Re: No swimming without oxygen

[Guest guest]

Thanks Beth, I sure hope so! i am depressed because I found out for sure that I cannot go without oxygen in the swimming pool.....it depresses me...it really depresses me. it is suicidal to do so. I AM SO SAD.... My aquafit class was pure delight for me. it is tough to give it up...unless I can find that thing to tow it along with me... Ahahahaha! Joyce R AZ birds

[Guest guest]

Yes Pink, I think you are right about carrying the portable. I do have something to roll it with but didn't think I would nbeed it when I left home.;..isn't that the way it goes? Joyce R AZ birds

[Guest guest]

Yes Pink, I think you are right about carrying the portable. I do have something to roll it with but didn't think I would nbeed it when I left home.;..isn't that the way it goes? Joyce R AZ birds

[Guest guest]

Yes.l...I so love swimming but when your 02 drops into th e70's when I walk to the car without my oxygen I can't imagine what it drops too jogging back and forth a Olympic size swimming pool over and over and for "rest" doiing jumping jacks..ahahahahah I thought that might be dangerousl. I had never checked my 02 while walking outside and not having oxygen..but that did it. Joyce R AZ birds

[Guest guest]

Peggy I am on liquid.;.l..My supplier would give me the 02 and a long tube but my instructor said it would not work. It would interfer with the classes movements. The students couldn't get around the tube. It would not due she said. Joyce R AZ birds

[Guest guest]

Joyce,

Unfortunately there are people who are just not going to understand. Even with oxygen we all get more fatigued than people without lung disease. Our bodies are working harder and we feel fatigue faster. The main thing is you understand that and don't push beyond your own limits. You can't make others understand, you can tell them, share information but whether they ever truly 'get it' is up to them.

The up side of your question is that it is likely that you actually will feel better once your thyroid situation is under better control and you have the right balance of medication. Extreme fatigue is one of the most prominent symptoms of hypothyroidism. So don't give up on feeling better because it's likely there are better days ahead.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-support Sent: Fri, January 15, 2010 6:28:21 PMSubject: No swimming without oxygen

OK I give up.. I took off my oxygen and walked from my house to my mail box and then to my car...it's really short distance. Got in my car and sat and found my Oxymeter and it was at 80. Since I had been sitting for a minute ir two I think my stats went into the 70's...I was not waling fast...so there is no way it is safe for me to be jumping around doing intense exercise in the water. I just cannot swim. Period.

Also I have a question. I went with friends to lunch and then we went looking in Dillards and we were walking about an hour and I was getting so fatigued i had to ask them to leave with me because I was driving. My friend told my other friend the reason I got fatigued is because of my thyroid. How do you explain to people tht it is not because of something else it is because of the fact that your lungs are crap..l.they think because you have Oxygen you should be alble to just tootle all over for as long as anyone else who is fine...it frustrates me and it makes me angry and nuts. How do you explain to people. Joyce R AZ birds

[Guest guest]

Joyce, have you ask your oxygen supplier for an E tank with cart.. that and a 50 foot hose and your good to go. I'm sorry I missed what kind of 02 tanks you are using. I have done about anything I wanted until this past six months or so.Don't EVER give up.

Love & PrayersPeggy, IPF 2004

[Guest guest]

Joyce,

When I go in my sisters pool I have used a child's floating pool seat to hold an D tank while I swim. Something like this: http://www.coolpooldeals.com/kieferfloatingbabyseat.aspx

Just something to think about.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Fri, January 15, 2010 6:49:08 PMSubject: Re: No swimming without oxygen

Thanks Beth, I sure hope so! i am depressed because I found out for sure that I cannot go without oxygen in the swimming pool.....it depresses me...it really depresses me. it is suicidal to do so. I AM SO SAD.... My aquafit class was pure delight for me. it is tough to give it up...unless I can find that thing to tow it along with me... Ahahahaha! Joyce R AZ birds

[Guest guest]

that's a tough one to answer

how do you explain to people

you just tell them what you told us

your on o2 because your lungs are bad and you tire easily

also the thyroid thing can make you tired, so you have a double whammy

that's what you can tell them

plus when i carry my oxygen, i get tired faster than when i wheel it in a stroller or a shopping car

the heavy container makes me tired

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: No swimming without oxygenTo: Breathe-support Date: Friday, January 15, 2010, 6:28 PM

OK I give up.. I took off my oxygen and walked from my house to my mail box and then to my car...it's really short distance. Got in my car and sat and found my Oxymeter and it was at 80. Since I had been sitting for a minute ir two I think my stats went into the 70's...I was not waling fast...so there is no way it is safe for me to be jumping around doing intense exercise in the water. I just cannot swim. Period.

Also I have a question. I went with friends to lunch and then we went looking in Dillards and we were walking about an hour and I was getting so fatigued i had to ask them to leave with me because I was driving. My friend told my other friend the reason I got fatigued is because of my thyroid. How do you explain to people tht it is not because of something else it is because of the fact that your lungs are crap..l.they think because you have Oxygen you should be alble to just tootle all over for as long as anyone else who is fine...it frustrates me and it makes me angry and nuts. How do you explain to people. Joyce R AZ birds

[Guest guest]

ps

glad you came to your senses regarding oxygen and swimming

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: No swimming without oxygenTo: Breathe-support Date: Friday, January 15, 2010, 6:28 PM

OK I give up.. I took off my oxygen and walked from my house to my mail box and then to my car...it's really short distance. Got in my car and sat and found my Oxymeter and it was at 80. Since I had been sitting for a minute ir two I think my stats went into the 70's...I was not waling fast...so there is no way it is safe for me to be jumping around doing intense exercise in the water. I just cannot swim. Period.

Also I have a question. I went with friends to lunch and then we went looking in Dillards and we were walking about an hour and I was getting so fatigued i had to ask them to leave with me because I was driving. My friend told my other friend the reason I got fatigued is because of my thyroid. How do you explain to people tht it is not because of something else it is because of the fact that your lungs are crap..l.they think because you have Oxygen you should be alble to just tootle all over for as long as anyone else who is fine...it frustrates me and it makes me angry and nuts. How do you explain to people. Joyce R AZ birds

[Guest guest]

Joyce

Actually if you want to do it, your instructor has to make it work.

There is no reasonable reason not to and you're protected by the

Americans with Disabilities Act for them to make reasonable

accommodations. Now, it's probably not worth having just a conflict for

you, but if it was then thats the case.

>

> Peggy I am on liquid.;.l..My supplier would give me the 02 and a long

tube

> but my instructor said it would not work. It would interfer with the

> classes movements. The students couldn't get around the tube. It

would not due

> she said. Joyce

> R AZ birds

>

[Guest guest]

Joyce Rudy Next time you go walking outside or anywhere else or swimming or any sort of exercise you need oxygen for, I'm going to .... well, I don't know what...because I live too far away....but if I lived closer I'd be on my way to talk to you.....please please please...Use your oxygen.>> Yes.l...I so love swimming but when your 02 drops into th e70's when I walk > to the car without my oxygen I can't imagine what it drops too jogging > back and forth a Olympic size swimming pool over and over and for "rest" > doiing jumping jacks..ahahahahah I thought that might be dangerousl. I had never > checked my 02 while walking outside and not having oxygen..but that did > it. Joyce R AZ birds>

[Guest guest]

Joyce, If you oxygen sats drop quite a bit, with the oxygen on and you have an oximeter, maybe you can have them put the oximeter on and walk around fast and see where there sats are and then you put it on with your oxygen and show them your sats and then explain to them, and also tell them that if you oxygen sats stayed up like their's did you could keep up. Marcia

[Guest guest]

rudy joyce

i can walk around the house with o2, but i always take it with me when i leave the house

just walking from the parking lot into the store requires the use of o2,

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: No swimming without oxygenTo: Breathe-Support Date: Friday, January 15, 2010, 10:32 PM

Yes Pink, I think you are right about carrying the portable. I do have something to roll it with but didn't think I would nbeed it when I left home.;..isn' t that the way it goes? Joyce R AZ birds