Re: National Jewish Hospital

[Guest guest]

if it's a virus, the antibiotics won't help a virus, just a bacteria

if it's an inflammation, the antibiotics won't help cure that

yesterday, the ER gave me steriods and increased the predinsone for 3 days because of bronchitis

it depends on what is causing your problem

only the docs can tell you that

when in doubt, go to the ER

see my post from yesterday about my decision making issue

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: National Jewish HospitalTo: Breathe-Support Date: Monday, December 14, 2009, 12:40 PM

Greetings,I'm here to inquire and/or complain. I was seen at NJH October 8th and 9th. I was told they would send for my biopsy slides from University of Tennessee and decide on a course of treatment when they had reviewed them. To date I have not heard from them but to say they had not yet received the slides. That was probably in October (memory fails me as I didn't write it down). I already have my reports from them as to all tests and recommendations.I've been in touch with them for advice about a URI that four courses of different antibiotics has not covered. Dr. Hines said I needed a culture while there twice but never did one. After talking to NJH this morning I was told to call my Dr. and if that fails, go to urgent care and let them know how I'm doing later in the week.So, I finally called UT pathology myself concerning the slides. It seems they were sent October 20th and they already have the report back from NJH. To say

I'm baffled is an understatement. I now need a culture; but nobody would do one before antibiotics were started and I am having too many problems to wait a week without treatment. Question here: If this microbe can survive 4 different antibiotics and continue to thrive, then why must I wait 7 days for a culture to be valid? The darn bug is as healthy as ever and should grow in abundance! FYI, antibiotics were, Leviquin, Augmenten, Doxycycline and Omnicef. The good news, I hope, is that I have an appt to see a pulmo here at last. It is a week from today. Meanwhile I am getting sicker by the day and, it seems, will need antibiotics before my seven days off antibiotics is complete. Looks like urgent care or my largely disinterested internist will have to do. I have a call in to him now. If anyone has any other suggestions I'm all ears. Looks like this is more of a complaint than inquiry as it seems, after writing this, that I am doing the

best I can for now. Still wonder about the biopsy slide thing and why they have not called. annPF, NSIP, HP, Bronchiectisis in five lobes, and who knows what next!

[Guest guest]

ann,

Any chance of diabetes? High sugar can cause UTI's Has anyone checked

for that.

Dyane Phoenix

>

> Greetings,

> I'm here to inquire and/or complain. I was seen at NJH October 8th and

9th. I was told they would send for my biopsy slides from University of

Tennessee and decide on a course of treatment when they had reviewed

them. To date I have not heard from them but to say they had not yet

received the slides. That was probably in October (memory fails me as I

didn't write it down). I already have my reports from them as to all

tests and recommendations.

>

> I've been in touch with them for advice about a URI that four courses

of different antibiotics has not covered. Dr. Hines said I needed a

culture while there twice but never did one. After talking to NJH this

morning I was told to call my Dr. and if that fails, go to urgent care

and let them know how I'm doing later in the week.

>

> So, I finally called UT pathology myself concerning the slides. It

seems they were sent October 20th and they already have the report back

from NJH. To say I'm baffled is an understatement. I now need a

culture; but nobody would do one before antibiotics were started and I

am having too many problems to wait a week without treatment. Question

here: If this microbe can survive 4 different antibiotics and continue

to thrive, then why must I wait 7 days for a culture to be valid? The

darn bug is as healthy as ever and should grow in abundance! FYI,

antibiotics were, Leviquin, Augmenten, Doxycycline and Omnicef.

>

> The good news, I hope, is that I have an appt to see a pulmo here at

last. It is a week from today. Meanwhile I am getting sicker by the

day and, it seems, will need antibiotics before my seven days off

antibiotics is complete. Looks like urgent care or my largely

disinterested internist will have to do. I have a call in to him now.

