Re: Getting to know you questions-H

[Guest guest]

Hi there... I mostly keep a back seat and read the

activity but chime in when I have questions. My

daughter will be seen for genetic testing on the 17th.

We willhave a long talk with the geneticist about

family history and all that jazz. We are being seen

thru the shriners hosiptal in Greenville SC. I was

monitored weekely while pregnant with .. and has

several tests ran on us both. None of them came back

with anything... so I don't know what else they can

get from us. We all love testing don't we?

thanks

--- advocate22003 wrote:

> - when you mentioned running tests - who

> are they being

> held through? Have you seen a geneticist yet? I

> suppose I'm

> probably asking questions that may have already been

> asked - I'm old

> and a little forgetful. <grin>

>

> - H

>

>

> >

> > Hello everyone,

> >

> > I'm at the beginning of this journey. As some of

> you

> > know My baby is 4 months old and is 9

> pounds. We

> > are having tests run later this month to find out

> what

> > is wrong. All of her physical problems seem to

> point

> > to RSS. She's smaller on the right side, big

> forehead,

> > blue whites of eyes, and low birth weight. But I

> was

> > reading in some of your getting to know you

> answers..

> > that y'all started GH around year 1 or 2. I always

> > thought GH didn't start till maybe age 3.

> Anyway...

> > This is making me want to know RIGHT NOW what

>

> > has so I can help her out. Also in some of your

> > answers you mentioned a problem during pregnancy.

> What

> > was that? IUG? IGU? I was monitored 2 times each

> week

> > and was wondering if I has some of the same

> things.

> >

> > Thanks in advance,

> > Pickett

> >

> >

> >

> > __________________________________

> > Yahoo! FareChase: Search multiple travel sites in

> one click.

> > http://farechase.yahoo.com

> >

>

>

>

>

>

__________________________________

Yahoo! Mail - PC Magazine Editors' Choice 2005

http://mail.yahoo.com

[Guest guest]

Hi ,

Did have the chomosome 7 testing done yet? Apparently it is

only less than 10% of RSS kids that show this but maybe that's what

they are doing. Our old Ped did a Fragile X test that was negative.

It's hard to say. If there's other things I'm sure that someone will

speak to it.

Good luck with your apt.

Dawna

> > >

> > > Hello everyone,

> > >

> > > I'm at the beginning of this journey. As some of

> > you

> > > know My baby is 4 months old and is 9

> > pounds. We

> > > are having tests run later this month to find out

> > what

> > > is wrong. All of her physical problems seem to

> > point

> > > to RSS. She's smaller on the right side, big

> > forehead,

> > > blue whites of eyes, and low birth weight. But I

> > was

> > > reading in some of your getting to know you

> > answers..

> > > that y'all started GH around year 1 or 2. I always

> > > thought GH didn't start till maybe age 3.

> > Anyway...

> > > This is making me want to know RIGHT NOW what

> >

> > > has so I can help her out. Also in some of your

> > > answers you mentioned a problem during pregnancy.

> > What

> > > was that? IUG? IGU? I was monitored 2 times each

> > week

> > > and was wondering if I has some of the same

> > things.

> > >

> > > Thanks in advance,

> > > Pickett

> > >

> > >

> > >

> > > __________________________________

> > > Yahoo! FareChase: Search multiple travel sites in

> > one click.

> > > http://farechase.yahoo.com

> > >

> >

> >

> >

> >

> >

>

>

>

>

>

> __________________________________

> Yahoo! Mail - PC Magazine Editors' Choice 2005

> http://mail.yahoo.com

>

[Guest guest]

Oooops sorry I just realized that you and H were having a

conversation that I just horned in on ... sorry bout that!

Dawna

> > > >

> > > > Hello everyone,

> > > >

> > > > I'm at the beginning of this journey. As some of

> > > you

> > > > know My baby is 4 months old and is 9

> > > pounds. We

> > > > are having tests run later this month to find out

> > > what

> > > > is wrong. All of her physical problems seem to

> > > point

> > > > to RSS. She's smaller on the right side, big

> > > forehead,

> > > > blue whites of eyes, and low birth weight. But I

> > > was

> > > > reading in some of your getting to know you

> > > answers..

> > > > that y'all started GH around year 1 or 2. I always

> > > > thought GH didn't start till maybe age 3.

