT) yahoo (DOT) com>Subject: Re: Why I don't take oxygen into the store....To: Breathe-Support@ yahoogroups. comDate: Thursday, December 10, 2009, 2:07 PM

Hi Stefani and nn,The information in your posts is great for many of us. Not yet on O2 but expect it won't be long. I had wondered about a handicap license plate and, when the time comes, will ask for one. I had not thought to take an oximeter everywhere to see how sats go up and down but I surely know they do. Right now the only pulmo I have is Dr. Hines at National Jewish in Denver. I have an appt the 21st with a new Doctor who lists himself as a internist/pulmo. Not sure what that means but is the best show in town at the moment so no choice. Denver is too far from St. to commute! I moved from East Tennessee to Utah because of the HP. It has helped some but not enough. I suppose it is what it is and I'll continue to live with it.... or not.. LOL!ann, NSIP, Dx this October, Interstitial Pneumonitis '97, HP '04. Who knows what I actually have but the results all the same. > >> > Pink Joyce> > > > Since my pulmonary rehab, I have been able to control some situations without the use of my oxygen. For example, I have a handicap parking sticker for my car. It is very close to the entrance of my favorite grocery store. I use the breathing techniques and walk a little slower and don't have a problem. I get to the carts, take my time wiping down the handle (which I didn't used to bother with until the swine flu scare) and then slowly cruise

the store. I have my oximeter with me and I actually stop if I hit 88. Most of my foray through the store is between 90 and 95. When I get back to the car I unload and get in the car. Again, using the breathing techniques and pacing strategies (I take longer than most to load my car as I only do a bag at a time). I check my sats before I start the car and usually it is 90-92, but sometimes it is 88. I don't use my oxygen unless I need it. I monitor my sats like nobody's business. I just try to keep my other strategies sharp. The breathing is helping a lot, and so does the pacing strategy. When I go to movies or restaurants I take my oxygen as even with handicap parking I need it. If I go anywhere that I am not familiar with, my oxygen goes with me. Even the University rehab and doctors offices (that have valet parking) I use my oxygen because there is extensive walking involved and usually a schedule that I cannot control. That is the long answer to why

I don't take oxygen into the store. The short answer is I don't need it (yet)... hence why I have it in the car and if something changes (like no handicap spot close to the entrance), I will be equipped to handle it.> > > > Stefani 61 year old Utahn (moved from MN)> > ILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009> >>