Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 Hello ! First, I'm really sorry for my bad english, but it's very difficult to find informations in my country about RSS, then I choose to join your group. My son, Giovanni, was diagnosed RSS by genetics tests last week. He's 16 monthes and 6.9 lbs and 1.5ft I think he has not lot of characters of this disease, except the growth and triangular face, but I don't know how the continuation will occur. Sincerely Guenael Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 hi, hi, wellcome to this great group!! you will find lots of information and advice from here. do not worry your english is fine. my name is cara my son is 9 and isRSS/SGA he is 54 lb and 4'2 he is on GHT and other meds for this.i'm glad you are here asked lots of questions you will get lots of answers cara mom to jacob borg_guenael wrote: Hello ! First, I'm really sorry for my bad english, but it's very difficult to find informations in my country about RSS, then I choose to join your group. My son, Giovanni, was diagnosed RSS by genetics tests last week. He's 16 monthes and 6.9 lbs and 1.5ft I think he has not lot of characters of this disease, except the growth and triangular face, but I don't know how the continuation will occur. Sincerely Guenael Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 Hello Guenael, Im mum to Morven who is 16mths also.She possibly has RSS.We are attending an Endo on Tuesday so we may get somw news. I live in Scotland UK I also find it hard to find information and support here. Your English is better than mine. Bye for now > > Hello ! > > First, I'm really sorry for my bad english, but it's very difficult to > find informations in my country about RSS, then I choose to join your > group. > > My son, Giovanni, was diagnosed RSS by genetics tests last week. He's > 16 monthes and 6.9 lbs and 1.5ft > > I think he has not lot of characters of this disease, except the > growth and triangular face, but I don't know how the continuation will > occur. > > Sincerely > > > Guenael > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 Hi Guenael, You will find lots of great information here. Just write out your concerns and there are lots of people who have already been through it from A to Zed. My child has so many issues and all my crutial information, and, where to turn for help- came from these pages. AvaMarie > > Hello ! > > First, I'm really sorry for my bad english, but it's very difficult to > find informations in my country about RSS, then I choose to join your > group. > > My son, Giovanni, was diagnosed RSS by genetics tests last week. He's > 16 monthes and 6.9 lbs and 1.5ft > > I think he has not lot of characters of this disease, except the > growth and triangular face, but I don't know how the continuation will > occur. > > Sincerely > > > Guenael > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 Oh good! You found your way here, I am very glad - you will find lots of info!!! > > Hello ! > > First, I'm really sorry for my bad english, but it's very difficult to > find informations in my country about RSS, then I choose to join your > group. > > My son, Giovanni, was diagnosed RSS by genetics tests last week. He's > 16 monthes and 6.9 lbs and 1.5ft > > I think he has not lot of characters of this disease, except the > growth and triangular face, but I don't know how the continuation will > occur. > > Sincerely > > > Guenael > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 Salutations Guenael, Nous n'avons aucun besoin de vous pardonner. que votre anglais est merveilleux ! Bien mieux que mon Français ! Je suis Pickett et j'habite en Caroline du sud. J'ai habité dans Beligum pendant 3 années et c'est où j'ai pris mon français. La bienvenue au groupe.... ceci est un groupe de personnes merveilleux et elles ont beaucoup de réponses. Mon enfant de RSS est de 8 mois de et poids environ 11 livres. Veuillez poser autant de questions comme vous souhaitez que... accueilliez encore ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 >HI there Geunael, My daughter is also 16months old and has RSS.Her name is Lily and she weighs about 14.4lb now and is about 66cm.She was diagnosed at 9months and is on lots of different medicines and powders to give her more calories which have worked.You need to tell us what medication he is on and what are his problems,for example how does he cope at meal times.Does he have low blood sugars? Does he have reflux....that is is he sick at times. Bye for now Jayne x > Hello ! > > First, I'm really sorry for my bad english, but it's very difficult to > find informations in my country about RSS, then I choose to join your > group. > > My son, Giovanni, was diagnosed RSS by genetics tests last week. He's > 16 monthes and 6.9 lbs and 1.5ft > > I think he has not lot of characters of this disease, except the > growth and triangular face, but I don't know how the continuation will > occur. > > Sincerely > > > Guenael > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 , Thank you for your cordial reception ! Re: New from France Salutations Guenael, Nous n'avons aucun besoin de vous pardonner. que votre anglais est merveilleux ! Bien mieux que mon Français ! Je suis Pickett et j'habite en Caroline du sud. J'ai habité dans Beligum pendant 3 années et c'est où j'ai pris mon français. La bienvenue au groupe.... ceci est un groupe de personnes merveilleux et elles ont beaucoup de réponses. Mon enfant de RSS est de 8 mois de et poids environ 11 livres. Veuillez poser autant de questions comme vous souhaitez que... accueilliez encore ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 I just hope my French wasn't too bad! It's been many years since I have had the chance to speak it. I miss Europe very much... I am hopeful I will make it back one day. Once again... Welcome to the group! Pickett Guenael Borg wrote: > , > > Thank you for your cordial reception ! > > > Re: New from France > > > Salutations Guenael, > > Nous n'avons aucun besoin de vous pardonner. que votre anglais > est merveilleux ! Bien mieux que mon Français ! Je suis > Pickett et j'habite en Caroline du sud. J'ai habité dans Beligum > pendant 3 années et c'est où j'ai pris mon français. > > La bienvenue au groupe.... ceci est un groupe de personnes merveilleux > et elles ont beaucoup de réponses. Mon enfant de RSS est de 8 mois de > et poids environ 11 livres. > > Veuillez poser autant de questions comme vous souhaitez que... > accueilliez encore ! > > > > > Quote Link to comment Share on other sites More sharing options...
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