Re: Mic-Key Button after PEG?

[Guest guest]

- OH MY GOSH - that's what we are having! Yikes - glad you

asked this question. Can't wait to see some responses!

- H

>

> Hey everyone,

> I haven't heard anyone mention PEG (percutaneous endoscopic

gastrostomy). This is the g-tube procedure Dasia is scheduled for,

and I was looking around on the internet, and saw a picture of a

longer tube next to the description of the procedure.

> I had just assumed we would be able to opt for the button, is

this true? No matter what the procedure? Or should I call and make

sure we can get a button after the 6 weeks? Although, I can't

imagine any doctor not planning a button for a 2 year old.

> I just want to be sure, so there's no hold up in getting this

done.

> Thanks!

>

> Mom to Dasia

> 23mo

>

>

> ---------------------------------

> Yahoo! Photos

> Got holiday prints? See all the ways to get quality prints in

your hands ASAP.

>

>

[Guest guest]

You need the longer tube in the beginning until the site heals

properly. After about 6 weeks, the long tube can be pulled and a

button popped in. The button is held in place with a balloon that is

inflated with water inside the stomach. It's really neat. But you

have to go through the inconvenience of the other tube first.

Jodi Z

[Guest guest]

Jodi - thanks very much.

- H

>

> You need the longer tube in the beginning until the site heals

> properly. After about 6 weeks, the long tube can be pulled and a

> button popped in. The button is held in place with a balloon that

is

> inflated with water inside the stomach. It's really neat. But you

> have to go through the inconvenience of the other tube first.

>

> Jodi Z

>

[Guest guest]

and H

You should make sure you understand the type of g-tube surgery your child is

going to have by speaking with your Dr. BEFORE surgery. There a several

different types of G-tubes. My daughter Alyssa, and I think most of the

families here do not have PEG's. They have balloon devices. The first

balloon device used right after surgery by some doctors is a foley tube. It

has a balloon on the end inside the stomach and a short tube that hangs on

the outside. A button is usually placed 6-12 weeks later after the site has

healed. This is what Alyssa has. Here are a few sites with pictures and

great info.

http://www.ich.ucl.ac.uk/factsheets/families/F000380/

http://www.muscular-dystrophy.org/information_resources/factsheets/medical_i

ssues_factsheets/gastrostomy.html#Whatisagastrostomy

http://pediatric.um-surgery.org/new_070198/new/Library/gastrostomytubeplmt.h

tm

Dayna, Mom to Alyssa, 4yrs, gtube for 2yrs

_____

From: RSS-Support [mailto:RSS-Support ] On

Behalf Of advocate22003

Sent: Wednesday, January 11, 2006 8:34 PM

To: RSS-Support

Subject: Re: Mic-Key Button after PEG?

- OH MY GOSH - that's what we are having! Yikes - glad you

asked this question. Can't wait to see some responses!

- H

>

> Hey everyone,

> I haven't heard anyone mention PEG (percutaneous endoscopic

gastrostomy). This is the g-tube procedure Dasia is scheduled for,

and I was looking around on the internet, and saw a picture of a

longer tube next to the description of the procedure.

> I had just assumed we would be able to opt for the button, is

this true? No matter what the procedure? Or should I call and make

sure we can get a button after the 6 weeks? Although, I can't

imagine any doctor not planning a button for a 2 year old.

> I just want to be sure, so there's no hold up in getting this

done.

> Thanks!

>

> Mom to Dasia

> 23mo

>

>

> ---------------------------------

> Yahoo! Photos

> Got holiday prints? See all the ways to get quality prints in

your hands ASAP.

>

>

[Guest guest]

Hi. Autumn got a Mic-Key button during surgery. We never had to

deal with tubes or anything. I believe her surgeon is the only one

in that hospital that did it laproscopically (I think that's the

word!) It was one cut in her belly button, one close to the tube and

the tube. I don't know about the other types of g-tubes or surgeries

so this may not help, just wanted to let you know! I have to say,

the Mic-Key button is great and very easy to use.

Good luck!

>

> Hey everyone,

> I haven't heard anyone mention PEG (percutaneous endoscopic

gastrostomy). This is the g-tube procedure Dasia is scheduled for,

and I was looking around on the internet, and saw a picture of a

longer tube next to the description of the procedure.

> I had just assumed we would be able to opt for the button, is

this true? No matter what the procedure? Or should I call and make

sure we can get a button after the 6 weeks? Although, I can't imagine

any doctor not planning a button for a 2 year old.

> I just want to be sure, so there's no hold up in getting this

done.

> Thanks!

>

> Mom to Dasia

> 23mo

>

>

> ---------------------------------

> Yahoo! Photos

> Got holiday prints? See all the ways to get quality prints in your

hands ASAP.