>

> If anyone has any other suggestions I'm all ears. Looks like this is

more of a complaint than inquiry as it seems, after writing this, that I

am doing the best I can for now. Still wonder about the biopsy slide

thing and why they have not called.

>

> ann

>

> PF, NSIP, HP, Bronchiectisis in five lobes, and who knows what next!

>

[Guest guest]

Hi Joyce and Dyane,

Antibiotics do help, at least three of them did. It comes back within a day or

two of finishing them.

I am mildly diabetic and do take Metformin for it. Being a retired L & D nurse I

am pretty well able to follow the symptoms, apply logic and come up with a

conclusion but not this time!

I read that Bronchiectisis complicated with infections that are on-going, is

treated with different drugs at higher doses over a longer period. Nobody gives

me enough to do anything but temporarily suppress it.

Looks like I'll be on the way to urgent care again today as my primary has not

returned my call or will return it at 6pm. I am feeling worse by the minute so

need help before then. I'm not sure how I'd justify showing up in ER with

urgent care available. I'd feel kind of silly? If I can get a bandaid fix that

will last me until Monday I'll see the new guy and need you all to keep your

fingers crossed that he is a good one!!!

You know, it isn't this disease that is killing me. It's the lousy medical care

I have had since moving here. Yep! I'm mad!

ann

>

>

>

> Subject: National Jewish Hospital

> To: Breathe-Support

> Date: Monday, December 14, 2009, 12:40 PM

>

>

>  

>

[Guest guest]

God forbid you should actually know your own body! What are you

thinking!!

My wonderful internist asked why I went somewhere else for my annual pap

( I go to a all women doctors clinic) and I told him when he went thru

menopause he could do it. He laughed and said I had him there.

I refuse to be treated like an idiot and they usually don't like that do

they. Here's hoping you get something strong enough to help.

Dyane Phoenix

> >

> >

> > From: smoo mikefergg@

> > Subject: National Jewish Hospital

> > To: Breathe-Support

> > Date: Monday, December 14, 2009, 12:40 PM

> >

> >

> > Â

> >

>

[Guest guest]

ann, What can you tell me about bronchiectasis? That's the latest that the local pulmo told me I had today. ARRRG! I just want a definitive diagnosis.Kathy Now I don't know what I haveSubject: Re: National Jewish HospitalTo: Breathe-Support Date: Monday, December 14, 2009, 12:35 PM

Hi Joyce and Dyane,

Antibiotics do help, at least three of them did. It comes back within a day or two of finishing them.

I am mildly diabetic and do take Metformin for it. Being a retired L & D nurse I am pretty well able to follow the symptoms, apply logic and come up with a conclusion but not this time!

I read that Bronchiectisis complicated with infections that are on-going, is treated with different drugs at higher doses over a longer period. Nobody gives me enough to do anything but temporarily suppress it.

Looks like I'll be on the way to urgent care again today as my primary has not returned my call or will return it at 6pm. I am feeling worse by the minute so need help before then. I'm not sure how I'd justify showing up in ER with urgent care available. I'd feel kind of silly? If I can get a bandaid fix that will last me until Monday I'll see the new guy and need you all to keep your fingers crossed that he is a good one!!!

You know, it isn't this disease that is killing me. It's the lousy medical care I have had since moving here. Yep! I'm mad!

ann

>

>

> From: smoo <mikefergg@. ..>

> Subject: National Jewish Hospital

> To: Breathe-Support@ yahoogroups. com

> Date: Monday, December 14, 2009, 12:40 PM

>

>

> Â

>

[Guest guest]

dyanne

i think a uri is upper respiratory infection

uti is urinary track infection, and yes when i had one last year, they made the diabetes diagnosis

