Re: Jeanie

[Guest guest]

Wow. He truly is a miracle! Still so tiny. I am praying for you, as I know

you must pray with all your heart every time you take him to the Dr. that he has

gained. I am going to have Mike take some pics of Brockton today to post on the

site. I just have to have Ken give me step by step instructions in an email and

I'll have Mike set it up.

Thanks. Jeanie

Jodi wrote:

Hi. I just wanted to welcome you to this great group here. This is

such a wonderful place to come and ask questions and everyone is so

supportive. I love it. Sorry it has taken me so long to say

hi. Actually I had a post started to you earlier today, but I got a

phone call and lost it in the meantime. So, I just wanted to give

you a welcome shout!

I also had an eventful pregnancy and I wanted to also tell you that

they thought my son, , was going to have Trisomy 18 and brought

up termination. Of course, my husband and I refused. That just isn't

in our moral beliefs. They induced me and then I ended up having a c-

section at exactly 34 weeks. graced us with his presence

weighing 2 lbs. 12 1/2 oz. and was 14 1/4 " long. He had a lot of

trouble after birth and was ultimately kept in the hospital until he

was one day shy of his three month birthday!

It has been an adventure for us. wasn't diagnosed with RSS

until he was 17 months old weighing in at a mere 10 lbs. 10 oz.

Luckily, we were steered towards Dr. Harbison and she was the one who

diagnosed him. Doctors here were at a loss!

So, I wanted you to know that you weren't/aren't alone in all of this

and that we all support each other like one big family Some of us

have made some very close friendships and email or phone often. And,

Sheldon put it so nicely one time when he welcomed another new person

to this list and he coined the phrase " Welcome home " . And, that is

just waht this is......home. Where everyone understands.

Have you posted a picture of Brockton yet? We would love for you to

share. I hope you can make it to the Convention this year as it is

absolutely a wonderful experience.

Take care,

Jodi R.

[Guest guest]

Hey Jeanie,

I didn't say welcome yet! Welcome to you and the others that have

just come on board. Some how I don't feel like I can be much of a

greeter yet as I just started on the list in Sept. But who cares ...

welcome welcome anyway. It is a wonderful place and you do learn so

much! I don't even want to imagine where I would be without this

listserve and all the wonderful people (men and women) and their

great wealth of knowledge.

Can't wait to see your pics!

Dawna

Matt 12, 11, Kaitlyn 8 and Noah 3 RSS

GOOD MORNING EVERYONE!

> Hi. I just wanted to welcome you to this great group here. This

is

> such a wonderful place to come and ask questions and everyone is so

> supportive. I love it. Sorry it has taken me so long to say

> hi. Actually I had a post started to you earlier today, but I got

a

> phone call and lost it in the meantime. So, I just wanted to give

> you a welcome shout!

>

> I also had an eventful pregnancy and I wanted to also tell you that

> they thought my son, , was going to have Trisomy 18 and

brought

> up termination. Of course, my husband and I refused. That just

isn't

> in our moral beliefs. They induced me and then I ended up having a

c-

> section at exactly 34 weeks. graced us with his presence

> weighing 2 lbs. 12 1/2 oz. and was 14 1/4 " long. He had a lot of

> trouble after birth and was ultimately kept in the hospital until

he

> was one day shy of his three month birthday!

>

> It has been an adventure for us. wasn't diagnosed with RSS

> until he was 17 months old weighing in at a mere 10 lbs. 10 oz.

> Luckily, we were steered towards Dr. Harbison and she was the one

who

> diagnosed him. Doctors here were at a loss!

>

> So, I wanted you to know that you weren't/aren't alone in all of

this

> and that we all support each other like one big family Some of us

> have made some very close friendships and email or phone often.

And,

> Sheldon put it so nicely one time when he welcomed another new

person

> to this list and he coined the phrase " Welcome home " . And, that is

> just waht this is......home. Where everyone understands.

>

> Have you posted a picture of Brockton yet? We would love for you

to

> share. I hope you can make it to the Convention this year as it is

> absolutely a wonderful experience.

>

> Take care,

> Jodi R.

>

>

>

>

>

>

>

[Guest guest]

Yes, he is a miracle. And, I am very thnkful for him. It is funny,

Deb, what you said in a previous post about you didn't know waht you

would be doing if it weren't for Adam and his RSS. My husband and I

have just recently talked about that. He was saying how much I am

constantly on the go and he doesn't know how I do it, etc. And, I

told him that I remembered when I first met him and he took me to

meet his family that he had a younger sister that had Down Syndrome.

I told him after I had spent some time with his family taht I didn't

know how his mom ever did it because she required so much work and

attention. I told him I could never do what she does. Meaning, I

didn't think I could be a mother to a special needs child!!!!! How

bizarre is that? Anyway, I really do believe that only certain

people have the opportunity to care for a special needs child. And,

you may not know that you are one of those people until you are a

parent or caregiver of one! And, I would put myself into that

category. Oh boy is it hard, and trying and frustrating sometimes,

but I wouldn't trade it for anything in this world. is my

little hero because of all he has been through and he just adapts and

continues on. There isn't anyone that is going to stop him from

doing and being what he wants to be. I think he has a strong

personality like his Daddy! )

The weight gaining isn't so much of a factor anymore as it used to

be. Yes, I used to hold my breath with each and every weigh in.

