Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 Hi, hope this finds you all well! Sorry it has been so long. I just wanted to give an update on Hannah. She is now 4 1/2 and is in a k 4 class. She has been sick lately with some intestinal bug. I had to take her to the hospital on Monday because I couldn't keep her blood sugars above 55. She returned home after a short stay and seems to be doing a little better (although she was 52 this am 2 hours after a Pediasure). She and Braxton both just got over pneumonia about 1 month ago. She started Norditropin about 3-4 months ago and is growing at a fantastic rate. Her growth velocity is more than 125% better than it was prior to starting GH and she has grown 3 inches!!! She is now 37 inches (just barely below the 1st percentile) and DID weigh 30 pounds (she is back to 27 this am - UGH!) Her endo is thrilled and is enrolling her in a study that Norditropin is conducting that will help once again prove that RSS/SGA kids can grow on GH. The study is not specifically designed for RSS/SGA kids but it will itemize the details at the end to see what children had which particular gowth disorder. She just got new braces for her feet-this is her 3rd pair and now has to patch her eye because of her strabismus (eye crossing) and just got her new glasses...They are soo cute! She had surgery on both eyes, tubes, and adnoids in September and now will need surgery on both eyes again in the next 3-4 months. She loves school and is doing great. She was very developmentally delayed and has caught up in everything except her OT goals because of her fine motor skills (ie: trouble using scissors and things of that nature. Our life as always has been very busy and we are going to try to come up with some fundraising ideas to make it to convention this year. Hope you all are doing well! Jordan (Mom to one tough little kid!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 hey alicia!! that is just awesome!!!! glad to hear things are going so well, except of course her recent illness!! ((HUGS)) hope to see you in july!!! jodie c Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 , So glade to hear that Hannah is doing well. I look foward to spending time together again at convention. Give her a hug from Madison Chrissy Mom to Louis 6 Madison 4 RSS Shane 2 1 Quote Link to comment Share on other sites More sharing options...
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