Guest guest Posted December 31, 2009 Report Share Posted December 31, 2009 Beth Sorry to hear about the rash as I've been bothered even more than normal by rashes the last few weeks and have bought enough lotion to own the store by now, taken enough oatmeal baths. Mine is attributed so far to just the dryness in having to run the heat so much due to the cold temperatures. My hands are raw and both burn and itch. I also had blood taken today for allergies to be checked just to see if anything new and exciting. Of course, as to connective tissue, still nothing discovered in my case but maybe something will be at Duke. I do believe stress could certainly cause your dermatomyositis to flare like that. Have you found anything that helps? The one oral med I was given was Hydroxyzine. Unfortunately, I overreact to it in terms of drowsiness. So, I may benefit a bit but can only take one and it's nap time. May help a little at bedtime if I don't need to get up before noon the next day. Does it look like your hand rash from Dermatomyositis? I'm sure mine is nothing like yours but I still can feel your suffering. I'm fine dealing with the IPF if this other stuff would just stop popping up. > > Earlier today I posted in a response to Gita that stress can take a toll on our bodies and sometimes very unexpectedly. I was speaking from immediate personal experience. > > Since Christmas Eve my back and neck have been covered with an inflamed itchy rash. In short I've beem miserable. It started out slowly on Christmas Eve and got worse as the days went on. I couldn't attribute it to an allergy because nothing in my life had really changed.(soap, shampoo, laundry detergent etc. no changes) In addition I've been feeling particularly weak and exhausted. > > I finally put a call into my rheumatologist and saw her yesterday. She says it's my dermatomyositis flaring up and it's likely stress related. Stress as in the holidays. In other words happy stress. I had a great, if busy Christmas but apparently that was enough to make my body yell for help. So my Imuran has been increased to 150mg for a month or so and then we'll move the dose back down again. > > I hate this so much. I hate that something like Christmas can put me in a tailspin. It's annoying but I suppose I have to be grateful my doctor recognized it for what it was and we're dealing with it before it effects my lungs. > > Please everyone look after yourselves. Eat well, get some kind of exercise and get more rest than you think you need. I don't know who first said it on this board but every once in a while it's good to call a 'pajama day' and hang out in the house not doin nuttin! > > Beth > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2009 Report Share Posted December 31, 2009 feel better soon Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Speaking of stressTo: Breathe-Support Date: Thursday, December 31, 2009, 6:33 PM Earlier today I posted in a response to Gita that stress can take a toll on our bodies and sometimes very unexpectedly. I was speaking from immediate personal experience. Since Christmas Eve my back and neck have been covered with an inflamed itchy rash. In short I've beem miserable. It started out slowly on Christmas Eve and got worse as the days went on. I couldn't attribute it to an allergy because nothing in my life had really changed.(soap, shampoo, laundry detergent etc. no changes) In addition I've been feeling particularly weak and exhausted. I finally put a call into my rheumatologist and saw her yesterday. She says it's my dermatomyositis flaring up and it's likely stress related. Stress as in the holidays. In other words happy stress. I had a great, if busy Christmas but apparently that was enough to make my body yell for help. So my Imuran has been increased to 150mg for a month or so and then we'll move the dose back down again. I hate this so much. I hate that something like Christmas can put me in a tailspin. It's annoying but I suppose I have to be grateful my doctor recognized it for what it was and we're dealing with it before it effects my lungs. Please everyone look after yourselves. Eat well, get some kind of exercise and get more rest than you think you need. I don't know who first said it on this board but every once in a while it's good to call a 'pajama day' and hang out in the house not doin nuttin! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2010 Report Share Posted January 1, 2010 Beth, So sorry to hear about that itchy rash......another crazy thing that can come from stress. Take care of you and I love those "pajama days" ......we do that often. Patti Indianapolis IPF 2007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2010 Report Share Posted January 1, 2010 MB, Bruce.... I've been reading your posts about the rash and itching and the stress itch. I take 1 - 2 Hydroxyzine every day for itching-allergy to the pain meds. I couldn't get by without it but I know the side effects can be a bother. Not for me, thank God. Usually if there will be a reaction I'll have 3! I sure hope both of you feel better soon. That itching can drive a person bonkers! MamaSher; IPF 2006; Cellular NSIP, PH, 2009, OR,.Don't