Re: CHAT: Response to Subject Lines - Farewell

February 2, 2006

Well as Newbie...let me stick my neck out here!

I am very impressed with both the amount of support and information on this

list. Hands down, support and friendship will always be more important to me

than information. I understand that's why we join these lists but its so

nice to have someone who knows when you have a flat tire...something that makes

most poeple irritated...that its even more so for us...because you didn't

have ny's snacks and you were worried about hypoglycemia or whatever...its

nice to have poeple who understand that one extra kink in the day is way

bigger to us.

That said, I am embarrassed to say it...but I belong to 18 yahoo

groups...yeah you heard me...18! However, some of those I do no mail...some I

do digest

and then about 6 or 7 i do individual emails. I am still a member of the

mito list...the disease our son died from b/c I want to help poeple ...i

certainly don't read even half of the posts on there. On this group, even

though I

am new and True may not have RSS, I will only read the posts that may apply

to us. I make it a policy not to read anything I don't need to know yet.

I have never been on a list that did the " CHAT " thing and since I have been

here, I can't even figure out why you use that, but you know...whatever. But

now that so many poeple are getting their feelings hurt...does it really

matter?

When I start to get upset over little things...I think about in 10 years is

this going to matter? I mean, are you guys going to look back in ten years

and be mad b/c someone didn't use the proper protocol for group emails? I

hope not. I think you would be more upset about being upset about it. Also,

we

need to remember that we live under more stress than the average and give

each other a lot of grace!

did a great thing in making the three email options. I think

there is a way that everyone can be happy without all this hurtfulness going

around.

Maybe my post wont matter...hopefully it will be deleted by those who don't

hav ethe time to read it...but I did it so maybe some people would see that

out ofthe 18 groups I belong to, this is the reason people come...to build

friendships.

By the way...my BEST friends are other moms I have met on my groups...my

'real life' friends don't come close to getting it.

deb...mom to four fab adopted kiddos... (07.04.96-05.26.03) with

Mitochondrial Myopathy...G, 6, with High Functioning Autism, Hypoglycemia and

Precocious Puberty...B, 4, with VERY mild Cerebral Palsy...and True 1yo, with

Neuromotor Disorder, Hypoglycemia, Myoclonus, ulcers, undiagnosed GI problems

plus severe food allergies (Eggs, Peanut, Milk, Soy, Corn, Rice, Oats and

Crab/Neocate-only), Plagiocephaly and Dysphagia....Married for 12 years to

F--one

swell guy!_ www.caringbridge.org/tn/wells/_

(http://www.caringbridge.org/tn/wells/) (http://www.lifeofloveproject.org/)

February 2, 2006

Thank you for speaking up! I know it took some courage just being new here, but

we needed to hear from someone new to get a true sense of the experience. I

appreciate your candor! Thanks again

Deb

VisibleWorship@... wrote:

Well as Newbie...let me stick my neck out here!

I am very impressed with both the amount of support and information on this

list. Hands down, support and friendship will always be more important to me

than information. I understand that's why we join these lists but its so

nice to have someone who knows when you have a flat tire...something that makes

most poeple irritated...that its even more so for us...because you didn't

have ny's snacks and you were worried about hypoglycemia or whatever...its

nice to have poeple who understand that one extra kink in the day is way

bigger to us.

That said, I am embarrassed to say it...but I belong to 18 yahoo

groups...yeah you heard me...18! However, some of those I do no mail...some I

do digest

and then about 6 or 7 i do individual emails. I am still a member of the

mito list...the disease our son died from b/c I want to help poeple ...i

certainly don't read even half of the posts on there. On this group, even

though I

am new and True may not have RSS, I will only read the posts that may apply

to us. I make it a policy not to read anything I don't need to know yet.

I have never been on a list that did the " CHAT " thing and since I have been

here, I can't even figure out why you use that, but you know...whatever. But

now that so many poeple are getting their feelings hurt...does it really

matter?

When I start to get upset over little things...I think about in 10 years is

this going to matter? I mean, are you guys going to look back in ten years

and be mad b/c someone didn't use the proper protocol for group emails? I

hope not. I think you would be more upset about being upset about it. Also,

we

need to remember that we live under more stress than the average and give

each other a lot of grace!

did a great thing in making the three email options. I think

there is a way that everyone can be happy without all this hurtfulness going

around.

Maybe my post wont matter...hopefully it will be deleted by those who don't

hav ethe time to read it...but I did it so maybe some people would see that

out ofthe 18 groups I belong to, this is the reason people come...to build

friendships.

By the way...my BEST friends are other moms I have met on my groups...my

'real life' friends don't come close to getting it.

deb...mom to four fab adopted kiddos... (07.04.96-05.26.03) with

Mitochondrial Myopathy...G, 6, with High Functioning Autism, Hypoglycemia and

Precocious Puberty...B, 4, with VERY mild Cerebral Palsy...and True 1yo, with

Neuromotor Disorder, Hypoglycemia, Myoclonus, ulcers, undiagnosed GI problems

plus severe food allergies (Eggs, Peanut, Milk, Soy, Corn, Rice, Oats and

Crab/Neocate-only), Plagiocephaly and Dysphagia....Married for 12 years to

F--one

swell guy!_ www.caringbridge.org/tn/wells/_

(http://www.caringbridge.org/tn/wells/) (http://www.lifeofloveproject.org/)

February 2, 2006

ok, we have been here, done this already back in the fall and i cant

believe we are doing this again and on top of that have lost a very

vaulable, caring, compasionate member of our group!!! i myself

appreciate when someone offers their care even though they may not

have the answeres. i know when i first joined 3yrs ago i actually

almost left the list because no one would respond to my messages but

was talked out of leaving. also instead of getting the daily emails

from the list, or the digest i just come to the list several times

or even once a day to see what is going on. if i feel it doesnt

pretain to me i dont read it, if it does i do and if i am able to

maybe just let someone know that i am thinking of them even though i

cant help them then i do that as well!!

for 6 months i was having a hard time in my life (which is now

getting better but now new problems are arising) and i love the fact

that i could come here and vent and get support!! for the most part

i dont really have alot to offer on rss, since we have been fortune

that christopher has been more on the mild side. but now that may

all change and i am glad that i will have the support i need to go

through it. you know some days we may not have anything rss related

to talk about and then there would be no postings at all and someone

would come to the site and see that we rarely post and would

possibly leave for that reason as well (which i have left from my

fibro. support group because of that reason). i just wanted to add

my 2 cents in, which actually at first i wasnt going to bother since

i thought we beat this issue enough the last time it came up, but

when heather posted she was going to leave i felt i had to say

something!!

jodie c

heather please keep in touch!! ((HUGS))

February 2, 2006

Okay. I missed something. I know that was considering leaving but

now is? I know that I have posted quite a bit with no response from

anyone but it's REALLY HARD to respond to everyone's posts! I too only respond

if I think I can provide some help or words of encouragement and support.

Sometimes it's best to just sit back and let everyone else, that's been at this

for a long time, handle the issues. We are very fortunate that Brockton is a

mild case as well, but it's still a GREAT place to chat with people that have

some idea what you're going through and can give insight into what the future

could potentially hold.

Please dont leave the group! There is so much to be learned here!

Jeanie

Jodie wrote: