Got behind in my reading and Prednisone/azithoprin

January 11, 2010

Joined the group and said hello. Then I disappeared for three weeks. I somehow

managed to get pneumonia just before Christmas. This is the first time I've got

sick since my diagnosis last February and I never want to get sick like that

again. I seriously thought I was going to die and scared me and my family to

death.

I wish I had some answers to the question " why " . Maybe the better question is

" why me? " . I haven't had one of those nice lives and have managed to maintain

some sort of sanity but this pulmonary fibrosis is just too much. Being told a

couple of days aftr my 55 birthday that I would be doing good if I lived 5 years

was really not what I expected to ever hear. And because I've been so sick, it

really is my husband and family that have been going through hell since my

diagnosis. I'm finally feeling well enough to be like my old self for a couple

of hours a day and I love it.

I've been on some type of cortecosteroid since last Feb when I was first sick.

Right now I'm on 60 mg of Prednison daily and I really don't like it - or what

it does to my body. But it's supposed to help so I'm going to keep taking it.

I'm also on azothiaprine - 150 mg daily. This is so that my body stops fighting

my lungs. Maybe that way the disease process can be slowed down - giving me a

bettr length of life. At least that is what I think it's supposed to do. I'm

also on an untifungal called Mepron so that I don't end up with fungal

infections in my lungs.

Life has changed so much and I'm totally resentful of that. Here it is Jan. 11

and I've had two Christmases. I have four more to go, if I every have the oomph

to actually wrap. I can't do big groups so social occasions are kept to small

groups of 3 or 4 people. Otherwise I might as well just curl up on the floor

and go to sleep.

I'll try to read more consistently and write more but way shorter posts. I

can't wait to get to know some of you. BTW, I live in Edmonton, Alberta Canada,

just in case there are other Canucks here.

Pat

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