fret about tomorrow, God is already there! From: Bruce Sent: Thursday, December 31, 2009 3:48 PM To: Breathe-Support Subject: Re: Speaking of stress BethSorry to hear about the rash as I've been bothered even more than normalby rashes the last few weeks and have bought enough lotion to own thestore by now, taken enough oatmeal baths. Mine is attributed so far tojust the dryness in having to run the heat so much due to the coldtemperatures. My hands are raw and both burn and itch. I also had bloodtaken today for allergies to be checked just to see if anything new andexciting. Of course, as to connective tissue, still nothing discoveredin my case but maybe something will be at Duke.I do believe stress could certainly cause your dermatomyositis to flarelike that. Have you found anything that helps? The one oral med I wasgiven was Hydroxyzine. Unfortunately, I overreact to it in terms ofdrowsiness. So, I may benefit a bit but can only take one and it's naptime. May help a little at bedtime if I don't need to get up before noonthe next day.Does it look like your hand rash from Dermatomyositis? I'm sure mine isnothing like yours but I still can feel your suffering. I'm fine dealingwith the IPF if this other stuff would just stop popping up.>> Earlier today I posted in a response to Gita that stress can take atoll on our bodies and sometimes very unexpectedly. I was speaking fromimmediate personal experience.>> Since Christmas Eve my back and neck have been covered with aninflamed itchy rash. In short I've beem miserable. It started out slowlyon Christmas Eve and got worse as the days went on. I couldn't attributeit to an allergy because nothing in my life had really changed.(soap,shampoo, laundry detergent etc. no changes) In addition I've beenfeeling particularly weak and exhausted.>> I finally put a call into my rheumatologist and saw her yesterday. Shesays it's my dermatomyositis flaring up and it's likely stress related.Stress as in the holidays. In other words happy stress. I had a great,if busy Christmas but apparently that was enough to make my body yellfor help. So my Imuran has been increased to 150mg for a month or so andthen we'll move the dose back down again.>> I hate this so much. I hate that something like Christmas can put mein a tailspin. It's annoying but I suppose I have to be grateful mydoctor recognized it for what it was and we're dealing with it before iteffects my lungs.>> Please everyone look after yourselves. Eat well, get some kind ofexercise and get more rest than you think you need. I don't know whofirst said it on this board but every once in a while it's good to calla 'pajama day' and hang out in the house not doin nuttin!>> Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08> No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.722 / Virus Database: 270.14.123/2595 - Release Date: 12/31/09 00:52:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2010 Report Share Posted January 3, 2010 I'm sorry that you are feeling bad. I think the holidays and the trip were too much for Bob and I too. He is home sick. He doesn't want to come around me in case he has something catching. I know that I just overdid it. On New Year's eve we got up at 7 and headed home. Between travel and visiting his son and family then going to my sister's New Years party we ended the day at about 1:30 in the morning. It was fun but just too much for us old people. I'm glad that you at least had happy stress.Beverley Joy,71, Birds and mold 1-09,Diabetes,Sjogren's,Fibromyalgia IdahoSubject: Speaking of stressTo: Breathe-Support Date: Thursday, December 31, 2009, 3:33 PM Earlier today I posted in a response to Gita that stress can take a toll on our bodies and sometimes very unexpectedly. I was speaking from immediate personal experience. Since Christmas Eve my back and neck have been covered with an inflamed itchy rash. In short I've beem miserable. It started out slowly on Christmas Eve and got worse as the days went on. I couldn't attribute it to an allergy because nothing in my life had really changed.(soap, shampoo, laundry detergent etc. no changes) In addition I've been feeling particularly weak and exhausted. I finally put a call into my rheumatologist and saw her yesterday. She says it's my dermatomyositis flaring up and it's likely stress related. Stress as in the holidays. In other words happy stress. I had a great, if busy Christmas but apparently that was enough to make my body yell for help. So my Imuran has been increased to 150mg for a month or so and then we'll move the dose back down again. I hate this so much. I hate that something like Christmas can put me in a tailspin. It's annoying but I suppose I have to be grateful my doctor recognized it for what it was and we're dealing with it before it effects my lungs. Please everyone look after yourselves. Eat well, get some kind of exercise and get more rest than you think you need. I don't know who first said it on this board but every once in a while it's good to call a 'pajama day' and hang out in the house not doin nuttin! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
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