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: National Jewish HospitalTo: Breathe-Support Date: Monday, December 14, 2009, 2:53 PM

ann,Any chance of diabetes? High sugar can cause UTI's Has anyone checkedfor that.Dyane Phoenix>> Greetings,> I'm here to inquire and/or complain. I was seen at NJH October 8th and9th. I was told they would send for my biopsy slides from University ofTennessee and decide on a course of treatment when they had reviewedthem. To date I have not heard from them but to say they had not yetreceived the slides. That was probably in October (memory fails me as Ididn't write it down). I already have my reports from them as to alltests and recommendations.>> I've been in touch with them for advice about a URI that four

coursesof different antibiotics has not covered. Dr. Hines said I needed aculture while there twice but never did one. After talking to NJH thismorning I was told to call my Dr. and if that fails, go to urgent careand let them know how I'm doing later in the week.>> So, I finally called UT pathology myself concerning the slides. Itseems they were sent October 20th and they already have the report backfrom NJH. To say I'm baffled is an understatement. I now need aculture; but nobody would do one before antibiotics were started and Iam having too many problems to wait a week without treatment. Questionhere: If this microbe can survive 4 different antibiotics and continueto thrive, then why must I wait 7 days for a culture to be valid? Thedarn bug is as healthy as ever and should grow in abundance! FYI,antibiotics were, Leviquin, Augmenten, Doxycycline and Omnicef.>> The good news,

I hope, is that I have an appt to see a pulmo here atlast. It is a week from today. Meanwhile I am getting sicker by theday and, it seems, will need antibiotics before my seven days offantibiotics is complete. Looks like urgent care or my largelydisinterested internist will have to do. I have a call in to him now.>> If anyone has any other suggestions I'm all ears. Looks like this ismore of a complaint than inquiry as it seems, after writing this, that Iam doing the best I can for now. Still wonder about the biopsy slidething and why they have not called.>> ann>> PF, NSIP, HP, Bronchiectisis in five lobes, and who knows what next!>

[Guest guest]

yesterday i kept saying "if it weren't for the pulmonary fibrosis, i wouldn't be in the ER"

i also kept saying that since i didn't get the H1N1 the pulmonary doc recommended a flu test

the er did blood work, nasal swab, chest x=ray

received two breathing treatments and high dose of steriod in an iv solution

it has made a difference

in the meantime, pulmonary prescribed z pack

and

er prescriber albuteral inhaler with a spacer

glad i went even though it would be silly if i didn't have the monster

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: National Jewish HospitalTo: Breathe-Support Date: Monday, December 14, 2009, 3:35 PM

Hi Joyce and Dyane,Antibiotics do help, at least three of them did. It comes back within a day or two of finishing them. I am mildly diabetic and do take Metformin for it. Being a retired L & D nurse I am pretty well able to follow the symptoms, apply logic and come up with a conclusion but not this time! I read that Bronchiectisis complicated with infections that are on-going, is treated with different drugs at higher doses over a longer period. Nobody gives me enough to do anything but temporarily suppress it. Looks like I'll be on the way to urgent care again today as my primary has not returned my call or will return it at 6pm. I am feeling worse by the minute so need help before then. I'm not sure how I'd justify showing up in ER with urgent care available. I'd feel kind of silly? If I can get a bandaid fix that will last me until Monday I'll see the new guy and need you all to keep your fingers crossed that he

is a good one!!!You know, it isn't this disease that is killing me. It's the lousy medical care I have had since moving here. Yep! I'm mad!ann> > > From: smoo <mikefergg@. ..>> Subject: National Jewish Hospital> To: Breathe-Support@ yahoogroups. com> Date: Monday, December 14, 2009, 12:40 PM> > > Â >

[Guest guest]

besides, the goal is to prevent pneumonia

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: National Jewish HospitalTo: Breathe-Support Date: Monday, December 14, 2009, 3:35 PM

