Re: I can't breathe--advice?

[Guest guest]

Cees,Call your pulmo and get an O2 script. You will only need it while you are at that altitude but do you really want to spend the next two weeks battling to keep your sats above 90? The only thing you can do otherwise is to stay very quiet and move around slowly and carefully. It's either that or get some O2.

5000 feet is significant altitude and though you don't need O2 under normal circumstances, this isn't normal for your body. Look after yourself!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Mon, December 21, 2009 7:48:13 PMSubject: I can't breathe--advice?

Think I already told you I'm now at my sister's house in Holbrook, AZ. Well, it's at 5,000 feet altitude & I'm REALLY feeling the difference. Also, my sats keep going down to 84-85 with any exertion, which is lower than they ever went at home in Calif.I haven't been prescribed oxygen yet because my sats seldom go below 89 at home. But it now looks like I'm probably going to stay in Holbrook until New Year's & I'm REALLY having trouble breathing when I do much more than push my scooter through the house. Actually, even that is difficult at times.Is there anything I can do besides the special breathing exercise, which I try to do as often as possible? I can't see calling my pulmodoc for an oxygen prescription since I really shouldn't need it when I get back home. I was scheduled tomorrow to get a CPAP machine for sleeping but had to cancel that appt because of my accident & trip to AZ.I really can't imagine what else

there is to do, but just in case, I'm trying you. Any advice you can give would be a big help. Thanks.Cees, S CalifIPF/UIP 10/08

[Guest guest]

cees

go to the local doctor and tell them your problem, bring your oximeter with you

maybe he can set up an oxygen supply for you to use while at your sister's house

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: I can't breathe--advice?To: Breathe-Support Date: Monday, December 21, 2009, 7:48 PM

Think I already told you I'm now at my sister's house in Holbrook, AZ. Well, it's at 5,000 feet altitude & I'm REALLY feeling the difference. Also, my sats keep going down to 84-85 with any exertion, which is lower than they ever went at home in Calif.I haven't been prescribed oxygen yet because my sats seldom go below 89 at home. But it now looks like I'm probably going to stay in Holbrook until New Year's & I'm REALLY having trouble breathing when I do much more than push my scooter through the house. Actually, even that is difficult at times.Is there anything I can do besides the special breathing exercise, which I try to do as often as possible? I can't see calling my pulmodoc for an oxygen prescription since I really shouldn't need it when I get back home. I was scheduled tomorrow to get a CPAP machine for sleeping but had to cancel that appt because of my accident & trip to AZ.I really can't imagine what

else there is to do, but just in case, I'm trying you. Any advice you can give would be a big help. Thanks.Cees, S CalifIPF/UIP 10/08

[Guest guest]

Cees,

I was afraid of that, I couldn't remember how high Holbrook was and I

forgot to look it up. You need o2 lady and I would go to the ER and not

come home without. Even if its temporary. You will be miserable

without it. Sorry.

Dyane Phoenix

ps I WISH I only weight 220 right now. LOL

>

> Think I already told you I'm now at my sister's house in Holbrook, AZ.

Well, it's at 5,000 feet altitude & I'm REALLY feeling the difference.

Also, my sats keep going down to 84-85 with any exertion, which is lower

than they ever went at home in Calif.

>

> I haven't been prescribed oxygen yet because my sats seldom go below

89 at home. But it now looks like I'm probably going to stay in Holbrook

until New Year's & I'm REALLY having trouble breathing when I do much

more than push my scooter through the house. Actually, even that is

difficult at times.

>

> Is there anything I can do besides the special breathing exercise,

which I try to do as often as possible? I can't see calling my pulmodoc

for an oxygen prescription since I really shouldn't need it when I get

back home. I was scheduled tomorrow to get a CPAP machine for sleeping

but had to cancel that appt because of my accident & trip to AZ.

>

> I really can't imagine what else there is to do, but just in case, I'm

trying you. Any advice you can give would be a big help. Thanks.

>

> Cees, S Calif

> IPF/UIP 10/08

>

[Guest guest]

Hi Cees,

Why not try to call your Pulmo Doc and see if you can get a prescription for oxygen while you are away. The oxygen I'm certain would make your stay much more bearable. Just remember O2 is our friend

Adrienne

To: Breathe-Support Sent: Mon, December 21, 2009 7:48:13 PMSubject: I can't breathe--advice?

Think I already told you I'm now at my sister's house in Holbrook, AZ. Well, it's at 5,000 feet altitude & I'm REALLY feeling the difference. Also, my sats keep going down to 84-85 with any exertion, which is lower than they ever went at home in Calif.I haven't been prescribed oxygen yet because my sats seldom go below 89 at home. But it now looks like I'm probably going to stay in Holbrook until New Year's & I'm REALLY having trouble breathing when I do much more than push my scooter through the house. Actually, even that is difficult at times.Is there anything I can do besides the special breathing exercise, which I try to do as often as possible? I can't see calling my pulmodoc for an oxygen prescription since I really shouldn't need it when I get back home. I was scheduled tomorrow to get a CPAP machine for sleeping but had to cancel that appt because of my accident & trip to AZ.I really can't imagine what else

there is to do, but just in case, I'm trying you. Any advice you can give would be a big help. Thanks.Cees, S CalifIPF/UIP 10/08

[Guest guest]

Well, you all confirmed what I pretty much knew but hoped I didn't have to do.

Thanks for the input.

I have emailed my pulmodoc & told him the situation. I can tell that his office

has already opened & read it, but I haven't heard back yet. He's usually pretty

good about answering emails as long as I'm not questioning his treatment, so I'm

hoping I'll hear something tomorrow (Wed).

Will keep you posted.

Cees, S Calif

IPF/UIP 10/08

>

> Cees,

> Call your pulmo and get an O2 script. You will only need it while you are at

that altitude but do you really want to spend the next two weeks battling to

keep your sats above 90?  The only thing you can do otherwise is to stay very

quiet and move around slowly and carefully. It's either that or get some O2.

> 5000 feet is significant altitude and though you don't need O2 under normal

circumstances, this isn't normal for your body. Look after yourself!

>

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>  

>  

>

>

>

>

> ________________________________

>

> To: Breathe-Support

> Sent: Mon, December 21, 2009 7:48:13 PM

> Subject: I can't breathe--advice?

>

>  

> Think I already told you I'm now at my sister's house in Holbrook, AZ. Well,

it's at 5,000 feet altitude & I'm REALLY feeling the difference. Also, my sats

keep going down to 84-85 with any exertion, which is lower than they ever went

at home in Calif.

>

> I haven't been prescribed oxygen yet because my sats seldom go below 89 at

home. But it now looks like I'm probably going to stay in Holbrook until New

Year's & I'm REALLY having trouble breathing when I do much more than push my

scooter through the house. Actually, even that is difficult at times.

>

> Is there anything I can do besides the special breathing exercise, which I try

to do as often as possible? I can't see calling my pulmodoc for an oxygen

prescription since I really shouldn't need it when I get back home. I was

scheduled tomorrow to get a CPAP machine for sleeping but had to cancel that

appt because of my accident & trip to AZ.

>

> I really can't imagine what else there is to do, but just in case, I'm trying

you. Any advice you can give would be a big help. Thanks.

>

> Cees, S Calif

> IPF/UIP 10/08

>

[Guest guest]

Maybe Cees you need to get a temporary script for oxygen while you are there with your sister Gascoigne SD, 50 yrs old, IPF 7/2009To: Breathe-Support Sent: Mon,

December 21, 2009 6:48:13 PMSubject: I can't breathe--advice?

Think I already told you I'm now at my sister's house in Holbrook, AZ. Well, it's at 5,000 feet altitude & I'm REALLY feeling the difference. Also, my sats keep going down to 84-85 with any exertion, which is lower than they ever went at home in Calif.

I haven't been prescribed oxygen yet because my sats seldom go below 89 at home. But it now looks like I'm probably going to stay in Holbrook until New Year's & I'm REALLY having trouble breathing when I do much more than push my scooter through the house. Actually, even that is difficult at times.

Is there anything I can do besides the special breathing exercise, which I try to do as often as possible? I can't see calling my pulmodoc for an oxygen prescription since I really shouldn't need it when I get back home. I was scheduled tomorrow to get a CPAP machine for sleeping but had to cancel that appt because of my accident & trip to AZ.

I really can't imagine what else there is to do, but just in case, I'm trying you. Any advice you can give would be a big help. Thanks..

Cees, S Calif

IPF/UIP 10/08