Re: Hi Jill, been reading, I think we have a lot in common, but tell me more

[Guest guest]

Hello,

Got your email, lets see if I can sum this up quick..

July 30 2004 surgery #1 lefort 1 and genio, notice yellow infection coming from

upper gums, bad taste..on antibiotics..4 fistulas developed in each side of gums

Aug 10th 2004 surg #2 surgeon messed up my bite terrible, infection continue,

and fisutulas

started notice kin of lat mouth and no teeth showing, felt like bones were

shooved into eyes..

Jan 3 2005 surgery #3 plates were broken in half, still had 3 fistulas and

tasted infection

March upper jaw moved a little..and teeth had shifted up...noticed know of side

on nose next to my right eye..placed on antibiotic

OS said just to keep eye on things, surgeon refused CAT scan or culture of

infection

June 2005 cadiver bone coming from upper right gum , carterized fistulas..placed

on antibiotic again, went to see another surgeon(Dr W)..he said infection in

sinuses (panoramic xray), finally my first surgeon said I believe you are

breaking these plate due to grining your teeth at night (which he knew from the

beginning, I grinded my teeth)..said he would make me a bite guard..never heard

back from him since that day..saw another surgeon(Dr R)) and most current one

that I have used, he ordered CT SCAN 100% BOTH SINUSES INFECTED, STARtED

ANTIBIOTIC x1MONTH, WENT TO INFECTIOUS DISEASE DR..started hyberparic chamber

treatment 20 visit at 2 hrs each,and $1,500 each visit..I had $50 co pay each

visit

Surgery #4 Oct 6th, all infection gone, plates broken, redid lefort 1 and broke

lower jaw to help upper jaw heal, wired shut this time, bone graft from my left

hip to use my own bone..started hyperbaric chamber treatment again..10 visit

total post op, 2 hrs each visit..knot again on side of nose, surgeon said it the

bone plate that bent up, he numbed me and trind bending it down, no success,

said let things heal first

I had 2 week post op Dr visit today, healing well, no sign of infection, I only

have 2 hyperbaric treaments left out of the 10 I had to d opost op...informed

that in prob 2 weeks get unwired and use bands..maybe 3 weeks at the most, and

said that in 3 months he will sedate me in office and make small incision in one

spot of gums and bend the plate down, probably to lip augmentation then

too..upper lip is thinned..teeth look great...bite is perfect, teeth are

straight....

had these braces on 2 years..should have been off long time ago if the other

surgeries were a success..I also had them when I was 17 yrs old...

thats my story so far....

I hope things go well with you..good luck

Jill

jfloweroflifet wrote:

HI Jill,

Was reading your posts a bit and thought oh my we need to talk.

I have had 2 surgies...Aug 04 upper (8-9mm up and back) and genio-banded closed

3.5 weeks... (I also had a deviated septum and MANY large sinus polyups that he

corrected/removed) went great physically and visually..........and then pushed

out a screw and big pain forced me to get them and the plates out in May 05.

When I did, I healed and felt like Ahhh they're out. They always felt foreign,

especially the ones high up on my nose right where my glasses would sit.

AND THEN...

I went camping upstate NY, cold wet weekend...and it started. BIG pain

again...but thing was it felt psuedo-sinus like...and I thought change of

season, allergies/asthma...and the cold was why...but nope...it still goes on

with or w/o rain...etc...

so what to do?

Had a catscan (whole time talking w/my OS...who I both like and trust)...3D. It

is cool to look at but report said NOTHING bad. Still pain. So...we're not sure.

Thinks he sees a possible Non-union on the upper left side. TROUBLE.

We spoke and decided I would go to an ENT...went last nt, to check on my

sinuses...see, I feel like a bad sinus infection w/o bad mucus. Swellinng on the

apple of my left cheek, and numbness there and around, plus my upper feels weird

wehn I scrunch my face like eeeew what's the smell-face...I feel it up to my

eye...and then there's the pain and the headaches...sensitivity to light (like

now I am squinting bec it's darkish outside and the florescents are sooo

much)...

seems that my sinuses are A-ok. No infection or inflamation. so good, but is it?

So now, back to still being in pain, swollen and with out answers.

I AM SUPER concerned about going back in...having one cut from upper left to

right-slicing nerves AGAIN...3 times in about a yr and a few mths?! concerned

about scar tissue, and we're talking that if it's a non-union replacing the

plates we remved! But with disolving plates (in abotu 2mths they go

Poof!)...which long haul sounds nice, but who knows....

The minor issues is work -not going to be good to take off again,but more so, I

am a recruiter and speak for A LOT of my position...and honestly with the

swelling and new or returned numbess, I am not always speaking well.

PLUS------I have to get permanent retainers on upper AND lower prior to any

surgery...to be sure I don't loose all my work...but my lowers have moved

already, trying to get diagiional from front to back again...and my bite doesn't

close as it should...or did...I shifted some. So the retainers start mid

november...looks like Happy Holidays! geez..........

I have so many questions and am not a new-be...but I don't know that anyone can

answer them...like the nerves, the strain on my body to be under 4 times in 2

yrs (another unrelated surgery), the scar tissue thing-and is something pushing

on something that I have this pain and nubness, swelling? What about these

disolving things?

I want to do this right...Said that from the start-do whatever it takes as long

as it's once -they don;'t gp back to how they were and (more-as I had broken my

jaw in college and was wired then too...so come on, give a girl a break!)...now

we're looking at another?

Thoughts?

info about these issues...?

and do I even do this...I HATE EXPLORITY SURGERY!

(an orthopedist wanted to open my knees in college to look around...I ONLY

NEEDED P/Therapy...it was muscular...scared me then and scares me still...I know

my OS is not at all like that dr, but why can't we know more before we drug me

under, cut and try to heal AGAIN?

thanks y'all!

I LOVE YOU GUYS...when no one else gets it...YOU DO.

THis is our lives 24/7...and when it's pain 23/7 it's not something you wnt to

keep talking about but want to talk abotu to stop it.

Jill tell me how you're onto 3 or 4 too? second OS...???!

jo