Hi Joyce and Dyane,Antibiotics do help, at least three of them did. It comes back within a day or two of finishing them. I am mildly diabetic and do take Metformin for it. Being a retired L & D nurse I am pretty well able to follow the symptoms, apply logic and come up with a conclusion but not this time! I read that Bronchiectisis complicated with infections that are on-going, is treated with different drugs at higher doses over a longer period. Nobody gives me enough to do anything but temporarily suppress it. Looks like I'll be on the way to urgent care again today as my primary has not returned my call or will return it at 6pm. I am feeling worse by the minute so need help before then. I'm not sure how I'd justify showing up in ER with urgent care available. I'd feel kind of silly? If I can get a bandaid fix that will last me until Monday I'll see the new guy and need you all to keep your fingers crossed that he

is a good one!!!You know, it isn't this disease that is killing me. It's the lousy medical care I have had since moving here. Yep! I'm mad!ann> > > From: smoo <mikefergg@. ..>> Subject: National Jewish Hospital> To: Breathe-Support@ yahoogroups. com> Date: Monday, December 14, 2009, 12:40 PM> > > Â >

[Guest guest]

Hi again and thanks for all the input. When the doc says, " You know your body

better than I do, " that is when I know they are clueless as to what I have and

what to do with it. They then usually just Rx whatever I ask for.

Kathy, I wasn't told I had bronchiectasis until I recently got a copy of my

records (2004) and read them. Then the CT scan from Jewish made note of it.

Nobody has ever mentioned it even when treating a URI. The best thing I have

found so far includes the cystic fibrosis kind which we don't have but also

gives lots of basic info on cause and treatment on the garden variety. The site

is:

http://www.merck.com/mmpe/sec05/ch054/ch054a.html

Joyce, It sounds as if a trip to ER could be productive! Went to Urgent Care

this afternoon and got right in. The doc was older than me (68)! WOW! He

laughed when I told him my bronchiectisis was idiopathic. He said he just

thought that meant that they (docs) were idiots! I laughed at that one. Some

truth there.

Anyway, I got an antibiotic that will last until I see the new pulmo so I'll

live. Sure is nice to have a place to unload!

MIchaelann

[Guest guest]

OD strikes again, that is what I call a " dumb bunny " mistake.oops

Thanks Joyce

Dyane

> >

> > Greetings,

> > I'm here to inquire and/or complain. I was seen at NJH October 8th and

> 9th. I was told they would send for my biopsy slides from University of

> Tennessee and decide on a course of treatment when they had reviewed

> them. To date I have not heard from them but to say they had not yet

> received the slides. That was probably in October (memory fails me as I

> didn't write it down). I already have my reports from them as to all

> tests and recommendations.

> >

> > I've been in touch with them for advice about a URI that four courses

> of different antibiotics has not covered. Dr. Hines said I needed a

> culture while there twice but never did one. After talking to NJH this

> morning I was told to call my Dr. and if that fails, go to urgent care

> and let them know how I'm doing later in the week.

> >

> > So, I finally called UT pathology myself concerning the slides. It

> seems they were sent October 20th and they already have the report back

> from NJH. To say I'm baffled is an understatement. I now need a

> culture; but nobody would do one before antibiotics were started and I

> am having too many problems to wait a week without treatment. Question

> here: If this microbe can survive 4 different antibiotics and continue

> to thrive, then why must I wait 7 days for a culture to be valid? The

> darn bug is as healthy as ever and should grow in abundance! FYI,

> antibiotics were, Leviquin, Augmenten, Doxycycline and Omnicef.

> >

> > The good news, I hope, is that I have an appt to see a pulmo here at

> last. It is a week from today. Meanwhile I am getting sicker by the

> day and, it seems, will need antibiotics before my seven days off

> antibiotics is complete. Looks like urgent care or my largely

> disinterested internist will have to do. I have a call in to him now.

> >

> > If anyone has any other suggestions I'm all ears. Looks like this is

> more of a complaint than inquiry as it seems, after writing this, that I

> am doing the best I can for now. Still wonder about the biopsy slide

> thing and why they have not called.

> >

> > ann

> >

> > PF, NSIP, HP, Bronchiectisis in five lobes, and who knows what next!

> >

>