But, he has done so much better and he is actually " chubby " now

according to Dr. H! Go figure! LOL. By the way, he is 3 1/2 now

and weighs 24 lbs. 10 oz as of Tuesday! LOL.

Take care and I am so glad you joined us,

Jodi R.

> Hi. I just wanted to welcome you to this great group here. This

is

> such a wonderful place to come and ask questions and everyone is so

> supportive. I love it. Sorry it has taken me so long to say

> hi. Actually I had a post started to you earlier today, but I got

a

> phone call and lost it in the meantime. So, I just wanted to give

> you a welcome shout!

>

> I also had an eventful pregnancy and I wanted to also tell you that

> they thought my son, , was going to have Trisomy 18 and

brought

> up termination. Of course, my husband and I refused. That just

isn't

> in our moral beliefs. They induced me and then I ended up having a

c-

> section at exactly 34 weeks. graced us with his presence

> weighing 2 lbs. 12 1/2 oz. and was 14 1/4 " long. He had a lot of

> trouble after birth and was ultimately kept in the hospital until

he

> was one day shy of his three month birthday!

>

> It has been an adventure for us. wasn't diagnosed with RSS

> until he was 17 months old weighing in at a mere 10 lbs. 10 oz.

> Luckily, we were steered towards Dr. Harbison and she was the one

who

> diagnosed him. Doctors here were at a loss!

>

> So, I wanted you to know that you weren't/aren't alone in all of

this

> and that we all support each other like one big family Some of us

> have made some very close friendships and email or phone often.

And,

> Sheldon put it so nicely one time when he welcomed another new

person

> to this list and he coined the phrase " Welcome home " . And, that is

> just waht this is......home. Where everyone understands.

>

> Have you posted a picture of Brockton yet? We would love for you

to

> share. I hope you can make it to the Convention this year as it is

> absolutely a wonderful experience.

>

> Take care,

> Jodi R.

>

>

>

>

>

>

>

[Guest guest]

Jeanie,

I wish my 20 year old daughter could read and appreciate your

message. She, too, is fighting growing up. Man, she is fighting.

She has not attempted suicide, but she has spoken of hurting herself

on two occasions in the past 5 months. Just two weeks ago we had to

rush her to the ER for an emergency psych eval. She has been under

the care of a psychiatrist for 8 months now and was diagnosed with

bipolar disorder. We are still trying to get her meds correct.

The remarkable thing about the last incident is that the

psychiatrist did not realize until then just how immature she really

is. It was eye-opening for him. And for us. But it's been such a

struggle and she does not want help from anyone but him. He is the

only one she will listen to. She will not go for therapy, so the

three week med checks are the times to drill things into her.

I want so badly for Jenna to see how good life can be. I want her

to be happy. She is not. She could not stay in college, but she

does have a fulltime job for now. I say for now because we never

know what is going on with her. Her supervisor says she is great

with the members of the Y (she works in member services) and knows

her job, but she is not always on time and does some pretty stupid

things on the job. Ugh.

Thank you for sharing you personal story. It gives me hope. And I

don't ever, ever want Jenna to give up. We won't give up on her and

we won't let her give up on herself.

Jodi Z

[Guest guest]

There is definately some underlying issues with your daughter. Something she

may not even really be aware of. I know there were issues with me. I never

really knew what they were until I was older.............actually, just

recently! Some of us just expect WAY too much of ourselves and feel like we're

constantly disappointing everyone we love. When I was Jenna's age, I just could

not see a future for myself. It was the HERE and NOW....it didn't go beyond

that. I don't know how to give her insight. I wish I did. My daughter has

bouts with depression too. I think it's normal to a certain degree, isn't it?

I will tell you that if she's talking about it, she needs you to pay attention.

Girls usually talk about hurting themselves when they really dont intend to do

anything. Boys are the ones that usually do something when they talk about it.

As long as she's talking about it and you're listening........you're doing the

best you can.

Jodi Zwain wrote: Jeanie,

I wish my 20 year old daughter could read and appreciate your

message. She, too, is fighting growing up. Man, she is fighting.

She has not attempted suicide, but she has spoken of hurting herself

on two occasions in the past 5 months. Just two weeks ago we had to

rush her to the ER for an emergency psych eval. She has been under

the care of a psychiatrist for 8 months now and was diagnosed with

bipolar disorder. We are still trying to get her meds correct.

The remarkable thing about the last incident is that the

psychiatrist did not realize until then just how immature she really

is. It was eye-opening for him. And for us. But it's been such a

struggle and she does not want help from anyone but him. He is the

only one she will listen to. She will not go for therapy, so the

three week med checks are the times to drill things into her.

I want so badly for Jenna to see how good life can be. I want her

to be happy. She is not. She could not stay in college, but she

does have a fulltime job for now. I say for now because we never

know what is going on with her. Her supervisor says she is great

with the members of the Y (she works in member services) and knows

her job, but she is not always on time and does some pretty stupid

things on the job. Ugh.

Thank you for sharing you personal story. It gives me hope. And I

don't ever, ever want Jenna to give up. We won't give up on her and

we won't let her give up on herself.

Jodi Z