> > > Anyway...

> > > > This is making me want to know RIGHT NOW what

> > >

> > > > has so I can help her out. Also in some of your

> > > > answers you mentioned a problem during pregnancy.

> > > What

> > > > was that? IUG? IGU? I was monitored 2 times each

> > > week

> > > > and was wondering if I has some of the same

> > > things.

> > > >

> > > > Thanks in advance,

> > > > Pickett

> > > >

> > > >

> > > >

> > > > __________________________________

> > > > Yahoo! FareChase: Search multiple travel sites in

> > > one click.

> > > > http://farechase.yahoo.com

> > > >

> > >

> > >

> > >

> > >

> > >

> >

> >

> >

> >

> >

> > __________________________________

> > Yahoo! Mail - PC Magazine Editors' Choice 2005

> > http://mail.yahoo.com

> >

>

[Guest guest]

- Glad to know you are out there! <grin> I was asking the

Geneticist question only because you will probably feel more

confident after this meeting about a possible diagnosis for your

daughter. My dh, myself and Ian all had genetic testing done to

rule out UPD7 - which came back negative. But, Ian was still

diagnosed with RSS. Honestly, she took one look at Ian and knew

right away. Anyway, I hope either way that you will get some

answers. Keep us posted. Hugs to .

- H

> > >

> > > Hello everyone,

> > >

> > > I'm at the beginning of this journey. As some of

> > you

> > > know My baby is 4 months old and is 9

> > pounds. We

> > > are having tests run later this month to find out

> > what

> > > is wrong. All of her physical problems seem to

> > point

> > > to RSS. She's smaller on the right side, big

> > forehead,

> > > blue whites of eyes, and low birth weight. But I

> > was

> > > reading in some of your getting to know you

> > answers..

> > > that y'all started GH around year 1 or 2. I always

> > > thought GH didn't start till maybe age 3.

> > Anyway...

> > > This is making me want to know RIGHT NOW what

> >

> > > has so I can help her out. Also in some of your

> > > answers you mentioned a problem during pregnancy.

> > What

> > > was that? IUG? IGU? I was monitored 2 times each

> > week

> > > and was wondering if I has some of the same

> > things.

> > >

> > > Thanks in advance,

> > > Pickett

> > >

> > >

> > >

> > > __________________________________

> > > Yahoo! FareChase: Search multiple travel sites in

> > one click.

> > > http://farechase.yahoo.com

> > >

> >

> >

> >

> >

> >

>

>

>

>

>

> __________________________________

> Yahoo! Mail - PC Magazine Editors' Choice 2005

> http://mail.yahoo.com

>

[Guest guest]

Dawna - LOL - nothing is private on the listserve! No need to be

sorry. It's nice to see the interest!

Hugs.

- H

> > > > >

> > > > > Hello everyone,

> > > > >

> > > > > I'm at the beginning of this journey. As some of

> > > > you

> > > > > know My baby is 4 months old and is 9

> > > > pounds. We

> > > > > are having tests run later this month to find out

> > > > what

> > > > > is wrong. All of her physical problems seem to

> > > > point

> > > > > to RSS. She's smaller on the right side, big

> > > > forehead,

> > > > > blue whites of eyes, and low birth weight. But I

> > > > was

> > > > > reading in some of your getting to know you

> > > > answers..

> > > > > that y'all started GH around year 1 or 2. I always

> > > > > thought GH didn't start till maybe age 3.

> > > > Anyway...

> > > > > This is making me want to know RIGHT NOW what

> > > >

> > > > > has so I can help her out. Also in some of your

> > > > > answers you mentioned a problem during pregnancy.

> > > > What

> > > > > was that? IUG? IGU? I was monitored 2 times each

> > > > week

> > > > > and was wondering if I has some of the same

> > > > things.

> > > > >

> > > > > Thanks in advance,

> > > > > Pickett

> > > > >

> > > > >

> > > > >

> > > > > __________________________________

> > > > > Yahoo! FareChase: Search multiple travel sites in

> > > > one click.

> > > > > http://farechase.yahoo.com

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > >

> > >

> > >

> > >

> > >

> > > __________________________________

> > > Yahoo! Mail - PC Magazine Editors' Choice 2005

> > > http://mail.yahoo.com

> > >

> >

>