>

>

[Guest guest]

You beat me to it, Jodi! Lol. I was just telling Pat in a private

email that I need to put all the tube pictures of in his photo

album. Ladies..... has had every tube you could imagine.

, I sent you a picture of what the PEG will look like. For

everyone else wondering, I will post a PEG picture of in his

album if you care to see what it looks like. What you see, will be the

gereral idea. Some have a round disc close to the stomach, some a

triangle piece. had both kinds. I know I have the one that has

the triangle piece close up....don't know about the round disc. I'll

look. Hope this helps some of you.

JR (Jodi R)

>

> You need the longer tube in the beginning until the site heals

> properly. After about 6 weeks, the long tube can be pulled and a

> button popped in. The button is held in place with a balloon that is

> inflated with water inside the stomach. It's really neat. But you

> have to go through the inconvenience of the other tube first.

>

> Jodi Z

>

[Guest guest]

Hi Jodi,

Thanks for posting the pictures. Which button is your favorite? Can you

explain what the pros and cons are for each? For the peg, when they put the

button in, is that plastic triangle still there? I read that the only bad thing

about the peg, is when it needs to be replaced, it hurts. Was this your

experience? With the mic-key, since 's is the GJ, is that why it looks

like it has a little extra sac on it? Or something, I couldn't really tell. The

GI nurse said there is less mishaps with the peg since it sits flush with the

skin, and since it's a disk behind the site, there's no risk of having a balloon

leaking or deflating. Oh, and the other drawback about the peg was it has to be

changed by their office only, if something were to happen to it. I forgot to ask

the nurse how likely it is to need to be replaced sooner than it normally lasts.

I know they said it lasts longer than the mic-key, 18-24mo instead of 6-12mo. Is

this right? Thanks for lending all your experience!

Jodi wrote:

You beat me to it, Jodi! Lol. I was just telling Pat in a private

email that I need to put all the tube pictures of in his photo

album. Ladies..... has had every tube you could imagine.

, I sent you a picture of what the PEG will look like. For

everyone else wondering, I will post a PEG picture of in his

album if you care to see what it looks like. What you see, will be the

gereral idea. Some have a round disc close to the stomach, some a

triangle piece. had both kinds. I know I have the one that has

the triangle piece close up....don't know about the round disc. I'll

look. Hope this helps some of you.

JR (Jodi R)

>

> You need the longer tube in the beginning until the site heals

> properly. After about 6 weeks, the long tube can be pulled and a

> button popped in. The button is held in place with a balloon that is

> inflated with water inside the stomach. It's really neat. But you

> have to go through the inconvenience of the other tube first.

>

> Jodi Z

>

[Guest guest]

Thank you Dayna, I was so consumed on just getting a feeding plan going that, I

didn't ask the doc enough questions, my main goal was to get him to agree to the

procedure! Then, everything happened so fast, and I just wanted it done and over

with. This Dr I have only does the peg, and there will be no tube, it's the

button at surgery. I'm now waiting on Dasia's nurse to call back, still trying

to get as much feedback on both procedures. Thank you again for your post!

Dayna Carney wrote:

and H

You should make sure you understand the type of g-tube surgery your child is

going to have by speaking with your Dr. BEFORE surgery. There a several

different types of G-tubes. My daughter Alyssa, and I think most of the

families here do not have PEG's. They have balloon devices. The first

balloon device used right after surgery by some doctors is a foley tube. It

has a balloon on the end inside the stomach and a short tube that hangs on

the outside. A button is usually placed 6-12 weeks later after the site has

healed. This is what Alyssa has. Here are a few sites with pictures and

great info.

http://www.ich.ucl.ac.uk/factsheets/families/F000380/

http://www.muscular-dystrophy.org/information_resources/factsheets/medical_i

ssues_factsheets/gastrostomy.html#Whatisagastrostomy

http://pediatric.um-surgery.org/new_070198/new/Library/gastrostomytubeplmt.h

tm

Dayna, Mom to Alyssa, 4yrs, gtube for 2yrs

_____

From: RSS-Support [mailto:RSS-Support ] On

Behalf Of advocate22003

Sent: Wednesday, January 11, 2006 8:34 PM

To: RSS-Support

Subject: Re: Mic-Key Button after PEG?

- OH MY GOSH - that's what we are having! Yikes - glad you

asked this question. Can't wait to see some responses!

- H

>

> Hey everyone,

> I haven't heard anyone mention PEG (percutaneous endoscopic

gastrostomy). This is the g-tube procedure Dasia is scheduled for,

and I was looking around on the internet, and saw a picture of a

longer tube next to the description of the procedure.

> I had just assumed we would be able to opt for the button, is

this true? No matter what the procedure? Or should I call and make

sure we can get a button after the 6 weeks? Although, I can't

imagine any doctor not planning a button for a 2 year old.

> I just want to be sure, so there's no hold up in getting this

done.

> Thanks!

>

> Mom to Dasia

> 23mo

>

>

> ---------------------------------

> Yahoo! Photos

> Got holiday prints? See all the ways to get quality prints in

your hands ASAP.

>

>

[Guest guest]

I haven't heard of a PEG before....but I did want to share some

information that may or may not be relevant. My daughter Sydney was

scheduled for a " g-tube " last year...and the people at the hospital

showed me the Mic-Key....let me see how it worked...then the surgery

(she had additional surgery to correct a malrotated bowel at the

same time) came and when they took off the dressing, she had a BARD

tube in her. I was shocked...and I think everyone else involved

was, too. The surgeon apparently decided on his own method and

didn't inform us ahead of time. I personally did not know at the

time there were even different TYPES of g-tubes until that

happened. I went through 6 months of trying to get the surgery

clinic to get that thing switched out...and they kept telling me I

had to wait. Finally after 7 months, Sydney has a Mic-Key and it is

SO much better than that BARD tube, I can't tell you. She's only

had it one week and I'm relieved to find out they are way easier to

manage than that BARD. I think you'll find you learn a lot as you

go through it all...I've become more educated in the medical field

than I ever cared to, that's for sure! I agree with Dayna Carney,

definitely research the options before the surgery...I really wish I

had. This listserve is a great group to bounce questions to - I

wish I had done that before my daughter's surgery.

Debbie, mom to Sydney, RSS, 17 months

>

> Hey everyone,

> I haven't heard anyone mention PEG (percutaneous endoscopic

gastrostomy). This is the g-tube procedure Dasia is scheduled for,

and I was looking around on the internet, and saw a picture of a

longer tube next to the description of the procedure.

> I had just assumed we would be able to opt for the button, is

this true? No matter what the procedure? Or should I call and make

sure we can get a button after the 6 weeks? Although, I can't

imagine any doctor not planning a button for a 2 year old.

> I just want to be sure, so there's no hold up in getting this

done.

> Thanks!

>

> Mom to Dasia

> 23mo

>

>

> ---------------------------------

> Yahoo! Photos

> Got holiday prints? See all the ways to get quality prints in

your hands ASAP.

>

>

[Guest guest]

,

Honestly, I can't really remember the PEG days. What I do remember

is that with the tube had first, there was always a long

floppy tubing hanging out of his belly. I hated that because I was

worried when he moved or " crawled " around that it would get pulled

out. It was always very nerve racking for me. For you, they should

only place this for a short time. 6 weeks or so maybe. I would make

it clear to them that after the site heals, you want to have a button

placed. These are the best options for kids that will have tubes for

a longer period of time. They don't have a tube that hangs all the

time. Only when they are being fed. When the feeding is over, you

unhook the extension set and the button is the only thing left. That

is why it is called a button....it looks like one. ;o) I would

prefer the button over the PEG anyday. From what I remember though,

's tubes always had a balloon to hold the tube in place. I am

not really sure about the other thing you are talking about. But,

maybe I have forgotten that! Once you get used to it, the G tubes

are easy to change. I have had to place many g tubes in 's

short 3 1/2 years and it is no big deal. Now, has the Mic-Key

GJ tube and that has to be replaced in Interventional Medicine under

radiology. Now, that is a pain for me because it is inconvenient to

go to the hospital to have this replaced, but I can't do anything

about that. cannot tolerate much volume in his stomach, so he

needs the J tube. The last two pictures are the pictures of his GJ.

The picture with him holding the star is a Mic-Key G tube. The notch

on the side of that one is where you would fill the balloon with

water.

Jodi R.

> >

> > You need the longer tube in the beginning until the site heals

> > properly. After about 6 weeks, the long tube can be pulled and a

> > button popped in. The button is held in place with a balloon

that is

> > inflated with water inside the stomach. It's really neat. But

you

> > have to go through the inconvenience of the other tube first.

> >

> > Jodi Z

> >

>

>

>

>

>

>

>

[Guest guest]

JR- okay - my head is reeling! LOL Thank you though for all your

posts to myself and . It is so helpful for everyone,

including yourself, who have responded so that we can make educated

decisions. Thanks too for the pictures. Geez - is there anything

you can't do??

- H

> > >

> > > You need the longer tube in the beginning until the site heals

> > > properly. After about 6 weeks, the long tube can be pulled

and a

> > > button popped in. The button is held in place with a balloon

> that is

> > > inflated with water inside the stomach. It's really neat.

But

> you

> > > have to go through the inconvenience of the other tube first.

> > >

> > > Jodi Z

> > >

> >

> >

> >

> >

> >

> >

> >