Guest guest Posted December 9, 2009 Report Share Posted December 9, 2009 Bill, BTW..The party is a cyber-space party! The support group from HUP is not for PF but for COPD, etc. My HUP pulmonologist said that they did not have a group for PF. The other group needs totally different information than we do.We have restrictive lung disease...usually without a known cause. They have obstructive lung disease with much more known causes...smoking, environmental hazards, etc.They do not use O2 in the way we do. Their exercise is different too. Z fibriotic NSIP/05 Z 65, fibriotic NSIP/05/PA And “mild” PH/10/07 No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower Paradis3@... wrote: No, I'd not heard about a party. I have to go to the dentist anyway. I never hear anything out of HUP except for appointment reminders and bills. Once when I was there one of the doctors gave me a schedule of support meetings for a few months, but I misplaced that. It does sort of look like they'd have a mailing list for stuff like that for their patients. Bill IPF 10/08 NE P.A. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2009 Report Share Posted December 10, 2009 Hmmm.... My doc told me the support group was for PF patients, but you may be right. Regina , the patient person at would have the answer to that. It really doesn't matter much to me anyway. The 90 minutes each way to HUP for a one hour meeting and that's if there are no Philadelphia traffic problems, isn't worth the hassle, arranging the oxygen, gas, tolls, parking, etc. Bill C. IPF 10/08 In the boonies N. of town Quote Link to comment Share on other sites More sharing options...
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